Over 1.8 million nonprofits and charities for donors, volunteers and funders

2018 Top-Rated Nonprofit

Macular Degeneration Association

4,337 pageviews

Claim This Nonprofit

More Info

Add to Favorites

Share this Nonprofit

Donate

Nonprofit Overview

Causes: Disabilities, Eye Diseases, Blindness & Vision Impairments, Eye Diseases, Blindness & Vision Impairments Research, Health

Mission: The Macular Degeneration Association (MDA) is a nonprofit health organization dedicated to educating and empowering age-related macular degeneration, diabetic retinopathy, diabetic macular edema and glaucoma patients all across the world.

Results: We have put on numerous awareness programs nationally. Patients, caregivers, family and health care providers came away with a better understanding of their disease. They learned about preventative measures, treatments and the challenges that they face. With these programs they learned ways to adjust and over come their disease insuring that they live life to the fullest.

Target demographics: adults and seniors learn more about their eye disease

Direct beneficiaries per year: 800 seniors and adults at our awareness programs nationally

Geographic areas served: Macular Degeneration Association

Programs: awareness programs nationally, newsletter, advocacy, support and website

Community Stories

64 Stories from Volunteers, Donors & Supporters

1

General Member of the Public

Rating: 5

I took my mom to one of their educational programs. My mom and I learned a lot of helpful information and my mom has renewed hope. We learned about new treatments and research that was being done. We have donated to the Macular Degeneration Association to help fund research. This is a very caring organization. We met their Executive Director Donna she is a lovely lady that really cares about everyone and tries to help in anyway- we have a new friend. They are having a new set of educational programs and we will be attending the Tucson, AZ program. Thank you Macular Degeneration Association for all you do.

Client Served

Rating: 5

Unfortunately due to the Pandemic they had to cancel their live presentations. We were able to join a virtual patient seminar. The information that was provided was very helpful. We enjoyed it and are looking forward to more of these programs.

Previous Stories

Professional with expertise in this field

Rating: 5

We worked with this organization. They put on educational events for patient and their families that have macular degeneration. Their speakers are top notch in the field they engage the audiance. Many of the participants have stated that they found this education long over do and was very grateful to attend. This organization gives them breaks and lunch and a chance to learn as well as interact with the doctors and other patients that have this condition. We look forward to work with them in the future. They are truely doing the right thing!!!!!

Review from Guidestar

General Member of the Public

Rating: 5

Their website and Facebook pages are full of very helpful information. I have learned a lot. Thank you Macular Degeneration Association for all that you do.

Client Served

Rating: 5

I was at the last conference that MDA held prior to the Pandemic. It was wonderful. Their speaker was Jeremiah Brown, MD from San Antonio, TX. He is a fabulous speaker. He explained the disease so we could understand it. The program was professionally run. Thank you MDA & Donna Auger for the great program

Client Served

Rating: 5

Fantastic organization- puts on great programs- you will walk away with a lot of great information.

General Member of the Public

Rating: 5

Just attended the most amazing, informative and professional education program @ the Waterfront Inn. The Macular Degeneration Association hosted the event. Dr. Richard Hamilton spoke at the program. I learned a lot will be attending any programs that they host. Thank you.

Volunteer

Rating: 5

Wonderful programs- learned a lot of valuable information- was able to speak to the doctor

Professional with expertise in this field

Rating: 5

We were a guest organization at this event. We are thankful to be able to be a part of this wonderful educational event that the Macular Degeneration Association puts on. These events provide education on macular degeneration, new treatments and research. They provide a speaker that talks about their experience with this disease and then they have local organizations at these programs so the participants will know where they can go for help.

General Member of the Public

Rating: 5

I was just at a fantastic program put on by the Macular Degeneration Association. If you haven't been to one- you must go. The information provided is top notch and delivered by retina docs in the field. I was able to interact with the docs, speakers and vendors. My husband was relieved by the information we learned. Thank you Donna.

