My husband was diagnosed with MDS in November, 2016. He was 89 years old and I, his caregiver, was 81 at that time. We used a doctor in Beaumont, Texas until Spring, 2017. He was referred to MD Anderson Cancer Center, Houston, Texas, at that time. That was a 198 mile round trip. He was usually too tired to make the trip in one day. We often had to stay in a hotel. Hotel bills and parking added up. We signed up with Lazarex in May, 2017. We sometimes had to stay in a hotel for five to seven days while he received treatment. He had to go to Beaumont, Texas three days a week for blood tests. He was diagnosed with Leukemia in October. He passed away on November 21, 2017. Because of Lazarex we were able to afford the treatment which gave him a better quality of life.
My mother was diagnosed with pancreatic cancer in the fall of 2011, and by a miracle it was found on the cusp of stage two. This and the hard work of her oncology doctors gave us an additional six years with her. The Lazarus Foundation gave us the last 15 months of those six years. Through their reimbursement plan my mother was able to take the money that was fundraised to help with the travel for clinical studies to last. This program allowed my mother to accomplish part of her wish, "Spare one more family from this pain. I know I am going to dye but if doings this trial can help just one family I will be happy." She has just passed away and the family agreed that instead of having donations to the American Cancer Society to go this foundation instead, to help my mothers wish come true.
The Lazarex Cancer Foundation has helped my wife and I to get the best cancer care I can receive through clinical trials at MdAnderson hospital in Houston Texas. I am on my fourth clinical trial and must go back to Houston for treatment every two weeks. It is 909 miles by road and a two day journey by car and at times we will travel and stay a few months or when my treatment dictates. Lazarex helps to defray the costs of travel and I have been able to be close to my large family who has recently lost a brother and a sister to cancer. I can not exclaim enough how much their support has helped us not to worry financially about getting the best care that I can get. I am a stage 4 melanoma patient that currently has a 69% reduction in my disease. They not only give financial support but also pray for us.
May God Bless their foundation and their support for those who are sick
Lazarex is a great organization that really aims to help the others! The staff members are all very friendly and welcoming. They are very nice and patient people and they are very passionate about what they are doing.
I am a 70 year old grandmother of three who was diagnosed with stage 4 lung cancer in November 2016. As I have never been a smoker and overall I am in excellent health, I was totally blindsided by this diagnosis.
My primary tumor was tested and they found that I had a rare mutation which is best treated by targeted drugs as traditional chemo is not very effective. After four months of trying the most commonly prescribed drug, I had to discontinue taking it due to liver side effects even though the drug was effective.
There aren't many options for treating this mutation, but my daughter found a clinical trial phase 2 at a Boston Hospital. I was accepted to participate in the trial in May and as part of the trial protocol, I need to travel to Boston from Wisconsin every 21 days for follow-up and testing. I am happy to say that since I've been on the new drug, my primary tumor continues to reduce in size and metastasized nodes have either reduced in size or are no longer detected on scans.
Even though I feel I had budgeted ample funds to meet my normal living expenses, I never imagined that I would need significant additional funds to cover travel and lodging expenses for a medical issue. This is where Lazarex has been a lifesaver as their support is allowing me to be part of this clinical trial.
I can't thank Lazarex and its contributors enough. Their generosity is allowing me to continue my fight against this devastating disease.
I am a volunteer with Lazarex, after having spent 45 years practicing law in the San Francisco Bay Area. I volunteer a couple of mornings per week, as well as assist in outreach and fundraising activities. I put off retirement from legal practice for several years because I feared that I would have a difficult time replacing the meaning and prestige that came from representing my clients. Given that work has been my hobby for the last 45 years, I was concerned about losing the intellectual stimulation and sense of purpose that had come from from work and association with other lawyers, judges, and clients.
After volunteering at Lazarex for several months I have found a new passion and meaning in my life. While I enjoyed practicing law for all of those years, the satisfaction that comes from helping patients who have been given a dire diagnosis that they are terminally ill with little chance of recovery, to once again find hope is far more rewarding than anything I experienced as a lawyer. When I have the opportunity to interact with patients they uniformly express their heart felt gratitude for what Lazarex is doing for them.
