I am a survivor of NF. I spent three weeks on a ventilator, five weeks in ICU and five and a half months in the hospital in 2020. I was lucky enough to find this nonprofit while still in the hospital. There is nothing like it in either the nonprofit or for profit sector. They were there to answer questions, provide information and give me hope.
I was diagnosed in Jan of 2022 so yes recently. After 5 surgeries,a week and a half in a coma and a month and a half in the hospital dealing with a minimum of 3 dr's appointments a week this group has helped me greatly. And helping me help my son .
After 7 surgeries, 3 days in ICU, and 5 and a half weeks in hospital, I was so happy to find a group of warriors who had experienced the same issues I had. Our online support group is filled with lovely people who genuinely care about each other, and offer their comfort and stories to assist anyone who has dealt with this terrible disease. Every accomplishment is cheered, and any difficulties are listened to with empathy.
This nonprofit literally saved my life. In my darkest moments, they have been there providing support and help with wound care.
The Necrotizing Fasciitis Foutdation is the most outstanding NP organization in the WORLD. I am a survivor of 5 years. Contracted this horrible disease in June of 2015. I am one of the lucky ones who survived physically, but my mental health would not be the same without this organization.
I joined this organization as a board member after my husband contracted NF. The critical support I received was life-changing and I've made friendships which have spanned the years.
I’m a survivor I was in the hospital for seven months 17 surgeries five blood transfusions I was in a coma for 10 days and I found this site and it is giving me strength and reassurance that I will be OK I am grateful that the Lord is giving me a new life the people on this site are absolutely wonderful they’re all survivors and we stand strong
I am an NF survivor. The support provided by NFF through awareness and discussion boards has helped tremendously with the ongoing recovery as a survivor.
The foundation had created an open forum for victims and family members making resources readily available.
I’m an NF survivor, 2 years post diagnosis. The foundation has been a great support to me and being able to find people in the same situation as me for this rare disease has been such a lifeline and meeting people who genuinely understand what you’re going through. I feel the foundation has made me some lifelong friends and I’m truely grateful
Survivor since 1998. I am blessed to be alive. I was fortunate that my doctor knew what we were facing. After several surgeries and 2 months in the hospital. I am the co-founder and one of the board members of the Necrotizing Fasciitis Foundation. The foundation was created to provide awareness and education of this disease. Too many people lose their lives to this. More information and education needs to be done.
I’m a survivor since 2015. Since finding the support of this group my journey recovering from NF has been so much easier and I feel like I’ve had help healing not only physically, but emotionally and mentally too. Such a blessing in an incredibly challenging and difficult time in my life.
I joined the Necrotizing Fasciitis “club” in December of 2017. While still in the hospital, alone, reeling from what just happened to me, I found this group. Every since, they have been a huge source of support!
As a survivor who’s fortunate to use my experience to help others, NFF has allowed me to meet other survivors and share their heroic stories on my platforms. It has also given survivors the opportunity to congregate and assist one another in various ways.