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- EIN 82-4421861
- info@rarekidney.org
- 4906 S Regency St Holladay UT 84117 USA
- https://www.rarekidney.org/
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Nonprofit Overview
Causes: Health, Kidney Diseases
Mission: The Rare Kidney Disease Foundation is a patient-led collaborative established in 2018 by a family impacted by ADTKD, a rare genetic cause of kidney impairment. We focus on raising awareness, building community, and advocating effectively for ADTKD patients and families.
Target demographics: build a community of families impacted by Autosomal Dominant Tubulointesrstitial Kidney Disease (ADTKD)
Geographic areas served: the United States, but also worldwide.
Programs: how to advocate and promote policy, patient roundtables and discussions with the medical and broader kidney community, and increasing awareness in both communities all aimed at a treatment and cure for ADTKD.