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2011 Top-Rated Nonprofit

National Foundation for Celiac Awareness

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Nonprofit Overview

Mission: NFCA aims to increase detection and diagnosis of celiac disease and improve quality of life for individuals and families following the gluten-free lifestyle.

Results: NFCA has increased the availability and accessibility of gluten-free options in grocery stores, trains restaurants in proper gluten-free food preparation and launched a free continuing medical education program (www.CeliacCMECentral.com) to teach primary care physicians how to detect, diagnosis and treat celiac disease - the first of its kind.

Geographic areas served: Nationwide

Programs: Celiac CME - www.CeliacCMECentral.com), GREAT programs (gluten-free training) - www.CeliacLearning.com, GREAT Business Association (manufacturing group supporting best practices) - GREAT@celiaccentral.org.

Community Stories

20 Stories from Volunteers, Donors & Supporters

Volunteer

Rating: 5

I have volunteered for the NFCA, I have been a donor to the NFCA and my family has benefited tremendously from all that the NFCA has to offer. The staff is professional and personable. The support is second to none. I have rarely seen such dedication from a group of individuals. The NFCA has changed lives, given our community options and empowered individuals. Bravo all the way!!!

Volunteer

Rating: 5

As a volunteer at the NFCA over the past two years, I have become increasingly impressed by how much this organization does for individuals with celiac disease. After being diagnosed with celiac disease myself, I reached out to the NFCA as a source of information and as a means to meet others living gluten-free. Their website (http://www.celiaccentral.org) is incredibly informative and is constantly being updated with new news on this disease. The NFCA is also active on social media, which helps to spread useful tips on the gluten-free diet, fosters a sense of community online, and continues to raise awareness. I feel lucky to have had the opportunity to volunteer with the NFCA.

Volunteer

Rating: 5

After I was diagnosed with celiac disease several years ago and made the transition to a gluten-free diet, I was looking for an CD organization to volunteer with. NFCA was my first choice. NFCA advocates for people with CD not only by disseminating accurate and up-to-date information, but by working with organizations, from medical providers to food service providers and restaurants. It's a lean organization that achieves a great deal. I am proud to be affiliated with NFCA!

Volunteer

Rating: 5

The NFCA has been a tremendous asset to the celiac and gluten-free community in the United States. They were there for us at the start when our older son was diagnosed with CD 10 years ago and continue to be a resource not only for those who have been managing a gluten-free diet over time, but also for the newly diagnosed.

1

Professional with expertise in this field

Rating: 2

NCFA has been a player in the Celiac community for years, and yet there's a lot of questions in terms of where the money raised goes for years.
I used to donate to NCFA, now I don't. I'm not comfortable any longer with the organization.
So please, answer the questions. How much is raised? How much goes to admin? Where does the $ from the events go? the amounts raised from the gala and amts spent on webinars and handouts just don't add up.
and for goodness sake, why start another GF cert program when there are already 2 in place?
I would love to feel comfortable supporting NCFA, but I can't until I have further info.

Pat R.

General Member of the Public

Rating: 5

My daughter was diagnosed in February 2011. NFCA has been a great resource for our entire family. I love all the information available on their website, it's really the place to find any answer to questions about celiac disease.

1 Jennifer A.

Client Served

Rating: 5

I was diagnosed with Celiac Disease in March 2011 and the NFCA has been my sole location for information to help me cope. I've had contact with the people who run GREAT Kitchen's and they have been such a GREAT help in getting more restaurants on board in my area. The website is so easy to navigate and provides just what you are looking for. The events that the NFCA hosts have been wonderful as well as the information they provide to the public about awareness in getting tested regardless of symptoms. To think that I live in the very same town where the founder is from makes this organization that much more special for me. Keep up the GREAT work!

General Member of the Public

Rating: 5

NFCA has been a wonderful resource for me even when I was on the path to being diagnosed with Celiac. The strides they are making in providing new and updated information to myself, and others is invaluable. I am constantly referring others I come across to this site as the "go-to" place for any information on the disease itself and going gluten-free.

Client Served

Rating: 5

My daughter was diagnosed almost 2 years ago with celiac. At the beginning of our journey we had such a mixed bag of emotions... life without her basic core of foods, interpreting labels, at least it is a chronic disease that is controlled by food and not some pharmacological drug that could have long term side effects, and on and on.

Then the reality of cross contamination began for us. Time and again she would become ill from cross contaminated foods or by products that claimed to be gluten free but did not meet our needs. FDA involvement is so much more than a want, it is a desperate need.

This is where NFCA comes in. Our faith and trust in NFCA is 100%. If they back a product you know it is safe. They attend our support group meetings and education seminars. They open communication channels with restaurants so they understand the impact of cross contamination. Their push to get the FDA to establish regulations is nonstop.

My daughter's future gets better and better because of the dedication and continuous work of NFCA.

Supporting NFCA means ensuring the health and wellbeing of celiacs and gluten intolerants throughout the U.S..

Volunteer

Rating: 5

I have been involved with the NFCA for almost 7 years now. Under the leadership of Alice Bast, the NFCA has made an enormous impact on the lives of those living with celiac disease. The NFCA has promoted proper diagnosis, promoted greater availability of GF food and promoted awareness all the way from the NIH to the local grocery store. I truly feel that my twin daughters' quality of life are better thanks to the NFCA.

