In 2017 I was diagnosed with prostate cancer. NTPCC was a great source of information on the various options for treatment. I attended monthly meetings and heard from other men who had been diagnosed about their treatment options which included surgery. Later in 2017 I chose to have a Prostectomy to remove my prostate. I continued to attend meetings monthly and periodic symposiums. The support offered and the information provided has continued to be a great source of support.
The North Texas Prostate Cancer Coalition is a very well organized and very medically savvy group of men built on the idea of spreading knowledge about prostate cancer including the innovations. They are very non-biased and with very good intentions of helping men who desire to learn more about their options AND to promote advocacy. I am very impressed with this organization and have served as an advisor when needed.
FH Trey Moore III MD, Urology
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The North Texas Prostate Coalition has been the centerpiece for advocacy, patient/family support, and education in the DFW metroplex. As a physician, I have appreciated this excellent group to be able to refer my patients after prostate cancer diagnosis and then ongoing for long term support. I highly recommend this well run organization. It is well organized, well run and an incredibly valuable resource to advancing knowledge and advocacy for prostate cancer treatment.
Dr Frank (Trey) Moore III MD, Urology, Fort Worth.
My husband was diagnosed with prostate cancer in 2017. The news was pretty devastating! However, we had the good fortune to know the couple who ran the local support group for the NTPCC. Tom helped Dick navigate through surgery followed by radiation 2 years later. Now my husband enjoys helping newcomers to the group and feels his experience is beneficial to the newly diagnosed (including our neighbor).
Tom’s wife Judy would meet with the wives separately from the guys after the program. Those meetings brought comfort to the women as we could share our fears and frustrations.
The NTPCC is indeed beneficial to a great number of folks in the metroplex!
The North Texas Prostate Cancer coalition provides consistent support and education about living with prostate cancer. Numerous hours are donated each year to attend health fairs across the DFW metroplex.
The North Texas Prostate Cancer Coalition is a small non-profit all-volunteer organization that accomplishes a lot to educate men in the DFW community about prostate cancer. The volunteers are prostate cancer survivors and their spouses. They hold an annual symposium with great speakers and participate in many health fairs.
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The North Texas Prostate Cancer Coalition is an all-volunteer group consisting of prostate cancer survivors. They help Dallas-Ft Worth area support groups and healthcare facilities to promote educational events and support for men diagnosed with prostate cancer. Their annual survivorship symposium held in March is a first-rate event with great speakers and a place for men and their spouse to meet others and discuss their diagnosis.
This organization excels at educating men who often lack awareness of testing and treatment options in reference to prostate cancer.
Great organization full of love and care. Learned a lot from the group and made many friends from it. Felt encouraged after every meeting and event organized by this group. Would love to promote this group to others who need help, and would love to contribute my time and resource to this group to help all of us to fight and grow.
A great organization with both ongoing support for those undergoing treatment, as well as community awareness and education.
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The North Texas Prostate Cancer Coalition has been a big help for me, as I go through my own journey dealing with prostate cancer, treatment and the side effects. Just being able to share experiences with other prostate cancer survivors gives me hope, and the educational seminars and meetings with outstanding medical professionals have been very valuable.
After being diagnosed with prostate cancer I didn't know what to do. I am very thankful that I found this group to learn from and to ease my initial fears. There is nothing better for information than to talk and discuss with those who have gone before you. I am now seven years out from initial diagnoses. I hope by belonging to this group that my story and experience can help the newly diagnosed and allow me to spread the word to those likely to contract the disease. Members of the group keep up with advances in treatment which is also beneficial for those with recurrence of the disease.
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This organization was there when I needed it after I was diagnosed with prostate cancer. The sharing of experiences of our common illness did a lot to ease the fear and bewilderment that I had. It is now 6 years since my diagnoses and the organization continues through meetings with fellow survivors to give me hope and education through my journey through the disease. I look forward to sharing my experience with new and old survivors through my continuing membership in the organization.
The North Texas Prostate Cancer Coalition makes a significant impact for prostate cancer awareness and education through their participation at community events and wellness fairs in the DFW area, and through affiliated cancer support groups. The coalition has made a difference in my life and in those of many others I have met through their events.
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The North Texas Prostate Cancer Coalition provides information and awareness regarding the importance of early detection of prostate cancer. The coalition also provides a great network of support groups and discussions with other cancer survivors. As a 7-year survivor, keeping up with the latest treatments and developments is important to me and my family, and this organization does an outstanding job of sharing that information. The support group meetings are also very helpful for sharing knowledge and experience with other survivors, and to provide support and information to the newly diagnosed. NTxPCC has helped me find answers to a lot of unknowns since my diagnosis, and I appreciate that.
I was diagnosed with Prostate Cancer, and underwent Radiation Treatments in early 2020 (ending during the pandemic). Afterwards, I found the NTPCC while looking for more information regarding this disease. Although it was too late to affect my treatment decisions, I can say with certainty that this organization is a tremendous resource for good information regarding treatment options, and is equally important as a place where one who is affected can find support while learning how to mentally adjust to the new and disturbing condition he is experiencing.