I consider it an honor to work with such a selfless organization, which is dedicated to helping the patients extend their lives, and in some cases even find a cure that allows them to return to living a full and meaningful life, free of the ravages of the disease. Moreover, it extremely gratifying to be involved in some small way in the effort to locate a cure for this dreaded disease. Lazarex's motto is that " a diagnosis of cancer isn't a death sentence" even to those who have failed the traditional treatments. It is privilege to be able to be involved in the work of Lazarex and to have the opportunity to work with some of the most generous and self-less people I have ever had the opportunity to meet.
Our family's journey with Lazarex began nearly 9 years ago with a diagnosis of our family member, Dan, of stage 3b non small cell adenocarcinoma of the lungs. Dan was an ultra marathon trail runner, non-smoker and all around healthy 43 year old guy. He was having difficulty catching his breath while running, which ultimately led him to the diagnosis. He was given the news with the caveat of "get your affairs in order." Lazarex was in the beginning stages of their mission. We were fortunate enough to know Dana and our first and only call was to her. Literally in less than 1 month from diagnosis, Dana and her team at Lazarex had identified a clinical trial, got Dan accepted, and put him and his mom on a plane! Because of the cancer, Dan couldn't work, which lead to his medical benefits being in jeopardy. Lazarex took the financial concern and pressure of trying to fight this disease completely off the table. They financially supported Dan's participation in the clinical trial and recognized the importance of having a family member present through this journey. The impact of participation in this clinical trial was immeasurable. Yes, clinical trials will no doubt lead us to a cure for cancer. Enabling the brave warriors, or VIP's as they're known at Lazarex, to find and participate in these studies, is the road to a cure, but we also saw another side of this gift from Lazarex. The gift of hope. Fighting through this diagnosis and disease is incomprehensible, but because of Lazarex, Dan never lost hope. The constant support and encouragement from Dana, Tami, Karen and the entire team at Lazarex empowered him and gave him the will and the courage to keep fighting. There is no doubt that because of Lazarex supporting Dan in the clinical trial, we were given more time with him. This time was quality time filled with love and hope. We are eternally grateful to the amazing team at Lazarex and are proud and honored to support their mission.
09/19/2017 I have been a donor and a volunteer for Lazarex since they began. The commitment of the Lazarex team to serve their clients is unwavering. Over the years I have witnessed firsthand the clients lives ( and the lives of their families ) that have been touched and saved because of the efforts of this organization. It has been an honor to donate and support Lazarex and impact these courageous warriors who are fighting and winning their battle against cancer!
I have been a donor and a volunteer for Lazarex since they began. The commitment of the Lazarex team to serve their clients is unwavering. Over the years I have witnessed firsthand the clients lives ( and the lives of their families ) that have been touched and saved because of the efforts of this organization. It has been an honor to donate and support Lazarex and impact these courageous warriors who are fighting and winning their battle against cancer!
No other foundation reimburses patients for expenses associated with participation in clinical trials. This is one of the main reasons why they choose to not participate and thus give up a chance to extend or even save their lives. Based on my experience with Lazarex they offer hope at a time when it is needed most. These are people who truly care!!
My husband Mike was the inspiration for this foundation. He was diagnosed with Pancreatic cancer at 44 yrs. old and passed away when he was 46, leaving behind 3 young children and myself. Our experience with a clinical trial gave us hope and time that we would not have had. My awesome sister started Lazarex to help end stage patients and their families find and participate in clinical trials. As far as I know Lazarex is the only organization in the USA that does what they do. It has been a great blessing to be able to help others who are in a similar situation. Go Lazarex!!
Lazarex Cancer Foundation 08/15/2012
Dear EMVG01 Thank you for your review and sharing some of your personal experience. Mike and you inspired us in so many ways. It's a wonderful legacy.
I have been on a clinical trial for almost three years that requires me to drive about 250 miles every two weeks from Northwest Ohio to Cleveland. I am exceedingly grateful to be on the trial, which covers many, but not all, costs. Meals on the road, the hotel night we need every three months when there are early morning appointments, wear and tear on the car, gas, tolls, copays, meds for side effects. I don't think anyone really thinks about the costs of being on free trials - except for Lazarex. We appreciate more than anyone can know the help we've received from this excellent organization.
Ten years ago, we became aware of Lazarex through a friend. We have been a supporter of their efforts to connect patients with therapies that offer hope for them and for all of the people that might face this challenge in the future. Lazarex has supported friends, family members and anyone who has reached out to them when everyone else has given up. We know that there is a cure out there and Lazerex offers crucial pathways towards that cure.
