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Parent Heart Watch

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Nonprofit Overview

Causes: Children & Youth, Disaster Aid, Health, Heart & Circulatory System Diseases & Disorders

Mission: Parent heart watch is the national voice protecting youth from sudden cardiac arrest sca and preventable sudden cardiac death scd. Parent heart watch leads and empowers others by sharing information, educating and advocating for change.

Programs: Phw annual conference - three day conference for members and other interested individuals with presentations by medical professionals and exhibits of allied associations and equipment manufacturers

educational conferences - attendance and exhibition at selected mission related conferences to further awareness of sudden cardiac arrest in children and youth, distribute educational materials and meet with medical and allied health professionals and equipment manufacturers to gather information for further dissemination to members.

distribution of educational materials to requesters and affiliates - distribution of aeds to children-serving institutions and locations of high public access via local phw associates

Community Stories

8 Stories from Volunteers, Donors & Supporters

Volunteer

Rating: 4

I lost my son in July of 2011, and this organization was their for support. they offered great resources, friendship and moral support. Even as most of the members have their own foundations, the Parent Heart Watch is their to help with success with each and every one of them.

Volunteer

Rating: 4

This organization is a great source of support. After I lost my son in 2009, I was searching for answers. Even though I haven't really gotten my answers, I have found a way to make a difference and turn my tragedy into something good. The resources and support provided by PHW helped tremendously.

Review from Guidestar

Board Member

Rating: 5

Parent Heart Watch is an excellent organization that educates and more importantly offers the kind of support only those who have lost a child or has a surviving child can relate too. I am a member of this organization because I too lost my son from sudden cardiac arrest. I have supported Parent Heart Watch and watched this organization grow into a Nationally ranked organization that provides the highest quality of service and expertise to its members and anyone looking for knowledge of Sudden Cardiac Arrest in youth.

Review from Guidestar

Susanslcm

General Member of the Public

Rating: 5

After losing my son to SCA, i reached out to PHW and they have been so helpful in educating us on SCA and introducing us to other families that have experienced a similar loss. They are so committed to raising awareness on SCA, CPR and AED. They do so much with research, working on legislation and so much more. I feel proud to say I am a member of PHW.

Review from Guidestar

bobroy

General Member of the Public

Rating: 5

I lost my youngest son Travis to Sudden Cardiac Arrest in June, 2005. One of the first people to reach out to my family was one of the founders of Parent Heart Watch. I can't tell you how important that outreach was to my family at that particular moment. We have been members ever since. Parent Heart Watch is an outstanding organization, most of whom have lost a child themselves to Sudden Cardiac Arrest. You will not find a more passionate, committed group of individuals.

Review from Guidestar

1

Board Member

Rating: 5

Parent Heart Watch is filled with amazing people who inspire others to create a better world than the one we had yesterday. I'm so lucky to be a part of this organization which has helped so many members and volunteers advocate, educate, and raise awareness about heart disease in children. Its members and leaders are some of the most inspiring and driven people I've met in my life.

Board Member

Rating: 5

I am so proud to be associated with Parent Heart Watch. Not only does this organization educate so many people about sudden cardiac in youth and measures to prevent it, the level of genuine passion for this cause is second to none. In addition, many creative avenues are utilized while maintaining fiscal responsibility.

Review from Guidestar

JonathansHeart

Volunteer

Rating: 5

Parent Heart Watch brought me comfort and direction during a tragic time. In 2004, we lost our 9 year old son Jonathan to a brain injury he sustained after experiencing Sudden Cardiac Arrest which was caused by an undetected heart syndrome called Long QT. PHW reached out to us to let us know there were others too who lost children unexpectedly to SCA or resulting injury from SCA. They let us know that we could take our grief and channel it into a productive, life saving mission for others. PHW focuses on Primary Prevention (screening hearts) and Secondary Prevention (creating 'heart safe' environments where our children and youth work and play) through SCA Awareness, CPR training and Public Access to AEDs (defibrillators). I first became a member for healing (these are some of the best people I know) and quickly became a volunteer to help in the mission of protecting not only our youth, but our community from THE number one cause of death in the US. After SCA no family should be told "We didn't know what to do!", this will leave them haunted by the vision of their loved one not receiving care in a timely fashion. They should always be told "We did everything that we could (called 911, started CPR, got the AED)" Knowing this, whether the person was able to survive or not will make a world of difference.