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Save Babies Through Screening Foundation, Inc.

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Health, Medical Research, Pediatrics, Specifically Named Diseases

Mission: The mission of the Save Babies Through Screening Foundation is to improve the lives of children and their families, by working to prevent disabilities and death resulting from disorders detectable through newborn screening tests. The Foundation's goal is to see that every baby born in the United States is screened successfully, effectively, and comprehensively. Save Babies Through Screening Foundation educates parents, pediatric healthcare providers, and policy makers about available comprehensive newborn screening, the importance of obtaining positive or other test results requiring follow-up actions within 5 days of birth, and the importance of prompt confirmatory testing and treatment/management when needed.

Programs: Provide information and education to pediatric health care providers and parents about the importance of newborn screening

Community Stories

9 Stories from Volunteers, Donors & Supporters

Joe_26

Donor

Rating: 5

This foundation is the only non-profit dedicated solely to newborn screening and saves lives with their work.

Hazel R.

General Member of the Public

Rating: 5

We have only just started NBS in the UK. 15 years to late for my granddaughter Bridie who has GA1.. This is an amazing group and there are some wonderful ladies that give their time..

Jaimie H.

General Member of the Public

Rating: 5

My son had mito. That is how I met Jill Levy-Fitch. Who brought Save The Babies Through Screening into our world. I can not even begin to describe how much she did for our Mito community. This group and it's push for screening has saved a unknown number if children but I see a new story almost everyday on Facebook. This organization is one of the best ever.

Volunteer

Rating: 5

This foundation is an amazing group of people all working together to save lives.

Volunteer

Rating: 5

Save Babies Through Screening Foundation affected our family before I even heard of it. Because of the hard work of volunteers, newborn screening was mandatory when my son was born. He has a rare genetic disorder that if undetected could cause death. Without early detection, every area of development would have been negatively impacted. He started treatment when he was three days old and is now an active, healthy three year old.

Save Babies Through Screening Foundation has given me the opportunity to share my sons story with medical professionals. I have also have helped with some recent projects they are working on. The members are very supportive and I have made lifelong friends.

Anita10

Client Served

Rating: 5

Save Babies Through Screening Foundation, Inc. is an incredible non-profit agency. Not only do they educate and promote awareness about newborn screening, their advocacy volunteers generally care about others.
The network of volunteers and members personally helped my daughter locate a much needed neurosurgeon in a time of greatest need. Without the Save Babies Through Screening Foundation, Inc. many people would not be aware of newborn screening.

Client Served

Rating: 5

Both my children are affected by disorders that detected through newbornscreening; I first learned of the Save Babies Through Screening Foundation when our oldest was diagnosed with a metabolic disorder. At the time the website of the organization helped not only shed light about the disorder but also helped understand that we are not alone.

When our second daughter was born, Save Babies Through Screening Foundation has given me insight about additional private screen; without Save Babies Through Screening Foundation we would not have known that additional tests are available. The knowledge, help, and support the volunteers of the Save Babies Through Screening Foundation has offered to us as well as others has been unmatched.

This this organization through its programs, leadership , volunteers, and tireless work is beyond amazing!!! Thank you for all of your hard work!

Beate Weiss-Krull, Esq.

Kristine B.

Advisor

Rating: 5

I support Save Babies Through Screening Foundation because it's the only volunteer, parent-run organization advocating for newborn screening. SBTS works to make sure the parent voice is present and forceful. Thank you!

Laura119

Board Member

Rating: 5

I have been involved with the Save Babies Through Screening Foundation for almost 5 years, since my child's metabolic disorder was detected by birth through newborn screening.

SBTS provides more information and resources on newborn screening - completely free - than any other organization I have encountered. The entire organization, from Board members to advocates to just loyal supporters, are genuinely caring, kind people and I appreciate the opportunity I've had to work with them and know them.