After my diagnosis, being the first in my family with Fabry Disease was scary. I had never heard of the disease before, nor had I knowingly met anyone else diagnosed with it. As I researched, I came across NFDF and FSIG, both of which were incredibly welcoming and provided me with valuable information about the disease.
The first conference I attended, just a few months after my diagnosis, was hosted by NFDF. There, I met so many others with the same condition and learned a great deal. Knowledge is power, and having access to information gave me peace of mind.
The second conference I attended was the following year, hosted by FSIG. It was insightful and different from the first, providing entirely new information that built upon what I had previously learned.
Both NFDF and FSIG make a tremendous impact on so many lives, and I am incredibly grateful for the difference they have made in mine.
Thank you for all that you do and for your continuous fight and support for a cause that affects us all.