I have found the NTxPCC and its affiliated support groups to be of great value in my personal 16 year journey with prostate cancer. While every man' s journey is different, the support group meetings and the annual NTxPCC Symposium have provided valuable information to supplement that from my urologist and other members of my medical support team. I particularly appreciate the personal experiences of those that have already gone through the individual steps in their journeys that I am considering taking.
My story is short but a powerful testament to the benefit of this orgsnization. When I was diagnosed and sent to an oncologist, the doctor scared the bejeezus out if me. He talked about the potential for other types of cancers and he really pushed for me to take the standard course of radiation treatment. I went home and searched the Internet for support groups and found NTPCC. Fortunately there was a meeting being held two days later. I was welcomed by the members and given an opportunity to tell my story. They were very reassuring and helped me understand why the oncologist said the things he said (no one was impressed with his approach, however!).
The next day, I received an email from the leader of the group. He was forwarding information about SBRT that one of the members thought I might want to explore. I contacted the leader to see if he had any resources I could explore for further information. He provided a doctor's name and contact info. The result of all this is that I ended up selecting SBRT as my treatment, with successful results! Had I not attended that NTPCC meeting, I may never had heard about SBRT.
The US TOO Plano group is an excellent, informative group for survivors and their spouses. I joined the group after my diagnosis and treatment. My PCa was discovered originally from a DRE at an annual physical. There was a lump felt on my prostate. At this time I had also had a PSA test which turned out to be 1.62, unusually low for a PCa diagnosis. This proves that DRE's are just as necessary as PSA tests.
The US TOO group meets every 2nd Tuesday and they have very knowledgeable health professionals speak about anything prostate cancer-related. Many times this includes the latest treatments which can be very useful for the newly diagnosed and uncertain about what steps to take next for treatment. After the speaker, there are chat sessions for attendees and their spouses. Highly recommended !!
The North Texas Prostate Coalition has been the centerpiece for advocacy, patient/family support, and education in the DFW metroplex. As a physician, I have appreciated this excellent group to be able to refer my patients after prostate cancer diagnosis and then ongoing for long term support. I highly recommend this well run organization.
Dr Frank (Trey) Moore III MD, Urology, Fort Worth.
The North Texas Prostate Cancer Coalition is an organization constructed from the ground roots by patients with a passion towards addressing the challenges of prostate cancer. The Coalition is independent of any organization and provides education and a forum for newly diagnosed patients as well as survivors. They are a very fair minded group basing their information on science. I would highly recommend this group to any men (or their family) seeking information on the evolving topic of prostate cancer especially in this time of conflicting reports.
NTxPCC recently supported the 50 Hoops annual breakfast and seniors basketball tournament. 50 Hoops is an affiliate of NTxPCC and promotes awareness and education sessions regarding various cancers, including prostate cancer, directed at the African-American community at large. NTxPCC survivor volunteers provided personal experiences to the breakfast audience and an education table during the tournament. In addition to providing educational material and answering questions regarding PCa and treatment options to men and their family members, men were encouraged to take advantage of PSA screening services provided by 50 Hoops during the event. This is just another example of how NTxPCC works with other health oriented groups to reach more members of the public regarding prostate cancer awareness and education - our primary mission.
I am a NTxPCC BOD member, a support group leader, and a PCa survivor (6Y+). As an organization, we seek new as well as repeat opportunities to educate men and their spouses/SO's about PCa, the value of screening and early detection, various responses to a PCa diagnosis, awareness of support groups who can provide information and support to newly diagnosed, those awaiting treatment, and those who have been treated and may be dealing with ongoing side affects. For the newly diagnosed, our primary objective is to ensure the individual and his loved ones have accurate and complete information with which to make the best decision regarding their own disease and possible future actions to take. For those awaiting treatment, we strive to make them aware of advances in treatment protocols to factor in to their individual decision making process. For those dealing with post-treatment side affects, group members share how they have responded to similar side affects that may be helpful for someone else to consider for themselves. Finally, we actively seek opportunities to reach underserved
groups of men, especially those who may be at high risk for contracting PCa. If we can save even one man's life thru education and/or awareness or help another effectively manage side affects to achieve a better quality of life moving forward, then our organization will have validated its reason for being.
