I have volunteered for the NFCA, I have been a donor to the NFCA and my family has benefited tremendously from all that the NFCA has to offer. The staff is professional and personable. The support is second to none. I have rarely seen such dedication from a group of individuals. The NFCA has changed lives, given our community options and empowered individuals. Bravo all the way!!!
As a volunteer at the NFCA over the past two years, I have become increasingly impressed by how much this organization does for individuals with celiac disease. After being diagnosed with celiac disease myself, I reached out to the NFCA as a source of information and as a means to meet others living gluten-free. Their website (http://www.celiaccentral.org) is incredibly informative and is constantly being updated with new news on this disease. The NFCA is also active on social media, which helps to spread useful tips on the gluten-free diet, fosters a sense of community online, and continues to raise awareness. I feel lucky to have had the opportunity to volunteer with the NFCA.
After I was diagnosed with celiac disease several years ago and made the transition to a gluten-free diet, I was looking for an CD organization to volunteer with. NFCA was my first choice. NFCA advocates for people with CD not only by disseminating accurate and up-to-date information, but by working with organizations, from medical providers to food service providers and restaurants. It's a lean organization that achieves a great deal. I am proud to be affiliated with NFCA!
The NFCA has been a tremendous asset to the celiac and gluten-free community in the United States. They were there for us at the start when our older son was diagnosed with CD 10 years ago and continue to be a resource not only for those who have been managing a gluten-free diet over time, but also for the newly diagnosed.
NCFA has been a player in the Celiac community for years, and yet there's a lot of questions in terms of where the money raised goes for years.
I used to donate to NCFA, now I don't. I'm not comfortable any longer with the organization.
So please, answer the questions. How much is raised? How much goes to admin? Where does the $ from the events go? the amounts raised from the gala and amts spent on webinars and handouts just don't add up.
and for goodness sake, why start another GF cert program when there are already 2 in place?
I would love to feel comfortable supporting NCFA, but I can't until I have further info.
My daughter was diagnosed in February 2011. NFCA has been a great resource for our entire family. I love all the information available on their website, it's really the place to find any answer to questions about celiac disease.
I was diagnosed with Celiac Disease in March 2011 and the NFCA has been my sole location for information to help me cope. I've had contact with the people who run GREAT Kitchen's and they have been such a GREAT help in getting more restaurants on board in my area. The website is so easy to navigate and provides just what you are looking for. The events that the NFCA hosts have been wonderful as well as the information they provide to the public about awareness in getting tested regardless of symptoms. To think that I live in the very same town where the founder is from makes this organization that much more special for me. Keep up the GREAT work!
NFCA has been a wonderful resource for me even when I was on the path to being diagnosed with Celiac. The strides they are making in providing new and updated information to myself, and others is invaluable. I am constantly referring others I come across to this site as the "go-to" place for any information on the disease itself and going gluten-free.
My daughter was diagnosed almost 2 years ago with celiac. At the beginning of our journey we had such a mixed bag of emotions... life without her basic core of foods, interpreting labels, at least it is a chronic disease that is controlled by food and not some pharmacological drug that could have long term side effects, and on and on.
Then the reality of cross contamination began for us. Time and again she would become ill from cross contaminated foods or by products that claimed to be gluten free but did not meet our needs. FDA involvement is so much more than a want, it is a desperate need.
This is where NFCA comes in. Our faith and trust in NFCA is 100%. If they back a product you know it is safe. They attend our support group meetings and education seminars. They open communication channels with restaurants so they understand the impact of cross contamination. Their push to get the FDA to establish regulations is nonstop.
My daughter's future gets better and better because of the dedication and continuous work of NFCA.
Supporting NFCA means ensuring the health and wellbeing of celiacs and gluten intolerants throughout the U.S..
I have been involved with the NFCA for almost 7 years now. Under the leadership of Alice Bast, the NFCA has made an enormous impact on the lives of those living with celiac disease. The NFCA has promoted proper diagnosis, promoted greater availability of GF food and promoted awareness all the way from the NIH to the local grocery store. I truly feel that my twin daughters' quality of life are better thanks to the NFCA.