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Causes: Diseases of Specific Organs Research, Health
Mission: To provide the leadership and resources needed to support increased research, accelerated diagnosis, improved health, and ultimately a cure for primary ciliary dyskinesia (pcd).
Programs: Conducted regional support meetings to provide information to individuals afflicted with pcd.
development of clinical centers at major hospitals throughout the united states. These clinical centers will make informaiton available to the medical community about the nature of pcd and provide updated research infromation.
patient registry and other development costs to document pcd afflicted individuals. The registry can only be updated by qualified medical personnel.