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2015 Top-Rated Nonprofit

Metavivor Research and Support Inc

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Nonprofit Overview

Causes: Cancer, Health, Public Health

Mission: Fund the research that will initially extend life and ultimately end death for persons diagnosed with metastatic breast cancer. Support persons with the disease. Raise critical awareness so that we can carry out our mission.

Results: We have awarded ten research grants totaling $600,000 for metastatic breast cancer research. We fund out-of-the box ideas that have far-reaching impact and stand the chance to make a significant difference for the metastatic breast cancer patient in the future.

Target demographics: persons with metastatic breast cancer wherever they might live

Direct beneficiaries per year: 1000s of patients and we funded three metastasis research proposals

Geographic areas served: Annapolis MD

Programs: RESEARCH -- first and foremost to extend life and ultimately end death from metastatic breast cancer SUPPORT for the patient so that they can get together, face-to-face with others going through precisely the same thing that they are going through. AWARENESS so that people everywhere can understand what stage IV cancer is all about and can help make a difference for our community.

Community Stories

59 Stories from Volunteers, Donors & Supporters

10

Professional with expertise in this field

Rating: 5

Metastasis is what kills cancer patients, but research in this critical area is woefully underfunded compared to the magnitude of the problem. METAvivor is a grassroots organization that is raising support for laboratory research directly targeting metastasis. They also provide support for patients living with metastatic cancer. Perhaps as importantly, they have begun to shine a light on the growing number of patients living with metastatic cancer -- their real problems, challenges and realities. METAvivor solicits advice from experts to assure that their research grants are going to the best possible science. They do all of this with a minimum administrative overhead. In short, if I want money going directly to metastasis research, this is the place I send my contribution!!

Donor

Rating: 5

I'm a proud supporter of METAvivor. It feels so great knowing that 100% of my donation is going directly toward critically important research in an often overlooked area. I've also learned so much from the information on METAvivor's website, enabling me to be an even more effective advocate. I know that when I donate to METAvivor, I'm making a difference!

To CJ and the rest of the team: keep up the awesome work!! I'm proud to support your organization.

Kelly Pepper

General Member of the Public

Rating: 5

I was first made aware of METAVIVOR by my dear friend, Kara Guzzetti who was working with them as a volunteer and as a woman living with metastatic breast cancer. She passed away three years ago from the disease and I now look to participate in METAVIVOR events in her honor and to hopefully bring more research opportunities. They are an amazing organization and it is exceptional that 100% of all of their funds goes towards research. They are about action and results. I feel like they are one of the few voices out there speaking up for metastatic breast cancer and they are doing an amazing job!

1

Volunteer

Rating: 5

I had a fundraiser for METAvivor in memory of my friend Kara Guzzetti and I had the honor of meeting CJ and Patti from the organization who came to the event. They brought their energy, compassion, and knowledge with them. Most people do not know that Metastatic Breast Cancer does not have to be a terminal disease if we can support research to turn it into a chronic one.

Volunteer

Rating: 5

I am a stage 4 metastatic breast cancer patient, and I believe that METAvivor is one of, if not the the best, non-profit out there. 100% of every donation goes to stage 4 research, which is what is actually going to take death off of the table for all stages of breast cancer. In addition, METAvivor is extremely easy to work with (I have volunteered with them) and everyone at the organization is dedicated and kind. I can't recommend them highly enough, either as a resource for someone with MBC, as a place to volunteer, or as a non-profit to raise money for.

1

Client Served

Rating: 5

When I was diagnosed with stage 4, Metastatic Breast Cancer in November 2014, I was crying every day. I knew I needed to find others with what I had and wanted to learn from others, how do I live with this now. Luckily a nurse referred me to METAvivor. It was my saving grace, to find a group where I could talk about the hard truths, cry, vent and laugh and learn from others. Now it’s been 3 years, and I still attend our bimonthly coffees, in addition also I have become an advocate for MBC and understand the other role of Metavivor. The fact that 100% of donations to Metavivor goes towards metastatic research, makes me hopeful for the future and others who will be diagnosed, to find new treatments to extend the quality of life for us who have MBC and who will have MBC and not going into salaries but much needed research. Thank you.

1

Board Member

Rating: 5

In 2015 my wife was diagnosed with stage 4 breast cancer at the age of 36. It was devastating. After we went through the panic process everyone seems to go through, we started researching what it would take to treat the disease. We came across Metavivor. Their commitment to making the disease a chronic manageable disease instead of a terminal one immediately caught our attention. The women and men who work for the organization do it because they are passionate about making a difference. None of the board is paid and all of the monies they raise go toward research (except for any sponsorships that help pay for overhead). 100% of donations going to making metastatic breast cancer a chronic manageable disease--there is no where else I would rather send my money and support.

