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2018 Top-Rated Nonprofit

Neuroendocrine Cancer Connection, Inc

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Nonprofit Overview

Causes: Cancer, Digestive Diseases & Disorders, Health

Target demographics: Neuroendocrine Cancer Patients and Family members

Direct beneficiaries per year: 100s plus

Geographic areas served: Primarily the Carolina s

Programs: Support group meetings, conferences and dinner events with guest speakers and Top NET Specialist

Community Stories

26 Stories from Volunteers, Donors & Supporters

1

Client Served

Rating: 5

I am a mom of 2 amazing young men that were diagnosed 6 weeks apart with Neuroendocrine Cancer. I went to my first meeting on NET Cancer in Myrtle Beach and I truly learned a lot. Karen was great! So glad I met her and other folks in the same shoes. I’m not alone in this. Thank you!

1 Erica W.4

General Member of the Public

Rating: 4

I would like to know who can give me info on this cancer. I was just diagnosed with it and I can’t fond much info on it as it is rare. Please help:)
Also I’m in Nashville TN, not sure why it says NC

Comments ( 1 )

profile

Zebragirl 02/05/2019

Erica please email Neuroendocrinecancerconnection@aol.com Or call 910-545-7513 Karen

1 Susan McNamar S.

General Member of the Public

Rating: 5

My Daughter has NET diagnosed in 2011. My husband and I attended NET cancer conference in Myrtle Beach. There were 3 great speakers-Dr. Wang, Dr. Anthony and a lexicon rep! We learned a lot and got to meet a lot of great people!

1

Board Member

Rating: 5

I personally am not a NET Cancer patient, however, I have known Karen for a long time and she does OVER and above what she can for anyone who is affected by this type of cancer. She shares any and all of her knowledge and helps to educate newly diagnosed patients and offers support for them and their families.

1

General Member of the Public

Rating: 5

Neuroendocrine Cancer Connection is a great non profit. Always giving valuable information to people who are in need of answers. Doing blast on facebook and hosting group meeting with Doctors who can answer questions for the people who come to the conference.

1

Volunteer

Rating: 5

The information that s shared during awareness events is very over whelming but, Karen and her team takes the time to make sure people understand it!

2

Client Served

Rating: 5

I became a member 8 years ago when I relocated to NC. I found just being able to read about other people with the same condition as myself was very comforting. I learned so much from the information that is posted still today! Karen C. has been a lifeline to me as my cancer metastasized and I needed to find a new NET doctor to take care of me and operate. I have met some wonderful people through this website. I enjoy being a part of this community of NET members. Many thanks to all the hours of work putting together this site.

1 Brittany P.3

General Member of the Public

Rating: 5

When my mother was diagnosed two months ago, we had never heard of nets. The NCC has truly reached out with information, support, and love.

1 Brenda O'ma G.

Client Served

Rating: 5

I have gotten great information about NETs from this group. Being connected to NCC has helped me better understand my condition following a diagnosis of pNET.

1 Gail K.1

Client Served

Rating: 5

Thankful that I was accepted to this group because they are a wealth of information and it’s easy to share stories and feelings with each other since we are all in the same big boat, some weathering bigger storms than others on their end of the boat but the same boat as those sailing along.

1 Cynthia R.2

Client Served

Rating: 5

Karen reached out to me when I was so confused and lost about all of this we go thru. My Doctors weren't talking much they don't know about our cancer. I knew after surgery and 4 days in ICU that I needed help. God bless this woman that helps people everytime she can. I'm very grateful for her support for all of us.

2

Client Served

Rating: 5

Karen’s leadership of the Neuroendocrine Cancer Connection is exemplary! After being diagnosed with Neuroendocrine cancer, I had many questions. I found Karen and she put me at ease, provided me with valuable information regarding treatment options and specialists. The Neuroendocrine Cancer Connection provides education and support to those in need. When I have questions, I know that I can contact Karen and receive a prompt response. I am grateful for this valuable organization.

2

General Member of the Public

Rating: 5

Kare is awesome. She is one of the most knowledgeable people I know. She was also the first person I reached out to after my husband's diagnosis. Her immediate response, guidance and caring were so appreciated. I credit her with giving me the tools to navigate NET'S. Liz Horvath

2 Noel C.1

Donor

Rating: 5

I have never seen a more tenacious person, everything she does is always 110% , love how she is so great with planning and carrying through on every level, she is a blessing to her husband Thomas and anyone in need of assistance!

