Prostate Cancer International

I have been a subscriber of PCa International for over 8 years and it keeps getting better. There is no charge for the service and a user can ask questions about his own case and get a compassionate response about current treatments and diagnostics. The site's blog contains a wealth of very accurate reporting about the latest clinical trial results and pending research, and expert commentary about how the results and research may affect or assist the patient. Every prostate cancer patient who wants to be an advocate for himself should subscribe.

This organization provides the best no non-sense progress updates on pCa development and comes with excellent summary analysis. Their opinions are one of the least biased and always from the perspective of patients. I have grown to give them a lot of weight in new treatment options. Whether you're a patient, doctor, family, or investor, show your support. I can't thank PCI enough for their years of selfless dedication. THANK YOU!

Have been down loading info in regards to prostate cancer. I am a survivor & cancer free since having a prostatectomy with nerve sparing minimum evasive robotic surgery. This was back in June of 2017. I am on a 5 year exam including PSA blood test at my urologist surgeon’s lab at his practice which is about 25 to 30 miles from my home. Still recovering with some minor side effects which is only ED but seems to be improving. I was very lucky that I had a low Gleason Score & preceded with the recommendation procedure about 5 or 6 months from the biopsy being sent to pathology and confirming that I had prostate cancer. After my surgery the results from the Pathologist lab verification, all the cancer was contained inside the prostate capsule. No cancer found in the removed lymph glands & seminal vessels. My being able to control my urination was in about 6 to 10 weeks & only had to use a pad about once or twice a week. At this date I no longer need a pad at all.

Unbiased information that balances good science and a sensitivity to the needs of its readers. I use it to help me be a better patient and recommend it to my own patients.

There is a lot of crap on the web, but this site is on the opposite side of that spectrum as it provides well researched-well reasoned information on prostate cancer and its treatments. This site has provided guidance and direction in researching my own cancer, and has been a great help in that regard in allowing me to make an informed decision. A tremendous amount of work and effort goes into the site and I greatly appreciate the information it provides.

Best prostate cancer information in one website. Thanks Mike.

As a prostate cancer patient in the Netherlands i have through the years profited from the reliable information from Prostate Cancer International during and after my treatment.

I use "The 'New" Prostate Cancer InfoLink several times weekly, both reading and often participating. It is a superb site that brings new developments and issues to the attention of the medical and survivor communities and allows us to share comments.

The ongoing reporting of prostate cancer news on prostatecancerinfolink.org is an invaluable resource for prostate cancer patients who don't have the time or expertise to wade through all the published literature. This site owes everything (well, almost everything) to the tireless efforts and balanced judgment of sitemaster Mike Scott. As a patient and support group leader, I rely on this site on an almost daily basis to keep myself informed.

I received Important and critical information here when I first got news that I had prostate cancer. At this time I was overwhelmed with the diagnosis and confused on next steps and the timeframe that I needed to make decisions. This was an extremely valuable resource and I am very thankful I had this available.

Regards,
Tom W

I can't begin to tell you how helpful PCI has been to me. Immense help!!!

Could not survive without them.

Virtually every day, the "New" Prostate Cancer Infolink, sponsored by Prostate Cancer International, posts between one and three articles about prostate cancer. The articles are extraordinarily informative, trustworthy, and well-written. The website is a must for any person who is concerned about prostate cancer, whether the person is a patient, a family or friend of a patient, a potential patient, or a health-care provider.

This site and it's site master has been a tremendous support for me as someone with Prostate Cancer. It provides me with the highest standard of information about developments in the science of Prostate Cancer.
The site master then adds to it's value by adding concise interpretation to the reported work.

The jewel in the crown of PCI is their off-the-charts fantastic summaries of the latest advances in prostate cancer in their "New Prostate Cancer InfoLink." If I had only one source of information on prostate cancer that I could follow, it would be this one. Mike Scott and Allen Edel are remarkably knowledgeable and thorough in their coverage of all forms of prostate cancer diagnosis, imaging and treatment of prostate cancer from active surveillance to mCRPC. I'm a Board member for the Answer Cancer Foundation and we offer virtual online support calls for men living with all stages of prostate cancer (and other cancers) and the postings of Mike and Allen are often discussed on our calls. We love these guys.

Accurate, unbiased and easy to understand interpretation of all aspects of prostate cancer medical information, including controversies, from screening and diagnosis to treatment and the latest research topics. Very helpful.

Great summary of most current news about prostate cancer

Great information to a couple who is trying to learn as much as we can about P.C.

The New Prostate Cancer Infolink Social Network is best of class. Before there were navigators to help those newly-diagnosed deal effectively with prostate cancer, the network was there for me.

Without the Infolink, I would likely have made a bad decision and have been needlessly sterile, impotent and (likely) incontinent for the last ten years. Need I say more?

When I was diagnosed with prostate cancer I received urgent advice to proceed with surgery and equally urgent advice to proceed with radiation. It was only at the "New" Prostate Cancer Info site that I found simple straight forward advice on both treatments as well as the only advice on "watchful waiting". Plus's ,minus's and the simple "we do not know for sure" on all methods without an agenda.

