As an advocate for cancer patients and caregivers, I find North Texas Prostate Cancer Coalition to be a wonderful resource. The members consistently serve as encouragers and educators for other patients as well as the entire community. They disseminate information, support educational opportunities, and serve as positive role models for all cancer survivors.
The North Texas Prostate Cancer Coalition has been invaluable to my husband and myself in light of his diagnosis in 2014. We have received emotional/psychological support as well as vital information about treatment options during our decision making process in fighting this disease. I would not hesitate to recommend this organization to anyone with a diagnosis of prostate cancer or seeking more information about prostate health.
When my husband was diagnosed with Prostate cancer we were devastated until a friend put us in touch with a support group in the North Texas Prostate Cancer Coalition. The people welcomed us and gave us hope that, like them, we could fight this disease and add several more happy years to our lives. We have become involved, learned a lot, and made many new friends.
The first night my husband and I attended the North Texas Prostate Cancer Coalition support group we didn’t know what to expect and were rather nervous and very scared of his diagnosis. We were met with friendly concern and immediate acceptance. As the group assembled it was obvious that they were friends. Each couple recognized us as new members and asked when we were diagnosed. Each man gave his personal story with input from some wives. One of the ladies said that we would do fine because my husband was taking notes and he had brought his wife with him. We were given a lot of facts and contact information and were encouraged to return.
We did return and quickly became involved. My husband visited with some of the members in his search for the right treatment for him. It has been over a year now since we joined and we feel right at home with the group. I thank God each day for sending these people to us to give us courage, knowledge, support, and love to help us through this frightening journey. We now try to help others whenever we can. This is a wonderful group and I am very proud to be a part of it.
Being diagnosed with any Cancer is a life changing and scary experience. Many of us immediately get online to find out everything we can about what lies ahead as we are scared out of our minds and wish to be strong and not to fully show it to others. There is simply no way to compare all of the professional advice to being exposed to others that have lived through it and are still going strong. The North Texas Prostate Cancer Coalition is such a group where hope is found. I found it through the internet and have found the shared experiences invaluable therapy. I truly wish that even more of us similarly afflicted could find and experience the same boost of hope that I have found there.
This organization is in the 10th year of it's existence. Services provided are still increasing as NTxPCC attended more than 30 special events last year, more than two a month on the average. Most notable was the presence at this year's Pate Swap Meet. - Not bad for an organization run by volunteers, no paid staff.
Great Symposium this year with record attendance at the McKesson facility in Irving. The symposium it geared towards surviving prostate cancer patients - excellent speakers.
If you are a newly diagnosed or a survivor, go visit the ntxpcacoalition.org and see what this organization has to offer.
The North Texas Prostate Cancer Coalition has continued to increase its responsibilities.
2017 saw the 8th Annual Prostate Cancer Symposium at the Texas Rangers Globe Life Stadium. This apparently was the greatest symposium we had so far. We had three outstanding speakers: Wendy Harpham, MD - a long-term cancer survivor, recognized author and nationally recognized speaker; Kevin Courtney, MD, PHD, well-known medical oncologist at UT-Southwestern as well as baseball-great Ken Griffin Sr., who joined Bayer with their "Men Who Speak Up" program.
We increased activities in providing awareness and education for prostate cancer at a number of Metroplex events.
Our "Let's Talk on Tuesday ... About Prostate Cancer" face-to-face survivor chat is being recognized and is loved by guys and partners attending.
Our programs are enhanced by programs run by affiliate and member organisations: The Urology Research and Education Foundation (UREF), the Texas Health Harris Prostate Cancer Resource Center and the African-American "50 Hoops" organisation.
NTxPCC is a very well organized nonprofit company that does one hell of a job educating the community about Prostate Cancer and reaching their target audience.
The North Texas Prostate Cancer Coalition is wonderful - I've gained so much by attending the in person support group led by Tom Dillon + the annual symposium was a blessing
I learned of the NTxPCC in 2018, six months after my prostate surgery. I attended the annual lecture and spoke to members who were happy to share their experiences with me. The lecturers were outstanding, providing valuable insight into this disease. This year I actually started seeing the featured lecturer as my primary physician because I was so impressed with the cutting edge research he was conducting and the latest technology he was using to monitor the progress of any signs of recurrent disease. This group is providing a real public service by actively sharing knowledge and support to men who are dealing with prostate cancer. I am very grateful for this organization.
