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2014 Top-Rated Nonprofit

National Fibromyalgia Association

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  • EIN 33-0949850
  • (949) 466-2373
  • 3857 Birch Street 312 Newport Beach CA 92660 USA

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Nonprofit Overview

Causes: Health, Voluntary Health Associations & Medical Disciplines

Mission: To develop and execute programs dedicated to improving the quality of life for people affected by fibromyalgia. It focuses on patient education, awareness outreach, healthcare provider education, patient advocacy and the facilitation of scientific research.

Programs: Awareness-provide information through the website, newsletter and facebook, national contacts and referrals, and assistance with support groups.

patient assistance-through local seminars, informational handouts, video and audio tapes, newsletters, and an award-winning website, online assistance gave patients one on one help.

awareness-provide information through the website, newsletter and facebook, national contacts and referrals, and assistance with support groups.

Community Stories

23 Stories from Volunteers, Donors & Supporters

Volunteer

Rating: 5

This organization has saved my life. I have found their magazine, web site and programs to be informative, helpful, and given me hope. Without the NFA my family still wouldn't believe that I have real pain. I think that the NFA should be recognized for the years of service they have provided the FM community. Thank you Ms. Matallana and everyone at the NFA!

Review from Guidestar

Christina85

Volunteer

Rating: 5

I was diagnosed with Fibromyalgia, CM, Epstine Barr Virus. About 20 yrs ago. I have gotten so bad that my last doctor told my husband that I will get nothing but worse. To get prepared! But they have been so supportive and helpful with me that they have given me some hope!! Thank you!!
No I have early stages of Dementia.

General Member of the Public

Rating: 4

I've suffered from fibromyalgia since 1997. They've been very helpful not only to me, but to my family and friends (sharing posts have been very educational).

Client Served

Rating: 4

The NFA website has been a very valuable resource for me. I was diagnosed with Fibromyalgia 15 years ago. At age 19, I felt very alone and confused about my newly diagnosed condition, as there was not a ton of info available at that time. Since I have discovered the NFA I now have a new sense of support and empathy, which is so incredible. They provide valuable information and insight regarding this often misunderstood condition.

AT H.

Client Served

Rating: 5

I was diagnosed with FMS in 1994. The National Fibro Association is great because I don't feel alone with the constant pain of FMS. It is good to know that other people are also fighting the same battle I am. Thank you so much.

1 Janine4

Volunteer

Rating: 5

I have had Fibro for the past 10 years and I just recently discoverd the NFA on Facebook. I am so thankful for their support. I was going it alone for most of that time, and that didnt end well. This past winter I had my most severe flare and I also suffer from depression, so I ended up in a very bad situation in which I felt hopeless about my future and was ready to commit suicide. Thankfully, I got help, and after some time in the hospital, I realized that I can't walk this road alone. So resources like the NFA are SO helpful!!!
I have gotten my life back on track since then. I spend an hour a day reading my bible and using and Alpha Stim machine and that helps me alot and then I get on facebook and make my connections. I love the NFA postings. They are a bright spot in my day! I often comment on them and I learn from the comments of others and the information that the NFA provides. It is a great organization and I would tell anyone who I met with Fibro to get support and to start with the NFA.

2 Marie58

General Member of the Public

Rating: 5

I was diagnosed seven years ago and my life was altered tremendously because of this disease. I felt so alone until i found other people on this page who are just like me. I no longer work. I have lost almost every friend i ever had because they don't understand this illness. I have been judged, made fun of, gossiped about and pumished because of my disease. I felt so alone until i found you. I go to your page everyday for inspiration and hope. I thank you for always being here for me. Together we can do this but not alone. Thank you. Your Friend, Marie

1 Monica61

General Member of the Public

Rating: 5

i am a newly diagnosed FM patient , still trying to navigate and understand this condition. The information is invaluable and the tips help me undertand many new things.
For many people like me we are still reeling from shock and discovering that failing parts do not mean failing life. Thanks for the support, comments and help

1

Client Served

Rating: 5

I have been a member of the NFA for years, now, off and on. It's been a while since I looked at the website because I had really read about everything they had to tell me. Imagine my delight when I went back today and discovered tons more research on the website! It is a delight to see that you are keeping us up-to-date, even when we aren't paying attention. Thank you!

Adriel M.

General Member of the Public

Rating: 5

When I was diagnosed with fibromyalgia I was 22 years old and didn't know anyone else that suffered from it, I felt that no one understood what I was going through, I felt like I was a freak. I stumbled accross NFA's Facebook page. I found out I was not alone. I found out that there were a lot of people that felt the way I did, physically, emotionally, and mentally. I found out that what I was feeling was very real even if other people and even Doctors didnt understand it. I feel that NFA does wonderful work for people that have fibromyalgia, but also helps doctors to better understand this aweful illness and helps others understand how to treat family or friends that suffer from it. I am extremely greatful to NFA for the educational work they do.

Claudia21

Client Served

Rating: 4

I was diagnosed with fibromyalgia in 1988. For the first 18 years I was able to work as an international consultant, to have an active private practice and to continue raising my children. Now my fibro has moved me into retirement. And I have become increasingly disabled by lack of muscle stamina. There are good days when I can be up on my feet for 3-4 hours during a day. And days when that is far beyond me because of disabling pain. The National Fibromyalgia Association has helped me make the transition from being able-bodied and an international expert in my field of counseling/psychology to being close to house bound too much of the time. With their support I am not depressed. I am realistic about my condition. I have strategies to continue to be as productive as I am able and to make peace with my life when I am not able to be up. This is an invaluable resource for folks like me.