That was nearly eight years ago, no surgery, no radiation and still at pretty stable low risk. This is where I go to keep aware of advances in treatment and a dose of reality on new "cures". With "cured" bladder cancer and skin cancer this site feels like "home".

Excellent summaries of current medical reports on advances in treating prostate cancer.
Their web site, prostatecancerinfolink.net, is the most current and most informative site for current information on this disease. I highly recommend it to men in my prostate cancer support group. The posts provide very understandable summaries of current medical articles and advances and focus on the issues men need to understand to effectively cope with our disease.

When I needed help and support, they were there. Unable to add anything to that.

I live in Catalonia. I use to visit the website almost every day and keeps me up to date in new drugs, management and risks of prostate cancer. Is a website written by specialized doctors. There is also forum where you can ask and comment the news posted. I think is the best website about prostate cancer.

informative and timely. Has helped me keep up with up to date information and current studies dealing with prostate cancer.

PCI's Prostate Cancer Info Link is a terrific resource for those of us with Prostate Cancer. It's informative about the latest developments and insights that I just can't find anywhere else.

Although I was not the one diagnosed with prostate cancer, this organization was an emotional lifesaver for me! In addition to providing me with valuable information about Prostate Cancer, the emotional support, especially after my husbands initial diagnosis, was irreplaceable. I will NEVER forget the initial support that I received through Jan Manarite via PCRI. When I got on the "New" Prostate Cancer website, posing fearful questions, Dana actually called me and spoke with me by phone (as did Jan Manarite). I read Patrick Walsh's book immediately, but it is when I read Victoria Hallerman's (met on website) book "How we Survived Prostate Cancer" that I began feeling "felt". I don't check in much anymore, though my husband has progressed through surgery, radiation, and now (within last 2 months) to Casodex and Androgen Deprivation. I wholeheartedly recommend this organization to anyone who has Prostate Cancer, or who loves someone with Prostate Cancer! Claire C

The website does a wonderful job to bring a balanced view or recent developments of a frequently encountered malignancy to a demanding in often very knowledgeable audience, one that does not easily fall for hype nor fads. The information is provided in digestable bits with excellent references to more detailed studies. Worth every line of it.

The definitive source for the latest prostate cancer information that is evidence-based, cogent, and written at precisely the right level of technicality. I have used PCI almost every day since I was diagnosed and it has helped me choose therapies wisely that, I believe, have saved my life. Absolutely love this organization.

I am a medical oncologist and a prostate cancer patient.
The information I get from this group is comprehensive and outstanding.
Every prostate cancer patient and his loved ones should take advantage of this.

I was diagnosed with early-stage prostate cancer eight years ago. PCaI's website is my go-to place for news and commentary on PCa. The Sitemaster is on top of the news in the field.

I live with very advanced prostate cancer in Melbourne Australia. I am also involved in academic research, albeit not medical. PCI offers me the perfect gateway to the most up-to-date science research relevant to my situation. Plus insightful and realistic explanations and commentary. It has helped me understand the options available to me now and in the clinical trial pipeline. I attend an excellent cancer research hospital that is at the leading edge, so PCI helps me ask intelligent questions and get down to details. I will continue to trust and depend on the excellent reporting by PCI.

Great support from qualified and caring people...thank you

I regularly follow the prostate cancer news on the prostatecancerinfolink.net website. This is my primary means of educating myself about new developments, and is an indispensable tool for me. Mike Scott and Allen Edel are amazing, both in the time and energy they put into preparing articles, and also in responding to readers' comments!

This website provides timely annotated reviews of the latest research, a useful forum to ask questions and a social network so one can coordinate with other patients, as well as patient information on a very wide variety of prostate cancer issues.

A most informative and timely source of information for those battling prostate cancer. I personally peruse dozens of technical info on this is the best.

Am grateful for the comprehensive, careful and clearly written advanced prostate cancer information provided by this organization.

Hi,
I am extremely grateful for keeping me aware about the news and trends in prostate cancer treatments after total prostatectomy, which I had to undergo in November 2014, at the highly specialized Martini-clinic in Hamburg, Germany.
Your updates help to provide some clarity on expectations for future therapeutic measures, in case my PSA increases further.
Your comments hep to realize the controversial trends in postop treatments.
Please continue the way you work and help us all to keep us updated.
Thanks,, Peter Koerfgen, Switzerland

I find the information posted on the PCI, "New Prostate Cancer Infolink" to be timely, relevant, and above-all, well balanced. I appreciate postings with which the site master(s) disagree and I value their comments explaining their disagreement.

As a PCA patient, I received triple therapy: HDR, IGRT, and ADT. As I read the postings, I try to put myself (with that complement of treatments) into each article.

Having a free resource this excellent was far above and begone anything I could have imagined after cance diagnosis. That was nearly a year ago and I still tell people about it all the time,.

This site gives up to date reviews of the scientific literature. Then has personal comments to clarify the science. An excellent balanced site. They don't
Post unless the information is important and they are very temperate in their reviews.

