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2016 Top-Rated Nonprofit

PCOS Challenge, Inc.

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Nonprofit Overview

Causes: Health, Health Support, Patient & Family Support, Specifically Named Diseases

Mission: Raise public awareness about Polycystic Ovary Syndrome (PCOS) and help women with the condition overcome their symptoms and reduce their risk for life-threatening related diseases such as endometrial cancer, type 2 diabetes and cardiovascular disease.

Results: PCOS Challenge: The National Polycystic Ovary Syndrome Association is the leading 501(c)(3) nonprofit support organization advancing the cause for women and girls with polycystic ovary syndrome globally, serving nearly 50,000 members. Because of individuals like you, we now touch the lives of tens-of-thousands of women with PCOS and their supporters each year through television and radio programming, a magazine publication, online and offline support groups, health screenings, research, grants, education, awareness and advocacy initiatives. Since our beginning, we have helped many women find answers that have helped them overcome their struggles with infertility, weight gain, anxiety and depression and reduce their risk for numerous life-threatening related diseases.

Target demographics: Up to 14 million women and girls in the U.S. who are affected by polycystic ovary syndrome (PCOS).

Direct beneficiaries per year: Nearly 50,000 PCOS Challenge members and tens-of-thousands of other women and girls with PCOS through PCOS Challenge's awareness, education and outreach initiatives.

Geographic areas served: United States

Programs: 1) Educational symposia with world leading experts on PCOS and related to conditions. 2) PCOS magazine, cable television and radio programming. 3) Online and offline support groups for women with PCOS. 4) PCOS community awareness, education and engagement initiatives including health fairs, screenings, fitness activities and walks.

Community Stories

18 Stories from Volunteers, Donors & Supporters

Michelle401

Professional with expertise in this field

Rating: 5

PCOS Challege, INC is lead by the most selfless leaders who dedicate their time as volunteers. I find that its very rare in a non-profit that the funds raised go directly to programing to help the intended audience, and that's what they do for women with PCOS. Sasha and William's unwavering dedication has brought much needed resources, symposiums, and resources together to help women with PCOS be their own health advocates, educate health care providers on how to treat women with PCOS, and bring together a community so that no one has to face PCOS alone. If I could give this organization 6 stars, I would.

Volunteer

Rating: 5

PCOS Challenge is a great non-profit organization!!! The work that Sasha and William put in for this organization is outstanding. If it wasn't for this organization, I wouldn't have received the knowledge about PCOS! I am so thankful for them and everyone involved. Being able to attend the symposiums to meeting others that suffer with PCOS as well as professionals that specializes in helping women and the family members cope with PCOS, is life-changing! Thank You PCOS Challenge Inc. for all that you do!

1

Volunteer

Rating: 5

It's an amazing feeling to know that you're part of something bigger than yourself. I am fortunate to say I have felt this feeling everytime I have volunteered at a PCOS Challenge event. Seeing so many women and their families come show support at the most recent symposium/walk was inspiring. I am proud to have not only volunteered, but also sponsored a Virtual Walk Team.
I look forward to seeing the PCOS Challenge grow in the future and cannot wait for the next event!

1

Volunteer

Rating: 5

PCOS Challenge, Inc. is a great nonprofit organization for information, support, and friendships. I recently volunteered and participated at the 2016 Symposium and Bolt for PCOS 5K which was truly special. PCOS Challenge hosted the event and did an outstanding job putting together a successful fundraising event. I highly recommend this organization.

1

Volunteer

Rating: 5

PCOS Challenge is an inspired health organization that I've seen in action over the years and most recently through it's affiliation with The Estée Lauder Companies "ELC Good Works" volunteer initiative! What I know firsthand is that PCOS Challenge has consistently created amazing opportunities for corporate teams -- small and large -- to serve diverse communities of women and girls globally. From New York to Philly to Rome and now Madrid, I have supported and continue to support PCOS Challenge, both personally and professionally. I feel grateful to be part of the PCOS movement. Thank you Sasha Ottey and staff for being the best in the world at what you do!

[[This review is based on my experiences volunteering with PCOS Challenge and is not an official endorsement by The Estée Lauder Companies or its brands.]]

2

Volunteer

Rating: 5

PCOS Challenge, Inc. saved my life. In my 20s, I knew very little about the disorder, yet it had its way with me. Following my first PCOS Challenge Symposium, I was armed with the right tools to not only fight PCOS at home, but also in the doctor's office, where the battle continues to educate. Three symposiums later, I've volunteered with the organization and seen how it works at its core. The help is genuine just as much as it is effective. The only "challenge" is getting this organization funded so that it can help more women and girls suffering in silence.

2

Volunteer

Rating: 5

I choose to continue to support PCOS Challenge, Inc. because it has been a life changing experience to witness how important this organization has been for thousands of women and girls with polycystic ovary syndrome as well as their supporters and healthcare providers. There is an immediate need for increased support for this cause, especially with PCOS being the most common hormone disorder and cause of infertility and leading to early diabetes and heart disease. I believe that more people and corporations should recognize the importance of supporting PCOS Challenge and their work that is improving the health and lives of so many women, girls and their families.

