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2016 Top-Rated Nonprofit

Pacific Heart Lung & Blood Institute

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Nonprofit Overview

Causes: Unknown

Mission: “The mission of PHBI is to develop early stage research into effective treatments for diseases of the chest”

Target demographics: researching better options and treatments for diseases of the chest

Geographic areas served: Los Angeles

Programs: First Connection - connecting newly disagnosed patients to those who have been down the road they are about to embarkk upon. We also have a dozen students helping us with processing human tissue in our International Tissue Bank. The experience helps them the unique opportunity to gain real-world experience and fill meaningful roles in medical research at a young age.

Community Stories

54 Stories from Volunteers, Donors & Supporters

Jean-Louis A.

Donor

Rating: 5

This non-profit is to help advance research in pleural mesothelioma, a rare form of lung cancer usually linked to exposure to asbestos. Research is led by Prof. Robert Cameron, a UCLA thoracic surgeon of world renown, who has helped with both care and compassion mesothelioma patients for the last 30 years. Under the expert guidance of its director, Clare Cameron, PHLBI continuously organizes events and fundraisers to help the awareness of mesothelioma. A great non-profit, devoted to a worthy cause.

Client Served

Rating: 5

My father was diagnosed with Mesothelioma in 2016 and was given an estimated year to year and a half to live. This doctor said that the disease was rare and there wasn't much he could offer except palliative measures. I refused to give this and started my own research when I came across Dr. Cameron at UCLA who specializes in mesothelioma. While working to get my father seen by this specialist my mother and I were offered the opportunity to participate in a caregiver support group organized by the PHLBI, which was extremely helpful and often times a source of hope for my family. Sharing experiences and tips on how to care for family members helped us to feel less helpless, knowing that whatever my dad was going through was experienced before by someone else and that there were ways to help him was reassuring. The PHLBI also organizes different events, such as a 5k walk/run/hike to fundraise for mesothelioma research which my family has attended the past 2 years. Getting to see the survivors, fighters and supporters work towards helping find other forms of treatment is truly inspiring. I am thankful for the PHLBI and all the work they do for those suffering from mesothelioma.

Client Served

Rating: 5

Top Rocker Harley-Davidson, in Canoga Park, CA, worked with this organization for The Greatest Escape motorcycle ride to benefit Mesothelioma. The team and organizers for this event were pleasant to work with, enthusiastic about the cause and event, and really brought the community together for a great cause. We had over 200 motorcycle riders attend this event, more than 3/4 of which left out of our dealership. The promoting of the event was great, flyers and artwork for social media done ahead of time, and the team was well organized the day of. This organization has helped out our dealership as well during these last few months, and we look forward to working with them in the future.

Advisor

Rating: 5

It gives me huge gratification to partner with Clare Cameron, Victoria Adams, Stephen Mascoli & the rest of the team at Pacific Center Mesothioma for a 3rd year in a row for their annual fundraiser. We hope to continue the awareness and funding for a serious cause which effects us all in some way. Thanks again to the team.
-Fred Rundall & Newcombs Ranch Family.

1 Joe_H_G

Board Member

Rating: 5

It has been a privilege to recently join as a Board Member of the Pacific Heart Lung & Blood Institute. With a heartfelt commitment to enhancing healthcare delivery, innovations and treatments, I now serve with a nonprofit organization that has aligned goals and research efforts.

Having lost precious family members to Cancer, their Mission is important to me. I am impressed with the passion and dedication of Dr. Cameron, Clare (Executive Director), staff and the research team's efforts to continue finding innovative treatments. With an in-house laboratory that is dedicated to providing highly innovative research, the Institute remains committed to converting these into timely cancer treatments.

2

Volunteer

Rating: 5

Clare and Victoria are wonderful people who have a great team that helped with the Greatest Escape charity ride for mesothelioma. I'll always be happy to help them any way I can.

Volunteer

Rating: 5

We enjoy helping by volunteering at all the motorcycle events to raise money for mesothelioma. It brings us joy to help others in need!!

1

Volunteer

Rating: 5

We have been to the wonderful fundraisers for mesothelioma and the Pacific Heart Lung & Blood Institute has developed and nurtured amazing events. The behind the scenes and watching these amazing care givers, Clare and Victoria Adams and all of their staff is an
incredible team effort and always a success. The organization and leaders that delegate and
market these kind of events is very difficult and a lot of hard work. I can't say enough about this staff and we have been there to witness it. Personally, I have done events but this magnitude of these kind of events takes leadership and organizing. The events are a very upscale with a lot of thought and hard works. Everything is done with class. People get involved because of the management who works so hard putting it on. We salute you Pacific Heart Lung & Blood Institute staff and all of your team!

