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2018 Top-Rated Nonprofit

Making Headway Foundation Inc

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Nonprofit Overview

Causes: Brain Disorders Research, Cancer, Cancer Research, Health, Pediatrics Research

Mission: Making Headway Foundation provides care, comfort and a cure for children with brain and spinal cord tumors while funding medical research geared toward better treatments and a cure.”

Results: Care: At the New York University Langone Medical Center we make the hospital stay more comfortable by enhancing the excellent medical care provided by the doctors, nurses and staff. At the Hassenfeld Children's Cancer Center, the day hospital where children come for treatments, Making Headway provides funding for a psychologist, massage and yoga services and nutritional snacks in the playroom. Comfort: Once the hospital stay has ended, and families are left to cope by themselves, trying to return to a more “normal" life, Making Headway continues its high level of support. Our Ongoing Care Program provides a diverse variety of free-of-charge support services, including support groups, individual psychological counseling and educational advocacy. For parents who have lost children, periodic bereavement groups and assistance with funeral expenses are offered. Family Fun Day, a yacht cruise and a New York City show are free of charge to the families. Cure: Making Headway's mission also encompasses the search for better treatments and a cure. We fund basic medical research, a Clinical Trials Manager to oversee all ongoing and new trials, training fellowships and a Biorepository Center that provides brain tumor tissue samples to researchers around the world.

Target demographics: Children with Pediatric Brain or Spinal Cord Tumor

Direct beneficiaries per year: 1000+ Children diagnosed with cancer

Geographic areas served: NY, NJ, CT

Programs: Support services for during treatment, ongoing care post treatment and funding for medical research.

Community Stories

72 Stories from Volunteers, Donors & Supporters

3 justamom17

Client Served

Rating: 5

My daughter was diagnosed with a brain tumor when she was 7 in 1998. She is now 23 and recently graduated college. I don't know how we would have made this journey without the help and support of the Making Headway Foundation. They give you hope and vision for better days, and when days are bleak they are there to hold your hand and help you bear that weight. They also support research looking to the future for better treatments and cures.

Comments ( 1 )

Catherine Lepone Thank you so much. Your family re-pays us in many ways and we are grateful to have you as part of the Foundation.

General Member of the Public

Rating: 5

Making Headway is a wonderful, unique resource that is so needed by young patients and their families who try to navigate through the mire of health care, rehab and recovery. The staff members offers resources, adaptive activities and most of all hope. Making Headway is truly a gift to our community of those suffering head injuries and cancer.

Linda Greenwald L.

Volunteer

Rating: 5

Heart is at the core of everything Making Headway does. From running recreational and respite programs for families dealing with pediatric brain and spinal cord cancers to fostering collaboration amongst researchers - they truly care about what they are doing and are motivated to help in whatever way they can. If every non profit cared as deeply and worked as thoughtfully as Making Headway the world would be a better place!

Dan L.1

Professional with expertise in this field

Rating: 5

Making Headway is one of the most dedicated and focused non-profit organizations that I have ever worked with. Their mission to provide Care, Comfort, and a Cure comes from their personal experience and passion to help others. I am so proud to be part of their work.

Donor

Rating: 5

Very well run nonprofit that delivers needed support and research.

Client Served

Rating: 5

The support we received from Making Headway when my niece was diagnosed was above and beyond anything we could have expected. Until that time, I did not know there were organizations like MH. The support continued even after my niece passed.

As long as I’m alive, I will support Making Headway.

Amazing job, Maya and Edward. You’re always in our hearts.

Client Served

Rating: 5

Supporting families and children during after treatment. Friendly, loving, hard working, and always available for anything a family may need.

Margaret G.2

Client Served

Rating: 5

Myra and team are great they helped our family when we needed it. and it started over 25 years ago. They still stay in touch with us even after the passing of our beautiful Lori. xoxoxo

Christy Petty B.

Client Served

Rating: 5

The Making Headway Foundation assisted us in staying free of charge at the Ronald McDonald House in NYC while we were visiting there for a clinical trial conducted at NYU Langone. Thank you Making Headway Foundation and thank you Ronald McDonald House for the amazing work that you do supporting families touched by cancer.

