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Prostate Cancer International

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Nonprofit Overview

Causes: Cancer

Mission: Prostate Cancer International will transform global understanding of the risks associated with prostate cancer and the strategies to manage those risks until prevention is possible and a cure can be found.

Target demographics: Men who are concerned about their risk for or who are diagnosed with prostate cancer, and their familes

Direct beneficiaries per year: Between 1500 and 3000 people every single day of the year through our online initiatives

Geographic areas served: America and across the globe

Programs: The "New" Prostate Cancer InfoLink (a prostate cancer news service) and its associated social network (a prostate cancer-specific discussion form with > 6,000 members), along with other communication and advocacy initiatives.

Community Stories

174 Stories from Volunteers, Donors & Supporters

NOTSDR

Client Served

Rating: 5

I have been a subscriber of PCa International for over 8 years and it keeps getting better. There is no charge for the service and a user can ask questions about his own case and get a compassionate response about current treatments and diagnostics. The site's blog contains a wealth of very accurate reporting about the latest clinical trial results and pending research, and expert commentary about how the results and research may affect or assist the patient. Every prostate cancer patient who wants to be an advocate for himself should subscribe.

Previous Stories

Client Served

Rating: 5

I am in my 10th year with advanced prostate cancer and Sitemaster at Prostate Cancer International is still the best source of the most accurate, unbiased, and detailed information about prostate cancer diagnosis and treatment. You can read and research the latest studies, with the added benefit of Sitemaster's expert analysis, from the patient's perspective. Subscribing to the Infolink is like having your own medical communications specialist on call 24/7.

Read more

General Member of the Public

Rating: 5

This organization provides the best no non-sense progress updates on pCa development and comes with excellent summary analysis. Their opinions are one of the least biased and always from the perspective of patients. I have grown to give them a lot of weight in new treatment options. Whether you're a patient, doctor, family, or investor, show your support. I can't thank PCI enough for their years of selfless dedication. THANK YOU!

General Member of the Public

Rating: 5

Have been down loading info in regards to prostate cancer. I am a survivor & cancer free since having a prostatectomy with nerve sparing minimum evasive robotic surgery. This was back in June of 2017. I am on a 5 year exam including PSA blood test at my urologist surgeon’s lab at his practice which is about 25 to 30 miles from my home. Still recovering with some minor side effects which is only ED but seems to be improving. I was very lucky that I had a low Gleason Score & preceded with the recommendation procedure about 5 or 6 months from the biopsy being sent to pathology and confirming that I had prostate cancer. After my surgery the results from the Pathologist lab verification, all the cancer was contained inside the prostate capsule. No cancer found in the removed lymph glands & seminal vessels. My being able to control my urination was in about 6 to 10 weeks & only had to use a pad about once or twice a week. At this date I no longer need a pad at all.

General Member of the Public

Rating: 5

Unbiased information that balances good science and a sensitivity to the needs of its readers. I use it to help me be a better patient and recommend it to my own patients.

General Member of the Public

Rating: 4

There is a lot of crap on the web, but this site is on the opposite side of that spectrum as it provides well researched-well reasoned information on prostate cancer and its treatments. This site has provided guidance and direction in researching my own cancer, and has been a great help in that regard in allowing me to make an informed decision. A tremendous amount of work and effort goes into the site and I greatly appreciate the information it provides.

Tony C.2

Advisor

Rating: 5

Best prostate cancer information in one website. Thanks Mike.

Client Served

Rating: 5

As a prostate cancer patient in the Netherlands i have through the years profited from the reliable information from Prostate Cancer International during and after my treatment.

JimWaldenfels

General Member of the Public

Rating: 5

I use "The 'New" Prostate Cancer InfoLink several times weekly, both reading and often participating. It is a superb site that brings new developments and issues to the attention of the medical and survivor communities and allows us to share comments.

Previous Stories
1

Advisor

Rating: 5

As a seventeenth year survivor of once life-threatening prostate cancer, I find this website to be amazingly good - one of the very best I've ever used!

