This foundation provides generous support, education and community and serves as a charity platform specific for this rare and unique disease. Since LGL leukemia has features of both cancer (a leukemia) and autoimmune diseases, it can be challenging to diagnose, learn about and treat. This foundation has done a great service to those patients, world-wide who are directed to this site by the longest and one of the foremost medical researchers, Dr T Loughran and his registry. Thanks a million to Dr Loughran and the foundation's founder, Tina Cancio for this. It is an invaluable addition to me in easing my journey and providing critical information and support, even though I am a retired MD myself and have done countless hours of medical library research.
LGL Leukemia Foundation Inc has been a God Send since my husband's diagnosis. A great group and a wonderful resource for patients, families and any one looking for information.
I have been ill with LGL Leukemia for close to 4 years. I can tell you it's a frightening experience, you feel so alone. Regardless of whom you have in your family. So many unknowns, so many fears, questions, anxieties. It's a horrible situation. You spend countless hours searching, Googling, trying to find out anything you can.
This Web site LGL Leukemia has been a blessing. To be able to read about others, their situations, their fears, concerns, their answers that the found out. We'll it's truly amazing. It helps knowing there are others with similar issues. That by itself helps. Someone to help with questions, answers, inquires. Get referrals, medical suggestions. It all helps. The Web site has so much information available, papers submitted by doctors and some patients.
I wish this were available when I first became ill.