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North Texas Prostate Cancer Coalition

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Nonprofit Overview

Causes: Health

Mission: North Texas Prostate Cancer Coalition (NTXPCC) is a non-profit organization, registered with the State of Texas. It is formed for the purpose of elevating prostate cancer to major health priority status in the State of Texas by assisting the medical community in providing coordinated educational and awareness support opportunities for all men and their families. North Texas Prostate Cancer Coalition will carry out its purposes primarily through the venues of: (1) Counseling to members of the community without regard to race, gender, denominational preference, or economic condition to increase awareness of prostate cancer, (2) Supporting medical institutions with volunteers during screening and other prostate cancer related events, (3) Speaking at churches, men’s clubs, and community forums on topics related to prostate cancer awareness and survival, and, (4) working with the legislature to assure adequate legislation for prostate cancer patients, survivors and research funding within the State of Texas.

Results: Our current efforts are concentrated on a survivor chat (Let's Talk on Tuesday) as well as on prostate cancer awareness (Health Fairs)

Target demographics: Texas, currently concentrating on North TexasAdult men and their families

Direct beneficiaries per year: Over 500 survivors and newly diagnosed men

Geographic areas served: Texas

Programs: Survivors Chat, Speakers Bureau, Health Fair and Screening (run by medical facilities) support

Community Stories

84 Stories from Volunteers, Donors & Supporters

Tom Hulsey

Donor

Rating: 5

I'm so grateful that I found this organization - in my backyard. I wish I had known about NTxPCC when I went through my prostate cancer journey.

Prostate cancer is terribly underfunded (and misunderstood) compared to other cancers because men don't talk about it. They do not engage because of the personal nature of the problem. They’re embarrassed and it forces isolation. I was there.

Lessons I learned:
* Don’t keep the negative emotions bottled up inside; regardless of the challenge; seek help such as a support group – talk about it!
* Cancer is not something to be experienced in isolation because the feeling of aloneness can swiftly overtake you.

NTxPCC is a great resource!

Previous Stories

General Member of the Public

Rating: 5

My prostate cancer journey has created a passion in me to help others battle cancer, including those close to cancer victims. I feel fortunate to have a mission to help others, to help them through the battles I survived. I've turned my life’s focus to cancer education, advocacy and finding a cure.

As an advocate & mentor, I strive to stay abreast of the latest in prostate cancer.
I discovered the NTPCC via social media earlier this year and attended the NTPCC Symposium in March; it was an excellent forum with knowledgeable speakers (including my Urologist!). The NTPCC is a great resource!

Tom
www.tomhulsey.com
#EndProstateCancer

Volunteer

Rating: 5

We will always be grateful to this wonderful group for their support and encouragement during a very difficult chapter of our lives. We first met this great group of people when we were struggling to decide on treatment options for "our" cancer. While we hoped to get factual information and guidance, which we did receive; we were surprised and delighted to also find great empathy and emotional support as well. As a result of the wonderful care and concern we received from this group, we have made it a goal to return the favor by providing support to newly diagnosed men and their spouses as well as spreading the word about the importance of screening and early detection. The North Texas Prostate Cancer Coalition has been a life-changing relationship for us, and we are eternally grateful to them!

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Client Served

Rating: 5

The North Texas Prostate Cancer Coalition has been invaluable to my husband and myself in light of his diagnosis in 2014. We have received emotional/psychological support as well as vital information about treatment options during our decision making process in fighting this disease. I would not hesitate to recommend this organization to anyone with a diagnosis of prostate cancer or seeking more information about prostate health.

Board Member

Rating: 5

I learned of this group as a cancer survivor. I never thought of myself as a “ support group” kind of person, but this group is so much more than that. There is a great deal of current information about prostate cancer treatments here, as well as their yearly symposiums with professionals in the field, which has reached thousands by now. They do public screenings a couple of times per year( would do more) and it is interesting to note that about ten percent of those willing to be screened turn up hot. This group does important work.

wolfblatt

Volunteer

Rating: 5

North Texas Prostate Cancer was quick to convert some of their programs to go online after the pandemic restricted meetings.
NTxPCC also actively increased their awareness programs this year by doubling the number of counties/cities adopting the Proclamation for September is Prostate Cancer Awareness Months.
NTxPCC is helping newly diagnosed and recurring patients to deal with the disease.

