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Prostate Cancer International

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Nonprofit Overview

Causes: Cancer

Mission: Prostate Cancer International will transform global understanding of the risks associated with prostate cancer and the strategies to manage those risks until prevention is possible and a cure can be found.

Target demographics: Men who are concerned about their risk for or who are diagnosed with prostate cancer, and their familes

Direct beneficiaries per year: Between 1500 and 3000 people every single day of the year through our online initiatives

Geographic areas served: America and across the globe

Programs: The "New" Prostate Cancer InfoLink (a prostate cancer news service) and its associated social network (a prostate cancer-specific discussion form with > 6,000 members), along with other communication and advocacy initiatives.

Community Stories

143 Stories from Volunteers, Donors & Supporters

1 Ron_50

General Member of the Public

Rating: 5

I live with very advanced prostate cancer in Melbourne Australia. I am also involved in academic research, albeit not medical. PCI offers me the perfect gateway to the most up-to-date science research relevant to my situation. Plus insightful and realistic explanations and commentary. It has helped me understand the options available to me now and in the clinical trial pipeline. I attend an excellent cancer research hospital that is at the leading edge, so PCI helps me ask intelligent questions and get down to details. I will continue to trust and depend on the excellent reporting by PCI.

2 Chris75

Client Served

Rating: 5

Great support from qualified and caring people...thank you

Previous Stories
1

General Member of the Public

Rating: 5

I got great support when i needed it most-thank you so much.

1

General Member of the Public

Rating: 5

I regularly follow the prostate cancer news on the prostatecancerinfolink.net website. This is my primary means of educating myself about new developments, and is an indispensable tool for me. Mike Scott and Allen Edel are amazing, both in the time and energy they put into preparing articles, and also in responding to readers' comments!

1

Advisor

Rating: 5

As a seventeenth year survivor of once life-threatening prostate cancer, I find this website to be amazingly good - one of the very best I've ever used!

A core strength is the profound expertise, caring, and energy that the sitemaster employs in bringing us reports of worthwhile new studies and also discussing those studies with us.

This is my best resource in keeping up-to-date on the fast moving field of prostate cancer research and trends.

Previous Stories
1

General Member of the Public

Rating: 5

I eagerly await new articles on "The "New" Prostate Cancer Infolink. Almost daily I come away with information from outstanding reviews - objective, expert, insightful and in easily understood language - of new research papers and important news in the world of prostate cancer. This is important to me as a survivor for twelve and a half years of a challenging case, important both in dealing with my own circumstances and also in educating myself so I can help other prostate cancer patients and interact with prostate cancer advocates. I frequently relay information from the Infolink to other internet boards on which I participate and to my support and education group. A key feature of the service is the comment interaction after each article. Hot topics draw a number of responses, including my own, with balanced and thoughtful participation by the sitemaster, and frequently with posts from prominent medical professionals. This is the most valuable site I have ever used.

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1

Client Served

Rating: 5

This website provides timely annotated reviews of the latest research, a useful forum to ask questions and a social network so one can coordinate with other patients, as well as patient information on a very wide variety of prostate cancer issues.

1

General Member of the Public

Rating: 5

A most informative and timely source of information for those battling prostate cancer. I personally peruse dozens of technical info on this is the best.

1

General Member of the Public

Rating: 5

Am grateful for the comprehensive, careful and clearly written advanced prostate cancer information provided by this organization.

1

General Member of the Public

Rating: 5

Hi,
I am extremely grateful for keeping me aware about the news and trends in prostate cancer treatments after total prostatectomy, which I had to undergo in November 2014, at the highly specialized Martini-clinic in Hamburg, Germany.
Your updates help to provide some clarity on expectations for future therapeutic measures, in case my PSA increases further.
Your comments hep to realize the controversial trends in postop treatments.
Please continue the way you work and help us all to keep us updated.
Thanks,, Peter Koerfgen, Switzerland

1 Mike194

Client Served

Rating: 4

I find the information posted on the PCI, "New Prostate Cancer Infolink" to be timely, relevant, and above-all, well balanced. I appreciate postings with which the site master(s) disagree and I value their comments explaining their disagreement.

As a PCA patient, I received triple therapy: HDR, IGRT, and ADT. As I read the postings, I try to put myself (with that complement of treatments) into each article.

1 NOTSDR

Client Served

Rating: 5

I have posted my reviews on this site in the past, and I can add that PCI continues to be the premiere non-profit for unbiased, truthful, critically constructive , and evaluative reporting on prevention, diagnosis, and treatment of prostate cancer. I would strongly encourage any person who wants to stay on top of the latest prostate cancer news to subscribe to PCI. The PCI "Sitemaster" not only attends and reports on new abstracts presented at professional medical conferences and he comments on the published results of recent clinical trials, but he personally responds to questions and comments from his subscribers. The PCI site has a link to enable a person to search for all articles published on the site by subject area . The distinguishing feature of PCI is the Sitemaster who has the scientific and medical knowledge to independently and accurately evaluate and opine on prostate cancer news stories, media releases, medical abstracts, and clinical trial results. Sitemaster and PCI have no motive other than educating and advocating for the patient. For those interested, PCI also has a social network for support where the patient can ask questions of other patients, participate in discussion threads, and communicate with Sitemaster on all topics related to prostate cancer. If you have a question about prostate cancer and you want an unbiased, accurate, and truthful answer, please visit the PCI site. I have advanced prostate cancer and have used the PCI site dozens of times and read the posts on a daily basis.