1

Board Member

Rating: 5

This organization changes lives and provides hope for those living with MBC by directing 100% of donations towards much needed research.

1 Aarti K.

Board Member

Rating: 5

Research Program was selected to be part of the cancer moonshot effort!

1

Board Member

Rating: 5

Great volunteer non profit that uses 100% of donations for research. Peer reviewers analyze research grant requests. Innovative catalyst for the metastatic breast cancer community.

1 Kelly S.4

Donor

Rating: 5

What's not to love about an organization that devotes 100% of donations to research!!!

Donor

Rating: 5

We are always happy to donate to METAvivor, as we know that 100 percent of our donation will go directly to Metastatic Breast Cancer Research. Their peer review grant process insures that the very best research will be funded. With 30 percent of breast cancer patients (both men and women) ultimately metastasizing, it is very sad that only 2 - 5% of research funds are allocated to help the already metastasized patient. We are very aware of breast cancer, lets put some funding to research for metastasis.

Previous Stories
3

Donor

Rating: 5

Metavivor is one of the non profits that we support annually. All money goes directly into research for metastatic disease. Metavivor has been a leader for support, advocacy and fund raising for metastatic breast cancer. The research done as a result of Metavivor's grants will directly or indirectly lead to progress in all metastatic cancer. Each year they innovate many new ways to raise funds for this worthy cause. Well done, and keep up the good work!

Review from Guidestar

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Volunteer

Rating: 5

METAvivor is the only 501c3 in the United States that gives 100% of donations to stage IV metastatic breast cancer research!! They also have a nationwide peer to peer support group, the annual Stage IV Stampede in Washington DC to lobby legislators for more research funding, and the Sea to Sea campaign to spread awareness of MBC! Thank You for all that you do for the metastatic breast cancer community!!

Professional with expertise in this field

Rating: 5

METAvivor is an outstanding organization that funds peer-reviewed cutting-edge metastatic breast cancer research and also offers caring patient support. METAvivor truly puts patients first. Scientists support METAvivor!

Board Member

Rating: 5

METAvivor Research and Support, Inc. is a non-profit, charitable organization with the mission to fund stage IV metastatic breast cancer research to one day transition the disease from terminal to chronic yet manageable and to improve the quality of life of those living with metastatic breast cancer through support, awareness, advocacy and education.

1 Leslie85

General Member of the Public

Rating: 5

This is the bestwebsite and cancer support/research organization on the web. I have had metastatic breast cancer since March 28th 2011. I haven't seen as much activity towards research and education as I have in the past year. All largely due to metavivors social media campaigns. More people are truly aware of metastatic breast cancer and its sad statistic because of the activity of metavivor during breast cancer awareness Month. It is the first time I have had hope in these last four years. Thank you guys for raising money for research and making the public truly more aware

Review from Guidestar

General Member of the Public

Rating: 5

As someone living with Metastatic breast cancer, Metavivor is an organization that is helping spread awareness for my type of disease. I hope that with their advocacy and grants for research leads to finding a cure so that I may live.

Review from Guidestar

Roseanna S.

General Member of the Public

Rating: 5

keeps me updated as I have this disease. Thx for all you do'

1 Vikki S.

General Member of the Public

Rating: 5

I have friends with breast cancer and support them - and I know they are at risk for metastatic disease. I know of others who have died from metastatic breast cancer and left behind loved ones who needed them - a teenager with a disability and no one else to provide care, a husband, now a widower. Metavivor has found a niche for an underserved group in the battle against cancer and present a powerful and convincing case for boosting research to help them, while being honest and real, not asking for pity but for a cure or at least treatment to extend life This group shares the strength and support that will let all affected women live to the fullest for as long and as well as possible.

3

Client Served

Rating: 5

Truly non-profit. All monies go toward research for a cure for breast cancer. MBC is the elephant in the pink room. 30% of Breast cancer patients will go on to have MBC they have a recurrence (stage IV MBC) or are initially diagnosed with stage IV. Only about of 3% of Breast cancer funds go to research for MBC and a cure. Those of us who are METAvivors or Cancer lifers believe we deserve our fair share of research dollars. Don't ignore stage IV. METAvivor is completely staffed by volunteers and all monies go toward research for a cure. Please for my sake and that of the 40,000 plus men and women who die each year of MBC give to a real,non-profit that does what it's mission says. I support METAvivor because I am a Cancer lifer and METAvivor and they support and educate me and thousands of others who have nowhere else to,find support and education.

3

General Member of the Public

Rating: 5

METAvivor is one of 2 breast cancer organizations I donate to. I have a dear friend with Stage 4 breast cancer and she made me aware of their work. They fund RESEARCH! They are actively working towards a cure, which is what other groups SHOULD be doing! And their ratio of money going directly to funding research is awesome!