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Special Kids, Special Care Inc.

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Nonprofit Overview

Causes: Health, Mental Health

Mission: Providing essential health and education support services to diverse families of premature and medically fragile at-risk infants and their healthcare providers OUR GOAL: Families of premature and medically fragile at-risk infants and young children are connected with community support services, confident and capable in the care of their child, have access to developmental follow-up parent education and support from knowledgeable and experienced healthcare and education professionals, especially families who face health disparities.

Results: Family Support Programs: Goal: Families, in need, receive financial support grants for infant cribs, respite care, infant supplies for health, safety and development to reduce infant mortality and promote safe sleep, reduce maternal stress, and support infant safety, health, and development. Since 2016, we have provided over 120 family support grants to families in need whose baby was in the NICU. Most families receive Medicaid or have no insurance. In 2017 40% of the families were White non-Hispanic, 24% were White Hispanic, 20% were Black/African American, and 16% were “other.” Workforce Capacity Building: (Professional Education): Goal: Families receive evidenced-based, individualized care from healthcare providers that support positive parent-child relationships and promotes the health, development and social-emotional needs of premature and medically fragile at-risk infants. Over thirty-five programs have been provided to over 1,755 participants since 2013. Seventeen of these programs were available by Webinar across the state without charge to the participants, and are available on the website. NICU Consortium Partnership: Goal: Families of infants transitioning home from the NICU will experience a coordinated system of discharge and follow up so that they are connected with community resources. Since 2013 the NICU Consortium Partnership has increased from 6 local public health agency staff to over 800 healthcare providers from early intervention,

Target demographics: and provide support and resources for families of babies who have been discharged from the NICU

Direct beneficiaries per year: Family Support Grants and sleep sacs provided to 452 families. 12 Professional education programs regarding the care of premature, medically fragile and at-risk infants and young children were attend by over 200 participants.

Geographic areas served: Colorado

Programs: Family Support Grants that provide infant sleep sacs, infant cribs and safe sleep parent information to prevent sudden infant death syndrome, respite care, in-home lactation support, and other infant supplies and equipment needed by families in the first year of life. Personal assistance connecting families to local community resources. Professional evidenced based education programs for health care and early education providers so that families have access to knowledgeable and experienced providers who understand the unique needs of families of premature, medically fragile and at-risk infants and young children. NICU Consortium Partnership has brought together health and education providers across disciplines, agencies including hospitals, and community organizations to promote a system of discharge and follow-up for infants and their families who are transitioning from the NICU to their home and community. Three Interdisciplinary Institutes have been provided since 2013 attended by 100 to the most recent Institute attended by over 150. The 2018 Institute focused on the mental health needs of families whose baby was in the NICU or who faced medical challenges with their baby as well as the mental health needs of their health care providers.

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