Prostate Cancer International and their New Prostate Cancer Infolink, provides the best source for news and information in the world of Prostate Cancer (PCa). When I was totally confused by all of the various internet sources, this site was the one I repeatedly came back to for solid understanding and knowledge. The team at Prostate Cancer International provides objective comments and opinions to help a layperson understand the latest PCa news and information and determine what is worthwhile, and what is not.

The "New" Prostate Cancer Infolink, under the auspices of Prostate Cancer International, is one of a kind. I know that I can read the Infolink's analysis of any new study or publication and rely on that analysis completely.

This is one of, if not THE best source of prostate cancer information on the web that is tailored for sophisticated patients and their partners caregivers rather than for scientists and physicians. The information is high-quality, well-sourced, accurately summarized, and the interpretation of it is cautious and sound.

Has good up to date information, nice opportunity to net work.

Outstanding news and information for any prostate cancer survivor. I know many oncologists that tune in to the site as well.

I appreciate the site master on Prostate Cancer Infolink being able to distill complex articles into terms a lay person can understand and the ability to just publish pertinent articles. Many have bee of great use and I have catalogued some for future reference.

I have followed The "New" Prostate Cancer Infolink since prior to my radiation treatment for prostate cancer 4 years ago. I find most of the articles interesting (but I must admit some are over my head technically). Still worth following to see what's new in treatment and past results. Especially today's article "Does ADT increase risk for all types of dementia?" as I had that regimen in conjunction with my radiation treatment.

Really great charity providing support, information and reading materials for every stage of those with prostate cancer and treatments

This is probably the best source of unbiased reviews of reports, studies, and research related to prostate health issues including BPH and Pca. I rely on Prostate Cancer International to keep track of published research and provide reviews of the most relevant and timely issues. Without the work of PCI, I (and others) would have no way of keeping abreast of prostate cancer issues and research.

I was diagnosed with prostate cancer 8 years ago. I did a great deal of research and found Prostate Cancer International to be by far the best website. Because of their excellent information I chose Active Surveillance, before it was well known, as a good choice for me and some patients. For me it delayed having to have surgery and its unfavorable side effects for only 4 years but for many it can delay the need for surgery or other treatment indefinitely.

Great service and resource to those who follow the prostate cancer space!

I don't know anything about you. You'll have to send me some information.

Wonderful unexpected immediately response and unfailing support and information from this site - many thanks!

The New Prostate Cancer InfoLink is an utterly invaluable news aggregator for men and their families confronting a prostate cancer diagnosis. The site surfaces current articles and research on the subject, providing objective commentary to help you make heads or tails out of the often conflicting information that comes out. They dissect dense research into readily digestible nuggets that men can use in their deliberations and decision-making process. If you peruse the site long enough, I assure you that you will become sufficiently well-informed for virtually any conversation with your doctor, significantly reducing the intimidation factor many of us contend with.

As a prostate cancer survivor, I actually look forward to your daily email updates on news and studies related to prostate cancer. I find them very informative as well as useful in providing me with a continuing update on the state of knowledge regarding prostate cancer. Thank you!

Dear sir
My father is suffering from prostate cancer and the docter advise him tablets zytega 250mg but it is very costly for us.
Therefore I request you please help me.
Thanks
Mohammad iqbal
From Pakistan
miqbal72uk @hotmail. Com

Best for accurate advice, no talking around the subject just srait answers.

I was diagnosed with prostate cancer in august 2011. My PSA was 8.44. The biopsy showed gleason score of 7and T2b stage prostate cancer.
I was 56 years old at the time with no health issue and very active. The amount of information and misinformation was overwhelming along with the stress of cancer diagnosis. The New Prostate Cancer InfoLink provided discussions and personal experiences which helped to make a decision on my treatment.

I am a PCA survivor who has robotic radical prostatectomy surgery 2 years ago and have found this site to be one of the few places where ongoing, in depth information and new developments are reported and relayed. I have a brother 7 years younger than me, so I have an incentive to keep up with current developments in treatment - so that if, God forbid, he should be diagnosed with this disease, I want to be ready to help him make good decisions.

This information was very valuable to me because i got to read facts of personal experiences that relate to my situation. I have not had the oppertunity to hear from people with similar symptons and situations. It made me relax a little more reading about others who are facing similar problems. The people who take part in this were quick to answer my questions and it helped me make decisions about what type of treatment to choose. I am very thakful that i became a part of this group and i appreciate the help.

I was diagnosed with PC this past December, received HT and IMRT radiation through this past spring. Since diagnosis, I have been frequenting numerous PC oriented websites to learn anything I can about this disease i now have. I have been especially impressed with the site www.prostatecancerinfolink.net for several reasons. It is well organized, provides a good variety of PC related topics, and, especially valuable to me, provides rapid response answers to questions that one can enter to them online. I have been especially impressed with the depth of knowledge and rapid response time of Mike Scott, one of the resource persons on that site.

The information and support from this site, and the ability to have information remain confidential has been extremely helpful to us as we go through this unwanted journey.