I was diagnosed in 2013 with an aggressive uterine cancer. Contacted Dana from Lazarex to find out if she knew of any clinical trials and ask her to find out what she could about my cancer. She was awesome and timely getting back to me. I didn't need any further services from Lazarex as I was completely covered by my insurance fortunately. But I tell everyone I can about this wonderful organization. I am an oncology nurse and am cancer free going on 3 years!
After having donated to this organization, I was fortunate to get to know some of the people who make up the team who work so hard to make it happen. These people are truly dedicated to their cause and work tirelessly to bring so much aid to as many cancer sufferers as they can. They fill a gap in the fight against cancer that few groups try to tackle. The assistance they provide to the cancer patients that have run out of options, and to link them to companies running clinical trail, is a daunting challenge for anyone to take on. This is a worthy effort that, like many others, could use your help.
I am proud to be a continued donor to an organization that provides the needed funds that are not covered by medical insurance or the pharmaceutical companies. Without this organization, many people already suffering from the horrors of cancer, would not have the opportunity to participate in a possible life improving clinical trial
I've volunteered and attended numerous events for Lazarex because I truly believe in what they do. They are such a unique foundation in that they guide their patients through the process from Step 1. You are not just a number when you call, they know all their clients (and their families) personally. It's such a comfort to know you have such a strong support system in the cancer fight. I will continue to be an advocate for Lazarex - it is a one of a kind organization run by one of a kind people!
When I learned about Lazarex, I was immediately drawn to the organization because of their background and story. Their tenacity and passion for giving not only treatment, but hope to their patients is one of the most important things their organization does. The whole team at Lazarex is full of warmth and love. Lazarex is an invaluable organization that gives so much to those who need support in their time of need.
Lazarex Cancer Foundation 08/15/2012
Thank you for sharing our passion with others. A big thank you for writing a review!!
I have volunteered for Lazarex in the past. This is an amazing organization that prides itself in putting the needs of patients and their families first. I admire their philosophy. They give hope to people who still have so much they want to accomplish in their lives. As a daughter of a cancer warrior, Lazarex gave me hope. They gave my mom hope. I will be forever grateful to the women and men that make Lazarex possible to so many people.
This is the only organization that has the patients voice! Taking care of late stage cancer patients get help in getting into a trial and staying in the trial is life changing! LCF does this and more
Approximately 2 1/2 years ago, I was diagnosed with a rare and aggressive Stage IV cancer. After two recurrences using chemotherapy and radiation treatments, I went to MD Anderson in the hopes of enrolling in an immunotherapy clinical trial. (I was unable to get into any trials at local hospitals.) I wasn't sure how I was going to afford the expense of traveling back and forth between Michigan and Texas every two weeks, but then I was referred to Lazarex. They specifically help patients who need to travel for clinical trials. Lazarex's assistance not only helped alleviate some of the financial burden, but also lessened the stress I was feeling. They have been so kind and easy to work with. I am very grateful that I have been given an opportunity to extend my life by being able to travel out of state to other hospitals that can help me.
Two years ago, on the day before my 69th birthday, my Arizona surgeon told me the results of my annual CT scans. My liposarcoma had recurred, and was inoperable and metastatic. I had shared my body with this very rare tumor since the original diagnosis in 2001.
The Arizona surgeon told me that the then current standard treatment involved a chemotherapy that was effective only 20-30% of the time. When I asked for a prognosis if the chemo failed, he told me, "Two years."
My husband and I went to M. D. Anderson in Houston to find out about potential clinical trials. I was quickly enrolled in a Phase I targeted therapy trial that required traveling between Phoenix and Houston every three weeks. The costs of air fare and hotel reservations were overwhelming. Fortunately, my husband discovered the Lazarex Foundation.
I applied for and was accepted into the program. Without Lazarex, I wouldn't have been able to participate in this life-saving trial.
Initially, the tumor shrank, but it began to grow after 13 months. I was transferred to an immunotherapy therapy trial in July, 2015. So far, it has kept the disease stable. And, Lazarex continues to assist me with costs.
Here I am, 30 months after I was given a two-year prognosis, alive, doing well, and feeling great. I live a normal life, except for trips to Houston.
Thank you, Lazarex for giving me two years (and counting) of happiness, fun, family and love. You are truly a blessing!