I have come from being diagnosed and treated to being a survivor and active volunteer participating in the coalition. It is now my mission to alert men of the possibility of this cancer affecting them.
Men typically don't like to discuss their health in general company but as a volunteer I am able to talk with them in rather private settings. This allows the passing and discussion of information that has a good chance to save a life and to give hope and understanding where ignorance and fear exist.
The most difficult decision for men newly diagnosed with prostate cancer is the choice of the next step. I was one of those men faced with that choice. Questions concerning what method of treatment, where should I go, what should I expect, what were my chances of survival, etc. occupied my mind. I was definitely ignorant about the cancer and worried about my future. And then I was fortunate enough to be referred by a friend and prostate cancer survivor to a support group, The North Texas Prostate Cancer Coalition.
This group was, and still is, the source of much needed unbiased information that comes from men who are survivors of prostate cancer and who are willing to share their experiences regarding this prevalent, but not widely, understood disease. The organization not only holds regular weekly sessions to discuss the disease in a quiet learning environment but maintains an internet presence that is informative and kept up to date through the dedicated efforts of its leadership. In addition to hosting seminars and events, volunteers from the organization set up booths to provide information and answer questions at other major and minor public events throughout North Texas. A monthly meeting of the group along with wives, and attended by knowledgeable medical personnel, provides additional expertise and opportunity to find answers to questions from different perspectives.
This support organization gave, and continue to give me hope in my times of uncertainty and despair. I can't say enough good things about the organization and what they do. They showed me how to proceed and accept what is now the New Normal for me - A Cancer Survivor.
My prostate cancer journey has created a passion in me to help others battle cancer, including those close to cancer victims. I feel fortunate to have a mission to help others, to help them through the battles I survived. I've turned my life’s focus to cancer education, advocacy and finding a cure.
As an advocate & mentor, I strive to stay abreast of the latest in prostate cancer.
I discovered the NTPCC via social media earlier this year and attended the NTPCC Symposium in March; it was an excellent forum with knowledgeable speakers (including my Urologist!). The NTPCC is a great resource!
The North Texas Prostate Cancer Coalition is a great organization whose mission is to educate men about prostate cancer and bring together various healthcare organizations for the same purpose.
This group has been a godsend for men that have been newly diagnosed with prostate cancer, as the experience each of the members has had is shared with others helping them make choices on how each would like to address their individual situation. Very useful when all the things one feels are swirling around in their heads. Each volunteer is genuinely concerned with each person that they communicate with, very special.
This support group is an invaluable resource for men newly diagnosed with prostate cancer, and for survivors as well, as the guys that participate are incredibly knowledgeable and have very diverse experiences with their treatments and journey of survival. The willingness to share these experiences are what makes this group so helpful.
Very uplifting to have open conversations with men who have been through it and are still here to talk about it.
I have found the NTxPCC and its affiliated support groups to be of great value in my personal 16 year journey with prostate cancer. While every man' s journey is different, the support group meetings and the annual NTxPCC Symposium have provided valuable information to supplement that from my urologist and other members of my medical support team. I particularly appreciate the personal experiences of those that have already gone through the individual steps in their journeys that I am considering taking.
My story is short but a powerful testament to the benefit of this orgsnization. When I was diagnosed and sent to an oncologist, the doctor scared the bejeezus out if me. He talked about the potential for other types of cancers and he really pushed for me to take the standard course of radiation treatment. I went home and searched the Internet for support groups and found NTPCC. Fortunately there was a meeting being held two days later. I was welcomed by the members and given an opportunity to tell my story. They were very reassuring and helped me understand why the oncologist said the things he said (no one was impressed with his approach, however!).
The next day, I received an email from the leader of the group. He was forwarding information about SBRT that one of the members thought I might want to explore. I contacted the leader to see if he had any resources I could explore for further information. He provided a doctor's name and contact info. The result of all this is that I ended up selecting SBRT as my treatment, with successful results! Had I not attended that NTPCC meeting, I may never had heard about SBRT.