General Member of the Public

Rating: 5

We are overwhelmed with the knowledge that we walked away with. Dr. Rathod superb! I wish my doctor had time to tell me everything that I learned at this program. You need to attend one. I now have faith and feel that there is hope for my disease.

Client Served

Rating: 5

07.28.18 Attended the Skokie, IL program. Wow! I thought it was going to be a waste of time. Boy was I wrong. I learned a lot . This is a top notch program! They are very professional and caring. I met Donna at the registration table- you could tell that she really cares. Their speaker Dr. Rathod- he was great- spoke about new treatments and research. I now have HOPE!!!! Thank you!

1

General Member of the Public

Rating: 5

I was so scared- you see I was told that I had macular degeneration. My friends told me that I was going to go blind and I should start making arrangements to go to a Nursing home. However one of my very best friends found out that there was a free conference being put on by the Macular Degeneration Association called Saving Your Sight!- what a God send. We signed up for the program in Jackson, MI. I am so glad that I went- the information that was presented by the doctor and other speakers left me with hope. I wasn't going to go blind! My friends were wrong! I can't believe that they do this for free. If you haven't attended one of their programs you do not know what your missing!!!! Highly recommend. Thank you for giving me my life back- Sincerely J.R. Jackson, MI

1

General Member of the Public

Rating: 5

My husband was recently diagnosed with AMD. His doctor told us that there was nothing that we could do. We happened to come across a flyer announcing a Free conference put on by the Macular Degeneration Association. We attended and heard wonderful information from Dr. Joshua Mali, this information gave us hope and determination to find out more. We are now in control of his eye health. Without his organization putting on these incredible education programs, we would of just accepted what the doctor said- now we know different. Thank you for all that you do Donna & the Macular Degeneration Association.

General Member of the Public

Rating: 5

I am so impressed with Macular Degeneration Association knowledge and how they are spreading the word of the sight stealing disease. In the late 90's my mother had macular degeneration and there was nothing on how to treat it. MDA has given seminars to help people understand this disease and have given the latest treatments for those who have it. My fear is that I will get it so I follow MDA all the time to know what can be done. I know there is no cure but to know that there are shots that stop the disease if caught in time for a while in hopes something better will come along. Keep up the great work.

1 MLRodrigu

General Member of the Public

Rating: 5

I follow the Macular Degeneration Association on FaceBook. When they post macular articles that are relevant to me, I will read the article and then sometimes share it with family members. I also share some of their posts about general eye care with my FB “friends.”

Previous Stories
3

General Member of the Public

Rating: 5

My Mother has been diagnosed with age-related macular degeneration. I currently follow MDA on FaceBook and when I see a post that is relevant to my Mother or other family members, I research it and often post it or share on FaceBook. The MDA website was the first place I searched when my Mother was first diagnosed and I shared many articles with my family. Also, I currently go to their website whenever there are changes to my Mom's eyesight. I researched cataract surgery for someone with AMD and their information helped me decide what the right course of action for my Mother would be. They have provided valuable information for us to understand the diagnosis, how to help my Mother handle it, and what the future holds.

1

Client Served

Rating: 5

I have worked with Macular Degeneration since 2007 and have not seen any other macular organization provide the education seminars that I have witnessed many times. The information provided during those education seminars are extremely helpful to all people who attend. Then they mail nationwide educational materials to educate and help as many people they can who are suffering with this sight stealer or who have family members suffering. My mother was blind from this dreaded disease and I saw first hand what it does to it's victims. Know I have a 50% chance of getting this disease I want as much information I can get and the MDA does provide that. They are extremely informative and helpful.

Previous Stories
2

Professional with expertise in this field

Rating: 5

Macular Degeneration Association of Sarasota Florida has done a wonderful job educating the public accross the United States on this site stealing disease that is affecting people 55 and older. This is a national epedemic which most people do not realize until they have lost part of their vision. It is a cause that I want to support since my mother went blind from this and I have a 50% chance of getting it.

