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Lipoprotein a Foundation

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Nonprofit Overview

Causes: Health, Heart & Circulatory System Diseases & Disorders, Voluntary Health Associations & Medical Disciplines

Mission: To prevent premature heart disease and stroke due to high Lipoprotein(a) by revealing this inherited risk for cardiovascular disease; educate and empower patients and save lives.

Results: Helped over 300 patients connect with a doctor who specializes in high Lp(a). Created an educational web site for patients and physicians educating on high Lipoprotein(a) featuring the best evidence-based data to date. Have some of the worlds leading lipid specialists on our Scientific Advisory Board. Featured on the American College of Cardiology website and spoken at their scientific sessions. Spoken at the Clinical Chemistry Scientific Meeting to generate awareness for high Lp(a). Generated awareness with the physician community at multiple events over the last 2 years. Advocated to get Lipoprotein(a) included as a risk factor in the AHA Guidelines and for the Lp(a) test to be part of the standard lipid panel. Have over 2000 followers on Facebook, and a private patient group, over 700 followers on Twitter, and a Linked group following. Secured a generous donation from Triumph Motorcycles for disease awareness. Have hundreds of patients and physicians registered on web site. Secured access to the online free downloadable app - European Society of Cardiology Handbook for high Lipoprotein(a).

Target demographics: 1 in 5 Americans who have inherited high Lipoprotein(a) and are at risk from early heart disease and stroke

Direct beneficiaries per year: over 400 individuals

Geographic areas served: The United States of America

Programs: education, empowerment and advocacy

Community Stories

4 Stories from Volunteers, Donors & Supporters

1

Professional with expertise in this field

Rating: 5

I am a researcher in this field and have been for 6 years. This organization is one that actively brings together the top minds in the clinical and research areas in order to bring the most recent information and awareness to those afflicted with Lp(a) and to the general public. This foundation has significant potential in helping to advance our knowledge of Lp(a) in disease.

Tiffany Ackerman P.

Volunteer

Rating: 5

I was diagnosed with aortic stenosis and I needed a valve replacement and a double bypass at 35. After learning about high LpA, I’m now able to treat and hopefully prevent another open heart surgery in the future with the information provided by this valuable organization

Professional with expertise in this field

Rating: 5

As a clinical lipid specialist this is my go-to site for patient education and continuing education for providers.

Client Served

Rating: 5

Sandra goes above & beyond to help people & raise awareness. She found us doctors that were knowledgeable in LPa, helped us get appointments, shared diet & supplement information & met with us personally when we were in California. Helping people is her passion & it shows! Thanks Sandra!!