Saving case &friends and board members mission is to educate parents bringing support and sharing the latest studies in MPS II. SC&F are the only ones I know personally that work in the benefit of our kids getting people together to fund Gene Therapy Replacement the only treatment close to the cure for our boys. This is the site to go
Saving Case & Friends Inc. is making strides on funding a cure for Hunter Syndrome.
The organization is 100% dedicated to making sure Hunter Syndrome is cured in the near future!
Hunter Syndrome is deadly. It is a terrible disease that primarily affects boys, and sometimes entire families and generations of boys who if they are lucky become men. Saving Case & Friends are our band of brothers. This Nonprofit tirelessly supports our families, and continuously driving to save these kids through new treatments, research and scientific innovation. Saving Case & Friends makes a difference in the lives of Hunter Syndrome patients every day by celebrating triumphs, supporting in times of disappointment, setbacks or grief, and in an even greater way by driving for change demonstrating that every boy's life has meaning and their lives are worth saving, and that they deserve the right to grow up and be something through all this adversity. Thank you Saving Case, thank you!
My son, Zain, has Hunter Syndrome. Our hope to save our boys is in the heart of awareness and research. Saving Case & Friends are relentlessly and passionately pursuing awareness and fundraising, through #ProjectALIVE, for a gene therapy that will be the miracle we've prayed for...a cure to save our boys lives. Our boys just want to be ALIVE. ProjectAlive.org
A mother who loves her son very much,
saving case...what can I say about this chairty that can make you stop and take a look? It has, in my opinion, not only raised vital awareness for hunter syndrome but it has given the 2000 families worldwide; hope. It has shown me, personally, that I am not alone. At the end of an Internet connection case and so many other boys are alive and fighting everyday just like my son.
The awareness alone on 'Project Alive' has had and is currently have huge success....I live in Ireland, the Irish are getting involved! Melissa, Case's mom, the founder of this chairty; isn't a superhero, she isn't any different from you or I-but, she has a mission within herself and it's not just for Case; it's for all our boys. I do wish I lived closer to help Melissa but to be honest I think she's doing a darn good job with the team she has.
Melissa is every mom; every mom who's watching thier child die slowly before thier very eyes...she's a force to be reckoned with and without her and her drive there would be no Project Alive or Saving Case...which means for me; there would be no hope, no support.
Saving Case is far more than a chairty...it is a community, a beacon of hope for families like Cases all over the world.
Please I beg you help support us .
Saving Case and Friends is the go to site for information and inspiration on Hunter Syndrome. Understanding the disease is imperative to better treatments and quality of life and you can find it all there.
Awesome charity for helping boys that have been dx with Hunter Syndrome. Great information for those that want to learn more about the cause.
When my son was diagnosed with Hunter Syndrome, nobody I had known and not even our Pediatrician had heard of it, and we had no information. Like any parent terrified for their childs future I took to Google to see what I could learn. I found Saving Case and Friends, and was amazed at all of the information about this horrible disease, and the care that only another parent suffering with their child through this devastating disease could present. We are a small community due to the rarity of this disease, but Saving Case and Friends has managed to bring a lot of families together to try to save our boys.
Saving Case & Friends is an amazing group. When our son was first diagnosed with Hunter Syndrome we relied on the people at Saving Case & Friends for critical advice about treatment options, specialty care, and doctors versed in this disease. We also recieved tremendous emotional support as we coped with this devastating diagnosis for our son. Since then, Saving Case & Friends has been a great reseource for the latest medical research, healthcare indsutry news, and regulatory develoments. The group also does an amazing job driving advocacy for Hunter Syndrome. Saving Case & Frinds is truly an outstanding organization.