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- EIN 35-1844264
- (920) 563-0930
- Po Box 49 Fort Atkinson WI 53538-0049 USA
- www.nnpdf.org
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Nonprofit Overview
Causes: Birth Defects & Genetic Diseases Research, Crime & Law, Health, Voluntary Health Associations & Medical Disciplines
Mission: The national niemann-pick disease foundation is a non-profit 501(c)(3) organization that supports and promotes research to find a cure or treatments for all types of niemann-pick disease and provides support services to individuals and families affected by the disease.
Programs: Scientific research grants and fellowships to research scientists across the united states and canada.
support services to families who have a family member diagnosed with niemann-pick disease and patient advocacy efforts. Emotional support to individuals and families dealing with all types of niemann-pick disease, assistance through crises, information and ideas about issues such as doctors, clinics, insurance companies and other health and human service programs and practical suggestions about day-to-day care. The nnpdf e-newsletter is sent to anyone interested in or affected by niemann-pick disease. The annual nnpdf family support and medical conference brings together families, scientists, and medical professionals to share information and provide support. Support packets provide information about the disease and support resources for npd families. The nnpdf central office monitors various facebook pages to help families connect and share information. The web site contains current information on the foundation, npd research, fund raising events and opportunities, and many other issues.