I was diagnosed with prostate cancer in 2018 and found this community a great resource for information regarding treatment options. A highly valued resource for anyone confronting prostate cancer.
When I was diagnosed for prostate cancer over a year ago, I searched for support groups and found NTxPCC. I have attended several monthly in-person meetings of NTxPCC. It has been great source of information, inspiration and comfort to talk to and listen to folks going through the same ordeal. Thanks to the groups organizers and sponsors for a much needed service.
North Texas Prostate Cancer Coalition serves an extremely important role for us fellow cancer patients and survivors. NTPCC is a source of valuable information about current treatments, including coordinating live group and online presentations by noted physicians and healthcare providers. And, it's a place for camaraderie and moral support during difficult times.
Thank you. Please keep up the good work !
Joe Waller
I am a 14 year survivor of advanced prostate cancer. When I was first diagnosed, I didn’t realize the severity of the advanced state of my diagnoses. As the treatments progressed, I leaned of NTxPCC as a resource for prostate patients and survivors. Over the years NTxPCC has been an invaluable resource for further treatment options and new developments in the ongoing treatments available now that did not exist at the time of my initial treatments in 2009 and 2010. Without the resources of NTxPCC, gaining knowledge of new advances and breakthroughs in Prostate Cancer treatments would have been difficult. I personally don’t know how I would have been able to work through without this resource and support.
The North Texas Prostate Cancer Coalition has been a steady source of information and support for men dealing with this disease. Informational seminars and outreach at local events such as “Wheels for Wellness Car Show “ in Fort Worth give North Texas men the opportunity get early diagnosis and mentoring through the process.
This is a great resource for those that have been recently diagnosed with Prostate Cancer. The information is non-biased, and the relationship the organization has with key medical professionals, is exemplary. They have helped me choose a path in my battle with this terrible disease.
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When I was originally diagnosed with Prostate Cancer, NtxPCC was a trusted resource to help me through my journey. From Emotional Support, to options for treatment, and educational seminars, I can't thank them enough, for offering this information. The education piece alone, is valuable, and having other men, share their journeys, provided hope for me and my family.
North Texas Prostate Cancer Coalition has done a fantastic job or raising awareness in the community of early detection of prostate cancer. They provide resources and critical information for survivors and families. It is a great organization.
The Pandemic forced NTxPCC to skip prostate cancer symposiums for a couple of years. Great comeback with a great symposium this year which reflected the addition of four Executive Committee members who have exceptional experience as executive members in other great organizations. So, we had a Master of Ceremonies (who doesn’t remember Scott Murray), a moderated Roundtable Q&A, as well great lectures on Clinical Trials and Health Equity.
The Coalition is picking up again support for Health Fairs (Hispanic Wellness) and will support again the Wheels for Wellness Carshow, Downtown Fort Worth, in September. The Coalition is comprised of four very active Support Groups at Moncrief (FW), Medical City and Urology Research (Dallas), as well as Presby in Plano; and let’s not forget the 50 Hoops Group in Dallas. If you are dealing with Prostate Cancer, it may benefit you to join one of these great groups. It helped me and thousands of others.
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The North Texas Prostate Cancer Coalition (NTxPCC) has been able to overcome restrictions to it's educational program, caused by the pandemic, by making use of Zoom technology to provide presentation from highly recognized local and national medical professionals. Some of the support groups used this option as well. We are now looking into ways to continue our yearly symposium in the early 2023 time frame. - We were successful in increasing our awareness program by substantially increasing the 15 counties declaring September as Prostate Cancer in the North Central Texas area; this program is still ongoing. - An expansion of to BoD allowed us to strengthening our activities and programs. NTxPCC is moving forward.
I have interacted with many nonprofits through the years. North Texas Prostate Cancer Coalition is amongst the best. They were there when I needed them. So much so that when I had the opportunity to give back by serving on their Board, I jumped at the chance. Part of the reason the DFW area is so special are great special interest health support groups like this who provide support and direction for people during their biggest life challenges.
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I have been benefitting from NTxPCC for 3 years since my first diagnosis of cancer. The organization has provided great support in terms of resources and actual people like me to interact with. I can't imagine not having such a supportive group of kind individuals. I was so impressed that I actually joined their Board! They are excellent stewards of the resources available. Nort Texas should be proud.
The prostate cancer support group is valuable to any man wanting to know about prostate cancer. The group of survivors share their experiences, treatment programs, and their journeys dealing with prostate cancer. The group provides real life experiences that provide clarity and hope for those who have been diagnosed with prostate cancer.
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This group has been a godsend for men that have been newly diagnosed with prostate cancer, as the experience each of the members has had is shared with others helping them make choices on how each would like to address their individual situation. Very useful when all the things one feels are swirling around in their heads. Each volunteer is genuinely concerned with each person that they communicate with, very special.
This organization is great for learning from doctors who specialize in PCa and other survivors. The group can help those who are newly diagnosed and considering treatment options as well. We learn from each other what each member has experienced in their journey to find the medical care needed to survive this dreaded disease and help us avoid recurrence. Plus learn treatment options if there is a recurrence.
