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Prostate Cancer International

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Nonprofit Overview

Causes: Cancer

Mission: Prostate Cancer International will transform global understanding of the risks associated with prostate cancer and the strategies to manage those risks until prevention is possible and a cure can be found.

Target demographics: Men who are concerned about their risk for or who are diagnosed with prostate cancer, and their familes

Direct beneficiaries per year: Between 1500 and 3000 people every single day of the year through our online initiatives

Geographic areas served: America and across the globe

Programs: The "New" Prostate Cancer InfoLink (a prostate cancer news service) and its associated social network (a prostate cancer-specific discussion form with > 6,000 members), along with other communication and advocacy initiatives.

Community Stories

174 Stories from Volunteers, Donors & Supporters

NOTSDR

Client Served

Rating: 5

I have been a subscriber of PCa International for over 8 years and it keeps getting better. There is no charge for the service and a user can ask questions about his own case and get a compassionate response about current treatments and diagnostics. The site's blog contains a wealth of very accurate reporting about the latest clinical trial results and pending research, and expert commentary about how the results and research may affect or assist the patient. Every prostate cancer patient who wants to be an advocate for himself should subscribe.

Previous Stories

Client Served

Rating: 5

I am in my 10th year with advanced prostate cancer and Sitemaster at Prostate Cancer International is still the best source of the most accurate, unbiased, and detailed information about prostate cancer diagnosis and treatment. You can read and research the latest studies, with the added benefit of Sitemaster's expert analysis, from the patient's perspective. Subscribing to the Infolink is like having your own medical communications specialist on call 24/7.

Read more

General Member of the Public

Rating: 5

This organization provides the best no non-sense progress updates on pCa development and comes with excellent summary analysis. Their opinions are one of the least biased and always from the perspective of patients. I have grown to give them a lot of weight in new treatment options. Whether you're a patient, doctor, family, or investor, show your support. I can't thank PCI enough for their years of selfless dedication. THANK YOU!

General Member of the Public

Rating: 5

Have been down loading info in regards to prostate cancer. I am a survivor & cancer free since having a prostatectomy with nerve sparing minimum evasive robotic surgery. This was back in June of 2017. I am on a 5 year exam including PSA blood test at my urologist surgeon’s lab at his practice which is about 25 to 30 miles from my home. Still recovering with some minor side effects which is only ED but seems to be improving. I was very lucky that I had a low Gleason Score & preceded with the recommendation procedure about 5 or 6 months from the biopsy being sent to pathology and confirming that I had prostate cancer. After my surgery the results from the Pathologist lab verification, all the cancer was contained inside the prostate capsule. No cancer found in the removed lymph glands & seminal vessels. My being able to control my urination was in about 6 to 10 weeks & only had to use a pad about once or twice a week. At this date I no longer need a pad at all.

General Member of the Public

Rating: 5

Unbiased information that balances good science and a sensitivity to the needs of its readers. I use it to help me be a better patient and recommend it to my own patients.

General Member of the Public

Rating: 4

There is a lot of crap on the web, but this site is on the opposite side of that spectrum as it provides well researched-well reasoned information on prostate cancer and its treatments. This site has provided guidance and direction in researching my own cancer, and has been a great help in that regard in allowing me to make an informed decision. A tremendous amount of work and effort goes into the site and I greatly appreciate the information it provides.

Tony C.2

Advisor

Rating: 5

Best prostate cancer information in one website. Thanks Mike.

Client Served

Rating: 5

As a prostate cancer patient in the Netherlands i have through the years profited from the reliable information from Prostate Cancer International during and after my treatment.

JimWaldenfels

General Member of the Public

Rating: 5

I use "The 'New" Prostate Cancer InfoLink several times weekly, both reading and often participating. It is a superb site that brings new developments and issues to the attention of the medical and survivor communities and allows us to share comments.

Previous Stories
1

Advisor

Rating: 5

As a seventeenth year survivor of once life-threatening prostate cancer, I find this website to be amazingly good - one of the very best I've ever used!

A core strength is the profound expertise, caring, and energy that the sitemaster employs in bringing us reports of worthwhile new studies and also discussing those studies with us.

This is my best resource in keeping up-to-date on the fast moving field of prostate cancer research and trends.

