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North Texas Prostate Cancer Coalition

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Nonprofit Overview

Causes: Health

Mission: North Texas Prostate Cancer Coalition (NTXPCC) is a non-profit organization, registered with the State of Texas. It is formed for the purpose of elevating prostate cancer to major health priority status in the State of Texas by assisting the medical community in providing coordinated educational and awareness support opportunities for all men and their families. North Texas Prostate Cancer Coalition will carry out its purposes primarily through the venues of: (1) Counseling to members of the community without regard to race, gender, denominational preference, or economic condition to increase awareness of prostate cancer, (2) Supporting medical institutions with volunteers during screening and other prostate cancer related events, (3) Speaking at churches, men’s clubs, and community forums on topics related to prostate cancer awareness and survival, and, (4) working with the legislature to assure adequate legislation for prostate cancer patients, survivors and research funding within the State of Texas.

Results: Our current efforts are concentrated on a survivor chat (Let's Talk on Tuesday) as well as on prostate cancer awareness (Health Fairs)

Target demographics: Texas, currently concentrating on North TexasAdult men and their families

Direct beneficiaries per year: Over 500 survivors and newly diagnosed men

Geographic areas served: Texas

Programs: Survivors Chat, Speakers Bureau, Health Fair and Screening (run by medical facilities) support

Community Stories

56 Stories from Volunteers, Donors & Supporters

Client Served

Rating: 5

I have gone to the support group and talking to others helped me. This disease is easier to battle when not alone.

I encourage others fighting this disease to come and talk. It will help!

Eric Starnes

Client Served

Rating: 5

I have been a member of the North Texas Prostate Cancer Coalition for 5 Years. They provide interesting lectures on the latest treatments available to the community. The board members provide a rare resource especially valuable to newly diagnosed men.

Client Served

Rating: 5

The North Texas Prostate Cancer Coalition and those I've interacted with has been a great help and comfort in dealing with my cancer.

Client Served

Rating: 5

With my new Prostate cancer diagnoses and did not know where to turn. I found out about North Texas Prostate Cancer Coalition and they have bee supportive and given me tons of information. It's help me feel more confident in making the decisions ahead of me. Also a great place to meet men with the same issues and hear about their experiences.

Thank you Wolf with sharing all your great knowledge!

1

Volunteer

Rating: 5

LT Survivor

I am a long term survivor and I've learned a lot over the years from NTXPCC.
This organization is dedicated to one main focus..." get educated about PCa "
Learning about PCa can save the life of many men.
Point One is early detection of the disease ( psa screening....and biopsy, if needed )
If detected early, then several good treatment options are available.
There tends NOT to be any early symptoms of PCa, so it is important for men to get
regular screenings beginning at age 45-50 yrs.
Help raise awareness and support this excellent organization....
...and help all men live better lives.

Client Served

Rating: 5

Fortunately I learned about this support group. They meet in the library in the Klabzuba Tower near Harris Hospital. This is a group of volunteers that are prostate cancer survivors that meet every Tuesday from 10:00 am until 2:00pm. They discuss prostate cancer, treatments, and anything that visitors have questions about. It is a very honest open group that is willing to offer care and support. I have visited the group about 5 or 6 times and really enjoy going. They welcome questions from anyone that attends.

Another part of this group is a support group that meets on the third Monday of each month at the Moncrief Cancer Center on Rosedale. The first time I went I learned that wives or other family members are welcome also. The second time my wife attended with me, thinking that she might just go one time. Now she attends these meetings with me.

1

Client Served

Rating: 5

This was a fantastic find for me. I had been diagnosed with prostate cancer and needed information. the NTPCC helped educate me as to my condition, we discussed treatment options, I was able to talk with prostate cancer survivors about their journey, this was a tremendous help for me. As a result of everything I learned I was able to confidently choose the treatment necessary. Now after treatment I am prostate cancer free! Excellent resource for anyone diagnosed with prostate cancer.

1

Client Served

Rating: 5

As a spouse of a prostate cancer survivor, I am very thankful to this group. The support of North Texas Prostate Cancer Coalition is not limited to their wonderful website. The availability of other survivors, and their wives, for one-on-one conversations has been a tremendous help to both of us. Each year the Coalition sponsors a Symposium with speakers that help us continue to learn more about this disease and its treatments.