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Board Member

Rating: 5

This organization is in the 10th year of it's existence. Services provided are still increasing as NTxPCC attended more than 30 special events last year, more than two a month on the average. Most notable was the presence at this year's Pate Swap Meet. - Not bad for an organization run by volunteers, no paid staff.
Great Symposium this year with record attendance at the McKesson facility in Irving. The symposium it geared towards surviving prostate cancer patients - excellent speakers.
If you are a newly diagnosed or a survivor, go visit the ntxpcacoalition.org and see what this organization has to offer.

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Client Served

Rating: 5

North Texas Cancer support group in Plano Texas save my prostate cancer from Metastasing. The support group meeting made me aware that my PSA was elevating too quick. I found the Radiation Oncologist at the next monthly meeting.

General Member of the Public

Rating: 5

My husband was diagnosed with prostate cancer in 2017 and we were scared. A friend directed us to a support group within North Texas Prostate Cancer Coalition and our recovery started. We were given support, information, and friendship. We are still active with this wonderful group and my husband has done very well. I hope everyone diagnosed with this or any disease finds a group like North Texas Prostate Cancer Coalition.

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Client Served

Rating: 5

When my husband was diagnosed with Prostate cancer we were devastated until a friend put us in touch with a support group in the North Texas Prostate Cancer Coalition. The people welcomed us and gave us hope that, like them, we could fight this disease and add several more happy years to our lives. We have become involved, learned a lot, and made many new friends.

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Client Served

Rating: 5

The North Texas Prostate Cancer Coalition has been a big help for me, as I go through my own journey dealing with prostate cancer, treatment and the side effects. Just being able to share experiences with other prostate cancer survivors gives me hope, and the educational seminars and meetings with outstanding medical professionals have been very valuable.

Board Member

Rating: 5

Being diagnosed with prostate cancer struck fear in me. Talking to a neighbor who knew someone, who then knew someone, led me to attend a NTxPCC support group meeting. That meeting provided a source of information and survivor knowledge that eased my fear and led me on an enlightened path to treatment. It has been three years since successful treatment and now may wife and I attend support groups to bring knowledge and hope to the newly diagnosed. There is nothing like the knowledge and experience of men once like you to bring hope!

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Volunteer

Rating: 5

I have come from being diagnosed and treated to being a survivor and active volunteer participating in the coalition. It is now my mission to alert men of the possibility of this cancer affecting them.

Men typically don't like to discuss their health in general company but as a volunteer I am able to talk with them in rather private settings. This allows the passing and discussion of information that has a good chance to save a life and to give hope and understanding where ignorance and fear exist.

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Board Member

Rating: 5

As an advocate for cancer patients and caregivers, I find North Texas Prostate Cancer Coalition to be a wonderful resource. The members consistently serve as encouragers and educators for other patients as well as the entire community. They disseminate information, support educational opportunities, and serve as positive role models for all cancer survivors.

Board Member

Rating: 5

Being diagnosed with any Cancer is a life changing and scary experience. Many of us immediately get online to find out everything we can about what lies ahead as we are scared out of our minds and wish to be strong and not to fully show it to others. There is simply no way to compare all of the professional advice to being exposed to others that have lived through it and are still going strong. The North Texas Prostate Cancer Coalition is such a group where hope is found. I found it through the internet and have found the shared experiences invaluable therapy. I truly wish that even more of us similarly afflicted could find and experience the same boost of hope that I have found there.

Ed S.2

Board Member

Rating: 5

NTxPCC is a very well organized nonprofit company that does one hell of a job educating the community about Prostate Cancer and reaching their target audience.

Client Served

Rating: 5

The North Texas Prostate Cancer Coalition is wonderful - I've gained so much by attending the in person support group led by Tom Dillon + the annual symposium was a blessing

Client Served

Rating: 5

I learned of the NTxPCC in 2018, six months after my prostate surgery. I attended the annual lecture and spoke to members who were happy to share their experiences with me. The lecturers were outstanding, providing valuable insight into this disease. This year I actually started seeing the featured lecturer as my primary physician because I was so impressed with the cutting edge research he was conducting and the latest technology he was using to monitor the progress of any signs of recurrent disease. This group is providing a real public service by actively sharing knowledge and support to men who are dealing with prostate cancer. I am very grateful for this organization.

Volunteer

Rating: 5

The North Texas Prostate Cancer Coalition is a great organization whose mission is to educate men about prostate cancer and bring together various healthcare organizations for the same purpose.

Client Served

Rating: 5

This group has been a godsend for men that have been newly diagnosed with prostate cancer, as the experience each of the members has had is shared with others helping them make choices on how each would like to address their individual situation. Very useful when all the things one feels are swirling around in their heads. Each volunteer is genuinely concerned with each person that they communicate with, very special.