Read more

Client Served

Rating: 5

The ongoing reporting of prostate cancer news on prostatecancerinfolink.org is an invaluable resource for prostate cancer patients who don't have the time or expertise to wade through all the published literature. This site owes everything (well, almost everything) to the tireless efforts and balanced judgment of sitemaster Mike Scott. As a patient and support group leader, I rely on this site on an almost daily basis to keep myself informed.

1

Client Served

Rating: 5

I received Important and critical information here when I first got news that I had prostate cancer. At this time I was overwhelmed with the diagnosis and confused on next steps and the timeframe that I needed to make decisions. This was an extremely valuable resource and I am very thankful I had this available.

Regards,
Tom W

Client Served

Rating: 5

I can't begin to tell you how helpful PCI has been to me. Immense help!!!

Could not survive without them.

Client Served

Rating: 5

Virtually every day, the "New" Prostate Cancer Infolink, sponsored by Prostate Cancer International, posts between one and three articles about prostate cancer. The articles are extraordinarily informative, trustworthy, and well-written. The website is a must for any person who is concerned about prostate cancer, whether the person is a patient, a family or friend of a patient, a potential patient, or a health-care provider.

Client Served

Rating: 5

This site and it's site master has been a tremendous support for me as someone with Prostate Cancer. It provides me with the highest standard of information about developments in the science of Prostate Cancer.
The site master then adds to it's value by adding concise interpretation to the reported work.

Board Member

Rating: 5

The jewel in the crown of PCI is their off-the-charts fantastic summaries of the latest advances in prostate cancer in their "New Prostate Cancer InfoLink." If I had only one source of information on prostate cancer that I could follow, it would be this one. Mike Scott and Allen Edel are remarkably knowledgeable and thorough in their coverage of all forms of prostate cancer diagnosis, imaging and treatment of prostate cancer from active surveillance to mCRPC. I'm a Board member for the Answer Cancer Foundation and we offer virtual online support calls for men living with all stages of prostate cancer (and other cancers) and the postings of Mike and Allen are often discussed on our calls. We love these guys.

1

General Member of the Public

Rating: 5

Accurate, unbiased and easy to understand interpretation of all aspects of prostate cancer medical information, including controversies, from screening and diagnosis to treatment and the latest research topics. Very helpful.

General Member of the Public

Rating: 5

Great summary of most current news about prostate cancer

General Member of the Public

Rating: 5

Great information to a couple who is trying to learn as much as we can about P.C.

Client Served

Rating: 5

The New Prostate Cancer Infolink Social Network is best of class. Before there were navigators to help those newly-diagnosed deal effectively with prostate cancer, the network was there for me.

Without the Infolink, I would likely have made a bad decision and have been needlessly sterile, impotent and (likely) incontinent for the last ten years. Need I say more?

Client Served

Rating: 5

When I was diagnosed with prostate cancer I received urgent advice to proceed with surgery and equally urgent advice to proceed with radiation. It was only at the "New" Prostate Cancer Info site that I found simple straight forward advice on both treatments as well as the only advice on "watchful waiting". Plus's ,minus's and the simple "we do not know for sure" on all methods without an agenda.

That was nearly eight years ago, no surgery, no radiation and still at pretty stable low risk. This is where I go to keep aware of advances in treatment and a dose of reality on new "cures". With "cured" bladder cancer and skin cancer this site feels like "home".

Advisor

Rating: 5

Excellent summaries of current medical reports on advances in treating prostate cancer.
Their web site, prostatecancerinfolink.net, is the most current and most informative site for current information on this disease. I highly recommend it to men in my prostate cancer support group. The posts provide very understandable summaries of current medical articles and advances and focus on the issues men need to understand to effectively cope with our disease.

Client Served

Rating: 5

When I needed help and support, they were there. Unable to add anything to that.

Josep Rodriguez P.

Client Served

Rating: 5

I live in Catalonia. I use to visit the website almost every day and keeps me up to date in new drugs, management and risks of prostate cancer. Is a website written by specialized doctors. There is also forum where you can ask and comment the news posted. I think is the best website about prostate cancer.

Marvin Z.

General Member of the Public

Rating: 5

informative and timely. Has helped me keep up with up to date information and current studies dealing with prostate cancer.

General Member of the Public

Rating: 5

PCI's Prostate Cancer Info Link is a terrific resource for those of us with Prostate Cancer. It's informative about the latest developments and insights that I just can't find anywhere else.

Claire A.