Spouses and caregivers are invited as well to receive guidance as to how to support their loved ones. Highly recommended!
The North Texas Prostate Coalition is an all-volunteer non-profit organization. Coalition volunteers are predominately men who have experienced prostate cancer. With this background, volunteers provide prostate cancer information to men, and their families, who are dealing with prostate cancer, with the personal perspective and understanding of one who has previously dealt with it. Coalition volunteers also share prostate cancer information and encourage early detection at health fairs and other venues.
I recommend this organization for prostate cancer information and support.
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This group has been vital to our navigation of the challenges of a prostate cancer diagnosis. They helped ease our fears and gave us great information and support as my husband went through his treatment and recovery. I would not hesitate to recommend this group to anyone who has been diagnosed with prostate cancer, has a loved one who has been diagnosed, or anyone who just wants to know more about prostate cancer, its treatment, or prevention.
When the pandemic stopped the North Texas Prostate Cancer Coalition (NTxPCC) from offering their free annual in-person Symposia after 2019, they initiated monthly Zoom sessions to keep their support constituents abreast of ongoing advances in the detection and treatment of prostate cancer. Utilizing Zoom enabled the organization to invite expert speakers from a broader area beyond DFW including one from Australia. NTxPCC plans to continue the joint support Zoom sessions as long as there are in-person meeting restrictions at the various medical facilities hosting the individual patient support groups. In the meantime, the organization has initiated preliminary planning to put on their next in-person Symposium in April 2023. Additionally, the organization has successfully recruited several new BoD members to lead the organization into the future as several early directors were seeking to relinquish their responsibilities to younger survivor volunteers. NTxPCC has also recently reworked their website (www.ntxpcacoalition.org) to make it more user-friendly and interactive for user community.
This is a caring organization with volunteers who spend their time to help others learn so that they can make better informed decisions on their care.
I am thankful they exist and to all who contribute!
The NTxPCC is a wonderful resource for prostate cancer survivors, caregivers, and anyone that has been diagnosed with PCa. Tom Dillon, president of the group, brings in knowledgeable, noteworthy experts in all areas of PCa research and treatment for the group's monthly meetings. The best part is being able to meet and share personal experiences with fellow PCa survivors, learn from them and guide those newly diagnosed. There is no substitute for being the presence of those who have gone through what I have gone through from diagnosis to treatment to keeping abreast of the latest research to keep this horrible disease from recurrence. 5 stars for this excellent coalition.
Very professional leadership. Provides annual Prostate Cancer Seminar. Very active in community P/C education events.
You can always count on someone from this organization to respond to your request for their presence at a community event.
NTxPCC was literally a life-saver for me when I was diagnosed. I was clueless as to how to figure out what course of treatment was best for my circumstance. I found NTxPCC online and attended the very next meeting. I was invited to share my story and then was peppered with lots of questions from the group. There were so many treatment options discussed because so many of the men present had taken different paths. I left that meeting thinking I knew which one was best for me. Well, the very next day, I received an email from the group leader. One of the group members had written to him with me in mind. He described a "new" treatment being done at UT Southwestern. The group leader provided me with contact information for the doctor he knew at UTSW that was involved in administering the procedure. To make a very long story short, I ended up with that doctor and had the "new" treatment. It was so simple and so effective! Thank you NTxPCCC!!
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My story is short but a powerful testament to the benefit of this orgsnization. When I was diagnosed and sent to an oncologist, the doctor scared the bejeezus out if me. He talked about the potential for other types of cancers and he really pushed for me to take the standard course of radiation treatment. I went home and searched the Internet for support groups and found NTPCC. Fortunately there was a meeting being held two days later. I was welcomed by the members and given an opportunity to tell my story. They were very reassuring and helped me understand why the oncologist said the things he said (no one was impressed with his approach, however!).
The next day, I received an email from the leader of the group. He was forwarding information about SBRT that one of the members thought I might want to explore. I contacted the leader to see if he had any resources I could explore for further information. He provided a doctor's name and contact info. The result of all this is that I ended up selecting SBRT as my treatment, with successful results! Had I not attended that NTPCC meeting, I may never had heard about SBRT.
When I became a Prostate Cancer patient I was determined to research as much as possible about the treatments available and side effects. The North Texas Prostate Cancer Coalition is a valuable resource for research, sharing information between patients and their partners. You can opt to go to their meetings or share on a one to one basis remotely with group members. They also have informative lectures from MDs and experts specializing in Prostate Cancer
As a local Urologist for over 25 years, I would greatly recommend North Texas Prostate Cancer Coalition. My observations of this organization are that it is very well lead, informed, community based, and highly intellectual group. They have been on the forefront of education and advocacy in North Texas for many years. I would highly recommend this excellent organization. FH Trey Moore III MD
This coalition of prostate cancer survivors does a great job disseminating accurate information about prostate cancer and supporting those in survivorship. I have no hesitation about referring newly diagnosed prostate cancer patients to their excellent website.
It was a pleasure to participate in Prostate Cancer Awareness Month this past September with the city of Frisco, Texas.
I'm so grateful that I found this organization - in my backyard. I wish I had known about NTxPCC when I went through my prostate cancer journey.