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Client Served

Rating: 5

This support group is an invaluable resource for men newly diagnosed with prostate cancer, and for survivors as well, as the guys that participate are incredibly knowledgeable and have very diverse experiences with their treatments and journey of survival. The willingness to share these experiences are what makes this group so helpful.
Very uplifting to have open conversations with men who have been through it and are still here to talk about it.

General Member of the Public

Rating: 5

I have found the NTxPCC and its affiliated support groups to be of great value in my personal 16 year journey with prostate cancer. While every man' s journey is different, the support group meetings and the annual NTxPCC Symposium have provided valuable information to supplement that from my urologist and other members of my medical support team. I particularly appreciate the personal experiences of those that have already gone through the individual steps in their journeys that I am considering taking.

Client Served

Rating: 5

My story is short but a powerful testament to the benefit of this orgsnization. When I was diagnosed and sent to an oncologist, the doctor scared the bejeezus out if me. He talked about the potential for other types of cancers and he really pushed for me to take the standard course of radiation treatment. I went home and searched the Internet for support groups and found NTPCC. Fortunately there was a meeting being held two days later. I was welcomed by the members and given an opportunity to tell my story. They were very reassuring and helped me understand why the oncologist said the things he said (no one was impressed with his approach, however!).

The next day, I received an email from the leader of the group. He was forwarding information about SBRT that one of the members thought I might want to explore. I contacted the leader to see if he had any resources I could explore for further information. He provided a doctor's name and contact info. The result of all this is that I ended up selecting SBRT as my treatment, with successful results! Had I not attended that NTPCC meeting, I may never had heard about SBRT.

Client Served

Rating: 5

The US TOO Plano group is an excellent, informative group for survivors and their spouses. I joined the group after my diagnosis and treatment. My PCa was discovered originally from a DRE at an annual physical. There was a lump felt on my prostate. At this time I had also had a PSA test which turned out to be 1.62, unusually low for a PCa diagnosis. This proves that DRE's are just as necessary as PSA tests.

The US TOO group meets every 2nd Tuesday and they have very knowledgeable health professionals speak about anything prostate cancer-related. Many times this includes the latest treatments which can be very useful for the newly diagnosed and uncertain about what steps to take next for treatment. After the speaker, there are chat sessions for attendees and their spouses. Highly recommended !!

1

Advisor

Rating: 5

The North Texas Prostate Coalition has been the centerpiece for advocacy, patient/family support, and education in the DFW metroplex. As a physician, I have appreciated this excellent group to be able to refer my patients after prostate cancer diagnosis and then ongoing for long term support. I highly recommend this well run organization.

Dr Frank (Trey) Moore III MD, Urology, Fort Worth.

Previous Stories

Advisor

Rating: 5

The North Texas Prostate Cancer Coalition is an organization constructed from the ground roots by patients with a passion towards addressing the challenges of prostate cancer. The Coalition is independent of any organization and provides education and a forum for newly diagnosed patients as well as survivors. They are a very fair minded group basing their information on science. I would highly recommend this group to any men (or their family) seeking information on the evolving topic of prostate cancer especially in this time of conflicting reports.

Tom D.

Board Member

Rating: 5

NTxPCC recently supported the 50 Hoops annual breakfast and seniors basketball tournament. 50 Hoops is an affiliate of NTxPCC and promotes awareness and education sessions regarding various cancers, including prostate cancer, directed at the African-American community at large. NTxPCC survivor volunteers provided personal experiences to the breakfast audience and an education table during the tournament. In addition to providing educational material and answering questions regarding PCa and treatment options to men and their family members, men were encouraged to take advantage of PSA screening services provided by 50 Hoops during the event. This is just another example of how NTxPCC works with other health oriented groups to reach more members of the public regarding prostate cancer awareness and education - our primary mission.

Previous Stories

Board Member

Rating: 5

I am a NTxPCC BOD member, a support group leader, and a PCa survivor (6Y+). As an organization, we seek new as well as repeat opportunities to educate men and their spouses/SO's about PCa, the value of screening and early detection, various responses to a PCa diagnosis, awareness of support groups who can provide information and support to newly diagnosed, those awaiting treatment, and those who have been treated and may be dealing with ongoing side affects. For the newly diagnosed, our primary objective is to ensure the individual and his loved ones have accurate and complete information with which to make the best decision regarding their own disease and possible future actions to take. For those awaiting treatment, we strive to make them aware of advances in treatment protocols to factor in to their individual decision making process. For those dealing with post-treatment side affects, group members share how they have responded to similar side affects that may be helpful for someone else to consider for themselves. Finally, we actively seek opportunities to reach underserved
groups of men, especially those who may be at high risk for contracting PCa. If we can save even one man's life thru education and/or awareness or help another effectively manage side affects to achieve a better quality of life moving forward, then our organization will have validated its reason for being.