Very reassuring to be able to contact the experts behind the website and get their opinions on your situation as you progress through your own concer pathway

I am a 59 year old man who was diagnosed with prostate cancer in 1999. Although I had surgery, followed by radiation therapy, followed by androgen-blocking therapy, the disease continued to progress and has metastasized to one area of my spine. The disease progression has been significantly retarded, I believe, by my participation in several clinical trials over the past several years, at Johns Hopkins and elsewhere. "The 'New' Prostate Cancer Infolink" is the best source of information I have found in my considerable research about cutting-edge prostate cancer issues, and especially about new drugs and clinical trials. It is of great importance to patients like me to have such a resource available. For example, the daily posts or blog that I receive from the sitemaster by email have helped me--and my physician--decide upon the appropriate sequencing of the several clinical trials for which I have been eligible. The issue of optimal sequencing is highly uncertain but is important, because choosing to participate in certain clinical trials early on can disqualify a patient from participating from other, potentially beneficial trials later on. I particularly like the site's daily blog because it is written in language that a layperson (like me, an antitrust lawyer) can readily understand, but the information is not simplistic or "dumbed down," and the blog provide links to articles and resources that are useful even to my oncologist. (My oncologist runs clinical trials himself, but he can't get to every conference that the Infolink sitemaster reports on.) In other words, the presentation of the information achieves an excellent balance of technical detail and accessibility. I am grateful for the efforts of those involved and for the clear, direct prose style of the blog.

I am the spouse of a prostate cancer survivor. During the early days of the disease I used this sight to gain information from other cancer victims. After the surgery (non-nerve sparing) I read about how people coped. During radiation and hormone therapy we did the same. This site was a saving grace. It made me feel less alone. There is almost more information than a person can read, but that is a good aspect.

New Prostate Cancer Infolink NPCI is an operational service of PCI. I needed to find out as much as possible about prostate cancer when my father was diagnosed with terminal prostate cancer. He succumbed to prostate cancer two years ago. Since I first started following it, NPCI has been an excellent an frequently updated source of information about appropriate prostate cancer treatment and new developments in treatment. Obviously I'm biased, but NPCI is probably the most readily accessible source of patient appropriate information about the PSA screening test for prostate cancer. In addition to timely news commentary, notification of published research and new clinical trials, NPCI also provides sophisticated, on point, response to questions and comments on new postings. NPCI is an awesome resource for those interested in prostate cancer treatment.

Diagnosed and RP in May 2007. The info link has beeb a beam of hope without having to become involved in support group or otherwise. I read it almost every night. Very informative without agenda of promotion.

I was first diagnosed with prostate cancer five years ago but only became aware of the PCI website in the last year. It is excellent and the best website I have found. In the U.S the only other website I have used is Malecare, whcih is good but is v ery US centric, while PCI has a good internatioal side to it. I have found nothing of value outside of these two websites. I wish it every success.

This November will be the 5th anniversary of my high grade prostate cancer diagnosis. After much research and consults with conventional and alternative doctors, I made the decision to go the alternative route and with God's help, my two alternative doctors, my conventional urologist and personal changes on diet, exercise and mind monitoring I am better now than prior to the diagnosis. It is very sad and discomforting that you maintain a site that just promotes the VERY process that most honest doctors are acknowledging that it is very far from providing a cure for this type; actually any type of cancer.

When my husband was diagnosed with prostate cancer this year. Without "New" Prostate Cancer InfoLink, the amazing moderators, contributors, medical specialists and treatment links it provides, I think we would have emotionally drowned. We got a response to my first post within a couple of hours-unheard of on most internet medical info sites. The support and information we got allowed us to calm down, investigate our options, make a decision and be hopeful. This cancer will be an ongoing battle but at least I have a reliable source to turn to when we need fresh troops.

This is a great site and helpful for patients and family to discuss shared issues. It also promotes advocacy and awareness and is well run.

Was able to obtain valuable information about my health issues with my prostate and gained vital insight about the disease of cancer of the prostate. Very comforting to have people who have experienced similar symptoms/results and finding out what they did specifically to fight this horrible disease.

I found the advice given to me on this web sight invaluable. It answered all my questions and helped me come to terms with the advice given and that was to have radical surgery. I have since had the operation (two months ago) and have recovered very well. I followed all advice given especially in choosing a doctor who is very experienced with this kind of surgery. I have my first PSA blood test done next week and am fully confident that all the cancer has been removed. Best Wishes. Ray Stubbings.

Most important was their immediate response to any question that I had. They are extremely knowledgable, professional and caring.

I have used/read this site for over 3 years. This is the best overall site on the web for prostate cancer. The discussion and opinion of the moderator is very valuable. I take the information on this site and share it in prostate cancer support group, so the impact of this site has a large multiplier effect in that a lot more patients are benefiting from the site than just the visitors.

People can get very good information about prostate cancer. They are very very helpful.

Provides great information! Up to date science and research which would be unavailable elsewhere.

This is a wonderful website. It got me through understanding how to deal with my cancer much more effectively than anything else I could find on the web.

A superb site. About the best there is related to prostate cancer.