MDA has done a great job in providing information on their web site and having seminar for the public to attend with experts in this field to help everyone understand the risks and treatments that are out there. Right now there is not cure but there are ways to help prevent it from getting worse for a short term. More has to be done to eradicate this disease and MDA is the one organization that I feel does so much with experts on lhe latest information and treatments available.

General Member of the Public

Rating: 5

Wow. I just attended one of the best educational programs. They covered macular degeneration, diabetic eye disease and much more. The doctors actually practiced and understood how people feel about their eye disease. All information provided was top notch. Thank you. If you haven't been to their awareness program what are you waiting for???

General Member of the Public

Rating: 5

Top notch doctors-information and education. This organization is outstanding. I started attending their programs in 2011. Each year the programs are better than the year before. My family has learned a lot.

General Member of the Public

Rating: 5

I was recently diagnosed with wet macular degeneration and received my first shot. I was under the impression that this would be the only shot required. My husband & I attended a recent awareness program put on by this organization. It was well planned out, superb doctors that explained everything in terms that I could understand. They even took the time to talk with us and answer any questions that we had. My doctor is wonderful but very busy and I felt uncomfortable asking questions- at this program I learned what to expect and the process of my treatments. Thank you from the bottom of my heart!!!!

Professional with expertise in this field

Rating: 5

When my 24 year career as ophthalmologist and Associate Clinical Professor of Ophthalmology, turned to nutrition research, I eventually developed a hypothesis for the nutritional basis of macular degeneration, which is based on the fundamental nutrition principles of Weston A. Price. Many nutrition researchers consider Price to be the "Father of Ancestral Nutrition Science," and without doubt, his principles regarding the dietary basis of
"Westernized disease" applies to macular degeneration as well.

In our own research, we ran correlations between processed food consumption and AMD prevalence, in 25 nations -- and the data strongly supports the hypothesis that this disease is preventable and treatable, through ancestral dietary strategy.

After publishing my book and presenting this data at the Ancestral Health Symposium - 2016, Larry Hoffheimer, Founder and Chairman of the Macular Degeneration Association, read my book and contacted me to discuss. He asked if I would present this thesis and data at the MDA conferences -- and I've been a speaker for them since then.

This organization most certainly seeks to educate those with AMD, as well as those more likely to get it. And the organization seeks to benefit those in need, in a charitable way. I'm proud to be affiliated with them.

Chris A. Knobbe, MD
Cure AMD Foundation
CureAMD.org

Professional with expertise in this field

Rating: 5

As a professional who takes care of patients that suffer from eye diseases, I am able to see first hand the impact that the work the Macular Degeneration Association has on people. The importance of bringing information to the public on common eye diseases that many people don't know a lot about stands by itself. The humanity and professionalism in the way the people involved in running the organization manage to carry out the programs is amazing.

Client Served

Rating: 5

My dad has AMD and I learned a ton when I attended one of their recent programs
Great meeting, good food and most important - information we can use to understand

1

Client Served

Rating: 5

I was diagnosed with macular degeneration in March. My doctor didn't have time to explain everything to me. I started to research information about macular degeneration and that only made me horrified about the information that was posted. I came across the Macular Degeneration Association's website. They have great information and articles that is posted. Low and behold i found out that they were having a free seminar in my area of Portland, OR. My wife and I attended the program- well done- doctors in the field as speakers- great information provided. I walked away knowing more about my condition and a better feeling as I had lost hope. They are a wonderful organization- they truly care.

1

General Member of the Public

Rating: 5

I attended their program in Portland, OR on June 3rd, 2017. If you have not been to one I highly recommend that you go. The information that is presented there is wonderful, down to earth. They bring in Retina docs that are practicing and are up to date on research. I learned a lot about my disease, more than I learned at my doctors office. Thank you Dr. Rathod and Donna Auger. This was a wonderful program!!!! Keep up the great work.