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Board Member

Rating: 5

NTxPCC has continued to make a great impact on the North Texas Community and to continue it's established programs as reflected by the involvement/creation of 20 special events. NTxPCC welcomes it's newest member, the Prostate Cancer Support Group at the Texas Center for Proton Therapy in Irving.
Another successful Symposium was held at Globe Life Park with three excellent speakers: Emmy Award Winner Todd Whitthorne (ACAP Health), Urologist Aditya Bagrodia, MD (UT Southwestern) and Survivor Gary Wydman. This program was made possible through Texas Health Methodist Harris Foundation, Texas Health Presbyterian Hospital Dallas, UT Southwestern, Urology Research & Education Foundation, Moncrief Cancer Institute as well as Abbvie, Augmenix and Bayer.
Progress is made for next year's symposium in a new venue as the Texas Rangers' Hall of Fame will not be available due to construction.
NTxPCC added a few new volunteers who are actively providing assistance to Coalition Programs.

Client Served

Rating: 5

I have gone to the support group and talking to others helped me. This disease is easier to battle when not alone.

I encourage others fighting this disease to come and talk. It will help!

Eric Starnes

Client Served

Rating: 5

I have been a member of the North Texas Prostate Cancer Coalition for 5 Years. They provide interesting lectures on the latest treatments available to the community. The board members provide a rare resource especially valuable to newly diagnosed men.

Client Served

Rating: 5

The North Texas Prostate Cancer Coalition and those I've interacted with has been a great help and comfort in dealing with my cancer.

Client Served

Rating: 5

With my new Prostate cancer diagnoses and did not know where to turn. I found out about North Texas Prostate Cancer Coalition and they have bee supportive and given me tons of information. It's help me feel more confident in making the decisions ahead of me. Also a great place to meet men with the same issues and hear about their experiences.

Thank you Wolf with sharing all your great knowledge!

1

Volunteer

Rating: 5

LT Survivor

I am a long term survivor and I've learned a lot over the years from NTXPCC.
This organization is dedicated to one main focus..." get educated about PCa "
Learning about PCa can save the life of many men.
Point One is early detection of the disease ( psa screening....and biopsy, if needed )
If detected early, then several good treatment options are available.
There tends NOT to be any early symptoms of PCa, so it is important for men to get
regular screenings beginning at age 45-50 yrs.
Help raise awareness and support this excellent organization....
...and help all men live better lives.

Client Served

Rating: 5

Fortunately I learned about this support group. They meet in the library in the Klabzuba Tower near Harris Hospital. This is a group of volunteers that are prostate cancer survivors that meet every Tuesday from 10:00 am until 2:00pm. They discuss prostate cancer, treatments, and anything that visitors have questions about. It is a very honest open group that is willing to offer care and support. I have visited the group about 5 or 6 times and really enjoy going. They welcome questions from anyone that attends.

Another part of this group is a support group that meets on the third Monday of each month at the Moncrief Cancer Center on Rosedale. The first time I went I learned that wives or other family members are welcome also. The second time my wife attended with me, thinking that she might just go one time. Now she attends these meetings with me.

1

Client Served

Rating: 5

This was a fantastic find for me. I had been diagnosed with prostate cancer and needed information. the NTPCC helped educate me as to my condition, we discussed treatment options, I was able to talk with prostate cancer survivors about their journey, this was a tremendous help for me. As a result of everything I learned I was able to confidently choose the treatment necessary. Now after treatment I am prostate cancer free! Excellent resource for anyone diagnosed with prostate cancer.

1

Client Served

Rating: 5

As a spouse of a prostate cancer survivor, I am very thankful to this group. The support of North Texas Prostate Cancer Coalition is not limited to their wonderful website. The availability of other survivors, and their wives, for one-on-one conversations has been a tremendous help to both of us. Each year the Coalition sponsors a Symposium with speakers that help us continue to learn more about this disease and its treatments.

1

Volunteer

Rating: 5

This group provides superior support designed for newly diagnosed victims of Prostate Cancer. Every Tuesday four survivors meet for four hours with Prostate Cancer men that are usually undergoing the five stages of grief. Just looking at the survivors and hearing their experiences seems to lift the stress from the client's shoulders. They leave ready to learn about the treatments available and expecting to enjoy more years of life since Prostate cancer is not the same fast killer most men think of when told they have cancer.