I am a wife of a prostate cancer survivor. This site has helped me greatly in the sharing of other people going through the same or similar experiences.

Excellent advice, recommendations, encouragement and support from this wonderful organization.

Excellent site to learn and discuss Prostate Cancer treatments and issues

This is a wonderful organization that has helped me plan my treatment for prostate cancer.The information posted on their web site is very valuable and helps one to keep up to date with current treatmnet choices

Members and staff gave great advice. I felt comfortable discussing my personal issue on this site.

Excellent source of prostate cancer daily news with a lively, well-informed comment blog. Plenty technical with links to source documents - very well moderated.

Great information. Best I have seen on Prostate Cancer.

This social network serves as a source of information, support and plain, good old-fashioned kindness through my father's five-year struggle and death from prostate cancer. The people from this group became my friends, a community in the real sense of the word. I never felt pressured to do or buy or contribute to anything, and received in return, kind words and warmth that I could not have done without. Kudos to the organizers, and may they win every award in the book. Thank you, and please do not hesitate to contact me for further information and commendation. Dr. Mitu Sengupta, Associate Professor, Department of Politics, Ryerson University, Toronto, Canada (416-979-5000 ext 4184).

I've had two negative biopsies in a row because of PSA out of range, and this page has been so helpful finding information regarding CP and its treatment alternatives, at the same time sharing my issues with other people it`s kind of comforting.

When you have been diagnosed of Prostate Cancer you want to seek all the information you can. You go to Institutions like Prostate Cancer International, who were so willing to help me to show me the way, to calm me down, and let me know I was not alone. This was very comforting, healing, really a wonderful feeling to have this group give me the support I was looking for. I appreciate so much having this organization provide the support when we are in dire need. God Bless this organization. Carlos J.Mills

two years ago i was diagnosed with prostrate cancer which had progressed into some bone spots. I found Mike Scott very encouraging and informative , his advice helped me thru a worrying time as i had no clue regarding prostrate cancer.

I wish to unsubscribe to the Prostate Cancer International. It is not helpful enough to continue subscribing. However, there is no place that I can find on any page to unsubscribe. Please unsubscribe my email address. Thank you. cscmb@comcast.net

I receive many newsletters electronically and your "new prostate cancer infolink" is among the first that I open. I like especially how you qualify the news items to preclude misunderstanding while keeping your presentation clear and accessible. If you want an example, I attended one of the Pivot trial presentations. Your reporting is the best I've read. Please keep up the great work. My only problem with the infolink is to correctly read and type the blocked-in e-mail informationt at the end of an article.

great to share ideas, experiences with others facing similar circumstances.

This is a wonderful web site for helping prostate survivors and newly diagnosed learn about new treatments and how to advocate for health services and research.We all need to keep up to date on what is new and this web site helps us to do so

This web site has been an excellent resource for various information, including treatment options, related to prostate cancer with which I was diagnosed about a year back. Unlike some of the other similar sites, they have excellent persons, including medical doctors, putting the latest prostate cancer information in proper perspective as well as answering the related questions in the user forums.

I have been treated for Prostate Cancer, and have a family history of Prostate Cancer. I am also a physician and surgeon. I think that this website is the most thorough, impartial way to stay up to date with the latest news and reports of medical information with regard to Prostate Cancer, whether you are a medical doctor or a layman, a patient or a family member, or just interested in the subject. There is always a space for commentary, with a well-reasoned response from the "site-master" after each discussion. I recommend it with the highest possible praise.

Greatly helped by Prostate Cancer Internatrional after surgical treatment of my PC in 2008.

In my opinion, every male who is old enough to be concerned with the possibility of having prostate cancer should read this web site. Every male who has an elevated PSA should read this web site. Every male who has prostate cancer should read this web site. Every male who has been treated for prostate cancer should read this web site. Indeed, every physician and every surgeon whose practice involves diagnosis or treatment of prostate cancer should read this web site. I stumbled on the Prostate Cancer Infolink during a web search, and the information and advice I received helped me to make treatment decisions which changed my life so much for the better that it seemed miraculous.

I am the Information Secretary for a UK Prostate Cancer Support Group and I find this site invaluable. I am downloading articles and reports from it all the time.Dennis Goffin

Dear Sir:I am as suffer with prostate cancer gleason six,I have had people in our surronding area who have passed ,with this terrible disease. through your web pages and vidoes it has given me more info that has resured me that there is help out there and some confort that progress is continuing to be made.The medical profession seems to be divided as to what is the best process to follow ,watch and wait ,radiation or surgery Thanks very much for your help .regards Joseph mac Isaac

The Prostate Cancer Information link is my primary source for all new information about prostate cancer. It always provides excellent summaries of all the latest developments and research.

I was concerned as a 59 year old with prostate tests. This site helps men'look at facts and not fear. My generation was not informed about prostate health until guys lost much o their sexual ability from PC. We need go replace fear with facts. Some doctors miss that point. Thanks for this site!

Prostate Cancer International provides an invaluable service for all men with prostate cancer. The information is up to date and presented in an easy to understand format.

