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Pandora Org

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Nonprofit Overview

Causes: Health, Specifically Named Diseases

Mission: Our mission is to raise awareness and restore quality of life in persons with myalgic encephalomyelitis, fibromyalgia and related NeuroEndocrineImmune disorders. PANDORA empowers through patient assistance programs, is strong on advocacy, fosters education, and champion cures for neuro-endocrine-immune disorders through research. Vision: To make Myalgic encephalomyelitis, Fibromyalgia and related neuro-immune diseases understandable and curable.

Results: To date, there are no FDA approved treatments for myalgic encephalomyelitis (ME). PandoraOrg, along with other organizations, were responsible for getting an FDA stakeholder meeting with patients and key governmental agencies at the table. PandoraOrg was asked to give a report about ME to the IOM during their scientific process of reviewing the state of ME/CFS. We were able to provide immediate assistance to hundreds of patients with our Compassionate Care Programs by delivering meals, giving Covered in Love quilts and helping with transportation to appointments.

Target demographics: Individuals stricken with NeuroEndocrineImmune Disorders.

Direct beneficiaries per year: patients by delivering several hundred meals. 46 quilts have been hand sewn and presented to those experiencing isolation and helplessness.

Geographic areas served: improving patients lives

Programs: PandoraDelivers™, arranges for nutritious fresh meals to be delivered nationwide to patients who are too sick to cook for themselves. The program helps with short term needs for patients who are going through an especially tough time such as returning from hospital visits. Covered in Love program provides home sewn quilts to patients experiencing a loss, undergoing distressing circumstances or facing a scary medical procedure. Advocates Extraordinaire™, a leadership advocacy program aimed to teach patients to express effectively their personal voices and work in collaboration with our board to implement fund raising, grass roots campaigns, media awareness. One Voice, One Community, One Cause™, an advocacy program dedicated to bring unity to our overall community, We aim to reduce the gap between the many organizations and patient groups working as a bridge to facilitate understanding, foster collaboration and increase trust among the groups and other stakeholders. The goal of the program is to engage our health government agencies in a much needed conversation and assure a seat at the table on issues affecting public health.

Donor & Volunteer Advisory

This organization's nonprofit status may have been revoked or it may have merged with another organization or ceased operations.

Community Stories

119 Stories from Volunteers, Donors & Supporters

8 Donna N.

Client Served

Rating: 5

I have tears in my eyes when I try to describe what PANDORA has done for me. They offered support and guidance when all seemed lost. A family member was hospitalized and our rights were being violated. There was internal chaos within the hospital over our case. PANDORA was there with us, step by step, sorting out the steps, and with PANDORA' s help and our insurance company, we were able to have the strength to leave the hospital AMA and get the second opinion we needed, which was drastically different from the first. They also sent us a gas card to help with travel cost. The passion and compassion that drives the volunteer members is amazing. They understand the needs of people who have NEIDS. They change words into action for what is needed most to help a person overcome rough spots.

1 Evelyn Zaida Y.

Client Served

Rating: 5

Pandora Org is absolutely amazing! I HIGHLY recommend this organization! Lori Chapo Kroger kindly reached out to me after a friend contacted her about an emergency move I had to do. I’ve had chronic and severe Cfids/me/cfs for 23 years and the stress of having to move and the financial stresses of moving while being sick are taking a toll. I can’t tell everyone enough how much it meant to have someone just kindly contact me and offer so many meals. Lori then had Sandy Adkins Sizemore contact me to order Mom’s Meals. The kindness each exhibit is a huge blessing to people who are enduring the stresses that come while being chronically ill. In only a few days I received such a nice big box with 16 meals, fruit cups, rolls, juice boxes, cookies, and an activity book! Thank you SO much Lori, Sandy, and Pandora Organization!

