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Macular Degeneration Association

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Nonprofit Overview

Causes: Disabilities, Eye Diseases, Blindness & Vision Impairments, Eye Diseases, Blindness & Vision Impairments Research, Health

Mission: The Macular Degeneration Association (MDA) is a nonprofit health organization dedicated to educating and empowering age-related macular degeneration, diabetic retinopathy, diabetic macular edema and glaucoma patients all across the world.

Results: We have put on numerous awareness programs nationally. Patients, caregivers, family and health care providers came away with a better understanding of their disease. They learned about preventative measures, treatments and the challenges that they face. With these programs they learned ways to adjust and over come their disease insuring that they live life to the fullest.

Target demographics: adults and seniors learn more about their eye disease

Direct beneficiaries per year: 800 seniors and adults at our awareness programs nationally

Geographic areas served: Macular Degeneration Association

Programs: awareness programs nationally, newsletter, advocacy, support and website

Community Stories

59 Stories from Volunteers, Donors & Supporters

1

General Member of the Public

Rating: 5

I took my mom to one of their educational programs. My mom and I learned a lot of helpful information and my mom has renewed hope. We learned about new treatments and research that was being done. We have donated to the Macular Degeneration Association to help fund research. This is a very caring organization. We met their Executive Director Donna she is a lovely lady that really cares about everyone and tries to help in anyway- we have a new friend. They are having a new set of educational programs and we will be attending the Tucson, AZ program. Thank you Macular Degeneration Association for all you do.

Volunteer

Rating: 5

Wonderful programs- learned a lot of valuable information- was able to speak to the doctor

Professional with expertise in this field

Rating: 5

We were a guest organization at this event. We are thankful to be able to be a part of this wonderful educational event that the Macular Degeneration Association puts on. These events provide education on macular degeneration, new treatments and research. They provide a speaker that talks about their experience with this disease and then they have local organizations at these programs so the participants will know where they can go for help.

General Member of the Public

Rating: 5

I was just at a fantastic program put on by the Macular Degeneration Association. If you haven't been to one- you must go. The information provided is top notch and delivered by retina docs in the field. I was able to interact with the docs, speakers and vendors. My husband was relieved by the information we learned. Thank you Donna.

General Member of the Public

Rating: 5

We are overwhelmed with the knowledge that we walked away with. Dr. Rathod superb! I wish my doctor had time to tell me everything that I learned at this program. You need to attend one. I now have faith and feel that there is hope for my disease.

Client Served

Rating: 5

07.28.18 Attended the Skokie, IL program. Wow! I thought it was going to be a waste of time. Boy was I wrong. I learned a lot . This is a top notch program! They are very professional and caring. I met Donna at the registration table- you could tell that she really cares. Their speaker Dr. Rathod- he was great- spoke about new treatments and research. I now have HOPE!!!! Thank you!

1

General Member of the Public

Rating: 5

I was so scared- you see I was told that I had macular degeneration. My friends told me that I was going to go blind and I should start making arrangements to go to a Nursing home. However one of my very best friends found out that there was a free conference being put on by the Macular Degeneration Association called Saving Your Sight!- what a God send. We signed up for the program in Jackson, MI. I am so glad that I went- the information that was presented by the doctor and other speakers left me with hope. I wasn't going to go blind! My friends were wrong! I can't believe that they do this for free. If you haven't attended one of their programs you do not know what your missing!!!! Highly recommend. Thank you for giving me my life back- Sincerely J.R. Jackson, MI

1

General Member of the Public

Rating: 5

My husband was recently diagnosed with AMD. His doctor told us that there was nothing that we could do. We happened to come across a flyer announcing a Free conference put on by the Macular Degeneration Association. We attended and heard wonderful information from Dr. Joshua Mali, this information gave us hope and determination to find out more. We are now in control of his eye health. Without his organization putting on these incredible education programs, we would of just accepted what the doctor said- now we know different. Thank you for all that you do Donna & the Macular Degeneration Association.

General Member of the Public

Rating: 5

I am so impressed with Macular Degeneration Association knowledge and how they are spreading the word of the sight stealing disease. In the late 90's my mother had macular degeneration and there was nothing on how to treat it. MDA has given seminars to help people understand this disease and have given the latest treatments for those who have it. My fear is that I will get it so I follow MDA all the time to know what can be done. I know there is no cure but to know that there are shots that stop the disease if caught in time for a while in hopes something better will come along. Keep up the great work.

1 MLRodrigu

General Member of the Public

Rating: 5

I follow the Macular Degeneration Association on FaceBook. When they post macular articles that are relevant to me, I will read the article and then sometimes share it with family members. I also share some of their posts about general eye care with my FB “friends.”

Previous Stories
3

General Member of the Public

Rating: 5

My Mother has been diagnosed with age-related macular degeneration. I currently follow MDA on FaceBook and when I see a post that is relevant to my Mother or other family members, I research it and often post it or share on FaceBook. The MDA website was the first place I searched when my Mother was first diagnosed and I shared many articles with my family. Also, I currently go to their website whenever there are changes to my Mom's eyesight. I researched cataract surgery for someone with AMD and their information helped me decide what the right course of action for my Mother would be. They have provided valuable information for us to understand the diagnosis, how to help my Mother handle it, and what the future holds.