A core strength is the profound expertise, caring, and energy that the sitemaster employs in bringing us reports of worthwhile new studies and also discussing those studies with us.

This is my best resource in keeping up-to-date on the fast moving field of prostate cancer research and trends.

Read more

Client Served

Rating: 5

The ongoing reporting of prostate cancer news on prostatecancerinfolink.org is an invaluable resource for prostate cancer patients who don't have the time or expertise to wade through all the published literature. This site owes everything (well, almost everything) to the tireless efforts and balanced judgment of sitemaster Mike Scott. As a patient and support group leader, I rely on this site on an almost daily basis to keep myself informed.

1

Client Served

Rating: 5

I received Important and critical information here when I first got news that I had prostate cancer. At this time I was overwhelmed with the diagnosis and confused on next steps and the timeframe that I needed to make decisions. This was an extremely valuable resource and I am very thankful I had this available.

Regards,
Tom W

Client Served

Rating: 5

I can't begin to tell you how helpful PCI has been to me. Immense help!!!

Could not survive without them.

Client Served

Rating: 5

Virtually every day, the "New" Prostate Cancer Infolink, sponsored by Prostate Cancer International, posts between one and three articles about prostate cancer. The articles are extraordinarily informative, trustworthy, and well-written. The website is a must for any person who is concerned about prostate cancer, whether the person is a patient, a family or friend of a patient, a potential patient, or a health-care provider.

Client Served

Rating: 5

This site and it's site master has been a tremendous support for me as someone with Prostate Cancer. It provides me with the highest standard of information about developments in the science of Prostate Cancer.
The site master then adds to it's value by adding concise interpretation to the reported work.

Board Member

Rating: 5

The jewel in the crown of PCI is their off-the-charts fantastic summaries of the latest advances in prostate cancer in their "New Prostate Cancer InfoLink." If I had only one source of information on prostate cancer that I could follow, it would be this one. Mike Scott and Allen Edel are remarkably knowledgeable and thorough in their coverage of all forms of prostate cancer diagnosis, imaging and treatment of prostate cancer from active surveillance to mCRPC. I'm a Board member for the Answer Cancer Foundation and we offer virtual online support calls for men living with all stages of prostate cancer (and other cancers) and the postings of Mike and Allen are often discussed on our calls. We love these guys.

1

General Member of the Public

Rating: 5

Accurate, unbiased and easy to understand interpretation of all aspects of prostate cancer medical information, including controversies, from screening and diagnosis to treatment and the latest research topics. Very helpful.

General Member of the Public

Rating: 5

Great summary of most current news about prostate cancer

General Member of the Public

Rating: 5

Great information to a couple who is trying to learn as much as we can about P.C.

Client Served

Rating: 5

The New Prostate Cancer Infolink Social Network is best of class. Before there were navigators to help those newly-diagnosed deal effectively with prostate cancer, the network was there for me.

Without the Infolink, I would likely have made a bad decision and have been needlessly sterile, impotent and (likely) incontinent for the last ten years. Need I say more?

Client Served

Rating: 5

When I was diagnosed with prostate cancer I received urgent advice to proceed with surgery and equally urgent advice to proceed with radiation. It was only at the "New" Prostate Cancer Info site that I found simple straight forward advice on both treatments as well as the only advice on "watchful waiting". Plus's ,minus's and the simple "we do not know for sure" on all methods without an agenda.

That was nearly eight years ago, no surgery, no radiation and still at pretty stable low risk. This is where I go to keep aware of advances in treatment and a dose of reality on new "cures". With "cured" bladder cancer and skin cancer this site feels like "home".

Advisor

Rating: 5

Excellent summaries of current medical reports on advances in treating prostate cancer.
Their web site, prostatecancerinfolink.net, is the most current and most informative site for current information on this disease. I highly recommend it to men in my prostate cancer support group. The posts provide very understandable summaries of current medical articles and advances and focus on the issues men need to understand to effectively cope with our disease.

Client Served

Rating: 5

When I needed help and support, they were there. Unable to add anything to that.