Client Served

Rating: 5

Although I was not the one diagnosed with prostate cancer, this organization was an emotional lifesaver for me! In addition to providing me with valuable information about Prostate Cancer, the emotional support, especially after my husbands initial diagnosis, was irreplaceable. I will NEVER forget the initial support that I received through Jan Manarite via PCRI. When I got on the "New" Prostate Cancer website, posing fearful questions, Dana actually called me and spoke with me by phone (as did Jan Manarite). I read Patrick Walsh's book immediately, but it is when I read Victoria Hallerman's (met on website) book "How we Survived Prostate Cancer" that I began feeling "felt". I don't check in much anymore, though my husband has progressed through surgery, radiation, and now (within last 2 months) to Casodex and Androgen Deprivation. I wholeheartedly recommend this organization to anyone who has Prostate Cancer, or who loves someone with Prostate Cancer! Claire C

Client Served

Rating: 5

The website does a wonderful job to bring a balanced view or recent developments of a frequently encountered malignancy to a demanding in often very knowledgeable audience, one that does not easily fall for hype nor fads. The information is provided in digestable bits with excellent references to more detailed studies. Worth every line of it.

Steve A.1

Client Served

Rating: 5

The definitive source for the latest prostate cancer information that is evidence-based, cogent, and written at precisely the right level of technicality. I have used PCI almost every day since I was diagnosed and it has helped me choose therapies wisely that, I believe, have saved my life. Absolutely love this organization.

1

Professional with expertise in this field

Rating: 5

I am a medical oncologist and a prostate cancer patient.
The information I get from this group is comprehensive and outstanding.
Every prostate cancer patient and his loved ones should take advantage of this.

Howard W.

Client Served

Rating: 5

I was diagnosed with early-stage prostate cancer eight years ago. PCaI's website is my go-to place for news and commentary on PCa. The Sitemaster is on top of the news in the field.

1 Ron_50

General Member of the Public

Rating: 5

I live with very advanced prostate cancer in Melbourne Australia. I am also involved in academic research, albeit not medical. PCI offers me the perfect gateway to the most up-to-date science research relevant to my situation. Plus insightful and realistic explanations and commentary. It has helped me understand the options available to me now and in the clinical trial pipeline. I attend an excellent cancer research hospital that is at the leading edge, so PCI helps me ask intelligent questions and get down to details. I will continue to trust and depend on the excellent reporting by PCI.

2 Chris75

Client Served

Rating: 5

Great support from qualified and caring people...thank you

Previous Stories
1

General Member of the Public

Rating: 5

I got great support when i needed it most-thank you so much.

1

General Member of the Public

Rating: 5

I regularly follow the prostate cancer news on the prostatecancerinfolink.net website. This is my primary means of educating myself about new developments, and is an indispensable tool for me. Mike Scott and Allen Edel are amazing, both in the time and energy they put into preparing articles, and also in responding to readers' comments!

1

Client Served

Rating: 5

This website provides timely annotated reviews of the latest research, a useful forum to ask questions and a social network so one can coordinate with other patients, as well as patient information on a very wide variety of prostate cancer issues.

1

General Member of the Public

Rating: 5

A most informative and timely source of information for those battling prostate cancer. I personally peruse dozens of technical info on this is the best.

1

General Member of the Public

Rating: 5

Am grateful for the comprehensive, careful and clearly written advanced prostate cancer information provided by this organization.

1

General Member of the Public

Rating: 5

Hi,
I am extremely grateful for keeping me aware about the news and trends in prostate cancer treatments after total prostatectomy, which I had to undergo in November 2014, at the highly specialized Martini-clinic in Hamburg, Germany.
Your updates help to provide some clarity on expectations for future therapeutic measures, in case my PSA increases further.
Your comments hep to realize the controversial trends in postop treatments.
Please continue the way you work and help us all to keep us updated.
Thanks,, Peter Koerfgen, Switzerland

1 Mike194

Client Served

Rating: 4

I find the information posted on the PCI, "New Prostate Cancer Infolink" to be timely, relevant, and above-all, well balanced. I appreciate postings with which the site master(s) disagree and I value their comments explaining their disagreement.

As a PCA patient, I received triple therapy: HDR, IGRT, and ADT. As I read the postings, I try to put myself (with that complement of treatments) into each article.

1 Bill M.

Client Served

Rating: 5

I found out I had Cancer in 2005. I discovered Prostate Cancer International several years later. I wish I had known about PCI at the beginning. PCI is the very best source of information and support that I have found, and continues to be the best. The information is timely, accurate and PCI goes to tremendous effort to make sure it is understandable. Their social network support is perfect and like PCI itself, compassionate.