1

Client Served

Rating: 5

I just attended one of their awareness programs Saving Your Sight! Excellent topics, speakers and information that was shared. They had low vision equipment there and local organizations Tampa Lighthouse for the Blind. The program was well organised. Thank you so much for putting on this program. Keep up the Great work Macular Degeneration Association. What you don't learn from your doctors you learn here.

2

Professional with expertise in this field

Rating: 5

My company was at one of their programs. They run a very professional meeting. Donna Auger is the Executive Director and she always makes everyone feel like family. We had many of the participants come to our tables and they all mention how wonderful it is that this organization is bring these events to the people.

2

Client Served

Rating: 5

I have macular degeneration. i wasn't able to find information on this disease. i happened to see an ad for a program put on by the Macular Degeneration Association and I signed up. Boy was I surprised an felt very informed after this program. They put on great programs and Dr. Hamilton was wonderful. Looking forward for their return. Thank you.

1

General Member of the Public

Rating: 5

I couldn't be happier. I went to their recent program in Charleston, SC. Dr. Hamilton answered my questions and I felt that I had a better understanding of my eye condition. I am hoping that they return to this area again next year. I signed up for their newsletter and will continue to receive up to date information. Donna Auger is a gem. Thank you Macular Degeneration Association

2

Client Served

Rating: 5

The Macular Degeneration Association is wonderful! I was recently diagnosed with wet macular degeneration. My doctor just told me that I would need shots in my eye. I received my first injection and told to come back in 2 weeks. My doctor is extremely busy and i wasn't able to ask the questions that I had. The Macular Degeneration Association had an awareness program in my hometown of Colorado Springs, CO. I attended the program- Dr. Brown spoke and I learned a lot about my condition and was able to ask questions. Donna puts on great, professional meetings and they are free. If you can go to one, please do as you will walk away with some of the best knowledge. Thank you!

2

Client Served

Rating: 5

This organization is TOP NOTCH!!! They put on great educational programs. The speakers are some of the best that we have heard. I learned more about my eye condition and came away being hopeful for the outcome.

2

Volunteer

Rating: 5

I was a volunteer. I walked away with a better understanding of the fine work that this group does. it was my pleasure to help out. They put on exceptional awareness programs. The speakers are wonderful and the information that they provide was fantastic.

1

General Member of the Public

Rating: 5

Having Macular Degeneration can be devastating, emotionally and in practical daily tasks. This association has helped my sister so much and given her information she needed and support to get through it.

1

General Member of the Public

Rating: 5

This organization was wonderful enough to help me find a doctor to the new area that I moved. They sent me information that I requested. The doctor that they recommended is superb. He takes his time to make sure that I understand my procedure and he cares. I love their website and Facebook posts. Thank you.

1

Client Served

Rating: 5

I was recently diagnosed with macular degeneration and was frightened by this. I saw that this organization was putting on an awareness program where I live Colorado Springs, CO. I signed up and the information that was provided that day was very valuable. Thank you. You really do not know all the good you do for those that have this disease.

3

Client Served

Rating: 5

Wow! If you can go to one of their meetings please go. You will walk away understanding more about the disease that you have as well as the treatment options that are available. Dr. Hamilton was wonderful and explained everything so you could understand and even stayed after to answer some questions. I finally got to meet Donna, she runs a great program and is very knowledgeable and helpful. We can't wait until they come again. I was at their Philadelphia, PA program this past Saturday. Thank you.

2

General Member of the Public

Rating: 5

This organization is top notch. I accompanied my aunt to the program. I learned so much and will be able to help my aunt through her treatment choices. The doctor gave a lot of valuable information and it was wonderful to talk to the other participants. The food was great too! This program was completely FREE. I couldn't believe it. Thank you Macular Degeneration Association!!!!