Prostate cancer is terribly underfunded (and misunderstood) compared to other cancers because men don't talk about it. They do not engage because of the personal nature of the problem. They’re embarrassed and it forces isolation. I was there.
Lessons I learned:
* Don’t keep the negative emotions bottled up inside; regardless of the challenge; seek help such as a support group – talk about it!
* Cancer is not something to be experienced in isolation because the feeling of aloneness can swiftly overtake you.
NTxPCC is a great resource!
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My prostate cancer journey has created a passion in me to help others battle cancer, including those close to cancer victims. I feel fortunate to have a mission to help others, to help them through the battles I survived. I've turned my life’s focus to cancer education, advocacy and finding a cure.
As an advocate & mentor, I strive to stay abreast of the latest in prostate cancer.
I discovered the NTPCC via social media earlier this year and attended the NTPCC Symposium in March; it was an excellent forum with knowledgeable speakers (including my Urologist!). The NTPCC is a great resource!
Tom
www.tomhulsey.com
#EndProstateCancer
I learned of this group as a cancer survivor. I never thought of myself as a “ support group” kind of person, but this group is so much more than that. There is a great deal of current information about prostate cancer treatments here, as well as their yearly symposiums with professionals in the field, which has reached thousands by now. They do public screenings a couple of times per year( would do more) and it is interesting to note that about ten percent of those willing to be screened turn up hot. This group does important work.
North Texas Cancer support group in Plano Texas save my prostate cancer from Metastasing. The support group meeting made me aware that my PSA was elevating too quick. I found the Radiation Oncologist at the next monthly meeting.
My husband was diagnosed with prostate cancer in 2017 and we were scared. A friend directed us to a support group within North Texas Prostate Cancer Coalition and our recovery started. We were given support, information, and friendship. We are still active with this wonderful group and my husband has done very well. I hope everyone diagnosed with this or any disease finds a group like North Texas Prostate Cancer Coalition.
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When my husband was diagnosed with Prostate cancer we were devastated until a friend put us in touch with a support group in the North Texas Prostate Cancer Coalition. The people welcomed us and gave us hope that, like them, we could fight this disease and add several more happy years to our lives. We have become involved, learned a lot, and made many new friends.
As an advocate for cancer patients and caregivers, I find North Texas Prostate Cancer Coalition to be a wonderful resource. The members consistently serve as encouragers and educators for other patients as well as the entire community. They disseminate information, support educational opportunities, and serve as positive role models for all cancer survivors.
Being diagnosed with any Cancer is a life changing and scary experience. Many of us immediately get online to find out everything we can about what lies ahead as we are scared out of our minds and wish to be strong and not to fully show it to others. There is simply no way to compare all of the professional advice to being exposed to others that have lived through it and are still going strong. The North Texas Prostate Cancer Coalition is such a group where hope is found. I found it through the internet and have found the shared experiences invaluable therapy. I truly wish that even more of us similarly afflicted could find and experience the same boost of hope that I have found there.
NTxPCC is a very well organized nonprofit company that does one hell of a job educating the community about Prostate Cancer and reaching their target audience.
The North Texas Prostate Cancer Coalition is wonderful - I've gained so much by attending the in person support group led by Tom Dillon + the annual symposium was a blessing
I learned of the NTxPCC in 2018, six months after my prostate surgery. I attended the annual lecture and spoke to members who were happy to share their experiences with me. The lecturers were outstanding, providing valuable insight into this disease. This year I actually started seeing the featured lecturer as my primary physician because I was so impressed with the cutting edge research he was conducting and the latest technology he was using to monitor the progress of any signs of recurrent disease. This group is providing a real public service by actively sharing knowledge and support to men who are dealing with prostate cancer. I am very grateful for this organization.
The North Texas Prostate Cancer Coalition is a great organization whose mission is to educate men about prostate cancer and bring together various healthcare organizations for the same purpose.
I have found the NTxPCC and its affiliated support groups to be of great value in my personal 16 year journey with prostate cancer. While every man' s journey is different, the support group meetings and the annual NTxPCC Symposium have provided valuable information to supplement that from my urologist and other members of my medical support team. I particularly appreciate the personal experiences of those that have already gone through the individual steps in their journeys that I am considering taking.
NTxPCC recently supported the 50 Hoops annual breakfast and seniors basketball tournament. 50 Hoops is an affiliate of NTxPCC and promotes awareness and education sessions regarding various cancers, including prostate cancer, directed at the African-American community at large. NTxPCC survivor volunteers provided personal experiences to the breakfast audience and an education table during the tournament. In addition to providing educational material and answering questions regarding PCa and treatment options to men and their family members, men were encouraged to take advantage of PSA screening services provided by 50 Hoops during the event. This is just another example of how NTxPCC works with other health oriented groups to reach more members of the public regarding prostate cancer awareness and education - our primary mission.