Previous Stories
1

Client Served

Rating: 5

I have been using The "New" Prostate Cancer Info Link for about 5 years. It is excellent! I wish I had been connected with them before I had my surgery - their explanations are on topic and very clear. I live in Canada, and while I am very pleased with our health care programs, in terms of being patient centred and up to date, the help I received from The NPC Infolink was vastly superior to what I received from our provincial prostate cancer program. NPCI goes put of its way to understand and respond to patients needs and concerns. It is remarkable. And it also offered a blog service, expertly monitored, that connected me to other men who were dealing with prostate cancer. I recommend this service to anyone, anywhere in the world.

Read more
1

Client Served

Rating: 5

Having a free resource this excellent was far above and begone anything I could have imagined after cance diagnosis. That was nearly a year ago and I still tell people about it all the time,.

1 John407

Client Served

Rating: 4

This site gives up to date reviews of the scientific literature. Then has personal comments to clarify the science. An excellent balanced site. They don't
Post unless the information is important and they are very temperate in their reviews.

1

Client Served

Rating: 5

Prostate Cancer International and their New Prostate Cancer Infolink, provides the best source for news and information in the world of Prostate Cancer (PCa). When I was totally confused by all of the various internet sources, this site was the one I repeatedly came back to for solid understanding and knowledge. The team at Prostate Cancer International provides objective comments and opinions to help a layperson understand the latest PCa news and information and determine what is worthwhile, and what is not.

1

General Member of the Public

Rating: 5

The "New" Prostate Cancer Infolink, under the auspices of Prostate Cancer International, is one of a kind. I know that I can read the Infolink's analysis of any new study or publication and rely on that analysis completely.

Previous Stories
2

General Member of the Public

Rating: 5

I rely on The New Prostate Cancer InfoLink--a part of Prostate Cancer International--to provide me with daily e-mails concerning current issues regarding prostate cancer. Those e-mails are extremely well written and very informative, and provide links to the studies, reports, and articles that the e-mails are discussing. I rely on those e-mails to keep me current on what is going on in the field of prostate cancer.

Read more
1

Client Served

Rating: 5

This is one of, if not THE best source of prostate cancer information on the web that is tailored for sophisticated patients and their partners caregivers rather than for scientists and physicians. The information is high-quality, well-sourced, accurately summarized, and the interpretation of it is cautious and sound.

1 Jim_175

Client Served

Rating: 3

Has good up to date information, nice opportunity to net work.

1 Tony14

Volunteer

Rating: 5

Outstanding news and information for any prostate cancer survivor. I know many oncologists that tune in to the site as well.

Previous Stories
2

Volunteer

Rating: 5

Since I was diagnosed with cancer, finding reputable discussions on the topic and information was a priority. The folks at Prostate Cancer International delivered. This organization has touched many men I know as well. My role these days is as a Patient Advocate, a Discussion board leader (at another website) and a support group leader in Las Vegas. I readily pull up the research information that PCaI Provides and it has been well received by all. Thank you PCaI...

1 Bob_112

Client Served

Rating: 5

I appreciate the site master on Prostate Cancer Infolink being able to distill complex articles into terms a lay person can understand and the ability to just publish pertinent articles. Many have bee of great use and I have catalogued some for future reference.

1

General Member of the Public

Rating: 4

I have followed The "New" Prostate Cancer Infolink since prior to my radiation treatment for prostate cancer 4 years ago. I find most of the articles interesting (but I must admit some are over my head technically). Still worth following to see what's new in treatment and past results. Especially today's article "Does ADT increase risk for all types of dementia?" as I had that regimen in conjunction with my radiation treatment.

1

General Member of the Public

Rating: 5

Really great charity providing support, information and reading materials for every stage of those with prostate cancer and treatments

1

General Member of the Public

Rating: 5

This is probably the best source of unbiased reviews of reports, studies, and research related to prostate health issues including BPH and Pca. I rely on Prostate Cancer International to keep track of published research and provide reviews of the most relevant and timely issues. Without the work of PCI, I (and others) would have no way of keeping abreast of prostate cancer issues and research.

