The mission statement of the Pacific Mesothelioma Center is a simple one despite the deeply inherent complexities of the misson -- build awareness for and spearhead research goals toward prevention of the disease that bears its name. But providing a support group for its victims and their families appears to deliver the most uplifting beat of this nonprofit's march. I've attended several of its key events over the past couple of years, and the smiles of the attendees in the face of the challenges many of them face say all I need to know. The Pacific Meso Center is an organization that at its core embodies a smart and caring spirit about the conquering of a stubborn disease that results from mostly unconcerned behavior and acts. And this is the path they should continue down by maintaining their focus on the people affected and the wisest and most comprehensive ways to treat mesothelioma
After my Beautiful, Young and Healthy daughter in Law was diagnosed, K..... was so unknowledgeable in that field, they just give her a death sentence! They made her and her family feel so helpless, scare and demoralized!
A day later when we find PHLBI, Lien (Pract. Nurse) PHLNI, would ALWAYS call on her, each time Cindy had a concern she would call Lien, ( NOT K.....) Cindy felled in good hands, they were not given up on her, there is Hope and Treatments out there, and they were the right people to do so !!!!
Being given a Death Sentence is hard to take, mostly when you are way too young to accept it! Some people are not really to give up, and PHLBI give Cindy the hope that she needed to make her feel that those last months, may not be her last, unlike K.....!!!!
That is PRICELESS!
The monthly Support Caregiver conference is very helpful, we exchange ideal and recipes and I got some good ones to make her life better.
Thank you ALL at PHLBI for your devotion and support!
A special Thanks to Lien, that I feel went behind and above the line of duty! Cindy always find comfort after speaking to you!
We all need to raised awareness on that terrible practically undetectable and incurable cancer! Keep up the good work PHLBI!
Recently I attended the 5K Mesothelioma hike at the Paramount Ranch in Agoura Hills. The setting was beautiful, a set location of a western town with a backdrop of mountains that seemed to protect this magical place of a time gone by. The Pacific Heart Ling & Blood Institute thought of everything that could make the day perfect for all who attended while at the same time making sure that all of those who lost their battle with mesothelioma were remembered. I found myself walking for those I did not know personally but whom I felt deeply connected to, knowing that each step I took was honoring those who can't be there and those who are just beginning their fight with this devastating disease. What a great event for such a worthwhile cause.
As a newly appointed board member, I have been truly impressed by the Pacific Heart, Lung and Blood Institute. While PHLBI is best known internationally for its innovative research into mesothelioma, it is equally as innovative in other disease areas.
The organization has outstanding staff who are not only extremely compassionate and professional, they also possess can-do attitudes.
The recent 5K Walk/Hike for Mesothelioma was an outstanding event that exemplifies the organization's commitment more than just research. The event was more than just a fundraiser, it was a gathering of patients, families and supporters who learned from and supported each other.
There were people at the event who are currently suffering from mesothelioma, and there were families and friends there who lost someone to the disease. In fact, I was so inspired by the group that I donated onsite to the PHLBI tissue bank.
As a mesothelioma patient looking for answers for this devastating disease I am very encouraged by the work at this center and the progress being made in the research lab. I had the opportunity to tour the lab when I attended the PMC Holiday Open House and learn about the exciting research being conducted with mesenchymal stem cells in conjunction with immunotherapy. I learned a great deal and was truly impressed with all of the work and the expertise of the research staff.
In addition, the nurse practitioner Lien , on top of being a mesothelioma expert is very helpful and a great sounding board for questions. I am proud to be a donor and supporter of this organization and recommend anyone looking to support mesothelioma research to look no further than the Pacific Mesothelioma Center.
As the Board Chair, I cannot say enough great things about the PHLBI team. Created from the vision of one iconic and deeply devoted surgeon, PHLBI has grown into an internationally known and respected research organization finding new treatments for rare heart, lung and blood diseases like mesothelioma. The secret sauce to this very special nonprofit is the people: Their outreach to patients, support to families, and their cutting-edge research program for mesenchymal stem cell-based treatments--It's the passion, spirit and humility of these fine individuals dedicated to their work everyday that makes PHLBI ones one the finest nonprofits in the nation.
Once in a while you run across a virtuoso in the medical field who is all about quality of life and not simply enamored with capital and a surgery job. Dr. Robert Cameron has become the expert in mesothelioma (in hospitals and for the Legal biz) and was kind enough to find creative solutions to my very large fibrous tumor that was pressing on my lung and heart and attached to my diaphram. Other chest surgeons that I went to wanted to remove the turmor and possibly the lung. Dr. Cameron saved my lung and my life and I continue to enjoy a quality of life because of him. I will continue to help Dr. Cameron and his Executive Director, Clare Cameron in every way possible. If you have medothelioma and want the latest and greatest....Dr. Cameron is your solution without a doubt. He is kind, sensitive, intellectual, and a superb surgeon. Everyone should support the Pacific Heart, Lung, and Blood Institute and their research.
I was a volunteer for The Pacific Mesothelioma Center's The Greatest Escape motorcycle ride fundraiser. I had a wonderful experience and had very pleasant interactions with the PHLBI staff and other volunteers. It is evident that everyone there was dedicated to putting on a great event in order to support an amazing cause. I was very impressed with how organized the event was, which can be attributed to the staff's attention to detail. They clearly devoted a lot of time and heart into making sure the event ran smoothly and was fun for everyone, including the volunteers.
Dr. Cameron gave me hope when there was none. Because of him, and his incredible experience and skills as a surgeon, I am here four years later and able to give this review. hank you Dr. Cameron for the many years that you have put into heling others with Mesothelioma. It paid off for me. So you can imagine how easy it was for me to donate my tissue and specimen to the Pacific Mesothelioma's International Tissue Bank for his research. I pray that one day soon, he will find a cure for this dreaded disease. I encourage everyone to become a Research Associate, just like me, by donating your specimen/tissue to The Pacific Mesothelioma's research program. It is so easy and you can help make a difference.
The people at the Pacific Heart, Lung and Blood Institute have helped us through this difficult time. Having been diagnosed with Mesothelioma about 10 months ago, the search began for cause, answers, treatment and most of all, hope. Dr, Cameron, Lien, Clare, Christina, the researchers and interns work tirelessly to provide patients with all of this. Beyond the expert medical care, the emotional support for patients and family is invaluable and heart warming. Their research provided us with answers and treatment. Roger is improving daily and hopes to regain the quality of life he once enjoyed. We no longer feel helpless as these people have guided us through the maze of information, provided support and care and continue to update the treatment plan as more research provides more answers and more positive outcomes.