Second Wind Lung Transplant

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Nonprofit Overview

Causes: Civil Rights, Disabilities, Disabled Persons Rights, Health, Lung Diseases, Philanthropy, Private Grantmaking Foundations

Mission: The second wind lung transplant association of st. Louis is a 501(c)(3) non-profit organization devoted to improving the quality of life for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns, and their families by providing support, advocacy, education, information and guidance through a spirit of service.

Community Stories

8 Stories from Volunteers, Donors & Supporters

Mis V. Volunteer

Rating: 5

07/25/2015

I am waiting on getting a Double Lung Transplant and my surgery is going to be at UCSF and i am having a hard time getting 10,000 dollars i was told with out the money that I wouldn't be put on the list due to not having the money is there any where that i can get a grant or money donated to me in any chance its been a rough ride for me I am very young I am 29 and i have been fighting for 15 years i really really need help and support to raise the money for my Double Lung Transplant can anybody help me out i also just started a gofund me account
gofundme.com/z29yek can somebody please help me as much as you can

1

Grandma Jan General Member of the Public

Rating: 5

10/31/2010

My husband received a double lung transplant 4 years ago at Barnes-Jewish Hospital in St. Louis. We (I am his caregiver so it is WE) started the process with many trips from our home in Central Illinois to "qualify" for the transplant list. The attention from Second Wind members made the pre-transplant time much easier and when the actual "gift" came we all celebrated together. The Second Wind meetings help all realize that there is emotional, finacial and physical help if needed. My husband has chronic rejection and returns frequently for Photopheresis treatments. We meet with local members and anyone who is in town for medical updates for dinner and a long, warm social time. I always feel like we have been with family. Being a caregiver can be a very lonely time. Second Wind closes that gap.

timbelford Client Served

Rating: 5

10/29/2010

I received a double lung transplant in July of 2006. I joined Second Wind of St. Louis right before surgery and have been a member since. Not working due to my illness, I had to relocate to St. Louis to wait for the transplant. This took a heavy toll on my family's budget draining most all of our savings. I'm four years down the road from my surgery and I'm currently in chronic rejection of my lungs. After surgery, everyone is on some very expensive medications to stay alive. I also receive a treatment each month that helps reduce my rejection. Second Wind of St. Louis helps me with gas money to travel to this treatment which is over 100 miles from my home. They have been there for me since day one. This one kind jesture by Second Wind has helped my family tremendously with our budget in these trying financial times. Without them, I would not be able to take this important treatment. I have a lot of great friends in the St. Louis chapter of Second Wind. They have become part of my family, so to speak. Their support, whatever that may be, is always there.

Kami F. Volunteer

Rating: 5

10/29/2010

Second Wind the name says a lot. But what some do not know is the way they go out of their way to ensure that each person has a safe and comfortable stay when they have dr appts which include overnight stays, sedations that come along with ct's and PET scans, not to mention starting new meds that require one to be close to the hospital. Some people do not understand that the cost itself to stay overnight in a hotel can become expensive, but for transplant families as well as for families with any illness that are in hospitals 3, 4, 5 or more times monthly. Second Wind helps to take the burdens off these families and gives them someone they can ask for help when the time arises. Thank You Second Wind!!

cwefrank Donor

Rating: 5

10/29/2010

Secnd Wind Transplant is one of my favorite charities. It provides absolutely necessary material support for persons waiting for lung transplants. The waiting period can be long and it is often necessary for transplant candidates to pick up stakes and move near the transplant center so as to be available when and if the call comes. I know of people living in Winnebagos on the parking lot of the transplant center here.. Not surprisingly, these hopeful yet very ill people need support that is simply not available to them through conventional public support systems. Second Wind receives applications for help, discerns and discusses work-around solutions and if necessary, provides cash. It has no overhead. All of its work is done by volunteers. Every dollar I give Second Wind I know goes to people who are really in need and whose urgent needs would not otherwise be met.

fentonac Board Member

Rating: 5

10/28/2010

Second Wind Lung Transplant Association helps pre and post-transplant patients who need financial assistance during the long transplant journey. Last year Second Wind awarded $60,000. in assistance for pharmaceuticals, medical co-pays, lodging and transportation needs. This is an all volunteer organization. Operational expenses are kept to the bare minimum in order to maximize the organization's goal to help as many patients as possible.

Amanda H. Board Member

Rating: 5

10/27/2010

I was referred to Second Wind by a social worker at my hospital when I was having a difficult time paying for a piece of medical equipment after my second, double lung transplant. After providing a bit of information to the board of directors, I was given the assistance to pay for the piece of medical equipment was essential to a healthy recovery. Ever since that day, I’ve been dedicated to Second Wind and its mission to help those dealing with lung transplants. Second Wind also provides open support meetings for those needing personal support, which I have utilized on several occasions. This organization has become so important to me, that I have recently become one the board members. I’m so thankful for finding Second Wind and looking forward to a long future with the organization.

Review from Guidestar

amc5875 Board Member

Rating: 5

10/27/2010

St. Louis (STL) Second Wind is an entirely volunteer staffed organization. Every dollar raised or donated goes directly to the support lung transplant patients. The Second Wind Assistance Fund provides financial support to meet emergency needs for patientswho are pre and/or post transplant. Unlike many other organ transplants, those waiting for lungs must relocated to be near their transplant center - often for many months until a donor match is found. Even after transplant, the patient must remain near the center to be monitored and for phyical rehabilitation. All of this and maintaining their permanant homes often results in expenses that are beyond what can be met with their disabilty or family income. That's where STL Second Wind comes in - help with utilities, medication costs, travel expenses - there is a myriad of ways the The Assisatance Fund can provide relief to qualified lung transplant patients with unexpected or emergency costs. While most of the Board and membership is comprised of transplant patients and their families, there a a large number of people, myself included, that have become involved with STL Second Wind just because of the great work this organization does. And by being involved with STL Second Wind, I've been witness to miracle after miracle of new life through organ transplant.

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