This organization Prostatecancerinfolink (PCaI) done considerable work in the field of prostate cancer, making it a unique case, the most interesting site on the internet

I was looking for answers and general information about prostate cancer. There were no support groups in my area that I could find. Dr. Scott explained what my test scores meant and encouraged me to keep looking for someone who cared about my outcome as much as I did. I found such a group and am very relieved to find this solution. Without a hands on support group, this web site and chant room was very helpful.

I am a retired physician. When I gave up the profession 15 years ago there was a definite lack of information/knowledge about prostatic cancer. This was true in both the public realm and most tragically in and among the medical profession. I shudder to think of the men we sent for TURs without other consideration than urinary flow. We just did not know better. Now I find myself a victim of my own ignorance. Since developing prostatic cancer I have begun to try to educate myself on the subject. I have read literally thousands of papers and reviews. Indeed I am now far better educated but really unable to help myself. I have searched for answers and found many contradictions. In this aearch for a information I have found several on-line sites which offer real information. Among these I find I read the "New Prostate Infolink" most often. Good information well presented. Still not everyting I could hope for but the best available.

I am Chairman of a PC support group in the UK and write a monthly news letter for my members. I find the "new" prostate cancer info link tremendously helpful, nay essential, in this excercise. I trawl many websites and generally pick-up most of the emerging news stories but this news site puts things into perspective; translates lots of medical mumbo-jumbo and makes the obscure clear. Long may it continue.

Valuable source of sensible information. I found it very reassuring to be able to read the experiences of others.

I was able to gain valuable knowledge from this website that has afforded me and my husband to make wise choices regarding treatment options. This website has also been a blessing to us in that it is nice to know we are not alone in this fight. I am truly thankful for the people associated with this site.

Excellent site to learn and discuss specific issues, and even a broad spectrum of problems faced by those with Prostate Cancer.

I am an advanced Prostate cancer patient. This site provides much needed info regarding new treatments and clinical trials. They even allow my remarks to stand when I disagree with their bias for using radiation treatments. They deserve to be mentioned for their commitment to patients in my condition.

I am a Nurse, working mother, with a father who passed away in Nov 2011 with Advanced Prostate Cancer. Due to my involvement in his care, I have joined, participated, and also started various prostate cancer groups and forums. The New prostate cancer Info Link has been an absolute god send to me. You supply all the news/medical information I need, quickly, in one place, that I can then research and use to advise others looking for this information. Excellent job, please keep it up. You are a wonderful site and I couldn't give you any higher praise.

At possibly the most worrisome and scary moments in one's life, PCI is wonderful source of info and understanding.

Read daily. It is informative and has caused me to look at my disease from a totally different perspective. Highly recommended to family and friends. Al Hagan Okotoks, Alberta, Canada

I was recently diagnosed with prostate cancer so I wanted as much information and support as I could get. This site is very helpful and supportive: if I have any questions about treatment I ask them and I always get a quick and full response.As a layman my condition seems quite complex, with many possible treatments combined with the possible decision to not have any treatment. Thanks to this site and my doctor's advice, I have now decided to have a radical prostatectomy as the odds of living longer after this treatment are more favourable that without.So it's a big thanks to the infolink people.

info from this site helped me select active survellance instead of rp as my current treatment choice.

I am the daughter of a Prostate Cancer (PC) patient. There is so much developing in the fight against Prostate Cancer right now, and it can be quite difficult to "run across" all the valuable information that is out there. THE 'NEW' PROSTATE CANCER INFOLINK does a wonderful job of putting a great deal of all this info in one place, making it much easier to keep apprised of progress in the fight against PC. I consult it every day and have discovered information that has been helpful to my dad (resulting in a drop in his PSA) that we were not otherwise aware of. Thank you Prostate Cancer International for this wonderful service!!

This information service has been very useful in sorting out the vast range of data related to PC. PC has to be one of the most difficult cancers to determine a proper course of action. Valid treatment options range from doing nothing to radical interventions. Historically overtreatment may have resulted in the quest to fail safe and sometimes created outcomes worse than the disease (do no harm). The urologists have valid points to make but independant objective information is priceless.

THE FIRST THING I DO EVERYDAY WHEN I CHECK MY EMAIL, WHETHER ON MY CELL OR COMPUTER IS LOOK FOR MY EMAIL FROM PROSTATE CANCER INFO LINK. I RECEIVE MUCH OF MY GUIDANCE WITH THE INFORMATION THAT I OBTAIN FROM THIS WEB SITE.HAVING UNTREATED PC AND DOING ACTIVE SURVEILLANCE. I LOOK AT MANY WEBSITES BUT THIS IS MY PREFERENCE BECAUSE OF THE CLEAR AND PRECISE AND UP TO DATE INFORMATION. THIS KEEPS ME INFORMED AND FRIENDS WORRIED ABOUT GETTING PC ARE ALWAYS ASKING QUESTIONS ABOUT THEIR PROBLEMS KNOWING I STAY UP TO DATE, BY READING THESE STUDIES I FEEL I MADE THE RIGHT CHOICE AS MY PCA3 TEST WENT FROM 94,5 IN 2010 TO 34 IN 2012 I WOULD LIKE TO THANK, YOU AND I'LL BE LOOKING FOR YOU TOMORROW. THANKS AGAIN.