2

Volunteer

Rating: 5

When I was diagnosed with PCOS and quickly learned how many women also have this condition, I knew I had to learn more. I attended the PCOS Symposium hosted by PCOS Challenge in Philadelphia to learn more about what was going on with my body. When I reached out to PCOS Challenge to volunteer at the Symposium, I was welcomed with open arms and was thrilled to learn about how PCOS Challenge tackles PCOS awareness from all angles. PCOS Challenges provides awareness of the emotional, physical and psychological effects this syndrome has on a women's body by providing the PCOS Challenge confidence grant, as well as educational resources for women and their loved ones. It's comforting to have an organization who not only educates women but also provides a forum for the millions of women who have PCOS to openly discuss the complexities of this syndrome.

2

Volunteer

Rating: 5

I was first introduced to PCOS Challenge, Inc. three years ago, and was immediately blown away by the compassion shown to the PCOS community! This organization is truly committed to supporting women and girls with PCOS. I've learned more about PCOS through the resources offered by PCOS Challenge than from my own physicians! This year marked my third year as an active volunteer, and it feels good to be connected to such an organization. They have greatly impacted my life positively, and have motivated me to do the same for other women and girls!

3 Christina135

Donor

Rating: 5

Love what PCOS Challenge does for those with PCOS. Sasha should know that what she does is greatly appreciated.
Knowing that PCOS is greatly underfunded is why I will continue to help raise funds for PCOS Challenge and will continue to advocate for PCOS. Can't wait to volunteer again next year.

2 Nikol H.

Volunteer

Rating: 5

PCOS challenge is so awesome it's great to be with people who are fighting the same battle as you and be a big support group for one another.

2 Margaret86

Volunteer

Rating: 5

As a PCOS patient, I appreciate what PCOS Challenge is doing for increased awareness. I was not diagnosed properly with PCOS until I was 29. That is too long to not know what is going on in your body. And once I was diagnosed, I still didn't have knowledgable doctors treating me effictevly, because they weren't taught about PCOS and nutrition importance in med school . Eight years later I have found PCOS Challenge who has given me a network and support group. Through their efforts I've linked up with people who I can talk with about treatment options and just feel like I'm not alone. This organization has changed my life.

3 Writer

Volunteer

Rating: 5

I have volunteered with several non-profit organizations over the years. None of them compare to the commitment and professionalism of PCOS Challenge. This organization believes in their mission wholeheartedly and works tirelessly to ensure that awareness of PCOS is front and center. The vision of PCOS Challenge is one that has mobility and effective changes to ensure that women who suffer from PCOS do not do so alone. Their impact on PCOS research is unparalleled with any other organization. I am proud to know Sasha Ottey, Executive Director, and the entire board of PCOS Challenge, and I look forward to working with them for many years to come.

4 Ashley181

Professional with expertise in this field

Rating: 5

It's important to have people who understand you, advocating for you.
PCOS Challenge exists to provide comprehensive information, support, and advocacy for women and girls with  polycystic ovary syndrome or PCOS. Because the organization is comprised of cysters, medical professionals and staff who live through and/ or understands the disparities and obstacles that need to be overcome in the womens health community. This syndrome for this syndrome can be heard and recognized as a serious health initiative. It is their passion that inspires change, hope and movement towards better health for all women and girls with PCOS. I want to be part of that change and part of and organization that is at the forefront of making that change happen.. Kudos to PCOS Challenge for blazing the trail and delivering much needed support, advocacy and education for the syndrome and patients it serves.

3

Volunteer

Rating: 5

PCOS Challenge is awesome! Sasha and William do a fantastic job of advocating for PCOS! The PCOS Symposium literally changed my life! This year is the 2nd year I've attended the symposium. I've learned so much about how to manage this condition from the symposium and PCOS Challenge. Before I became aware of this organization, I was not managing my lifestyle to best control PCOS and its symptoms. Now, I know the best ways to eat, exercise, supplement and medicate myself. I've been able to find doctors and other resources through PCOS Challenge that have helped me tremendously in improving my health. Also, I know that every woman with PCOS needs to advocate for herself!

3 Ginny19

General Member of the Public

Rating: 5

Amazing! They provide a wealth of knowledge to women with PCOS. Phenomenal advocates

2

Volunteer

Rating: 5

PCOS Challenge, Inc. asked us (Omega Phi Alpha-Nu Chapter) to partner with them to hold the first ever PCOS Awareness Symposium Weekend 2016 at Georgia Tech. It was such a pleasure to be able to work with them on this event. They are so passionate about what they do, and it was amazing to see how many lives they have changed. I look forward to being able to partner with them again to have the opportunity to make an even bigger difference. Thank you for all that you do!

3 Shelby14

Volunteer

Rating: 5

PCOS Challenge is such an amazing organization making such a difference in the PCOS community. With PCOS being so greatly underfunded and misunderstood, it was so comforting finding such a vast resource of knowledge and and sense of community with fellow pcos sufferers.