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2

Volunteer

Rating: 5

I am a prostate cancer survivor that was fortunate to be diagnosed very early before the disease could metatasize . After surgery, my cancer has been in remission for eleven years. Consequently, I am trying to pay back my community for my good fortune by being a volunteer and speaker at health fairs, or churchs to make men aware of what they can do to be diagnosed early if they are in a high risk group. The NTxPCC's "Let's Talk on Tuesday" is the weekly session to learn about the latested news and where screenings are taking place in all of North Texas. NTxPCC sends me and other volunteers to events where we can educate men about Prostate Cancer so they can be aware of the danger of Prostate Cancer and be daignosed early if they are the one out of every six men to be cursed with disease.
Monty Knapp

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1 uref2001

Professional with expertise in this field

Rating: 5

The North Texas Prostate Cancer Coalition is an all-volunteer group consisting of prostate cancer survivors. They help Dallas-Ft Worth area support groups and healthcare facilities to promote educational events and support for men diagnosed with prostate cancer. Their annual survivorship symposium held in March is a first-rate event with great speakers and a place for men and their spouse to meet others and discuss their diagnosis.

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1

Board Member

Rating: 5

The North Texas Prostate Cancer Coalition is made up of volunteers, mostly prostate cancer survivors or healthcare providers who deal with prostate cancer who provide their time to educate at community events and support groups. These individuals care about helping other men through the journey of prostate cancer. This is a very worthwhile organization.

1

Client Served

Rating: 5

When diagnosed with prostate cancer the selection of a treatment presents several options, each with benefits and drawbacks. Each medical discipline supports its own solution for treatment. I was fortunate to find the North Texas Prostate Cancer Coalition. This group of prostate cancer survivors presents a wealth of information gained from each survivors personal experience after undergoing the various treatment options. I found this group of men willing to help the newly diagnosed with information and hope to become another survivor. I also find this group a new source of friends with a continuous willingness to answer my questions about the future based on their experience.

1

Client Served

Rating: 5

This group offers information online and support throughout DFW. Everyone you meet is welcoming and helpful. The information they offer is impartial, allowing you to make an informed decision regarding your treatment.

1

Client Served

Rating: 4

I went to the group after discovering I had Prostate Cancer, I was seeking help as to which treatment to follow and the group was very helpful with information that I needed to make my decision. I would recommend the group to any man who would just want someone to talk with.

1

Volunteer

Rating: 5

I've been a prostate cancer survivor for several years and I've talked with a number of men about PCa.
I think there is a great need for up-to-date PCa information to be accessible to men, so they can more easily deal with the experience of PCa.
The ntxpcacoalition.org website provides a valuable resource to that end. It helps men find good local
support groups. It also provides great information ( articles, doc talks, seminars, etc.) that can help them
gain a better understanding of PCa. Keep up the good work NTX.............!!

Previous Stories

Volunteer

Rating: 5

As a long time prostate cancer survivor, I have seen many fellow
survivors have life-changing experiences dealing with prostate cancer.
With early detection and early treatment, these men can benefit
greatly with improved outcomes. The ntxpccoalition.org is the best
way to keep informed, get educated, and find support groups in the
local area of North Texas. This excellent website benefits long-term
survivors as well, because of the ever-changing landscape of new
research and ideas and improvements in the various treatment options.

1

Client Served

Rating: 5

When I was diagnosed with an aggressive prostate cancer, the information on various options for treatment was overwhelming and difficult to absorb. The NTXPCC provided a supportive and knowledgeable group to work through the various treatment options. They took the necessary time to clarify each of the standard treatment options, as well as, introduce me to some revolutionary approaches to advanced prostate cancer treatment. One of these revolutionary approaches may have saved my life. This group focuses on education, knowledge and understanding. They are always careful not to suggest or provide medical advise. I wish that all recently diagnosed men in North Central Texas could be made aware of this superb resource.

1

Volunteer

Rating: 5

My husband was diagnosed in 2001 with prostate cancer. At the time he went to Harris Hospital cancer library to seek information, which was a wonderful way for him at the time. Fast forward to 2013, he now has so much information right his finger tips. All he has to do is get on the web site for North Texas Prostate Cancer Coalition. There are so many areas where he can research new treatments, contact people and discuss his questions with others. The web site is a gold mine for information. Wish it had been available when he was first diagnosed. Thank you to all involved in creating this wonderful web site.