Client Served

Rating: 5

Wonderfully warm and supportive of my family and me throughout my experience of having a brain tumor as a child.

Client Served

Rating: 5

My daughter was diagnosed with a mandibular arteriovenous malformation at age 6 and we were squeezed into the schedule of a renowned noninterventional radiologist early in the day. Still...waiting, waiting, more waiting till the receptionist suggested we visit the Making Headway "playroom" a floor below. There we found adult and child- appropriate snacks... arts and crafts...a strong warm hand held out in welcome...and strong shoulders helping to bear the burden. That was Maya. Maya of the eyes that saw, the heart that felt, the experience that knew what fear we felt and what questions plagued us. We returned to Maya's playroom many times over the years, and each time it made the wait a little easier, a little more delightful, and a lot less lonely. Each time. Every time. We will never forget Maya and how she helped us through some hard times. Thank you, Making Headway!

Board Member

Rating: 5

I am proud to be a co-founder and board member of Making Headway since we work hard to make going through the horrors of caring for a child with a brain tumor a lot more human. We’ve been there, done that. Plus, we are working towards a cure.

Previous Stories
1

Board Member

Rating: 5

Seeing how much Making Headway helps children with brain & spinal cord tumors makes my serving on its board very worthwhile.

1

Advisor

Rating: 5

October 1st marked my one-year anniversary at the Making Headway Foundation. When I started, it was clear that this organization had a remarkable mission and an impressive track record of successful programs and services for families. But over the past year, I have learned that Making Headway is much more than a list of services, research grants, and events. It provides vital resources and a safety net, offers a listening ear and a shoulder to cry on, and shows love and support for every child. As a father, a son, and a brother, I recognize this passion as something that can only be described as “family.” For 20 years, Making Headway has pushed the limits of what services are “necessary” in order to treat children as more than just patients, and overcome social, medical, and psychological challenges. Twenty years ago, we fought for child-life specialists; integrative therapies like art, music, and yoga; and psychological care for the whole family. If the hospital did not provide these services, Making Headway filled in the gap. The success of these programs was clear, and they inspired many other hospitals to make them part of their own standard of care. However, there is much more that needs to be done. I look forward to my second year as Executive Director, overseeing the expansion of to ensure that children diagnosed with a brain or spinal cord tumor receive the specialized resources and care they need to achieve their academic potential.

1

Client Served

Rating: 5

Our 3 year old daughter was diagnosed with Leukemia in 2012. Over the course of her 2 years and 6 months treatment I'm not sure how we would have made it thru without the love and support of Maya and everyone at Making Headway. This outstanding organization puts children first, reminds us that children heal through love and laughter and not just by chemotherapy alone. My daughter looked forward to her weekly treatment visits because of all the activities that Making Headway supports at her oncology clinic. Their arms stretch out not only to the patient but the entire family...knowing that cancer affects the patient, siblings and family as a whole.

1

Client Served

Rating: 5

Making Headway is a wonderful foundation that has done so much to help my son giving him the support and advocating for him to receive the best services he needs in school. The fun activities they have for the kids, my son is so much looks forward to attend.

1 trudyp10

Volunteer

Rating: 5

I can't say enough of how wonderful Making Headway Foundation has been . In 2004 when my son first became ill with Brain Tumor and spinal cord Cancer. My Life was changed in an instant and forever . Alone in NYC Dr Allen said to me you have to meet 2 people Maya and Edward from Making Headway Foundation. There own personal illness in there family . Is what made Making Headway what it is today there own personal triumph to save other children some day from never being struck by this terrible disease.This was a start of a Life Long friendship There Patients kindness and Support got me through the worst of times. they had Support programs for patient and Parents .Making Headway Foundation is always in our Hearts

Previous Stories
1

Volunteer

Rating: 5

I can't say enough about this extraordinary couple Maya & Edward who started Making Headway Foundation through there own person issues with there daughter who had a Brain Tumor was inspired to help others with the same illness .They have been a great source of Inspiration and strength to my Family. In 2004 when my son was diagnosed with a Cancer Brain Tumor it changed my life forever. What also changed my life was when Dr Allen walked into the Hospital room and said I want you to meet someone .10 years later Making Headway is in my Heart & an Inspiration my Friend a shoulder to lean on Therapeutic for you and your child .The resources they offer are wonderful when you have trouble elsewhere. As they try to strive to eliminate this terrible decease I Thank God for them and support Them.