2 Lisa McCall B.

Client Served

Rating: 5

I am a Net patient dx Jan. 2013. At dx I was already at an advanced stage (stage 4) with inoperable liver Mets. Never had heard of it & felt afraid and alone. I searched the internet and even Facebook. That’s how I met Karen & she gave me hope for a future I didn’t think possible. Forever grateful to her for offering help to a desperate stranger. I’ve learned a lot from people just like me, that I would have never met through support groups, if it wasn’t for her compassion and eagerness to bring awareness to those of us who suffer from a cancer many Dr.’s don’t even know about!

2

General Member of the Public

Rating: 5

I have a Family member that has been diagnosed and I have learnt so much Valuable information about his diagnosis through the wonderful information given..It helps us all to know we have the support and much needed information to understand this type of cancer..Thank you for All the hard work that his put in to this site!

2

General Member of the Public

Rating: 5

Karen has been a blessing to many families struggling with Cancer. The knowledge and encouragment she provides is top notch. The work she puts in for research and overall educating others is amazing.

2

General Member of the Public

Rating: 5

This is such a Knowledgable and Helpful place for Information and Help not only for a Pt with this Ca but for the Family and Friends too. It is a Great Support to so many!

1

General Member of the Public

Rating: 5

Very Knowledgable and Valuable Information for All. Extremely Helpful..☺

2

Client Served

Rating: 5

In 2005 I was diagnosed with NET Cancer. I have never heard of it! We were told, there s nothing else to do.. just blood work. Then finally I searched for another oncologist.

In 2009 after, hearing the news my cancer has metastasized to my liver. I was at a loss s for words. My wife searched for hours! Checking w specialist, checking insurance coverage etc. She was bound and determined to find me the best doctors, the right treatment plan and she gave me hope!

She took over the Carolina Support Group, because she felt there was a need of support and education for newly diagnosed patients and families. In 2016 she formed this non profit.

Because of My wife I m here today ! She has the same compassion for others! She is truly an inspiration to others. I know many depend on her and NCC

1

General Member of the Public

Rating: 5

Great nonprofit!! Everything you need to know about this cancer.

1

General Member of the Public

Rating: 5

I learned that a close friend was affected by Net cancer but had never heard of this type and the toll it takes on the body, this nonprofit was extremely informative in helping me understand more about this particular type of cancer. This enabled me to do my own research and learn without having to ask my close friend so many questions and I could help answer questions for myself. Thank You!

1

Client Served

Rating: 5

When I was diagnosed with neuroendocrine cancer it was a frightening time. I had never heard of this type of cancer and the cancer support center in the Cancer Hospital didn't have any information about it at all. Fortunately, my online search led me to NCC. They became a literal life-line for me, sharing information, resources and importantly, options for treatment outside of NC (we currently do not have any NET specialist surgeons in NC). I was given a personal phone number to call and talk if I needed, encouragement and, thanks to them, became empowered to take control of my situation. I will be attending an event next month that NCC is sponsoring and having surgery done by a NET specialist (that I became aware of through NCC). 5-stars doesn't do justice to NCC. I feel their support and caring has extended my life. I am so totally grateful for this organization and the on-going time and love provided to me by them. Amazing group of caring individuals!

1 Anita Ward B.

General Member of the Public

Rating: 5

Invaluable knowledge and support! Thank you for your hard work and dedication! You have provided me with the power and tools I need to help direct my healthcare with this often misunderstood cancer!

2

General Member of the Public

Rating: 5

Very impressed with the knowledge,time, and dedication that is presented by NCC group to the NET cancer community.

5 Karen383

Board Member

Rating: 5

This non profit was started with patients in mind! We ve organized many support group meeting. Hosted dinners and seminars with NET experts! We have done awareness events and fundraising to help off set the cost of these functions. Help guide newly diagnosed NET Cancer patients to the best treatment options. Offered the support to patients and families, when they receive news they were not expecting.. Gave them information to seek a 2nd option. We have the compassion that cancer patients and their families seek ..