The first night my husband and I attended the North Texas Prostate Cancer Coalition support group we didn’t know what to expect and were rather nervous and very scared of his diagnosis. We were met with friendly concern and immediate acceptance. As the group assembled it was obvious that they were friends. Each couple recognized us as new members and asked when we were diagnosed. Each man gave his personal story with input from some wives. One of the ladies said that we would do fine because my husband was taking notes and he had brought his wife with him. We were given a lot of facts and contact information and were encouraged to return.
We did return and quickly became involved. My husband visited with some of the members in his search for the right treatment for him. It has been over a year now since we joined and we feel right at home with the group. I thank God each day for sending these people to us to give us courage, knowledge, support, and love to help us through this frightening journey. We now try to help others whenever we can. This is a wonderful group and I am very proud to be a part of it.
NTxPCC has continued to make a great impact on the North Texas Community and to continue it's established programs as reflected by the involvement/creation of 20 special events. NTxPCC welcomes it's newest member, the Prostate Cancer Support Group at the Texas Center for Proton Therapy in Irving.
Another successful Symposium was held at Globe Life Park with three excellent speakers: Emmy Award Winner Todd Whitthorne (ACAP Health), Urologist Aditya Bagrodia, MD (UT Southwestern) and Survivor Gary Wydman. This program was made possible through Texas Health Methodist Harris Foundation, Texas Health Presbyterian Hospital Dallas, UT Southwestern, Urology Research & Education Foundation, Moncrief Cancer Institute as well as Abbvie, Augmenix and Bayer.
Progress is made for next year's symposium in a new venue as the Texas Rangers' Hall of Fame will not be available due to construction.
NTxPCC added a few new volunteers who are actively providing assistance to Coalition Programs.
The most difficult decision for men newly diagnosed with prostate cancer is the choice of the next step. I was one of those men faced with that choice. Questions concerning what method of treatment, where should I go, what should I expect, what were my chances of survival, etc. occupied my mind. I was definitely ignorant about the cancer and worried about my future. And then I was fortunate enough to be referred by a friend and prostate cancer survivor to a support group, The North Texas Prostate Cancer Coalition.
This group was, and still is, the source of much needed unbiased information that comes from men who are survivors of prostate cancer and who are willing to share their experiences regarding this prevalent, but not widely, understood disease. The organization not only holds regular weekly sessions to discuss the disease in a quiet learning environment but maintains an internet presence that is informative and kept up to date through the dedicated efforts of its leadership. In addition to hosting seminars and events, volunteers from the organization set up booths to provide information and answer questions at other major and minor public events throughout North Texas. A monthly meeting of the group along with wives, and attended by knowledgeable medical personnel, provides additional expertise and opportunity to find answers to questions from different perspectives.
This support organization gave, and continue to give me hope in my times of uncertainty and despair. I can't say enough good things about the organization and what they do. They showed me how to proceed and accept what is now the New Normal for me - A Cancer Survivor.
I have gone to the support group and talking to others helped me. This disease is easier to battle when not alone.
I encourage others fighting this disease to come and talk. It will help!
The North Texas Prostate Cancer Coalition and those I've interacted with has been a great help and comfort in dealing with my cancer.
With my new Prostate cancer diagnoses and did not know where to turn. I found out about North Texas Prostate Cancer Coalition and they have bee supportive and given me tons of information. It's help me feel more confident in making the decisions ahead of me. Also a great place to meet men with the same issues and hear about their experiences.
Thank you Wolf with sharing all your great knowledge!
I am a long term survivor and I've learned a lot over the years from NTXPCC.
This organization is dedicated to one main focus..." get educated about PCa "
Learning about PCa can save the life of many men.
Point One is early detection of the disease ( psa screening....and biopsy, if needed )
If detected early, then several good treatment options are available.