Kristen T.

General Member of the Public

Rating: 5

When I couldn't find out what was wrong I was told to follow them on FB. Their advice and knowledge is above and beyind what I expected.

Volunteer

Rating: 5

As one of NFCA's Athletes for Awareness since early 2009, I put my support strongly behind their excellent work in the realms of education and awareness related to celiac disease and the broader gluten-free community. NFCA's efforts to increase rates of successful diagnosis, to educate and train restaurants and medical professionals, to reach out the gluten-free community via educational webinars and other events, and to share the latest results of cutting edge research make them a major player in the celiac and gluten-free community.

Wendy-Celiacs in the House

Professional with expertise in this field

Rating: 5

NFCA provides the best online source for the latest information about celiac disease and living gluten free. Their work to provide information and to educate caregivers, restaurants, schools, and those who are beginning the gluten-free journey or those who suspect they may have gluten issues is outstanding. They are spreading awareness with webinars, social media and downloadable brochures and fact sheets that make it so easy to spread the word and educate which makes the world a whole lot safer for those living with celiac disease.

Professional with expertise in this field

Rating: 5

I am a physical therapist who also has celiac disease. I first learned of the NFCA when I became interested in their GREAT education program for allied health professionals. After seeing the quality of material that they were producing, I happily referred others to them for top notch information on celiac disease, gluten intolerance, and how to live well with these issues. Since then, I have worked directly with the NFCA's incredible staff on creating and presenting educational materials for the public. The NFCA and its staff consistently produce quality information that is easily accesible for the lay person and medical professional, in addition to producing events to increase awareness of celiac disease and the importance of feeding us safely to the restaurant and food service industry. The NFCA are leaders, and always the first resource I point anyone to who is interested in learning more about celiac disease and gluten intolerance.

Jennifer H.

Volunteer

Rating: 4

I first partnered with the NFCA at their 2008 event in Atlanta. It was a contest between local chef's to prepare gluten-free dishes. This event brought together people in such a positive way. It gave us the opportunity to speak directly to the chefs and thank them for their efforts to reach out to the local gluten-free community.

The NFCA is leading the way in bringing the gluten-free community together by getting people diagnosed, hosting regional events, offering education and more.

Volunteer

Rating: 5

The National Foundation for Celiac Awareness has made tremendous strides over the past seven years in educating the public about celiac disease. I have worked with Alice Bast and others at the NFCA in sharing information and gathering support for celiac awareness in the Philadelphia area. I work frequently with NFCA personnel as part of my own outreach, formalized through the Gluten Free Philly website. Based in the Philadelphia suburbs, the NFCA has made Philadelphia a pilot city for celiac awareness through events such as Appetite for Awareness and celiac awareness nights at pro sporting events.

Andrea M.

Professional with expertise in this field

Rating: 5

Wow, where do I begin? I was first in contact with the NFCA when they partnered with Rudi's Gluten-Free Bakery for their Spread the Bread Campaign earlier this year. I had the pleasure of speaking with the President, Alice Bast, and was amazed at all they do to increase awareness of Celiac Disease and Gluten-Intolerance. I love their GREAT program, which helps train restaurants who serve gluten-free meals in areas such as cross-contamination. There is also the education they provide to doctors for FREE about Celiac Disease with Celiac CME Central. They do SO much for our community and I cannot stress enough that everyone should be promoting their services as often as we can. Not to mention their website is extremely user friendly. With their Symptoms Checklist, if you know of anyone who may suspect that they have Celiac Disease or Gluten Intolerance, this is a great first step. The NFCA is such an excellent resource!

Dorothy K.

General Member of the Public

Rating: 5

The National Foundation for Celiac Awareness is an amazing organization which fulfills the needs of anyone in search of accurate, up to date information pertaining to celiac disease and gluten intolerance. The NFAC is completely dedicated to improving the quality of life for celiac persons by spreading awareness throughout the nation. Their website is filled with a wide range of information and very user friendly. The NFAC is highly regarded by the celiac community and others with food allergies including myself!

Kathleen R.

Professional with expertise in this field

Rating: 5

The NFCA has been the "go-to" resource for me since being diagnosed with celiac disease. The easy to navigate website offers all celiacs, whether newly diagnosed or diagnosed for years, a wealth of information.
I am constantly referring BeFreeForMe.com members to the NFCA printable guides and webinar series, as well as suggest they check out the NFCA list of bloggers and list of websites offering additional resources.
The NFCA is a must for Celiacs.

Professional with expertise in this field

Rating: 5

There is BOX pizza and then there is REAL PIZZA from a Pizzeria. You cannot compare one to the other for flavor and texture. Same holds true for the NFCA…they are the VOICE of us all who are afflicted with either Celiac Disease or Gluten Intolerance. So where each of us is the one quiet voice, they are the loud booming megaphone that gets it done!

Their tireless work ethic when it comes to getting the word out about Celiac Disease and Gluten Intolerance has made our lives easier to live. Because of them we have better research, more products on store shelves and more restaurants aware that safe cooking is critical.

They are my favorite organization to work with