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I am a NTxPCC BOD member, a support group leader, and a PCa survivor (6Y+). As an organization, we seek new as well as repeat opportunities to educate men and their spouses/SO's about PCa, the value of screening and early detection, various responses to a PCa diagnosis, awareness of support groups who can provide information and support to newly diagnosed, those awaiting treatment, and those who have been treated and may be dealing with ongoing side affects. For the newly diagnosed, our primary objective is to ensure the individual and his loved ones have accurate and complete information with which to make the best decision regarding their own disease and possible future actions to take. For those awaiting treatment, we strive to make them aware of advances in treatment protocols to factor in to their individual decision making process. For those dealing with post-treatment side affects, group members share how they have responded to similar side affects that may be helpful for someone else to consider for themselves. Finally, we actively seek opportunities to reach underserved
groups of men, especially those who may be at high risk for contracting PCa. If we can save even one man's life thru education and/or awareness or help another effectively manage side affects to achieve a better quality of life moving forward, then our organization will have validated its reason for being.
NTxPCC has continued to make a great impact on the North Texas Community and to continue it's established programs as reflected by the involvement/creation of 20 special events. NTxPCC welcomes it's newest member, the Prostate Cancer Support Group at the Texas Center for Proton Therapy in Irving.
Another successful Symposium was held at Globe Life Park with three excellent speakers: Emmy Award Winner Todd Whitthorne (ACAP Health), Urologist Aditya Bagrodia, MD (UT Southwestern) and Survivor Gary Wydman. This program was made possible through Texas Health Methodist Harris Foundation, Texas Health Presbyterian Hospital Dallas, UT Southwestern, Urology Research & Education Foundation, Moncrief Cancer Institute as well as Abbvie, Augmenix and Bayer.
Progress is made for next year's symposium in a new venue as the Texas Rangers' Hall of Fame will not be available due to construction.
NTxPCC added a few new volunteers who are actively providing assistance to Coalition Programs.
I have gone to the support group and talking to others helped me. This disease is easier to battle when not alone.
I encourage others fighting this disease to come and talk. It will help!
Eric Starnes
I have been a member of the North Texas Prostate Cancer Coalition for 5 Years. They provide interesting lectures on the latest treatments available to the community. The board members provide a rare resource especially valuable to newly diagnosed men.
The North Texas Prostate Cancer Coalition and those I've interacted with has been a great help and comfort in dealing with my cancer.
With my new Prostate cancer diagnoses and did not know where to turn. I found out about North Texas Prostate Cancer Coalition and they have bee supportive and given me tons of information. It's help me feel more confident in making the decisions ahead of me. Also a great place to meet men with the same issues and hear about their experiences.
Thank you Wolf with sharing all your great knowledge!
LT Survivor
I am a long term survivor and I've learned a lot over the years from NTXPCC.
This organization is dedicated to one main focus..." get educated about PCa "
Learning about PCa can save the life of many men.
Point One is early detection of the disease ( psa screening....and biopsy, if needed )
If detected early, then several good treatment options are available.
There tends NOT to be any early symptoms of PCa, so it is important for men to get
regular screenings beginning at age 45-50 yrs.
Help raise awareness and support this excellent organization....
...and help all men live better lives.
Fortunately I learned about this support group. They meet in the library in the Klabzuba Tower near Harris Hospital. This is a group of volunteers that are prostate cancer survivors that meet every Tuesday from 10:00 am until 2:00pm. They discuss prostate cancer, treatments, and anything that visitors have questions about. It is a very honest open group that is willing to offer care and support. I have visited the group about 5 or 6 times and really enjoy going. They welcome questions from anyone that attends.
Another part of this group is a support group that meets on the third Monday of each month at the Moncrief Cancer Center on Rosedale. The first time I went I learned that wives or other family members are welcome also. The second time my wife attended with me, thinking that she might just go one time. Now she attends these meetings with me.
This was a fantastic find for me. I had been diagnosed with prostate cancer and needed information. the NTPCC helped educate me as to my condition, we discussed treatment options, I was able to talk with prostate cancer survivors about their journey, this was a tremendous help for me. As a result of everything I learned I was able to confidently choose the treatment necessary. Now after treatment I am prostate cancer free! Excellent resource for anyone diagnosed with prostate cancer.
As a spouse of a prostate cancer survivor, I am very thankful to this group. The support of North Texas Prostate Cancer Coalition is not limited to their wonderful website. The availability of other survivors, and their wives, for one-on-one conversations has been a tremendous help to both of us. Each year the Coalition sponsors a Symposium with speakers that help us continue to learn more about this disease and its treatments.
This group provides superior support designed for newly diagnosed victims of Prostate Cancer. Every Tuesday four survivors meet for four hours with Prostate Cancer men that are usually undergoing the five stages of grief. Just looking at the survivors and hearing their experiences seems to lift the stress from the client's shoulders. They leave ready to learn about the treatments available and expecting to enjoy more years of life since Prostate cancer is not the same fast killer most men think of when told they have cancer.
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I am a prostate cancer survivor that was fortunate to be diagnosed very early before the disease could metatasize . After surgery, my cancer has been in remission for eleven years. Consequently, I am trying to pay back my community for my good fortune by being a volunteer and speaker at health fairs, or churchs to make men aware of what they can do to be diagnosed early if they are in a high risk group. The NTxPCC's "Let's Talk on Tuesday" is the weekly session to learn about the latested news and where screenings are taking place in all of North Texas. NTxPCC sends me and other volunteers to events where we can educate men about Prostate Cancer so they can be aware of the danger of Prostate Cancer and be daignosed early if they are the one out of every six men to be cursed with disease.