1

Client Served

Rating: 5

I am a prostate cancer survivor that was diagnosed early and had successful surgery to remove my prostate. I was fortunate to have learned of this helpful organization while I was in the learning and planning stages prior to making the decision about my treatment option. This group has provided many prostate cancer patients, and their families, with much useful information and support.

Previous Stories

Client Served

Rating: 5

The North Texas Prostate Cancer Coalition provides much needed assistance to men diagnosed with prostate cancer. Materials that are provided are very helpful and the references help guide decisions about treatment options. The volunteers share their experiences as folks who have walked the same path and that support provides reassurance.

Lee B.

1 jdytx

Client Served

Rating: 5

When I was diagnosed with prostate cancer I wanted to learn as much as I could about what to expect and about what treatment to choose. The people at NTPCC were very helpful in sharing their experiences and suggesting books and other resources to help me make decisions. They continued to be a great resource when I had questions along the way. Their help was key to me feeling satisfied with the final decisions I made regarding treatment. I would recommend anyone dealing with prostate cancer that is in need of information or a knowledgeable and helpful friend contact the great folks at NTPCC

1

Client Served

Rating: 5

The volunteers who run this organization are amazing. When my husband was diagnosed with Prostate Cancer in November 2012 this group not only offered education and information but a place where he and I both felt welcome and were able to talk to people who understood our situation. I can't say enough good things about the folks at North Texas Prostate Cancer Coalition. The yearly symposium they sponsor is also very helpful and informative. These folks truly care. I would recommend (and have) this group to anyone who has received a Prostate Cancer diagnosis.

1

Volunteer

Rating: 5

I was diagnosed with prostate cancer in July, 2011. I opted for radiation treatment and so far so good. I completed treatments in November 2011. I'm a survivor! I became involved with NTXPCC in early 2012 and discovered a great group of men that all had similar walks in their lives. The NTXPCC spreads the word about prostate cancer at various health fairs and events throughout the year. If NTXPCC can educate enough men and they get an early diagnoses and treatment it benefits those men and their families. I think NTXPCC is doing a commendable job.

2 WGMB

Board Member

Rating: 5

In its 4-th year of existence, North Texas Prostate Cancer Coalition (NTxPCC) is looking forward to its 3rd annual prostate cancer symposium on April 20. After having been privileged to listen to Dr. Partin and Dr. Moyad, this year’s keynote speakers are Dave and Jan Dravecky. Dave is a former major league pitcher for the SF Giants who lost his pitching arm to cancer. Dave and his wife Jan are speaking about “Journeying through cancer together”.
One of NTxPCC’s activities is the “Let’s Talk on Tuesday … About Prostate Cancer” survivor chat where newly diagnosed and recurring survivors can talk face to face with long term survivors providing valuable information on their experiences, side effects and related issues.
Other activities last year included volunteer work during 30 special events, concentrating on awareness and education.
NTxPCC’s strength is an all volunteer organization with no funds used for salaries.

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Board Member

Rating: 5

This is the third year of our existence. We are proud of the accomplishments in this time period through our participating volunteers.
We have earned the trust of related medical institutions reflected through invitations to their events and through financial assistance.
We earned the respect of newly diagnosed men who are coming back to our let's Talk on Tuesday program and who are bringing other newly diagnosed. To quote one newly diagnosed: "When I found out that I will be talking to prostate cancer survivors, I knew through my experience with AA, that I am at the right place. They gave me more help than the doctors did". Well, we are not doctors, we provide information, but we do not give medical advice.

1 BKBL

General Member of the Public

Rating: 5



The North Texas Prostate Cancer Coalition, (NTXPCC), is founded by survivors , who are constantly working on improving the coalition, who's main aim is prostate cancer awareness and education. Newly diagnosed and survivors find informative answers to their many questions, get help and support in coping with their personal issues related to prostate cancer, and find, that they, and their loved ones, are not alone.
The NTXPCC volunteers help at screening events, at health fairs, with the establishing of new support groups, and other events. At the Survivor chat meetings, the volunteers talk freely about their own cancer experience, including very personal effects of the cancer, and/or side effects of their treatments, etc. This allows especially the newly diagnosed men, (and their spouses), to talk openly about their concerns. The fact that NTXPCC is a survivor-based organization, gives the men a great feeling of empowerment and allows them to get help, while , at the same time, helping others!
Going to many meetings, as a survivor's spouse, I see how helpful the Coalition is to prostate cancer patients and their spouses, (like myself).
The NTXPCC's web site is very informative and an awesome source of helpful information, well organized!