2

General Member of the Public

Rating: 5

I am a facebook member and find the articles on research very informative

4

Client Served

Rating: 5

This nonprofit is excellent. They are very knowledgeable and have great speakers. They provide all these programs for Free. I was scared when I was told that I had macular degeneration as I thought I was going to go blind. Not only did I find that not to be true but i learned a lot more about my disease and found out that I am not alone. Thanks to Donna, Dr. Hamilton and Macular Degeneration Association.

2 Erin83

General Member of the Public

Rating: 5

Macular Degeneration Association is my one-stop shop for all eye health information! They have the most up-to-date, trustworthy information. They offer real-life tips and tools for living a healthy lifestyle, which includes taking care of your eyes for a lifetime. I've worn glasses/contacts since age 10, and glaucoma, macular degeneration and cataracts run in my family. I want to do everything I can to protect my vision for years to come! Macular Degeneration Association helps people of all ages.

Previous Stories
2

General Member of the Public

Rating: 5

Macular Degeneration Association provides a wealth of information on a wide variety of eye health topics. They are my go-to source for reliable and helpful information on eye health!

Client Served

Rating: 5

I attended one of the Vision Matters conferences and was treated so well. Not only did I get all the information that I could have hoped for on Macular Degeneration for free. I got to talk with the doctor after the conference and had all my questions answered and they provided a wonderful meal. The staff was super nice and very knowledgeable. Would highly recommend this organization to anyone with a vision problem. Thank you so much!

Joyce59

General Member of the Public

Rating: 5

Gives much needed support. What more can I say. Wonderful caring people to chat to.

2

General Member of the Public

Rating: 5

We had the opportunity to participate in one of their programs. It is professionally ran. They have great speakers that communicate very well to us lay persons. This is a wonderful organization. If you can catch one of their events I would highly recommend attending. They do these programs for free and the information that is given is worth a million. Looking forward to the next event in my city.

Client Served

Rating: 5

I had an opportunity to go to one of their programs. I learned a great deal, interacted with other participants and was able to talk directly to the doctor. Left the program with a better understanding of my disease. I have a wonderful doctor but he i very busy and spends 10 minutes with you. Thank you.

1 Jo Anne K.

Volunteer

Rating: 5

Macular degeneration association has been the most informative internet messenger for this eye disorder.




1 Kay_24

General Member of the Public

Rating: 5

When I was diagnosed with AMD I honestly thought my doctor would have all sorts of information for me other than "there is no cure". This site has helped me understand what is going on with my eyes and has shared huge amounts of information that is both informative and helpful, not just from the medical perspective but also from natures perspective. This information is invaluable when doctor are not so forthcoming with information. You have helped me more than I can say. Thank you

Renata H.

Client Served

Rating: 5

I have AMD, this site gives me lots of information and hope. I really think we are pn the cusp of great things for AMD. This site gives me hope.

1 Melissa219

General Member of the Public

Rating: 5

I love that the Macular Degeneration Association provides information with regard to natural prevention and treatment of eye diseases, and not just pharmaceutical or surgical interventions.

1

Advisor

Rating: 5

I am the executive director of the Visually Impaired Persons of Charlotte County (Florida) and have found so many helpful articles and information from the Macular Degeneration Association of Sarasota. About 95 percent of our clients served have AMD, as well as my own mom, who is 87 and has had the disease for over 30 years. My oldest brother was recently diagnosed, as well, and me, being the youngest of five, I know I may very well end up with it one day. Awesome job by this group (MDA) for keeping us all informed and aware of options available.

1

Volunteer

Rating: 4

I have had mild macular generation for five years with little or no effect on my eyesight. I find the Macular Degeneration Association post informative and helpful! This group is doing a tremendous service for people with this disease.

1 Marissa D.

General Member of the Public

Rating: 5

Very informative. Offers great support from others who have eye issues.