General Member of the Public

Rating: 5

The mission statement of the Pacific Mesothelioma Center is a simple one despite the deeply inherent complexities of the misson -- build awareness for and spearhead research goals toward prevention of the disease that bears its name. But providing a support group for its victims and their families appears to deliver the most uplifting beat of this nonprofit's march. I've attended several of its key events over the past couple of years, and the smiles of the attendees in the face of the challenges many of them face say all I need to know. The Pacific Meso Center is an organization that at its core embodies a smart and caring spirit about the conquering of a stubborn disease that results from mostly unconcerned behavior and acts. And this is the path they should continue down by maintaining their focus on the people affected and the wisest and most comprehensive ways to treat mesothelioma

Terry100

Client Served

Rating: 5

After my Beautiful, Young and Healthy daughter in Law was diagnosed, K..... was so unknowledgeable in that field, they just give her a death sentence! They made her and her family feel so helpless, scare and demoralized!
A day later when we find PHLBI, Lien (Pract. Nurse) PHLNI, would ALWAYS call on her, each time Cindy had a concern she would call Lien, ( NOT K.....) Cindy felled in good hands, they were not given up on her, there is Hope and Treatments out there, and they were the right people to do so !!!!
Being given a Death Sentence is hard to take, mostly when you are way too young to accept it! Some people are not really to give up, and PHLBI give Cindy the hope that she needed to make her feel that those last months, may not be her last, unlike K.....!!!!
That is PRICELESS!
The monthly Support Caregiver conference is very helpful, we exchange ideal and recipes and I got some good ones to make her life better.
Thank you ALL at PHLBI for your devotion and support!
A special Thanks to Lien, that I feel went behind and above the line of duty! Cindy always find comfort after speaking to you!
We all need to raised awareness on that terrible practically undetectable and incurable cancer! Keep up the good work PHLBI!

2

General Member of the Public

Rating: 5

Recently I attended the 5K Mesothelioma hike at the Paramount Ranch in Agoura Hills. The setting was beautiful, a set location of a western town with a backdrop of mountains that seemed to protect this magical place of a time gone by. The Pacific Heart Ling & Blood Institute thought of everything that could make the day perfect for all who attended while at the same time making sure that all of those who lost their battle with mesothelioma were remembered. I found myself walking for those I did not know personally but whom I felt deeply connected to, knowing that each step I took was honoring those who can't be there and those who are just beginning their fight with this devastating disease. What a great event for such a worthwhile cause.

2 Alexa M.

Board Member

Rating: 5

As a newly appointed board member, I have been truly impressed by the Pacific Heart, Lung and Blood Institute. While PHLBI is best known internationally for its innovative research into mesothelioma, it is equally as innovative in other disease areas.

The organization has outstanding staff who are not only extremely compassionate and professional, they also possess can-do attitudes.

The recent 5K Walk/Hike for Mesothelioma was an outstanding event that exemplifies the organization's commitment more than just research. The event was more than just a fundraiser, it was a gathering of patients, families and supporters who learned from and supported each other.

There were people at the event who are currently suffering from mesothelioma, and there were families and friends there who lost someone to the disease. In fact, I was so inspired by the group that I donated onsite to the PHLBI tissue bank.

Donor

Rating: 5

As a mesothelioma patient looking for answers for this devastating disease I am very encouraged by the work at this center and the progress being made in the research lab. I had the opportunity to tour the lab when I attended the PMC Holiday Open House and learn about the exciting research being conducted with mesenchymal stem cells in conjunction with immunotherapy. I learned a great deal and was truly impressed with all of the work and the expertise of the research staff.
In addition, the nurse practitioner Lien , on top of being a mesothelioma expert is very helpful and a great sounding board for questions. I am proud to be a donor and supporter of this organization and recommend anyone looking to support mesothelioma research to look no further than the Pacific Mesothelioma Center.

1

Board Member

Rating: 5

As the Board Chair, I cannot say enough great things about the PHLBI team. Created from the vision of one iconic and deeply devoted surgeon, PHLBI has grown into an internationally known and respected research organization finding new treatments for rare heart, lung and blood diseases like mesothelioma. The secret sauce to this very special nonprofit is the people: Their outreach to patients, support to families, and their cutting-edge research program for mesenchymal stem cell-based treatments--It's the passion, spirit and humility of these fine individuals dedicated to their work everyday that makes PHLBI ones one the finest nonprofits in the nation.