Comments ( 1 )

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Catherine Lepone 06/18/2014

Your words inspire us to work even harder. Thank you.

1 Jack42

Professional with expertise in this field

Rating: 5

My greatest privilege is working with parents and siblings in those cases when the child does not survive the impact of a brain tumor. Most people do not understand that tumors in children , benign or malignant, are catastrophic for the development of sibling's, as well as for the cohesive marriage of the parents. The guilt, anger and depression, as well as issues of childhood neglect, can be carried by siblings for the rest of their lives if not treated quickly and appropriately. This dramatically effects their chances of reaching their full human potential. Making Headway is the finest and the only foundation I know that seriously treats the spreading impact of this disease throughout the whole family. Without Making Headway, many more parent marriages would end in divorce, and many more siblings would fail to develop a normal, healthy response to the life experience. Making Headway does critically needed work at every level.

Previous Stories
1

Volunteer

Rating: 5

My concern is for all the siblings of our patients at Making Headway. By giving them equal love, respect and attention, they are growing up with far less anger, depression, and despair. Making Headway is the only dedicated foundation that treats the WHOLE FAMILY so that each survives and thrives to their highest potential. The medical research and care for kids with brain tumors at NYU is recognized around the world, but it takes a village like MH to recover the patient and family together. It's true that whatever happens, life will never be the same, but it's also true that the staff and volunteers at MH are happily determined to make life meaningful and beautiful again. As a bereavement counselor, I have never seen a team of professionals like these anywhere else.
10,000 stars for Maya and Edward Manley, and 10'000 more for our kids at Making Headway.

3 justamom17

Client Served

Rating: 5

My daughter was diagnosed with a brain tumor when she was 7 in 1998. She is now 23 and recently graduated college. I don't know how we would have made this journey without the help and support of the Making Headway Foundation. They give you hope and vision for better days, and when days are bleak they are there to hold your hand and help you bear that weight. They also support research looking to the future for better treatments and cures.

Comments ( 1 )

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Catherine Lepone 07/27/2015

Thank you so much. Your family re-pays us in many ways and we are grateful to have you as part of the Foundation.

Previous Stories

Client Served

Rating: 5

It seems impossible to believe, my family was introduced to Making Headway almost 15 years ago. This was when our then 7 year old daughter was diagnosed with a life threatening brain tumor. The combination of the medical expertise of the specialists at NYU/Langone and the kindness and caring of all the wonderful Making Headway people made a frightening journey a journey of growth and compassion. Making Headways was there from the beginning making sure our daughter could still be a kid in the midst of all our worry. The various services Making Headway provides families, sustained us through all the difficult days with the compassion and humanity they provide. Making Headway more than fills the gap that sometimes exists because hospitals and doctors just do not engage in. We are so grateful.

Comments ( 1 )

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Catherine Lepone 06/17/2014

We are the ones who are grateful...to have families such as yours as part of our organization.

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General Member of the Public

Rating: 5

A great charity doing wonderful work. Tireless effort comes from this staff to help as many as they can. Great job!

Client Served

Rating: 5

We can't say enough positive things about this amazing organization that has helped our entire family since our son's brain tumor diagnosis in 2005. Educational support, counseling, sibling programs, fun activities and healthy snacks are just some of the ways we have directly benefited from this program. We love Making Headway!

1

Volunteer

Rating: 5

Camp friends encouraged us to contact Making Headway Foundation and we are so glad we did! My son was given the opportunity to cruise around the Statue of Liberty while socializing with peers and making new friends. His journey has taken us on a rocky road but Making Headway provided one of those remarkable rest areas along this path that helps puts everything else into perspective. We are so thankful.