1

Client Served

Rating: 5

I have had an opportunity to attend several of their programs held in Parkinson Place, Sarasota, FL.
These program featured several different doctors and different subjects. I have macular degeneration and have experienced dry eyes, flashes and floaters. These were some of the subject matter covered. I found the programs very informative and helpful and I had a better understanding of my disease. They provide a nice lunch, doctor and information, all for free. Thank you Macular Degeneration Association and Donna for putting these programs on.

2

Professional with expertise in this field

Rating: 5

As a doctor who has spent the last eight years of my life helping patients with macular degeneration, I know how important it is for someone to understand the disease and how we can help. The emotions that surround vision loss can be very strong and it is extremely important to understand that help is available. I have had the opportunity to work with the Macular Degeneration several times in the last few years as a presenter at some of their Awareness Events. The message put forth at those events is consistent and I believe incredibly important: there is hope. Anyone who has macular degeneration should consider attending an event when they are in their area. Any doctor who chooses to participate with an event, will find the organization to be very professional and well organized.

Client Served

Rating: 5

I had attended the Awareness program that they hosted in Nashville, TN. I found the program to exceed my expectations. I left knowing more about this disease and the affects that it could have on my family. The doctors were fantastic. The program was one of the best that I have attended. When they return I will be bring my friends and family.

Ms. King

General Member of the Public

Rating: 5

When looking around the web for a good, informational site, I was fortunate enough to find the Macular Degeneration Association. I am newly diagnosed, last year 1/2...I have found overwhelming support and information. The Macular Degeneration Association should be a must Visit site for anyone newly diagnosed, caregivers, family and friends. Thank you so much for the good work you do in getting information out there and supporting those with this horrible disease. Nancy

General Member of the Public

Rating: 5

I was feeling very depressed as I didn't think anyone else understood what was happening. This was very interesting and answered alot of questions that I had. The doctors are passionate and understanding and helped with my fears of going blind. If you can attend please go you will be very happy with the information you receive.

Professional with expertise in this field

Rating: 5

I have worked with the MDA for the past year and have had a great experience with their patient seminars. They are a very caring, professional organization for patients with macular degeneration. They enlist doctors to present these seminars who have a great knowledge of AMD. They allow plenty of time for Q & A for the patients at the end of the seminars as well as time for patients to visit the various booths to gain more knowledge of products.

Professional with expertise in this field

Rating: 4

My company has supported & attended several of the symposiums hosted by the Macular Degeneration Association. As I've talked with people in attendance, many have commented how informative and helpful these events are for patients and loved ones dealing with age-related macular degeneration. I think the MDA is doing a great job educating people about the latest advancements and research for macular degeneration.

Client Served

Rating: 5

Macular Degeneration runs in my family and I was unaware of all the implications surrounding this devastating disease. I went onto to research and came across the Macular Degeneration Association as an nonprofit whose core mission is to educate patients, their families, and the general public about macular degeneration. This sparked my interest and I attended the program in Glendale, CA. WOW! I not only learned so much about the disease, but their choice in speakers was phenomenal. Not only did I learn about what macular degeneration really is, I also learned about who's at risk, nutritional benefits, and various treatment and therapy options. More people in more communities could benefit from their work. I wish them success, as I know they are focusing on what's important. I look forward to future programs in my area. THANK YOU MACULAR DEGENERATION ASSOCIATION!!!

1 Gary12

Volunteer

Rating: 5

I am a doctor and was asked to present for them at a conference in Phoenix. I found them to be extremely well organized and provided everything I needed to make my talk a success. There where 130+ that either had macular degeneration or were at risk for the disease that attended this event. the MDA is passionate about educating patients on new technology to prevent, monitor, and treat patients with this devastating disease and I applaud their efforts to bring this education to the public. I am planning to speak for them again in December in Tucson and look forward to doing so.

General Member of the Public

Rating: 5

I have benefited from their educational programs. I am going to their latest one in Asheville, NC. This organization runs a great program, very informative, efficiant and educational. There is a need for these kinds of programs. Keep up the GREAT WORK!!!!

Review from Guidestar