1 LoriKroger

Volunteer

Rating: 5

Our ME community is underserved and under diagnosed. People with this disabling illness usually lose their jobs, therefore it easy to also lose self-esteem and self-worth. It's pure joy to volunteer for an organization that lets each person use their God-given talent to serve others. "Health First" is their volunteer motto since most volunteers also have ME. I'm glad for Pandora Org and all of their "workers." Your work here is so important because you let people with ME, who are invisible because they spend months to years home-bound, know they are cared for and not alone. You also help them live independently. Go Team Pandora Org!

Previous Stories
3

Board Member

Rating: 5

Your donations make a huge difference in peoples lives. 98% of donations are used for programing. It is a pleasure to serve the people who rely on Pandora Org! This is the only ME, CFS and fibromyalgia organization that directly serves patients. My heart melts every time a recipient is over the moon happy to get help.

You see, most people with these illnesses feel abandoned and isolated. Pandora Org remembers them and acknowledges their suffering and existence. Can you imagine being too sick to walk to the kitchen to cook? People with severe ME are bed bound. I know people who have eaten cereal for each meal because it's easy to have a box of cereal at bedside. Pandora Delivers™ fresh meals is a game changer for these people. It's a difference of being placed in managed care or staying home and remaining independent.

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1

Client Served

Rating: 5

Absolutely love and am grateful for Pandora.org. During a period of being bed bound with ME/CFS and another after cancer surgery with no local help, this group saved my life by making sure I had healthy meals that all I had to do were heat in microwave. GREAT organization!

1 Cathy38

Client Served

Rating: 5

They doctor at a Mayo Clinic held my hand and said, I know what you have
(ME/CFS) but you will find little or no support from your medical community back home. He was right!
What he didn’t know is that a month later I would find the support of Pandora.org! I have been apart of their support group, benefited from many life changing resources and have met so many new friends that share this journey.
My favorite resource is getting introduced to a healing meditation tape, so much apart of my healing

Previous Stories
4

Client Served

Rating: 5

This non profit organization has helped so much with my battling a misunderstood illness.
I have learned so much and have made so many friends. Without people like this I felt so alone trying to understand what even Doctors don't understand. Thank you Thank You Thank You!

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1

General Member of the Public

Rating: 5

Pandora ORG is a wonderful organization that serves those with ME/CFS, fibromyalgia and other neuro-immune diseases. They not only provide meals to those who are too ill and isolated to prepare a meal, but they also provide quilts to comfort them. This organization is run by some wonderful people who truly understand the suffering of these people and advocate for them giving them comfort for today and hope for tomorrow.

1 kthrnstephens079

Client Served

Rating: 5

There is no org that I know of that caters to and supports neuroimmune disorders in the same way they do. PANDORA does it all, both personally and peripherally, with direct patient contact and support and in educating those who care for us medically. Their Covered in Love quilt program gifted me at a time I was in a medical crisis and I know patients they have served with their Meals program who were so grateful for them.

They not only give accurate information to our physicians so we can be treated appropriately and correctly, but they give hands on support to patients with chronic illnesses such as ME/CFS, Fibromyalgia, Chronic Lyme and Gulf War veterans.

Most of all, PANDORA give HOPE to millions who have been suffering in silence, invisible and ignored.

I support them fully.

Previous Stories
1

Client Served

Rating: 5

I have supported and worked with this great organization for three years now. They not only give accurate information to our physicians so we can be treated appropriately and correctly, but they give hands on support to patients with chronic illnesses such as ME/CFS, Fibromyalgia, Chronic Lyme and Gulf War veterans.

There is no org that I know of that caters to and supports neuroimmune disorders. PANDORA does it all, both personally and peripherally, with direct patient contact and support and in educating those who care for us medically.

Most of all, PANDORA give HOPE to millions who have been suffering in silence, invisible and ignored.

I support them fully.

1

Client Served

Rating: 5

After many years of not knowing what was "wrong" with me, I found a support group where I met Lori Kroger. She always lent an ear and had answers for me. There are so many folks that have benefited from the Pandora Org. I hope they continue for many, many years to come.