1

Client Served

Rating: 5

This support group is an invaluable resource for men newly diagnosed with prostate cancer, and for survivors as well, as the guys that participate are incredibly knowledgeable and have very diverse experiences with their treatments and journey of survival. The willingness to share these experiences are what makes this group so helpful.
Very uplifting to have open conversations with men who have been through it and are still here to talk about it.

1

Volunteer

Rating: 5

This group provides superior support designed for newly diagnosed victims of Prostate Cancer. Every Tuesday four survivors meet for four hours with Prostate Cancer men that are usually undergoing the five stages of grief. Just looking at the survivors and hearing their experiences seems to lift the stress from the client's shoulders. They leave ready to learn about the treatments available and expecting to enjoy more years of life since Prostate cancer is not the same fast killer most men think of when told they have cancer.

Previous Stories
2

Volunteer

Rating: 5

I am a prostate cancer survivor that was fortunate to be diagnosed very early before the disease could metatasize . After surgery, my cancer has been in remission for eleven years. Consequently, I am trying to pay back my community for my good fortune by being a volunteer and speaker at health fairs, or churchs to make men aware of what they can do to be diagnosed early if they are in a high risk group. The NTxPCC's "Let's Talk on Tuesday" is the weekly session to learn about the latested news and where screenings are taking place in all of North Texas. NTxPCC sends me and other volunteers to events where we can educate men about Prostate Cancer so they can be aware of the danger of Prostate Cancer and be daignosed early if they are the one out of every six men to be cursed with disease.
Monty Knapp

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1 uref2001

Professional with expertise in this field

Rating: 5

The North Texas Prostate Cancer Coalition is an all-volunteer group consisting of prostate cancer survivors. They help Dallas-Ft Worth area support groups and healthcare facilities to promote educational events and support for men diagnosed with prostate cancer. Their annual survivorship symposium held in March is a first-rate event with great speakers and a place for men and their spouse to meet others and discuss their diagnosis.

Previous Stories
1

Board Member

Rating: 5

The North Texas Prostate Cancer Coalition is made up of volunteers, mostly prostate cancer survivors or healthcare providers who deal with prostate cancer who provide their time to educate at community events and support groups. These individuals care about helping other men through the journey of prostate cancer. This is a very worthwhile organization.

1

Client Served

Rating: 5

When diagnosed with prostate cancer the selection of a treatment presents several options, each with benefits and drawbacks. Each medical discipline supports its own solution for treatment. I was fortunate to find the North Texas Prostate Cancer Coalition. This group of prostate cancer survivors presents a wealth of information gained from each survivors personal experience after undergoing the various treatment options. I found this group of men willing to help the newly diagnosed with information and hope to become another survivor. I also find this group a new source of friends with a continuous willingness to answer my questions about the future based on their experience.

1

Board Member

Rating: 5

The North Texas Prostate Cancer Coalition has continued to increase its responsibilities.
2017 saw the 8th Annual Prostate Cancer Symposium at the Texas Rangers Globe Life Stadium. This apparently was the greatest symposium we had so far. We had three outstanding speakers: Wendy Harpham, MD - a long-term cancer survivor, recognized author and nationally recognized speaker; Kevin Courtney, MD, PHD, well-known medical oncologist at UT-Southwestern as well as baseball-great Ken Griffin Sr., who joined Bayer with their "Men Who Speak Up" program.
We increased activities in providing awareness and education for prostate cancer at a number of Metroplex events.
Our "Let's Talk on Tuesday ... About Prostate Cancer" face-to-face survivor chat is being recognized and is loved by guys and partners attending.
Our programs are enhanced by programs run by affiliate and member organisations: The Urology Research and Education Foundation (UREF), the Texas Health Harris Prostate Cancer Resource Center and the African-American "50 Hoops" organisation.

Previous Stories

Board Member

Rating: 5

NTxPCC has been active during the last 12 months: We attended over 30 special events (health fairs, screenings, etc.); our 2nd Annual PCa Symposium featuring Dr. Mark Moyad as well as some great local research physicians and community speakers attracted a large audience.
The Coalition now includes all PCa support groups within the Metroplex; we are happy to announce that 50 Hoops has joined our organization.
Our “Let’s Talk on Tuesday” program is very popular with newly diagnosed men and other survivors meeting face-to-face with long-term survivors.

Tom D.