Monty Knapp
When diagnosed with prostate cancer the selection of a treatment presents several options, each with benefits and drawbacks. Each medical discipline supports its own solution for treatment. I was fortunate to find the North Texas Prostate Cancer Coalition. This group of prostate cancer survivors presents a wealth of information gained from each survivors personal experience after undergoing the various treatment options. I found this group of men willing to help the newly diagnosed with information and hope to become another survivor. I also find this group a new source of friends with a continuous willingness to answer my questions about the future based on their experience.
This group offers information online and support throughout DFW. Everyone you meet is welcoming and helpful. The information they offer is impartial, allowing you to make an informed decision regarding your treatment.
I went to the group after discovering I had Prostate Cancer, I was seeking help as to which treatment to follow and the group was very helpful with information that I needed to make my decision. I would recommend the group to any man who would just want someone to talk with.
I've been a prostate cancer survivor for several years and I've talked with a number of men about PCa.
I think there is a great need for up-to-date PCa information to be accessible to men, so they can more easily deal with the experience of PCa.
The ntxpcacoalition.org website provides a valuable resource to that end. It helps men find good local
support groups. It also provides great information ( articles, doc talks, seminars, etc.) that can help them
gain a better understanding of PCa. Keep up the good work NTX.............!!
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As a long time prostate cancer survivor, I have seen many fellow
survivors have life-changing experiences dealing with prostate cancer.
With early detection and early treatment, these men can benefit
greatly with improved outcomes. The ntxpccoalition.org is the best
way to keep informed, get educated, and find support groups in the
local area of North Texas. This excellent website benefits long-term
survivors as well, because of the ever-changing landscape of new
research and ideas and improvements in the various treatment options.
When I was diagnosed with an aggressive prostate cancer, the information on various options for treatment was overwhelming and difficult to absorb. The NTXPCC provided a supportive and knowledgeable group to work through the various treatment options. They took the necessary time to clarify each of the standard treatment options, as well as, introduce me to some revolutionary approaches to advanced prostate cancer treatment. One of these revolutionary approaches may have saved my life. This group focuses on education, knowledge and understanding. They are always careful not to suggest or provide medical advise. I wish that all recently diagnosed men in North Central Texas could be made aware of this superb resource.
My husband was diagnosed in 2001 with prostate cancer. At the time he went to Harris Hospital cancer library to seek information, which was a wonderful way for him at the time. Fast forward to 2013, he now has so much information right his finger tips. All he has to do is get on the web site for North Texas Prostate Cancer Coalition. There are so many areas where he can research new treatments, contact people and discuss his questions with others. The web site is a gold mine for information. Wish it had been available when he was first diagnosed. Thank you to all involved in creating this wonderful web site.
I am a prostate cancer survivor that was diagnosed early and had successful surgery to remove my prostate. I was fortunate to have learned of this helpful organization while I was in the learning and planning stages prior to making the decision about my treatment option. This group has provided many prostate cancer patients, and their families, with much useful information and support.
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The North Texas Prostate Cancer Coalition provides much needed assistance to men diagnosed with prostate cancer. Materials that are provided are very helpful and the references help guide decisions about treatment options. The volunteers share their experiences as folks who have walked the same path and that support provides reassurance.
Lee B.
When I was diagnosed with prostate cancer I wanted to learn as much as I could about what to expect and about what treatment to choose. The people at NTPCC were very helpful in sharing their experiences and suggesting books and other resources to help me make decisions. They continued to be a great resource when I had questions along the way. Their help was key to me feeling satisfied with the final decisions I made regarding treatment. I would recommend anyone dealing with prostate cancer that is in need of information or a knowledgeable and helpful friend contact the great folks at NTPCC
The volunteers who run this organization are amazing. When my husband was diagnosed with Prostate Cancer in November 2012 this group not only offered education and information but a place where he and I both felt welcome and were able to talk to people who understood our situation. I can't say enough good things about the folks at North Texas Prostate Cancer Coalition. The yearly symposium they sponsor is also very helpful and informative. These folks truly care. I would recommend (and have) this group to anyone who has received a Prostate Cancer diagnosis.
I was diagnosed with prostate cancer in July, 2011. I opted for radiation treatment and so far so good. I completed treatments in November 2011. I'm a survivor! I became involved with NTXPCC in early 2012 and discovered a great group of men that all had similar walks in their lives. The NTXPCC spreads the word about prostate cancer at various health fairs and events throughout the year. If NTXPCC can educate enough men and they get an early diagnoses and treatment it benefits those men and their families. I think NTXPCC is doing a commendable job.
In its 4-th year of existence, North Texas Prostate Cancer Coalition (NTxPCC) is looking forward to its 3rd annual prostate cancer symposium on April 20. After having been privileged to listen to Dr. Partin and Dr. Moyad, this year’s keynote speakers are Dave and Jan Dravecky. Dave is a former major league pitcher for the SF Giants who lost his pitching arm to cancer. Dave and his wife Jan are speaking about “Journeying through cancer together”.