1

Volunteer

Rating: 5

I was diagnosed with stag iv cancer on April 8, 2010. I had a radical prostatectomy on April 13th 2010. I'm proud to say I'm a six year survivor and I'll gone thru much of the things that everyone on this site talking about. Like most men I couldn't handle it at first however; I quickly learned what was important to me. I.e. LIFE itself. If I can help anyone out there please feel free to contact me.

1

General Member of the Public

Rating: 5

I was diagnosed with prostate cancer 8 years ago. I did a great deal of research and found Prostate Cancer International to be by far the best website. Because of their excellent information I chose Active Surveillance, before it was well known, as a good choice for me and some patients. For me it delayed having to have surgery and its unfavorable side effects for only 4 years but for many it can delay the need for surgery or other treatment indefinitely.

Previous Stories
2

General Member of the Public

Rating: 5

The New Prostate Cancer Infolink web site has been a god send to me. The wealth of information with excellent commentary by the moderator providing balanced conclusions led me several years ago to go on active surveillance before it was popular. This saved me so far from an operation and the almost certain bad side effects. Tom Loucks

1

Professional with expertise in this field

Rating: 4

Great service and resource to those who follow the prostate cancer space!

1

General Member of the Public

Rating: 1

I don't know anything about you. You'll have to send me some information.

1

Client Served

Rating: 5

Wonderful unexpected immediately response and unfailing support and information from this site - many thanks!

1

General Member of the Public

Rating: 5

The New Prostate Cancer InfoLink is an utterly invaluable news aggregator for men and their families confronting a prostate cancer diagnosis. The site surfaces current articles and research on the subject, providing objective commentary to help you make heads or tails out of the often conflicting information that comes out. They dissect dense research into readily digestible nuggets that men can use in their deliberations and decision-making process. If you peruse the site long enough, I assure you that you will become sufficiently well-informed for virtually any conversation with your doctor, significantly reducing the intimidation factor many of us contend with.

1

Client Served

Rating: 5

As a prostate cancer survivor, I actually look forward to your daily email updates on news and studies related to prostate cancer. I find them very informative as well as useful in providing me with a continuing update on the state of knowledge regarding prostate cancer. Thank you!

3

Volunteer

Rating: 3

Dear sir
My father is suffering from prostate cancer and the docter advise him tablets zytega 250mg but it is very costly for us.
Therefore I request you please help me.
Thanks
Mohammad iqbal
From Pakistan
miqbal72uk @hotmail. Com

1

Volunteer

Rating: 5

Best for accurate advice, no talking around the subject just srait answers.

2

Client Served

Rating: 5

I was diagnosed with prostate cancer in august 2011. My PSA was 8.44. The biopsy showed gleason score of 7and T2b stage prostate cancer.
I was 56 years old at the time with no health issue and very active. The amount of information and misinformation was overwhelming along with the stress of cancer diagnosis. The New Prostate Cancer InfoLink provided discussions and personal experiences which helped to make a decision on my treatment.

3

Client Served

Rating: 5

I am a PCA survivor who has robotic radical prostatectomy surgery 2 years ago and have found this site to be one of the few places where ongoing, in depth information and new developments are reported and relayed. I have a brother 7 years younger than me, so I have an incentive to keep up with current developments in treatment - so that if, God forbid, he should be diagnosed with this disease, I want to be ready to help him make good decisions.

1

General Member of the Public

Rating: 4

This information was very valuable to me because i got to read facts of personal experiences that relate to my situation. I have not had the oppertunity to hear from people with similar symptons and situations. It made me relax a little more reading about others who are facing similar problems. The people who take part in this were quick to answer my questions and it helped me make decisions about what type of treatment to choose. I am very thakful that i became a part of this group and i appreciate the help.

1 Stephen F.

Client Served

Rating: 5

I was diagnosed with PC this past December, received HT and IMRT radiation through this past spring. Since diagnosis, I have been frequenting numerous PC oriented websites to learn anything I can about this disease i now have. I have been especially impressed with the site www.prostatecancerinfolink.net for several reasons. It is well organized, provides a good variety of PC related topics, and, especially valuable to me, provides rapid response answers to questions that one can enter to them online. I have been especially impressed with the depth of knowledge and rapid response time of Mike Scott, one of the resource persons on that site.

1

Client Served

Rating: 5

The information and support from this site, and the ability to have information remain confidential has been extremely helpful to us as we go through this unwanted journey.

1

General Member of the Public

Rating: 4

Very reassuring to be able to contact the experts behind the website and get their opinions on your situation as you progress through your own concer pathway