I can not say enough about how useful and helpful THE "NEW" PROSTATE CANCER INFOLINK has been to me over the last couple of years. It is a great place to keep up to date on the latest news on the topic and to give and share feedback on the many aspects of the topic. The Sitemaster keeps us all informed and never fails to respond to any questions.

I an an advanced cancer patient and I have gone through a lot of treatment. Dx'd at 49 years old with aggressive cancer that relapsed after primary treatment. I done a great deal of research and participated in several website/fourms. This site is the best. Mike Scott (sitemaster) does an outstanding job in providing even handed advice and education to patients and care givers. I really hate having cancer and this is one place I know I can go to get help advice or just a pep talk.

The New Prostate Cancer Info Link is fantastic. I received C yber Knife treatment in March 2012. The Info Link was helpful in helping me decide on going for it. It is very informative.

I would like to say big Thank you to this website and doctor, advisor. After receive the answer or advice, we went through the tough time and felt much better when your family and yourself fight against this dizaster. Doctor gave us suggest and answer each question even though he knew that we are at Canada and cannot be his patient. I would like to show my appreciation and feel much supportive. helen

I found the The "New" Prostate Cancer InfoLink Social Network a couple of months ago after I was diagnosed with a low-level form of Prostate Cancer. Of course, I tried to obtain as much information as possible from the Internet. I did not really know much (and was still in a state of shock about the diagnosis) when I decided to describe my situation on the site. Within a matter of a few hours, I received a personal reply from Mike Scott of the Network and then another response the following day. His responses were long and detailed, and personally oriented to me. I was extremely surprised and gratified. No other resource on the Internet gave me that type of personal service. signed: Dave Kalstrom

An informative site with links to lots of good PC information. Links to folks like Mike Scott who provides valuable comments to questions. LInks to articles coming on line which discuss the current thinking on PC topics.

The "New" Prostate Cancer Infolink was a great aid to myself and my spouse as I had to navigate the options that can be dizzying at times. On top of that, the network of people were very helpful as I was going through my chosen treatement. It was very comforting to know that someone, very knowledgeable was just a few clicks away. I highly recommend this site.

Wonderful site with up-to-date and very clear news. No need to go looking elsewhere.

this particular site was very helpful and helped to relieve some of the stress and fears of this dreaded disease. the info and information was VERY helpful to me... and hey..... i never wrote a review before!

We appreciate the "new prostate cancer infolink. concerned about certain issues relating to my husband's cancer without the ability to get a second opinion. We gathered useful and professionally accurate information. Thank you. Coralee

i need help.. i have the thing..PC but i am unemployed with no health incsurance.. i have not yet been treated ..how can i survive... i dont know what to do.. or where and how to get the treatment i need.... Tim D. bluzboy2001@yahoo.com.. please email me if you may have some thing that may help.. a organization... or something... too bad Obama s new healthcare.. wont help me.. women can get medicaid if they hae breast cancer.. and illegal aliens can even get medicaid... but i the white unemployed ..now the minortiy american.. i guess i am just screwed..please help me (higher power)

I was diagnosed with PCa back in May 2010. Having been under pressure and wanting to learn from others who have gone through this experience I resorted to Prostate Cancer International. I have provided my PSA tests results, Gleason score, CT scans, etc.. and sought advice on how to proceed with treatment. Prostate Cancer International was great as many of its members responded with advice on how to proceed, what to watch for and what to say and ask the medical specialists who were sought by me for consultation. All this helped make my journey quite a learned and comfortable one, given the circumstances. After more than a year with PCa and initial radiation treatment, I continue to link up with Prostate Cancer International and its wonderful and helpful volunteers.

Prostatecancerinfolink.net is at the top of my favourites page.

It is the best site that I have found for constantly updating itself with relevant well explained articles on developments in the prostate cancer field.

The collation of information by this site is excellent. It saves me trawling through the half dozen other sources I used to look at and piecing together my own news feed.

I always find the latest developments in the PCa field at this site.

Highly recommended!

JK (in the UK).

I found great help encouragement and support when i found I had prostate cancer. I was given accurate information that was not available from my physician and an unbiased list of treatment options. Later I was given free medical information that eventually enabled me to decide on the treatment I had with good results.
This site save me a lot of stress and fear at a difficult time.
The contributors are very generous sharing their medical knowledge and experience free of charge for the benefit of those having a difficult time.

I've been accessing this site for the two years since I had PC surgery. Not only provides a wealth of information on diagnosis, treatment options and the latest research, but also has opportunities to post question, share experiences and otherwise benefit from contact with a wide community of cancer survivors and those just approaching their treatment and the years after that. Research is reviewed and made very accessible for all, and the various kinds of networking available at the site make it by far the best one out there for Prostate Cancer!