One of NTxPCC’s activities is the “Let’s Talk on Tuesday … About Prostate Cancer” survivor chat where newly diagnosed and recurring survivors can talk face to face with long term survivors providing valuable information on their experiences, side effects and related issues.
Other activities last year included volunteer work during 30 special events, concentrating on awareness and education.
NTxPCC’s strength is an all volunteer organization with no funds used for salaries.
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This is the third year of our existence. We are proud of the accomplishments in this time period through our participating volunteers.
We have earned the trust of related medical institutions reflected through invitations to their events and through financial assistance.
We earned the respect of newly diagnosed men who are coming back to our let's Talk on Tuesday program and who are bringing other newly diagnosed. To quote one newly diagnosed: "When I found out that I will be talking to prostate cancer survivors, I knew through my experience with AA, that I am at the right place. They gave me more help than the doctors did". Well, we are not doctors, we provide information, but we do not give medical advice.
The North Texas Prostate Cancer Coalition, (NTXPCC), is founded by survivors , who are constantly working on improving the coalition, who's main aim is prostate cancer awareness and education. Newly diagnosed and survivors find informative answers to their many questions, get help and support in coping with their personal issues related to prostate cancer, and find, that they, and their loved ones, are not alone.
The NTXPCC volunteers help at screening events, at health fairs, with the establishing of new support groups, and other events. At the Survivor chat meetings, the volunteers talk freely about their own cancer experience, including very personal effects of the cancer, and/or side effects of their treatments, etc. This allows especially the newly diagnosed men, (and their spouses), to talk openly about their concerns. The fact that NTXPCC is a survivor-based organization, gives the men a great feeling of empowerment and allows them to get help, while , at the same time, helping others!
Going to many meetings, as a survivor's spouse, I see how helpful the Coalition is to prostate cancer patients and their spouses, (like myself).
The NTXPCC's web site is very informative and an awesome source of helpful information, well organized!
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As the wife of a prostate cancer survivor, I go to many of their meetings and programs. The men work tirelessly to improve prostate cancer awareness and education. They reach out to the newly diagnosed, giving them support by sharing their experiences. and by letting them know they are not alone! Another survivor's wife mentioned, that her husband's attitude toward his prostate cancer changed greatly, after they started coming to the survivor chat meetings. The fact, that the men talk freely about their cancer experience, including very personal effects of the cancer and/or side effects of their treatments, allows especially the newly diagnosed men, to talk openly about their concerns. The NTXPCC's web site is very informative and a great source of helpful information. The fact that NTXPCC is a survivor-based organization, gives the men a great feeling of empowerment and allows them to get help, while , at the same time, helping others!
The North Texas Prostate Coalition is a very important Organization. W ether it is a person who wants to be screened, a newly diagnosed patient who longs for more information, or one with recurring disease, this coalition is an important source of information, and help for all. When helping as volunteers at the screenings, or attending meetings, as well as speaker events, (topics being prostate cancer and related topics"), it is rewarding to have people mention how good the work is that the Prostate Coalition is doing. It spreads the need for prostate cancer awareness, and information assistance. It has a great web site filled with up-to-date-information, and much more.
The North Texas Prostate Cancer Coalition provides an important resource for men in the north Texas area who are diagnosed with prostate cancer. The coalition is mostly volunteers and most are men who have been diagnosed with prostate cancer. They have medical experts who guide their programming and web content. We are thankful for what this organization provides to our community.
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The North Texas Prostate Cancer Coalition is a group of individuals and organizations who are passionate about educating the community about prostate cancer, diagnosing it early and providing support to men and their families. Most of the leaders in the coalition are prostate cancer survivors or spouses of prostate cancer survivors. The organization members are health care providers and representatives of health care organizations who provide health care to prostate cancer patients in their community. The coalition strives to combine efforts to coordinate prostate cancer screenings, health fairs and educational events with the idea that combining efforts will achieve better outcomes.
I am very thankful that I found this organization after my recent diagnosis of prostate cancer. They have a warm and caring staff that helped me to understand a lot about my diagnosis as well as the different treatment options that were available to me. Their resource center provided an encouraging and knowledgeable setting for me to explore my options and to ultimately make an informed decision for my treatment. I have continued to attend weekly "Let's Talk" group sessions to discuss various issues and concerns that I have had. My wife and I have been greatly encouraged by attending the "Man to Man" support meetings each month. As a member, we are encouraged to share our personal experience with others and to reach out and welcome newly diagnosed men with prostate cancer. It has been very rewarding to know that I don't have to go through this journey alone. Lastly, I feel that the support and encouragement I have found at NTPCC has been a vital part of my healing and recovery process.
^This organization provided me with good information regarding my prostate cancer. They did a fine job for me.
The NTPCC is an excellent resource of information that includes listings of the current status of multiple procedures available and those on the horizon. Also included is information regarding the multiple prostate support groups in the DFW area. I have found it helpful for educational purposes and as a means of obtaining speakers for my PC support group. Considerable time is spent in keeping this web site available and up to date. I recommend this as a must read site.