1 lwilcox

General Member of the Public

Rating: 5

Once in a while you run across a virtuoso in the medical field who is all about quality of life and not simply enamored with capital and a surgery job. Dr. Robert Cameron has become the expert in mesothelioma (in hospitals and for the Legal biz) and was kind enough to find creative solutions to my very large fibrous tumor that was pressing on my lung and heart and attached to my diaphram. Other chest surgeons that I went to wanted to remove the turmor and possibly the lung. Dr. Cameron saved my lung and my life and I continue to enjoy a quality of life because of him. I will continue to help Dr. Cameron and his Executive Director, Clare Cameron in every way possible. If you have medothelioma and want the latest and greatest....Dr. Cameron is your solution without a doubt. He is kind, sensitive, intellectual, and a superb surgeon. Everyone should support the Pacific Heart, Lung, and Blood Institute and their research.

1

Volunteer

Rating: 5

I was a volunteer for The Pacific Mesothelioma Center's The Greatest Escape motorcycle ride fundraiser. I had a wonderful experience and had very pleasant interactions with the PHLBI staff and other volunteers. It is evident that everyone there was dedicated to putting on a great event in order to support an amazing cause. I was very impressed with how organized the event was, which can be attributed to the staff's attention to detail. They clearly devoted a lot of time and heart into making sure the event ran smoothly and was fun for everyone, including the volunteers.

1

Client Served

Rating: 5

Dr. Cameron gave me hope when there was none. Because of him, and his incredible experience and skills as a surgeon, I am here four years later and able to give this review. hank you Dr. Cameron for the many years that you have put into heling others with Mesothelioma. It paid off for me. So you can imagine how easy it was for me to donate my tissue and specimen to the Pacific Mesothelioma's International Tissue Bank for his research. I pray that one day soon, he will find a cure for this dreaded disease. I encourage everyone to become a Research Associate, just like me, by donating your specimen/tissue to The Pacific Mesothelioma's research program. It is so easy and you can help make a difference.
Thank you
Kay Simmons-Gilpatric

3

Client Served

Rating: 5

The people at the Pacific Heart, Lung and Blood Institute have helped us through this difficult time. Having been diagnosed with Mesothelioma about 10 months ago, the search began for cause, answers, treatment and most of all, hope. Dr, Cameron, Lien, Clare, Christina, the researchers and interns work tirelessly to provide patients with all of this. Beyond the expert medical care, the emotional support for patients and family is invaluable and heart warming. Their research provided us with answers and treatment. Roger is improving daily and hopes to regain the quality of life he once enjoyed. We no longer feel helpless as these people have guided us through the maze of information, provided support and care and continue to update the treatment plan as more research provides more answers and more positive outcomes.

1

General Member of the Public

Rating: 5

Pacific Meso Center are "THE" vital vessel Titan that are actively taking on this horrific form of cancer. As a musician and filmmaker, it has been such a heartfelt journey to witness from the sidelines. We are so proud to be affiliated with this organization, that is so full of perseverance, passion, empathy and love. Dr. Cameron, Victoria Adams, Clare Cameron and the rest of the team are modern day Saints. They are people I have seen on a personal level that have proven that miracles do happen, and that there are still people that care. - Drewin B. Young of The Walking Phoenixes & Red Mutts

General Member of the Public

Rating: 5

After my husband passed away in 2011 from Mesothelioma, I decided that I needed to find a nonprofit that was dedicated to finding a cure for this "ghost" cancer. I call it "ghost" cancer because I never heard of it until my husband was diagnosed, and the TV commercials showed up.

We researched this form of asbestos related cancer, and found that there were only around 5 specialists in the U.S. Dr. Cameron is one of them. My husband was not treated by Dr. Cameron. At the time we lived in Northern California, and he felt it was too far to travel.

After the passing of my husband, I prayed and researched on the internet for a non-profit that was dedicated to cutting edge research and the development of additional modalities that would make a difference. I wanted to make a difference and support them.

This non-profit not only does research to extend a patients life, but are working towards finding ways of early detection and prevention.

The staff are dedicated to the cause, and the people lives they touch.

There is hope for others who suffer from this deadly cancer, but on going research is needed and on going funding.

One day their research and breakthroughs may save your loved one.

I decided two years ago to monetarily support this organization on a yearly basis during the 5K run/walk Mesothelioma fundraising event. They are making a difference in the fight. With them there is hope for those already diagnosed, and for those who do not even know they have this silent killer growing inside of them.

I believe a cure will be found, and that the use of products containing asbestos in the United States will some day be eradicated.

Regards,
Rosemary Stirdivant