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Spina Bifida Association of Greater New England

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Health, Nerve, Muscle & Bone Diseases

Mission: The mission of the Spina Bifida Association of Greater New England is to build a better and brighter future for all those impacted by Spina Bifida. We do that through community building, direct support, education, awareness, and advocacy.

Target demographics: Individuals and families living with Spina Bifida

Geographic areas served: All 6 New England states

Programs: We offer social, eductional, and direct support programming for children, teens, and adults with Spina Bifida, as well as programs for parents and families. We support 8 clinics and medical programs across New England.

Community Stories

8 Stories from Volunteers, Donors & Supporters

Board Member

Rating: 5

SBAGNE means so much to me as an adult with Spina Bifida. I was involved as a child with my family, then got involved again as a young adult. The opportunities for mentorship, advocacy, and community outreach is amazing. It is so meaningful to be able to establish connections with other individuals with Spina Bifida. The friendships I've made are ones that will last a long time. As a Board Member, I've been able to expand on my leadership skills and become even deeply more involved in the broader Spina Bifida community. For that, I am so thankful.

Board Member

Rating: 5

Amy Bois-I could not be more proud to serve as Chair of the Board of Spina Bifida of Greater New England. I see first hand how much we impact the lives of our members. My son Tyler 15 loves the teen empowerment program as it brings together tweens, teens, mentors & parents for a weekend to have fun! We have met so many wonderful people through yearly events & have developed lasting relationships. I am very proud of our recent Fashion Show where we collaborated with SBANEY to have our members model clothing from adaptive clothing brands. This brought people together during a time when spirits needed to be lifted up.

1

Board Member

Rating: 5

SBAGNE is a tremendous organization that exists to serve a population that is often in need of support, resources, information, and companionship. I've greatly enjoyed my 10+ years as a board member and am grateful for the organization and the tremendous purpose it serves. As an adult with spina bifida, I couldn't be more proud of where the is today and the effectiveness of the entir eorganization.

Brendan Sullivan

1

Board Member

Rating: 5

Having been associated with SAGNE now for 7 years I can sincerely say the resources and activities they provide to the SB community are fantastic. The things they accomplish for a small non profit are amazing. They continue to have my support. JW

1

Client Served

Rating: 5

We are so grateful for SBAGNE and the wonderful services they provide. As a mother to a young child who was born with spina bifida, this organization is so valuable to us. They have connected us to so many families who have become lifelong friends. It is so important for my daughter to meet others with similar challenges and for me to connect with other parents. We are also so thankful for the educational resources they provide

1

Board Member

Rating: 5

As a person with Spina Bifida, SBAGNE has been an amazing resource for information, activities and support. I have learned a lot that I had no idea about or things that existed for me to take part in. I can't imagine my life without their support.

1

Volunteer

Rating: 4

Tell your story here and help others understand this charity Even though we live in Maine this organization has welcomed us with open arms. We worked to help raise money for them a few weeks ago and had a great time at the walk raising awareness and meeting other families. They are working with some families in Maine to start a regional group to help other families in Northern New England.

8

Client Served

Rating: 5

Provides education and support services for adults & children with spina bifida. Offers annual benefit to help pay for equipment that is not covered by insurance. Great way to meet people who also have spina bifida. Contacts greatly help assist with medical & education decision making.