As a PCa survivor, I have been using this website for several years now. The ntxpcacoalition.org is a great resource for men who are trying to find local support groups and solid information and education about PCa. The articles featured about PCa are chosen largely because they reflect new information or insights that may be missed by the " general media informed " survivor. Many thanks should go out to this website manager for the great job he is doing. A lot of men's lives are made better due to the information and even encouragement they receive as a result of this website. My personal thanks as well. Way to go !
I was recently diagnosed with Prostate Cancer. I was immediately engaged in a proactive search for a reliable source of education on the appropriate treatment courses for my particular diagnosis. The initial flood of information from physicians, books and the internet was overwhelming and confusing. I was blessed to find this group of men who are themselves dealing with various stages of Prostate Cancer. Their cumulative experience and knowledge and their willingness to share it was and continues to be extremely helpful. As I meet with various Physicians, I now have a much better foundation from which to make appropriate decisions.
This organization is very beneficial in providing information to men regarding prostate cancer including treatment options, new medical research for prostate cancer, etc.
As a wife of a Prostate Cancer Survivor I can see how helpful the web site is for those who "know zero" about the cancer they have just been diagnosed with. Life gets so busy sometimes we don't research issues until we are hit with the news, "You have Prostate Cancer" Now where do I go for information? Fortunately the informative web site North Texas Prostate Cancer Coalition is there to help. You will find answers to about every question you have. Of course there are some questions that only your doctor can answer, but it you want to find a support group, local events supporting Prostate Cancer, different treatments available, the NTPCC is the best to check into. Sure wish this had been created when my husband was diagnosed with his cancer.
The news that I had prostate cancer was a total surprise.
6’3” – Strong – Physically active in work and exercise with a good diet.
My pretreatment introduction to NTXPCC was totally invaluable. The
unlimited wealth of information on research, history, studies plus the
personal experiences of the members themselves is amazing.
The tireless effort invested by NTXPCC, Mr. Blattner and all the others
is admirable.
NTXPCC also provided me with a support group / network I call family.
My operation and subsequent life post-cancer is much easier because of
my friends and loved ones in NTXPCC.
God bless them all and keep up the good work.
Rich Dewell
North Texas Prostate Cancer Coalition has been very valuable to my patients. This well organized and run group is informed, organized, and proactive. I give the contact information to all my prostate cancer patients.
NTXPCC started by a prostate cancer survivor has inproved each year with current information on the latest in pc. i try to attend 3 local hospital pc support group meeting that you can find on this site. i also run in the dadfest race as a pc survivor on fathers day weekend which has free screening. please check out my running blog www.runningforacause.tumblr.com
NTXPCC has served the Prostate Cancer Support Group well here at Baylor Sammons Cancer Center. The information that is provided is easy to understand and very supportive. Members of the organization are very responsive to any requests. As a Program Coordiantor I rely on the website to communicate upcoming events and programs that are avaiable for gentlemen diagnosised with this disease . Great resource for patients and family members.
This group provides information to men that have, or have had prostate cancer. Through monthly presentations and one-on-one consultations members provide clients with information or direct clients toward certain medical professionals as needed. On a personal basis members of the group have provided me with assuances and general information as well as information useful to my wife.
In 2008, I was preparing to complete graduate school, and I did not have a clear picture of my post-collegiate life. I was married, had a 2-year old daughter, and a 16-year old stepdaughter, but no plans about the next steps to take. My career path was then guided by one of my graduate professors, who became my boss, and I became the manager of the Tyler Prostate Cancer Awareness Program.
In 2010, we met Wolfram Blattner and learned about the wonderful works of the North Texas Prostate Cancer Coalition. As a33 years old African American male, I represent the future of male health promotion, for I am in the demographic where chronic conditions are not even considered. This untapped and unreached market can be used to further promote the necessity of prostate awareness to older men (by proxy through their sons, nephews, and grandsons), but to also plant the seeds of awareness and early detection in the minds of men who will soon approach the recommended ages of scheduling health screenings, understanding their personal risk factors, and deciphering the spectrum of shared decision making.
The North Texas Prostate Cancer Coalition provides much needed assistance to men diagnosed with prostate cancer. Materials that are provided are very helpful and the references help guide decisions about treatment options. The volunteers share their experiences as folks who have walked the same path and that support provides reassurance.
NTxPCC has been important for folks in Tyler Texas, a two hour drive east of Dallas..... They offer advice and services here too. The director of NTxPCC has so much energy we can't keep up with him.
The North Texas Prostate Cancer Coalition provides a well organized, centralized location for prostate cancer survivors to get connected and learn more about prostate cancer. The website, www.ntxpcacoalition.org, is the glue that keeps everyone informed of upcoming support group and educational events. The news articles that are posted are based on strong scientific evidence and a team of physicians and nurses provide support and input about various topics. The coalition has worked with multiple hospital systems across the Dallas-Fort Worth metroplex and provides a neutral place to promote education for all men about prostate cancer.