Board Member

Rating: 5

I am a NTxPCC BOD member, a support group leader, and a PCa survivor (6Y+). As an organization, we seek new as well as repeat opportunities to educate men and their spouses/SO's about PCa, the value of screening and early detection, various responses to a PCa diagnosis, awareness of support groups who can provide information and support to newly diagnosed, those awaiting treatment, and those who have been treated and may be dealing with ongoing side affects. For the newly diagnosed, our primary objective is to ensure the individual and his loved ones have accurate and complete information with which to make the best decision regarding their own disease and possible future actions to take. For those awaiting treatment, we strive to make them aware of advances in treatment protocols to factor in to their individual decision making process. For those dealing with post-treatment side affects, group members share how they have responded to similar side affects that may be helpful for someone else to consider for themselves. Finally, we actively seek opportunities to reach underserved
groups of men, especially those who may be at high risk for contracting PCa. If we can save even one man's life thru education and/or awareness or help another effectively manage side affects to achieve a better quality of life moving forward, then our organization will have validated its reason for being.

Previous Stories

Board Member

Rating: 5

NTXPCC is an aggregation of 8 active PCa support groups in North Texas. Providing educational resources and discussion groups for newly diagnosed men and their families and for the families of PCa survivors or those undergoing various treatments. Most groups meet monthly and provide an outlet for men and their families afflicted with PCa. A number of people attend multiple support group meetings as they are open to all. Most are affiliated with the international Us TOO organization with others affiliated with the ACS Man-to-Man program.

The purpose of the NTXPCC and the several support groups is to encourage men to get screened, get educated and approach their individual situation armed with all the information they need to make the best decision for them and their respective families.

1

Client Served

Rating: 5

This group offers information online and support throughout DFW. Everyone you meet is welcoming and helpful. The information they offer is impartial, allowing you to make an informed decision regarding your treatment.

1

Client Served

Rating: 4

I went to the group after discovering I had Prostate Cancer, I was seeking help as to which treatment to follow and the group was very helpful with information that I needed to make my decision. I would recommend the group to any man who would just want someone to talk with.

1

Volunteer

Rating: 5

I've been a prostate cancer survivor for several years and I've talked with a number of men about PCa.
I think there is a great need for up-to-date PCa information to be accessible to men, so they can more easily deal with the experience of PCa.
The ntxpcacoalition.org website provides a valuable resource to that end. It helps men find good local
support groups. It also provides great information ( articles, doc talks, seminars, etc.) that can help them
gain a better understanding of PCa. Keep up the good work NTX.............!!

Previous Stories

Volunteer

Rating: 5

As a long time prostate cancer survivor, I have seen many fellow
survivors have life-changing experiences dealing with prostate cancer.
With early detection and early treatment, these men can benefit
greatly with improved outcomes. The ntxpccoalition.org is the best
way to keep informed, get educated, and find support groups in the
local area of North Texas. This excellent website benefits long-term
survivors as well, because of the ever-changing landscape of new
research and ideas and improvements in the various treatment options.

1

Client Served

Rating: 5

When I was diagnosed with an aggressive prostate cancer, the information on various options for treatment was overwhelming and difficult to absorb. The NTXPCC provided a supportive and knowledgeable group to work through the various treatment options. They took the necessary time to clarify each of the standard treatment options, as well as, introduce me to some revolutionary approaches to advanced prostate cancer treatment. One of these revolutionary approaches may have saved my life. This group focuses on education, knowledge and understanding. They are always careful not to suggest or provide medical advise. I wish that all recently diagnosed men in North Central Texas could be made aware of this superb resource.

1

Volunteer

Rating: 5

My husband was diagnosed in 2001 with prostate cancer. At the time he went to Harris Hospital cancer library to seek information, which was a wonderful way for him at the time. Fast forward to 2013, he now has so much information right his finger tips. All he has to do is get on the web site for North Texas Prostate Cancer Coalition. There are so many areas where he can research new treatments, contact people and discuss his questions with others. The web site is a gold mine for information. Wish it had been available when he was first diagnosed. Thank you to all involved in creating this wonderful web site.

1

Client Served

Rating: 5

I am a prostate cancer survivor that was diagnosed early and had successful surgery to remove my prostate. I was fortunate to have learned of this helpful organization while I was in the learning and planning stages prior to making the decision about my treatment option. This group has provided many prostate cancer patients, and their families, with much useful information and support.

Previous Stories

Client Served

Rating: 5

The North Texas Prostate Cancer Coalition provides much needed assistance to men diagnosed with prostate cancer. Materials that are provided are very helpful and the references help guide decisions about treatment options. The volunteers share their experiences as folks who have walked the same path and that support provides reassurance.

Lee B.