The US TOO Plano group is an excellent, informative group for survivors and their spouses. I joined the group after my diagnosis and treatment. My PCa was discovered originally from a DRE at an annual physical. There was a lump felt on my prostate. At this time I had also had a PSA test which turned out to be 1.62, unusually low for a PCa diagnosis. This proves that DRE's are just as necessary as PSA tests.
The US TOO group meets every 2nd Tuesday and they have very knowledgeable health professionals speak about anything prostate cancer-related. Many times this includes the latest treatments which can be very useful for the newly diagnosed and uncertain about what steps to take next for treatment. After the speaker, there are chat sessions for attendees and their spouses. Highly recommended !!
The North Texas Prostate Coalition has been the centerpiece for advocacy, patient/family support, and education in the DFW metroplex. As a physician, I have appreciated this excellent group to be able to refer my patients after prostate cancer diagnosis and then ongoing for long term support. I highly recommend this well run organization.
Dr Frank (Trey) Moore III MD, Urology, Fort Worth.
The North Texas Prostate Cancer Coalition is an organization constructed from the ground roots by patients with a passion towards addressing the challenges of prostate cancer. The Coalition is independent of any organization and provides education and a forum for newly diagnosed patients as well as survivors. They are a very fair minded group basing their information on science. I would highly recommend this group to any men (or their family) seeking information on the evolving topic of prostate cancer especially in this time of conflicting reports.
NTxPCC recently supported the 50 Hoops annual breakfast and seniors basketball tournament. 50 Hoops is an affiliate of NTxPCC and promotes awareness and education sessions regarding various cancers, including prostate cancer, directed at the African-American community at large. NTxPCC survivor volunteers provided personal experiences to the breakfast audience and an education table during the tournament. In addition to providing educational material and answering questions regarding PCa and treatment options to men and their family members, men were encouraged to take advantage of PSA screening services provided by 50 Hoops during the event. This is just another example of how NTxPCC works with other health oriented groups to reach more members of the public regarding prostate cancer awareness and education - our primary mission.
I am a NTxPCC BOD member, a support group leader, and a PCa survivor (6Y+). As an organization, we seek new as well as repeat opportunities to educate men and their spouses/SO's about PCa, the value of screening and early detection, various responses to a PCa diagnosis, awareness of support groups who can provide information and support to newly diagnosed, those awaiting treatment, and those who have been treated and may be dealing with ongoing side affects. For the newly diagnosed, our primary objective is to ensure the individual and his loved ones have accurate and complete information with which to make the best decision regarding their own disease and possible future actions to take. For those awaiting treatment, we strive to make them aware of advances in treatment protocols to factor in to their individual decision making process. For those dealing with post-treatment side affects, group members share how they have responded to similar side affects that may be helpful for someone else to consider for themselves. Finally, we actively seek opportunities to reach underserved
groups of men, especially those who may be at high risk for contracting PCa. If we can save even one man's life thru education and/or awareness or help another effectively manage side affects to achieve a better quality of life moving forward, then our organization will have validated its reason for being.
NTxPCC has continued to make a great impact on the North Texas Community and to continue it's established programs as reflected by the involvement/creation of 20 special events. NTxPCC welcomes it's newest member, the Prostate Cancer Support Group at the Texas Center for Proton Therapy in Irving.
Another successful Symposium was held at Globe Life Park with three excellent speakers: Emmy Award Winner Todd Whitthorne (ACAP Health), Urologist Aditya Bagrodia, MD (UT Southwestern) and Survivor Gary Wydman. This program was made possible through Texas Health Methodist Harris Foundation, Texas Health Presbyterian Hospital Dallas, UT Southwestern, Urology Research & Education Foundation, Moncrief Cancer Institute as well as Abbvie, Augmenix and Bayer.
Progress is made for next year's symposium in a new venue as the Texas Rangers' Hall of Fame will not be available due to construction.
NTxPCC added a few new volunteers who are actively providing assistance to Coalition Programs.
I have gone to the support group and talking to others helped me. This disease is easier to battle when not alone.
I encourage others fighting this disease to come and talk. It will help!