In honor of my father who died from Esophageal Cancer before this group formed I volunteered for the 5K this year. The warmth and camaraderie that was everywhere was overwhelming. I saw people warmly greet each other and share stories and offer support just like an extended family.
They provided information and a community after my dad was diagnosed with esophageal cancer. They were an organization that provided comfort to my mom in a difficult time. They demonstrate nothing but care and compassion to those who share their story. All of my communication with Linda has been supportive and encouraging.
This organization was way out in front in waging the fight against esophageal cancer. Their organization has motivated groups throughout the country to raise money for EC research. The Salgi Foundation is the pioneer of raising awareness of EC.
This charity has been one that is my second family. It was one I alone got started with after my father passed in 2012. Now my wife and I make tshirts that our family and friends purchase to raise funds and spread awareness. Last year we had around 50 family and friends attend and support. It has truly been a special moment in my life having the Salgi family with us!
I recently volunteered for the Salgi annual walk. It was like one big happy family. People connecting with one another and sharing stories about their loved ones who had this horrible cancer. The people who run the organization also have a personal story of loss and they take the energy from that loss to fight for a cure. I am honored to be a supporter of this important organization that not only raises money for research, but does an outstanding job to raise awareness and educate others.
Amazing organization run by caring and wonderful people. Great to see their stories on Facebook and see them at the annual walk. They have truly become family!
This is an amazing charity that supports down-to-earth families who need resources and event coordination benefiting their mission. I've hosted an event with this Rhode-Island based non-profit and their team was very attentive to helping me with details, marketing in addition to the compassionate aspects of organizing and event in honor of my father who died of EC. The team at the foundation are very compassionate and humble and I would be honored to work with them in the future as lead event coordinator for their next Brooklyn mission!
This charity is doing an amazing job of fighting for esophageal cancer research and awareness. Esophageal cancer is an extremely aggressive and deadly cancer that is severely underfunded and behind in cancer research. I lost my dad to this horrific cancer on Sept 5th and it felt really comforting to be part of the Salgi Foundation’s 5k race in Brooklyn, just 9 days later.
I lost my dad and this charity has help connect me with people who have also lost loved ones or have loved ones been diagnosed. It is hard knowing he is gone but I don't feel alone. Esophageal cancer will be history one day and I am happy to support Salgi Foundation in my dad's memory.
So happy to support this wonderful organization. My father is in the fight of his life battling this awful diagnosis. So happy to support research that will help others fight and find a cure for this terrible cancer.
My late grandfather, Salvatore Molfesi, inspires me to continue giving to and supporting esophageal cancer awareness and research through The Salgi Esophageal Cancer Research Foundation. www.salgi.org
In 1997, my grandfather (who was more like a father to me) was diagnosed with Stage IV esophageal cancer. On Father's Day in 1998, he passed away. In the interim, he suffered a brutal surgery and painful chemotherapy and radiation treatments. I was quoted on RefluxMD's website as saying that he suffered a surgery so bad that I don't 'know how anyone – whether they were 70 years old or 17 years old – would have survived it.”
It wasn't until 15 years later that we felt the same fear that we had felt when my grandfather was first diagnosed. My mother, his daughter, began to experience some of the same symptoms my grandfather did right before he was diagnosed. After coercing my mother and her GI doctor to get screened, we learned that while there was a small amount of damage to her esophagus due to acid reflux, she was cancer free. Thank God!
At the time of my grandfather's passing, we knew nothing about esophageal cancer. It wasn't until after my mother’s endoscopy that we began researching further into it. What we found was horrible!
Not only had incidence of esophageal cancer skyrocketed 600% in the past decades, it became the fastest growing cancer in the United States and other western countries.
It is also one of the deadliest, as was the case with my grandfather; there are rarely symptoms of early stage esophageal cancer. Symptoms such as difficulty swallowing, chronic indigestion, sensation of food getting stuck and chest pain usually occur once the cancer has spread and becomes difficult, if not impossible, to treat.
Attributing to the poor mortality rate is the fact that there are no routine or standard screenings to detect esophageal cancer in its earliest stages. There is also very little awareness regarding risk factors and symptoms of esophageal cancer. Lastly, we found that research of esophageal cancer is extremely underfunded.
At first, we looked into joining other charities already established to help fight this cancer. Unfortunately, upon researching financial information and effectiveness, we didn't like what we saw. Other nonprofits, in our opinion, weren't utilizing their resources effectively. The only way that we could ensure that our efforts would be going directly to the cause was to start our own charity.
On November 21, 2011, my grandfather's birthday, The Salgi Esophageal Cancer Research Foundation was established. On February 21, 2012, we received our tax exemption status from the IRS.
While it has not been an easy feat to establish and run a 501(c)(3) nonprofit charity without the help of an attorney, accountant or other fundraising professionals, it has undoubtedly been the right decision.
Upon creating The Salgi Esophageal Cancer Research Foundation, we immediately started receiving requests for funding of esophageal cancer research from medical groups throughout the United States. We also began to meet and connect with other families and individuals who had been affected by this cancer. Speaking with these people and receiving these requests mirrored the same grievances that we felt (and still feel) and validated our mission.
As with many other start-ups, be it nonprofits or for profit organizations, the first few years are most definitely the hardest.
Fortunately, we never gave up. Instead, we leaped and sometimes stumbled over every hurdle. We persevered and thanks to our community of supporters, we are persevering.
In less than five years our charity has fulfilled all three of the missions that we set out to accomplish. We raised national and international awareness, encouraged early detection and funded research. In July 2015, The Salgi Esophageal Cancer Research Foundation awarded its very first grant to esophageal cancer research. This would absolutely not have been possible without our donors and supporters.
While we have made great accomplishments, there is a long road ahead of us. Esophageal cancer is still considered one of the fastest and deadliest cancers; research funding is still critically low and there are still no standard or routine tests to improve early detection and increase survival. However, we will continue to make a difference and do so in honor of all the brave men and women who have been affected by this horrible cancer. I know my grandfather will be cheering us on in heaven.
Review from #MyGivingStory
The Salgi Esophageal Cancer Research Foundation is a great organization that is bringing a great deal of awareness to a devastating cancer. My dad was diagnosed with esophageal cancer and died about one year from when the cancer was detected. I am very thankful that this group is around and will be a supporter for many years to come.