2

Volunteer

Rating: 1

We're do I start ! My partner has had fibromyalgia for over 20 year's, before I met her so I tried to get as much information about the condition as I could which was not a lot.Over the years it has become a lot more aknolaged and it now is known as a condition.National fibromyalgia association is an amazing sight that everyone can share .But what are the oddest thing is I have just been told that I have got lupas and fibromyalgia.what a shocker ! know what!!!!!

1

General Member of the Public

Rating: 5

The NFA has been extremely helpful to me in my Fibro Journey in the last 10+ years. When all of my Pain, Joint-stiffness, extreme fatigue........started, there wasn't a lot of Info out yet on Fibromyalgia, & there was a lot that the Doctors didn't know yet or they just didn't want to acknowledge Fibromyalgia as a legit disease! But one day, as I was trying to do some research on Fibro, I came across the NFA website. As I started to read the different articles & sections, I honestly felt a bit of relief. It did & still continues to give Fibro sufferers a place to learn about Fibro, symptoms, medications, treatments & to hear from other Fibro-Sufferers. The NFA has made a huge difference for me in dealing with my Fibro, & to this day I continue to depend on Info from them! The NFA RocK's :-)
Thanks,
"FibroChik"

Client Served

Rating: 4

NFA has provided me with so much information and help tips on living with Fibromyalgia. They are wonderful.

Review from Guidestar

1 Lisa376

General Member of the Public

Rating: 4

I was diagnosed with fibromyalgia over five years ago. I read everything I could on this illness when there wasn't much information at that time. I joined the NFA & a fibromyalgia site on Facebook where people with the illness post questions & other fm sufferers give their advice & what worked for them. I've found both to be very helpful. I also receive information from NFA by email & on my Facebook news feed. I've learned that CoQ10 made the numbness & tingling in my arms & legs go away & the muscle cramps in my legs & feet stopped. My doctor was surprised by my discovery but suggested I continue using it. I take it daily with other supplements & my medications. The NFA website has articles that help me with other symptoms I experience & with things I didn't know before. I also suffer from fibrofog which is very frustrating. I try to do different things to work my brain although some days are better than others. The NFA has made more awareness of fibromyalgia & continues to update the public on new information. It has truly been a lifesaver to me.

Review from Guidestar

1

General Member of the Public

Rating: 4

My pain varies not only from week to week, or day to day, I can wake up with minimal pain n by end of day have pain in five different areas. Suffering from the comments from co workers behind my back or stupid remarks to my face made me start to doubt my own sanity ....this site has allowed me to read about others n know I m not crazy , this is real, n there are others to talk to
I m so thankfull for this site

Review from Guidestar

Audrey18

Client Served

Rating: 5

Awesome website that has helped me more than any other resource. Thank you for all you do for us.

Review from Guidestar

Traci S.

Client Served

Rating: 4

Hi I have had fibromyalgia for. 18 years, I have gotten so much great information from this site and always learning new things :-)

Review from Guidestar

Donna165

Client Served

Rating: 5

This was my go to site to give me more info on fibromyalgia and lessen my frustration and fear of dealing with this terrible illness. I still can't get the answers I need from any doctors. This is my go to place to go to and count on.

Review from Guidestar

1 lisaeast

Client Served

Rating: 3

I have had no success with doctors recognizing fibromyalgia here on the east coast. They still think it is in your head for the most part, I have a few good doctors that work with me ,but none of them are well educated on the disease, please help! Also I have thousands of dollars in doctors bills and meds struggling to pay for and keep a household going , is there any help out there?

Review from Guidestar

Cindy137

Client Served

Rating: 5

NFA keeps me educated about my condition and how I can help myself. They've made great use of Facebook, which is where I get their news, which to me means they have their finger on the pulse of modern technology and social media. I really don't know where I'd be without NFA.

Cindy Lewis

Review from Guidestar

Mary278

General Member of the Public

Rating: 5

I have had problems with my hands all my life with hurting and swelling and 5 years ago i started getting headaches out of no where with complete body pain i was self treatment with lots and lots of Tylenol then i finally said something to my pcp and now i take cymbalta and vitamin d and magnesium but i still can't get a rheumatoid dr to treat me because i am overweight this is not fair and i do suffer everyday wd need more public help for this disease

Review from Guidestar

Donor

Rating: 5

I have been donating to the National Fibromyalgai Association since I attended their first national conference held in southern CA in 2000. If it weren't for the efforts of this organization people would still think that this terrible chronic pain illness was all psychological. Because of the NFA's efforts to raise awareness, today almost everyone knows what fibromyalgia is and how it can impact a persons life. Most of the medical community now accepts FM as a pain disorder and because of the work of the NFA there are 3 medications that have been approved by the FDA to treat the illness. The NFA has a very extensive website and publishes a great magazine called Fibromyalgai AWARE. Every year they hold an Awareness Day campaign and have given hope to the 10 million people in the US with FM. The organization has helped educated physicians through medical education programs and conferences, and has held the most informative patient conferences on FM ever held. The NFA is a highly qualified group of patients and medical experts who have helped and provided support to people with fibromyalgia when no one else cared. Many thanks for the help you have provided me and all the other people in pain who have benefited because of your hard work and dedication!

Review from Guidestar