There tends NOT to be any early symptoms of PCa, so it is important for men to get
regular screenings beginning at age 45-50 yrs.
Help raise awareness and support this excellent organization....
...and help all men live better lives.
Fortunately I learned about this support group. They meet in the library in the Klabzuba Tower near Harris Hospital. This is a group of volunteers that are prostate cancer survivors that meet every Tuesday from 10:00 am until 2:00pm. They discuss prostate cancer, treatments, and anything that visitors have questions about. It is a very honest open group that is willing to offer care and support. I have visited the group about 5 or 6 times and really enjoy going. They welcome questions from anyone that attends.
Another part of this group is a support group that meets on the third Monday of each month at the Moncrief Cancer Center on Rosedale. The first time I went I learned that wives or other family members are welcome also. The second time my wife attended with me, thinking that she might just go one time. Now she attends these meetings with me.
This was a fantastic find for me. I had been diagnosed with prostate cancer and needed information. the NTPCC helped educate me as to my condition, we discussed treatment options, I was able to talk with prostate cancer survivors about their journey, this was a tremendous help for me. As a result of everything I learned I was able to confidently choose the treatment necessary. Now after treatment I am prostate cancer free! Excellent resource for anyone diagnosed with prostate cancer.
As a spouse of a prostate cancer survivor, I am very thankful to this group. The support of North Texas Prostate Cancer Coalition is not limited to their wonderful website. The availability of other survivors, and their wives, for one-on-one conversations has been a tremendous help to both of us. Each year the Coalition sponsors a Symposium with speakers that help us continue to learn more about this disease and its treatments.
This support group is an invaluable resource for men newly diagnosed with prostate cancer, and for survivors as well, as the guys that participate are incredibly knowledgeable and have very diverse experiences with their treatments and journey of survival. The willingness to share these experiences are what makes this group so helpful.
Very uplifting to have open conversations with men who have been through it and are still here to talk about it.
This group provides superior support designed for newly diagnosed victims of Prostate Cancer. Every Tuesday four survivors meet for four hours with Prostate Cancer men that are usually undergoing the five stages of grief. Just looking at the survivors and hearing their experiences seems to lift the stress from the client's shoulders. They leave ready to learn about the treatments available and expecting to enjoy more years of life since Prostate cancer is not the same fast killer most men think of when told they have cancer.
I am a prostate cancer survivor that was fortunate to be diagnosed very early before the disease could metatasize . After surgery, my cancer has been in remission for eleven years. Consequently, I am trying to pay back my community for my good fortune by being a volunteer and speaker at health fairs, or churchs to make men aware of what they can do to be diagnosed early if they are in a high risk group. The NTxPCC's "Let's Talk on Tuesday" is the weekly session to learn about the latested news and where screenings are taking place in all of North Texas. NTxPCC sends me and other volunteers to events where we can educate men about Prostate Cancer so they can be aware of the danger of Prostate Cancer and be daignosed early if they are the one out of every six men to be cursed with disease.
The North Texas Prostate Cancer Coalition is an all-volunteer group consisting of prostate cancer survivors. They help Dallas-Ft Worth area support groups and healthcare facilities to promote educational events and support for men diagnosed with prostate cancer. Their annual survivorship symposium held in March is a first-rate event with great speakers and a place for men and their spouse to meet others and discuss their diagnosis.
The North Texas Prostate Cancer Coalition is made up of volunteers, mostly prostate cancer survivors or healthcare providers who deal with prostate cancer who provide their time to educate at community events and support groups. These individuals care about helping other men through the journey of prostate cancer. This is a very worthwhile organization.
When diagnosed with prostate cancer the selection of a treatment presents several options, each with benefits and drawbacks. Each medical discipline supports its own solution for treatment. I was fortunate to find the North Texas Prostate Cancer Coalition. This group of prostate cancer survivors presents a wealth of information gained from each survivors personal experience after undergoing the various treatment options. I found this group of men willing to help the newly diagnosed with information and hope to become another survivor. I also find this group a new source of friends with a continuous willingness to answer my questions about the future based on their experience.