Previous Stories

General Member of the Public

Rating: 5

As the wife of a prostate cancer survivor, I go to many of their meetings and programs. The men work tirelessly to improve prostate cancer awareness and education. They reach out to the newly diagnosed, giving them support by sharing their experiences. and by letting them know they are not alone! Another survivor's wife mentioned, that her husband's attitude toward his prostate cancer changed greatly, after they started coming to the survivor chat meetings. The fact, that the men talk freely about their cancer experience, including very personal effects of the cancer and/or side effects of their treatments, allows especially the newly diagnosed men, to talk openly about their concerns. The NTXPCC's web site is very informative and a great source of helpful information. The fact that NTXPCC is a survivor-based organization, gives the men a great feeling of empowerment and allows them to get help, while , at the same time, helping others!

1

Volunteer

Rating: 5

The North Texas Prostate Coalition is a very important Organization. W ether it is a person who wants to be screened, a newly diagnosed patient who longs for more information, or one with recurring disease, this coalition is an important source of information, and help for all. When helping as volunteers at the screenings, or attending meetings, as well as speaker events, (topics being prostate cancer and related topics"), it is rewarding to have people mention how good the work is that the Prostate Coalition is doing. It spreads the need for prostate cancer awareness, and information assistance. It has a great web site filled with up-to-date-information, and much more.

Professional with expertise in this field

Rating: 5

The North Texas Prostate Cancer Coalition provides an important resource for men in the north Texas area who are diagnosed with prostate cancer. The coalition is mostly volunteers and most are men who have been diagnosed with prostate cancer. They have medical experts who guide their programming and web content. We are thankful for what this organization provides to our community.

Previous Stories

Professional with expertise in this field

Rating: 5

The North Texas Prostate Cancer Coalition is a group of individuals and organizations who are passionate about educating the community about prostate cancer, diagnosing it early and providing support to men and their families. Most of the leaders in the coalition are prostate cancer survivors or spouses of prostate cancer survivors. The organization members are health care providers and representatives of health care organizations who provide health care to prostate cancer patients in their community. The coalition strives to combine efforts to coordinate prostate cancer screenings, health fairs and educational events with the idea that combining efforts will achieve better outcomes.

Client Served

Rating: 5

I am very thankful that I found this organization after my recent diagnosis of prostate cancer. They have a warm and caring staff that helped me to understand a lot about my diagnosis as well as the different treatment options that were available to me. Their resource center provided an encouraging and knowledgeable setting for me to explore my options and to ultimately make an informed decision for my treatment. I have continued to attend weekly "Let's Talk" group sessions to discuss various issues and concerns that I have had. My wife and I have been greatly encouraged by attending the "Man to Man" support meetings each month. As a member, we are encouraged to share our personal experience with others and to reach out and welcome newly diagnosed men with prostate cancer. It has been very rewarding to know that I don't have to go through this journey alone. Lastly, I feel that the support and encouragement I have found at NTPCC has been a vital part of my healing and recovery process.

Client Served

Rating: 4

^This organization provided me with good information regarding my prostate cancer. They did a fine job for me.

Client Served

Rating: 4

The NTPCC is an excellent resource of information that includes listings of the current status of multiple procedures available and those on the horizon. Also included is information regarding the multiple prostate support groups in the DFW area. I have found it helpful for educational purposes and as a means of obtaining speakers for my PC support group. Considerable time is spent in keeping this web site available and up to date. I recommend this as a must read site.

Volunteer

Rating: 5

As a PCa survivor, I have been using this website for several years now. The ntxpcacoalition.org is a great resource for men who are trying to find local support groups and solid information and education about PCa. The articles featured about PCa are chosen largely because they reflect new information or insights that may be missed by the " general media informed " survivor. Many thanks should go out to this website manager for the great job he is doing. A lot of men's lives are made better due to the information and even encouragement they receive as a result of this website. My personal thanks as well. Way to go !

General Member of the Public

Rating: 5

I was recently diagnosed with Prostate Cancer. I was immediately engaged in a proactive search for a reliable source of education on the appropriate treatment courses for my particular diagnosis. The initial flood of information from physicians, books and the internet was overwhelming and confusing. I was blessed to find this group of men who are themselves dealing with various stages of Prostate Cancer. Their cumulative experience and knowledge and their willingness to share it was and continues to be extremely helpful. As I meet with various Physicians, I now have a much better foundation from which to make appropriate decisions.

