Lymphoma Foundation of America is a wonderful resource that helps people and their families dealing with cancer. LFA helped me. They support scientific research and give travel grants to cancer patients who need help getting to and from their place for treatment. They give great support. If you have an issue and it involves lymphoma, you should call the LFA or go on their website www.lymphomahelp.org
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My name is Bob. I am a lymphoma survivor and have been grateful to the Lymphoma Foundation of America for over twenty years. I was first diagnosed with Hodgkins Lymphoma in late December 1992. It was an unbelieveable shock. I was a healthy person, we had no family history of lymphoma. I went through six months of challenging chemotherapy and tried to keep it all in and do it myself. Three months after I finished my treatment and had been told that I was "cured," I had a recurrance. The doctors could not believe it because I was told the chemo regimen had a 95% effective rate. It threw me into a huge spin not knowing what to do.
I had a six month old son who was born when I was on chemotherapy. I ran a small business.
My oncologist and the one at Johns Hopkins did not agree on the next steps and what treatment to do. I needed support. Thankfully I found the Lymphoma Foundation of America. I was able to speak with people who understood what I was going through and could provide good ideas and options both medically, emotionally and in general health terms for someone under the pressure that I was dealing with as well as my family. They gave me someone to speak with who was like a friend who had dealt with similar issues. I went and had a 3rd opinion at Dana Farber Cancer Institute in Massachusetts and also looked into alternative health support. I came back with a reasonable plan which led to surgery and radiation therapy. That was in 1994. I have stayed in touch with the Lymphoma Foundation of America and now also serve on their Board of Directors. I try to help any other people dealing with cancer or serious illness whenever I can. There is no doubt that the help and understanding that I received from the Lymphoma Foundation of America is one of the reasons that I am here today. I cannot recommend them enough and if you are dealing with Lymphoma or know some that is; this is the place to call or email. They truly care!
Review from Guidestar
The Lymphoma Foundation of America (LFA) does very worthy work, supporting research on blood diseases and helping people directly with information, travel grants, and other support. In addition, it is a well managed charity with a very low expense ratio. The LFA participates in the Federal Government's Combined Federal Campaign.
Review from Guidestar
I am a volunteer with the Lymphoma Foundation of America, and
currently serve on the board. When my husband was diagnosed with
stage IVb nonhodgkin lymphoma, we felt helpless and didn't know where
to turn. He's alive today thanks to the wonderful people and the
sound advice we received. Over the years, I've watched this
dedicated organization help lymphoma patients find the right treatments and the
best doctors. I'm honored to volunteer here. It's the most rewarding
thing I've ever done.
Review from Guidestar
Lymphoma Foundation of America help my best friend recover from non hodgkin lymphoma.
They helped him get a second opinion at Johns Hopkins in Baltimore; connected him with experts at Dana-Farber, MD Anderson, and Stanford; referred him to the top lymphoma pathologist at the National Institutes of Health who evaluated his biopsy slides; identified the National Cancer Institute clinical trial where he received experimental chemotherapy; helped him locate a support group to join; gave him encouragement when he wanted to explore complementary therapies like acupuncture and Chinese herbs and educated him about the link between chemical pesticides and lymphoma (he worked in a flower and garden center and was exposed to strong chemicals).