Previous Stories
1

Client Served

Rating: 5

If you have prostate cancer or think you might have prostate cancer, and you want to learn about the latest developments in the diagnosis and treatment of prostate cancer, then this is the internet site you must visit. What's unique about the site is the analysis and comments of "Sitemaster", who is a professional medical communications specialist extremely knowledgeable about prostate cancer. You can also ask Sitemaster questions about your personal situation and he will promptly respond with an unbiased, informative answer. For those interested, the site also offers social networking opportunities, and links to other sites related to prostate cancer research, clinical trials, and nationally adopted diagnosis and treatment standards.

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1 Bill M.

Client Served

Rating: 5

I found out I had Cancer in 2005. I discovered Prostate Cancer International several years later. I wish I had known about PCI at the beginning. PCI is the very best source of information and support that I have found, and continues to be the best. The information is timely, accurate and PCI goes to tremendous effort to make sure it is understandable. Their social network support is perfect and like PCI itself, compassionate.

Previous Stories
1

Client Served

Rating: 5

I have been using The "New" Prostate Cancer Info Link for about 5 years. It is excellent! I wish I had been connected with them before I had my surgery - their explanations are on topic and very clear. I live in Canada, and while I am very pleased with our health care programs, in terms of being patient centred and up to date, the help I received from The NPC Infolink was vastly superior to what I received from our provincial prostate cancer program. NPCI goes put of its way to understand and respond to patients needs and concerns. It is remarkable. And it also offered a blog service, expertly monitored, that connected me to other men who were dealing with prostate cancer. I recommend this service to anyone, anywhere in the world.

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1

Client Served

Rating: 5

Having a free resource this excellent was far above and begone anything I could have imagined after cance diagnosis. That was nearly a year ago and I still tell people about it all the time,.

1 John407

Client Served

Rating: 4

This site gives up to date reviews of the scientific literature. Then has personal comments to clarify the science. An excellent balanced site. They don't
Post unless the information is important and they are very temperate in their reviews.

1

Client Served

Rating: 5

Prostate Cancer International and their New Prostate Cancer Infolink, provides the best source for news and information in the world of Prostate Cancer (PCa). When I was totally confused by all of the various internet sources, this site was the one I repeatedly came back to for solid understanding and knowledge. The team at Prostate Cancer International provides objective comments and opinions to help a layperson understand the latest PCa news and information and determine what is worthwhile, and what is not.

1

General Member of the Public

Rating: 5

The "New" Prostate Cancer Infolink, under the auspices of Prostate Cancer International, is one of a kind. I know that I can read the Infolink's analysis of any new study or publication and rely on that analysis completely.

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2

General Member of the Public

Rating: 5

I rely on The New Prostate Cancer InfoLink--a part of Prostate Cancer International--to provide me with daily e-mails concerning current issues regarding prostate cancer. Those e-mails are extremely well written and very informative, and provide links to the studies, reports, and articles that the e-mails are discussing. I rely on those e-mails to keep me current on what is going on in the field of prostate cancer.

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1

Client Served

Rating: 5

This is one of, if not THE best source of prostate cancer information on the web that is tailored for sophisticated patients and their partners caregivers rather than for scientists and physicians. The information is high-quality, well-sourced, accurately summarized, and the interpretation of it is cautious and sound.

1 Jim_175

Client Served

Rating: 3

Has good up to date information, nice opportunity to net work.

1 Tony14

Volunteer

Rating: 5

Outstanding news and information for any prostate cancer survivor. I know many oncologists that tune in to the site as well.

Previous Stories
2

Volunteer

Rating: 5

Since I was diagnosed with cancer, finding reputable discussions on the topic and information was a priority. The folks at Prostate Cancer International delivered. This organization has touched many men I know as well. My role these days is as a Patient Advocate, a Discussion board leader (at another website) and a support group leader in Las Vegas. I readily pull up the research information that PCaI Provides and it has been well received by all. Thank you PCaI...

1 Bob_112

Client Served

Rating: 5

I appreciate the site master on Prostate Cancer Infolink being able to distill complex articles into terms a lay person can understand and the ability to just publish pertinent articles. Many have bee of great use and I have catalogued some for future reference.

1

General Member of the Public

Rating: 4

I have followed The "New" Prostate Cancer Infolink since prior to my radiation treatment for prostate cancer 4 years ago. I find most of the articles interesting (but I must admit some are over my head technically). Still worth following to see what's new in treatment and past results. Especially today's article "Does ADT increase risk for all types of dementia?" as I had that regimen in conjunction with my radiation treatment.