Josep Rodriguez P.

Client Served

Rating: 5

I live in Catalonia. I use to visit the website almost every day and keeps me up to date in new drugs, management and risks of prostate cancer. Is a website written by specialized doctors. There is also forum where you can ask and comment the news posted. I think is the best website about prostate cancer.

Marvin Z.

General Member of the Public

Rating: 5

informative and timely. Has helped me keep up with up to date information and current studies dealing with prostate cancer.

General Member of the Public

Rating: 5

PCI's Prostate Cancer Info Link is a terrific resource for those of us with Prostate Cancer. It's informative about the latest developments and insights that I just can't find anywhere else.

Claire A.

Client Served

Rating: 5

Although I was not the one diagnosed with prostate cancer, this organization was an emotional lifesaver for me! In addition to providing me with valuable information about Prostate Cancer, the emotional support, especially after my husbands initial diagnosis, was irreplaceable. I will NEVER forget the initial support that I received through Jan Manarite via PCRI. When I got on the "New" Prostate Cancer website, posing fearful questions, Dana actually called me and spoke with me by phone (as did Jan Manarite). I read Patrick Walsh's book immediately, but it is when I read Victoria Hallerman's (met on website) book "How we Survived Prostate Cancer" that I began feeling "felt". I don't check in much anymore, though my husband has progressed through surgery, radiation, and now (within last 2 months) to Casodex and Androgen Deprivation. I wholeheartedly recommend this organization to anyone who has Prostate Cancer, or who loves someone with Prostate Cancer! Claire C

Client Served

Rating: 5

The website does a wonderful job to bring a balanced view or recent developments of a frequently encountered malignancy to a demanding in often very knowledgeable audience, one that does not easily fall for hype nor fads. The information is provided in digestable bits with excellent references to more detailed studies. Worth every line of it.

Steve A.1

Client Served

Rating: 5

The definitive source for the latest prostate cancer information that is evidence-based, cogent, and written at precisely the right level of technicality. I have used PCI almost every day since I was diagnosed and it has helped me choose therapies wisely that, I believe, have saved my life. Absolutely love this organization.

1

Professional with expertise in this field

Rating: 5

I am a medical oncologist and a prostate cancer patient.
The information I get from this group is comprehensive and outstanding.
Every prostate cancer patient and his loved ones should take advantage of this.

Howard W.

Client Served

Rating: 5

I was diagnosed with early-stage prostate cancer eight years ago. PCaI's website is my go-to place for news and commentary on PCa. The Sitemaster is on top of the news in the field.

1 Ron_50

General Member of the Public

Rating: 5

I live with very advanced prostate cancer in Melbourne Australia. I am also involved in academic research, albeit not medical. PCI offers me the perfect gateway to the most up-to-date science research relevant to my situation. Plus insightful and realistic explanations and commentary. It has helped me understand the options available to me now and in the clinical trial pipeline. I attend an excellent cancer research hospital that is at the leading edge, so PCI helps me ask intelligent questions and get down to details. I will continue to trust and depend on the excellent reporting by PCI.

2 Chris75

Client Served

Rating: 5

Great support from qualified and caring people...thank you

Previous Stories
1

General Member of the Public

Rating: 5

I got great support when i needed it most-thank you so much.

1

General Member of the Public

Rating: 5

I regularly follow the prostate cancer news on the prostatecancerinfolink.net website. This is my primary means of educating myself about new developments, and is an indispensable tool for me. Mike Scott and Allen Edel are amazing, both in the time and energy they put into preparing articles, and also in responding to readers' comments!

1

Client Served

Rating: 5

This website provides timely annotated reviews of the latest research, a useful forum to ask questions and a social network so one can coordinate with other patients, as well as patient information on a very wide variety of prostate cancer issues.

1

General Member of the Public

Rating: 5

A most informative and timely source of information for those battling prostate cancer. I personally peruse dozens of technical info on this is the best.

1

General Member of the Public

Rating: 5

Am grateful for the comprehensive, careful and clearly written advanced prostate cancer information provided by this organization.