Carla Hager

1 Pat English H.

Client Served

Rating: 5

Pandora,offered my husband and I help with meals when he had surgery and I was unable to care for him.
It was a blessing to receive the meals , as well as the ease and convenience of using them the delivery to home and even to the kitchen counter.
Thanks you Pandora

1

General Member of the Public

Rating: 5

I am so thankful for all Pandora Org does. As someone with a neuro-endocrine-immune disease (NEID), I greatly appreciate their advocacy work, which has prompted big gains in how well the federal government (HHS ) understands and supports these types of illnesses. Plus, just knowing that this group exists and can provide information and support is highly comforting when dealing with a illness that is not well understood or treated. And as a member of an online patient group for people with an NEID(s), I have had the pleasure of witnessing the support and lifeline they have given to many under-served people facing some of their most difficult days.

For some sufferers, Pandora's meal delivery service has made the difference between wasting away on crackers and eating decent food. And the quilts - each a beautiful, creative, colorful, lovingly handcrafted work of art, thoughtfully designed with the recipient in mind - provide a "cover of love" for those going through hard times. The quilts also put a smile of the face of all of us who are fortunate enough to see photos of the joy in the faces of the receivers.

I highly recommend supporting this group. All staff are volunteers, and virtually all donations go directly to services provided to patients, who are often neglected by the medical community and other not-for-profit service providers.

1 Gina79

Client Served

Rating: 5

When my disabled friend was in desperate need of help.. I, also disabled and living 2000 miles away...she called every government agency, Church, local non profit, trying to find help for her and her autistic son to no avail. One email from me to to Pandora.org and my friend was given immediate assistance. Not only did it take care of her immediate physical need, she finally felt loved and cared for after a year of everyone else telling her no...we won’t help you. Thank you Pandora! For caring for the forgotten folks. God Bless!

General Member of the Public

Rating: 5

Meal delivery service helps many homebound patients. The "Covered In Love Quilt program lifts the spirits of patients who are having a hard time. I have deep respect for,this program.

Karen B.

General Member of the Public

Rating: 5

I have seen many friends find hope through this organization. Hope is a lifeline that is very sorely needed at times when pain and suffering is at a peak. Giving out quilts to cover these patients in love is an amazing act of compassion that offers so much comfort to worn minds and bodies!
As a huge group of people who have little help in the current medical community, Pandora being a voice for our suffering is a huge relief to us. Most do not have the physical ability to be proactive in our own medical future. I rely on them to be the voice for all of us. They do this well!
I am thankful for all the members of this amazing organization and all it does for the ill community.

Client Served

Rating: 5

PANDORA Org is totally made up of volunteers who are always ready and available to assist others in their fight with these terrible neuroendocrine-immune disorders. The volunteers have these disorders themselves so they know of what they speak which makes their informative information more timely. When I was very, very ill and totally unable to get out of bed, I received meals from this wonderful organization and tips to help myself get well. The information that I received from the hospital and doctor did not even have these little tips to feel better. I cannot fully express all of my thanks for their help when I needed it most!!!!

Josephine3

Client Served

Rating: 5

The people behind Pandora are the best!
Pandora helps chronically ill people with food when necessary and sends amazing self handmade quilts.
They literary cover us in love.
I am from a different continent and I was fortunate to receive a beautiful quilt. We feel so loved.

