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- EIN 31-1527065
- (937) 298-8000
- 11 W Monument Ave 605 Dayton OH 45402-1274 USA
- www.swohiohemophilia.org
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Nonprofit Overview
Mission: The organization helps improve the quality of life for those affected by hemophilia, von willebrand disease, and other bleeding disorders by providing support, education, networking, advocacy and services to individuals, their families and the community.
Programs: Improve the quality of life for those affected by hemophilia, von willebrand disease, and other bleeding disorders by providing support, education, networking, advocacy and services to individuals, their families and the community
program activities include an annual business meeting with review of financial reports, a board president report to the organization, an update from the dayton children's hemophilia treatment center, as well as information regarding legislation presented by the ohio bleeding disorders council state advocacy chairman. This meeting also recognizes our 75 volunteers. In the summer, we organize a family fest at an area camping/retreat center. This is a family-centered weekend filled with educational seminars, inspirational speakers and family activities. We served 30 families at this 3-day retreat. Our fall outing is a program that encourages networking, communication and connection in context of fun family activities in which we served 120 individuals.
newsletter - swohf provides relevant information to the blood disorder community, donors and other interested parties about foundation activities, treatment advances and current events, legislation and available resources.