1

Client Served

Rating: 5

I have worked with Macular Degeneration since 2007 and have not seen any other macular organization provide the education seminars that I have witnessed many times. The information provided during those education seminars are extremely helpful to all people who attend. Then they mail nationwide educational materials to educate and help as many people they can who are suffering with this sight stealer or who have family members suffering. My mother was blind from this dreaded disease and I saw first hand what it does to it's victims. Know I have a 50% chance of getting this disease I want as much information I can get and the MDA does provide that. They are extremely informative and helpful.

Previous Stories
2

Professional with expertise in this field

Rating: 5

Macular Degeneration Association of Sarasota Florida has done a wonderful job educating the public accross the United States on this site stealing disease that is affecting people 55 and older. This is a national epedemic which most people do not realize until they have lost part of their vision. It is a cause that I want to support since my mother went blind from this and I have a 50% chance of getting it.

MDA has done a great job in providing information on their web site and having seminar for the public to attend with experts in this field to help everyone understand the risks and treatments that are out there. Right now there is not cure but there are ways to help prevent it from getting worse for a short term. More has to be done to eradicate this disease and MDA is the one organization that I feel does so much with experts on lhe latest information and treatments available.

General Member of the Public

Rating: 5

Wow. I just attended one of the best educational programs. They covered macular degeneration, diabetic eye disease and much more. The doctors actually practiced and understood how people feel about their eye disease. All information provided was top notch. Thank you. If you haven't been to their awareness program what are you waiting for???

General Member of the Public

Rating: 5

Top notch doctors-information and education. This organization is outstanding. I started attending their programs in 2011. Each year the programs are better than the year before. My family has learned a lot.

General Member of the Public

Rating: 5

I was recently diagnosed with wet macular degeneration and received my first shot. I was under the impression that this would be the only shot required. My husband & I attended a recent awareness program put on by this organization. It was well planned out, superb doctors that explained everything in terms that I could understand. They even took the time to talk with us and answer any questions that we had. My doctor is wonderful but very busy and I felt uncomfortable asking questions- at this program I learned what to expect and the process of my treatments. Thank you from the bottom of my heart!!!!

Professional with expertise in this field

Rating: 5

When my 24 year career as ophthalmologist and Associate Clinical Professor of Ophthalmology, turned to nutrition research, I eventually developed a hypothesis for the nutritional basis of macular degeneration, which is based on the fundamental nutrition principles of Weston A. Price. Many nutrition researchers consider Price to be the "Father of Ancestral Nutrition Science," and without doubt, his principles regarding the dietary basis of
"Westernized disease" applies to macular degeneration as well.

In our own research, we ran correlations between processed food consumption and AMD prevalence, in 25 nations -- and the data strongly supports the hypothesis that this disease is preventable and treatable, through ancestral dietary strategy.

After publishing my book and presenting this data at the Ancestral Health Symposium - 2016, Larry Hoffheimer, Founder and Chairman of the Macular Degeneration Association, read my book and contacted me to discuss. He asked if I would present this thesis and data at the MDA conferences -- and I've been a speaker for them since then.

This organization most certainly seeks to educate those with AMD, as well as those more likely to get it. And the organization seeks to benefit those in need, in a charitable way. I'm proud to be affiliated with them.

Chris A. Knobbe, MD
Cure AMD Foundation
CureAMD.org

Professional with expertise in this field

Rating: 5

As a professional who takes care of patients that suffer from eye diseases, I am able to see first hand the impact that the work the Macular Degeneration Association has on people. The importance of bringing information to the public on common eye diseases that many people don't know a lot about stands by itself. The humanity and professionalism in the way the people involved in running the organization manage to carry out the programs is amazing.

Client Served

Rating: 5

My dad has AMD and I learned a ton when I attended one of their recent programs
Great meeting, good food and most important - information we can use to understand

1

Client Served

Rating: 5

I was diagnosed with macular degeneration in March. My doctor didn't have time to explain everything to me. I started to research information about macular degeneration and that only made me horrified about the information that was posted. I came across the Macular Degeneration Association's website. They have great information and articles that is posted. Low and behold i found out that they were having a free seminar in my area of Portland, OR. My wife and I attended the program- well done- doctors in the field as speakers- great information provided. I walked away knowing more about my condition and a better feeling as I had lost hope. They are a wonderful organization- they truly care.

1

General Member of the Public

Rating: 5

I attended their program in Portland, OR on June 3rd, 2017. If you have not been to one I highly recommend that you go. The information that is presented there is wonderful, down to earth. They bring in Retina docs that are practicing and are up to date on research. I learned a lot about my disease, more than I learned at my doctors office. Thank you Dr. Rathod and Donna Auger. This was a wonderful program!!!! Keep up the great work.

1

Client Served

Rating: 5

I just attended one of their awareness programs Saving Your Sight! Excellent topics, speakers and information that was shared. They had low vision equipment there and local organizations Tampa Lighthouse for the Blind. The program was well organised. Thank you so much for putting on this program. Keep up the Great work Macular Degeneration Association. What you don't learn from your doctors you learn here.