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Little Miss Hannah Foundation

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Nonprofit Overview

Target demographics: medically fragile children

Geographic areas served: Southern Nevada

Programs: * Medical and Therapy Equipment Grant Program * Rare and Undiagnosed Disease Support * Childhood Rare Disease Advocacy

Community Stories

11 Stories from Volunteers, Donors & Supporters

Donor

Rating: 4

Little Miss Hannah foundation is truly based on the fundamentals of how a life tragedy can be used to help others facing a similar situation. Passion, love and dedication makes this charity a beautiful place for parents to turn in an otherwise bleak and dark future.

1

Donor

Rating: 5

The Little Miss Hannah Foundation spends their donations wisely, helping provide for families of medically complex children. Their volunteer staff works tirelessly to make sure the needs of these families are met. I will continue to support this great organization and hope you do as well.

1

Volunteer

Rating: 5

Littlet Miss Hannah foundation does so many fabulous things for kids with rare diseases. It has donated many pieces of specific equipment to families who couldn't otherwise afford it for their children with special needs.

1

Professional with expertise in this field

Rating: 5

The Little Miss Hannah Foundation was created by the Ostrea family whose daughter Hannah lost the battle to type 2/3 Gaucher disease. Through their hardship in trying to save Hannah's life, they created a foundation to help others. They understand the needs of children who have been diagnosed with rare diseases and the needs of their families. There can't be a more underserved and necessary cause!

The Little Miss Hannah Foundation has worked closely with the National Gaucher Foundation and other rare disease organizations to target the unmet needs in the rare disease community. We are grateful to the Ostrea family and the Little Miss Hannah Foundation for working toward serving those unmet needs.

Nancy175

Volunteer

Rating: 5

The Little Miss Hannah Foundation was started by the Ostrea family in memory of their child, Hannah who passed away from Gaucher Disease Type 2, a rare neurological disease. The foundation raises awareness and funds for children in the Las Vegas area who have life limiting or medically complex illnesses. Projects of the foundation include: providing medical equipment not covered by insurance but will enhance the child's quality of life, sibling support, and support for parents of children who are hospitalized for lengths of time. Additionally, each year a huge family fundraiser is held on Hannah's birthday to raise additional awareness and funding. The LMHF has become an important organization for families who have children who are seriously ill.

1 Bertrand M.

Donor

Rating: 5

The Liitle Miss Hannah Foundation serves the families of children with rare and/or terminal medical conditions. As a donor, I could not be more pleased with the Foundation's careful & effective use of funds to this end. Keep up the great work!

1 Lisa379

General Member of the Public

Rating: 5

Over the past few years I have witnessed the tireless dedication and devotion to the Little Miss Hannah Foundation by Carrie and Robert Ostrea and their family. They have such strength in dealing with such a loss themselves, and now are giving to others who have been affected by this terrible disease. I have seen all that this organization has done and continues to do. I am so proud to call them my friends, and offer them my continued support at the events that they give so much of their time to in support of this wonderful cause.

1

Client Served

Rating: 5

The Little Miss Hannah Foundation is an organization every community should have! They provided the means for my daughter to have a specialized desk chair for her special ed school sessions in our home. This organization has also provided a way for families of children with special needs to connect with one another. They are the best!

1

Professional with expertise in this field

Rating: 5

I work as a Speech-Language Pathologist and the Little Miss Hannah Foundation has been a valuable resource for the parents I work with on a daily basis. The foundation they have started in their daughter's name provides necessary therapeutic equipment to the children I work with that otherwise they would not have access to. Robert and Carrie are active participants in the community and are always eager to provide support - in any manner possible - to children and their families.

1 Jennifer370

Donor

Rating: 5

I have had the privilege of knowing the founders of the LMHF, Carrie and Robert Ostrea before they had children. I watched their family grow in leaps and bounds and watched them as they fought for their daughter Hannah to get the best medical attention for the disease she had, Gaucher’s Disease. They were determined to spend what time they had loving Hannah, comforting Hannah and fighting along with her to live.

When Hannah passed, they wanted to help others who have children who also were diagnosed with rare diseases. The foundation helps families enhance the quality of life they have in the short time that is left. It could be in the form of financial assistance, resources, workshops or a simple hug.

While they help those in need in Nevada, I reside in NJ and have had a few families contact them for advice and what not as I know that Carrie and Robert are extremely knowledgeable and simply just care.

Brooke K.

General Member of the Public

Rating: 5

I have gotten to know the Little Miss Hannah Foundation since it was founded after the passing of Hannah. I have seen their the dedication to help others in their need, and it has been truly amazing. Hannah's life is making a difference and her memory is engaging others to provide through this great Foundation.