Client Served

Rating: 5

I just cannot say enough about Pandora.org. And all the things they do. They reach out to people during hardship. Or if they think they might be lonely and having a hard time. I mean a hard time for us is everyday care. Like just fixing a little something to eat or shower is a huge chalengelle for us. Our illness is so misunderstood by family and friends. It truly is sad and lonely. People really do not understand that we cannot function correctly.. This puts so much pressure on the spouse, if you have one. And for those that have no one, it is even worst. There acts of kindness just brings such happy tears.
Between the Beautiful handmade Quilts that are full of love put into them. That they send to people to make them feel loved and supported.. Or the Meals, 3 Meals a day for 7 Days. I got teary eye each time I had a meal. To know someone cared about me. This gave my husband a week off. And he really need it. To do such a Wonderful thing. When I was having such a hard time. Which I try not to talk about it.
I get so teary eye every time I see a picture of someone getting a covered in love Beautiful Quilt. Or someone getting A huge box full of Wonderful Meals.
Then there advocacy work to bring awareness. To Myalgic encephalomyelitis, a Neuro-immune disease. Which there are still no FDA approved treatments for us. So we are very misunderstood By most Doctors. What they do really wonderful. Very grateful to this organization.

1 Donna N.

Volunteer

Rating: 5

Pandora has given out 64 homemade "covered in love" quilts to patients who are experiencing rough patches. Many times, just a tiny ray of hope is all that is needed to get through to the next rough patch. The notes the recipients write are heartwarming and heart wrenching, both at the same time. The quilts nourish the souls, and the food delivery nourishes the body. What a tremendous gift for those who feel forgotten and neglected.

Previous Stories
8

Client Served

Rating: 5

I have tears in my eyes when I try to describe what PANDORA has done for me. They offered support and guidance when all seemed lost. A family member was hospitalized and our rights were being violated. There was internal chaos within the hospital over our case. PANDORA was there with us, step by step, sorting out the steps, and with PANDORA' s help and our insurance company, we were able to have the strength to leave the hospital AMA and get the second opinion we needed, which was drastically different from the first. They also sent us a gas card to help with travel cost.

The passion and compassion that drives the volunteer members is amazing. They understand the needs of people who have NEIDS. They change words into action for what is needed most to help a person overcome rough spots.

Read more

Client Served

Rating: 5

Pandora is a beacon of hope to the many who are housebound and isolated, offering meals, gas money for doctors appointments, gifts and other forms of support. I was a beneficiary of one of their "covered in love" quilts. What a wonderful surprise at a time when I needed to feel that sense of being cared about. Pandora is a worthy organization, deserving of the support of the patient community.

1

General Member of the Public

Rating: 5

Pandora Org provides support in so many ways for people in desparate need of that support. I don't know of another organization doing what Pandora Org does for the neuro-endocrine-immune disease community. The meals they deliver to patients in need make the difference in those people going hungry or not, and the quilts they send all over the country and world are a much-needed sign of support and love to people who are often alone and suffering. They are really caring for the patient community, and filling a void.

3 Nita T.

Client Served

Rating: 5

This is a wonderful organization that has helped me tremendously. I am chronically ill and mostly bed fast/home bound. I must depend on my husband for care including meals. When he became too ill to care for me for a while, PANDORA.org stepped in and provided meals for both of us until he was once again able to do so. This is just ONE example of the many ways that PANDORA.org changes the lives of the hurting for the better.

Previous Stories
7

General Member of the Public

Rating: 5

P.A.N.D.O.R.A.org is a wonderful advocacy and education group specializing in bringing awareness to the neuro-endocrine-immune diseases. Almost all of those involved in this organization, suffer from one of these diseases. These people are dedicated, knowledgeable, and highly motivated in their work. I have Myalgic Encephalomyelitis (ME), commonly sometimes known as Chronic Fatigue Syndrome. It is one of these diseases. This organization has been in the forefront of education and advocacy about my own illness for several years. The support it provides for those of us with these illnesses is deeply appreciated by all of us!

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1 Nancy275

Client Served

Rating: 5

I've learned that Pandora is a resource for people with illnesses like mine.

Information, referrals, and kindness go very far. I've come close to being their offers food delivery but haven't had to yet.

It's such a relief just to know it is there if I ever do need it!. I also received a quilt through the Covered In Love program. It came on a perfect day in a very sick and stressful time.

I'm so glad they're there to help both the newly disguised and those of us who've been sick for too many years.