James45

Volunteer

Rating: 5

What I like about it is that you can drop in anytime you want. It has a very good web site.

Volunteer

Rating: 5

This organization is very beneficial in providing information to men regarding prostate cancer including treatment options, new medical research for prostate cancer, etc.

General Member of the Public

Rating: 4

As a wife of a Prostate Cancer Survivor I can see how helpful the web site is for those who "know zero" about the cancer they have just been diagnosed with. Life gets so busy sometimes we don't research issues until we are hit with the news, "You have Prostate Cancer" Now where do I go for information? Fortunately the informative web site North Texas Prostate Cancer Coalition is there to help. You will find answers to about every question you have. Of course there are some questions that only your doctor can answer, but it you want to find a support group, local events supporting Prostate Cancer, different treatments available, the NTPCC is the best to check into. Sure wish this had been created when my husband was diagnosed with his cancer.

Client Served

Rating: 5

The news that I had prostate cancer was a total surprise.
6’3” – Strong – Physically active in work and exercise with a good diet.
My pretreatment introduction to NTXPCC was totally invaluable. The
unlimited wealth of information on research, history, studies plus the
personal experiences of the members themselves is amazing.
The tireless effort invested by NTXPCC, Mr. Blattner and all the others
is admirable.
NTXPCC also provided me with a support group / network I call family.
My operation and subsequent life post-cancer is much easier because of
my friends and loved ones in NTXPCC.
God bless them all and keep up the good work.
Rich Dewell

Advisor

Rating: 5

North Texas Prostate Cancer Coalition has been very valuable to my patients. This well organized and run group is informed, organized, and proactive. I give the contact information to all my prostate cancer patients.

Client Served

Rating: 5

NTXPCC started by a prostate cancer survivor has inproved each year with current information on the latest in pc. i try to attend 3 local hospital pc support group meeting that you can find on this site. i also run in the dadfest race as a pc survivor on fathers day weekend which has free screening. please check out my running blog www.runningforacause.tumblr.com

Client Served

Rating: 5

NTXPCC has served the Prostate Cancer Support Group well here at Baylor Sammons Cancer Center. The information that is provided is easy to understand and very supportive. Members of the organization are very responsive to any requests. As a Program Coordiantor I rely on the website to communicate upcoming events and programs that are avaiable for gentlemen diagnosised with this disease . Great resource for patients and family members.

Client Served

Rating: 5

This group provides information to men that have, or have had prostate cancer. Through monthly presentations and one-on-one consultations members provide clients with information or direct clients toward certain medical professionals as needed. On a personal basis members of the group have provided me with assuances and general information as well as information useful to my wife.

Terrence A.

Board Member

Rating: 5

In 2008, I was preparing to complete graduate school, and I did not have a clear picture of my post-collegiate life. I was married, had a 2-year old daughter, and a 16-year old stepdaughter, but no plans about the next steps to take. My career path was then guided by one of my graduate professors, who became my boss, and I became the manager of the Tyler Prostate Cancer Awareness Program.

In 2010, we met Wolfram Blattner and learned about the wonderful works of the North Texas Prostate Cancer Coalition. As a33 years old African American male, I represent the future of male health promotion, for I am in the demographic where chronic conditions are not even considered. This untapped and unreached market can be used to further promote the necessity of prostate awareness to older men (by proxy through their sons, nephews, and grandsons), but to also plant the seeds of awareness and early detection in the minds of men who will soon approach the recommended ages of scheduling health screenings, understanding their personal risk factors, and deciphering the spectrum of shared decision making.

Client Served

Rating: 5

The North Texas Prostate Cancer Coalition provides much needed assistance to men diagnosed with prostate cancer. Materials that are provided are very helpful and the references help guide decisions about treatment options. The volunteers share their experiences as folks who have walked the same path and that support provides reassurance.

Professional with expertise in this field

Rating: 5

NTxPCC has been important for folks in Tyler Texas, a two hour drive east of Dallas..... They offer advice and services here too. The director of NTxPCC has so much energy we can't keep up with him.

Gayle W.

Professional with expertise in this field

Rating: 5

The North Texas Prostate Cancer Coalition provides a well organized, centralized location for prostate cancer survivors to get connected and learn more about prostate cancer. The website, www.ntxpcacoalition.org, is the glue that keeps everyone informed of upcoming support group and educational events. The news articles that are posted are based on strong scientific evidence and a team of physicians and nurses provide support and input about various topics. The coalition has worked with multiple hospital systems across the Dallas-Fort Worth metroplex and provides a neutral place to promote education for all men about prostate cancer.