I accessed this site for information regarding results of a prostate biopsy and was provided with greatly helpful and assuring information. James

I was diagnosed with Prostate cancer June 2010 and in doing internet research I cam across their forum. Within a few hours reading and posting my concerns and questions, I had the answers to approach my disease with confidence and the right questions to ask my Dr.
The people in the forum and Dr Scott were there to guide comfort and help me through the whole journey. the people there had been through it and willingly shared their knowledge. I tried other forums but always came back to this one for answers.

When I was diagnosed with prostate cancer three years ago, at 44, I went everywhere looking for information. The information here was tremendously helpful and the community was supportive. The combination of factual information and the social network is unique in my experience and the two function together well.

I am a prostate cancer survivor. I had my prostate removed on June 10, 2010. The prostate cancer survivors network has helped me a great deal, both in helping select treatment options and in the slow recovery process following the surgery. I would hope the PCSN will continue to grow and help as many prostate cancer victims as possible.

In the nearly 3 years since my diagnosis of prostate cancer, I have visited the prostate cancer infolink.ning site almost daily. It was a great source of information after my initial dagnosis; a great source of support during my recuperation from surgery; a great source to "compare notes" with other survivors; and a great place where I can help to provide support for others, both newly diagnosed and long-term survivors. It is wonderful to have a place to speak openly and frankly with others who are walking the same path due to PCa.

I am a prostate cancer survivor. I have had surgery in the past year. This site is a good source of timely information on what to expect from the first diagnosis of elevated PSA to a diagnosis of cancer. It gives the patient that information the doctor may be uncomfortable in discussing.

The Prostate Cancer InfoLink is where I get current information on prostate cancer treatment. It is also where I get links to cutting edge research and treatment. As a recently diagnosed cancer patient, I appreciate this site very much.

Top research. Strong, educated responses to questions. Medically sound. Daily updates. A bookmark in my browser used daily. This site/organization has a face and a human scale interaction. Fully worthwhile and a must for anyone interested in fact based information about prostate cancer.

As a prostate cancer survivor I have had numerous opportunities to share my story with other men who have been diagnosed with pCa. PCI was there for me when I needed information about the disease, treatment options, and encouragement in dealing with the emotional side. Now I frequently direct other guys to the PCI website to get the same help. They have always told me how helpful the PCI site was and how much they appreciated the site being there for them. The information is personal, accurate, and non-biased.

There is excellent information available on the website. The support groups offer strategies for coping with prostate cancer, whether you are the patient or the family member. Survivors and caregivers share their personal anecdotes pre and post surgery.

Fantastic source of un biased up to the minute news on treatments and general stories surrounding the disease.

As a sufferer it gives me hope to read about new treatment and research.

Great job well done.

I was lucky to find the webside of "Prostate Cancer International" right after been diagnosed. At the time I knew nothing about the desease and did not learn much from the doctors treating me. So I read a lot and had a discussion with E.Michael ("Mike") Scott. His ideas about my treatment and his prompt answers to my questions (about the wight time to restart my ADT,for example) helped me a lot. Contacts with the other PC servivals ware also very useful.
Thank you "PC International"!

Prostate Cancer International has been, for me, a great help to cope with my disease. Found their website very helpful and thrustworthy. Highly recommend this organization for man who have been diagnosed with PC and their family.
Regard Rinze.

The site they run has provided invaluable information in the difficult time after my prostate cancer diagnosis. By providing a central location where fellow cancer patients can share information, and where doctors and others in the field can comment, it opens the door to many options that were not clear before visiting the site.

PCaI has provided and continues to provide professional and knowledgeable information regarding issues involved when diagnosed with prostate cancer as well as the treatment of that cancer both early on as well as when recurring. Every single day the latest information from medical journals is posted on this excellent website with knowledgeable and expert commentary. The site then provides the capability for readers to comment either pro or con or with additional information to support that having been posted. Truly an outstanding website for prostate cancer patients, caregivers, and physicians involved in the diagnosis and treatment of this insidious men's disease.

Prostate Cancer International has afforded me quality information important for my health ever since I was diagnosed with prostate cancer more than a year ago. I heartily recommend this site for anyone with prostate cancer concerns!

There is a plethora of media announcements, usually based on feeds from interested parties, which can cause problems for men diagnosed with prostate cancer and their supporters. The New Prostate Cancer Infolink decodes these and helps people understand which contain useful information and how this may help them and which (regrettably it seems the majority) are merely a distraction.

In addition valube information from technical journals is summarised and these entires are of enormous help to people trying to understand the intricacies of prostate cancer.

I just wish more people knew of it - it is underutilised in my opinion.

Prostate Cancer International is a small but active non-profit, founded in 2008, that is primary focused on ensuring that men in general as well as newly diagnosed and long-term prostate cancer patients in America and around the world have access to helpful, current information about the diagnosis and management of one of the most common forms of cancer.

At present our primary activities are on line. We provide a daily news service (The "New" Prostate Cancer InfoLink; see http://prostatecancerinfolink.net), a social network for patients and others to share information (see http://prostatecancerinfolink.ning.com), and we have other longer term goals that will need funding and work.

In addition, Prostate Cancer International is a member of the Prostate Cancer Roundtable (see http://prostatecancerroundtable.net).