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International Paruresis Association, Inc.

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Nonprofit Overview

Causes: Counseling, Health, Mental Health, Mental Health Disorders, Voluntary Health Associations & Medical Disciplines

Mission: The International Paruresis Association is a 501(c)(3) nonprofit organization whose mission is to cure Paruresis (shy bladder) and improve the lives of all people affected.

Target demographics: Anyone and everyone suffering from paruresis.

Geographic areas served: Worldwide

Programs: Shy Bladder Center, Worldwide IPA Support Groups, and Prisoners with Paruresis

Community Stories

174 Stories from Volunteers, Donors & Supporters

2

Client Served

Rating: 5

I have suffered with this condition for 41 years. It has severely affected me and in many ways defined who I am. I learned of IPA perhaps 12 years ago and was too afraid to take action. Last month I finally decided to attend a workshop and I can't even believe what happened. By meeting and connecting with others with this same condition in an environment with an outstanding leader, in one weekend my life has changed dramatically. I would consider myself 80 percent recovered and I know what to do to work on the remaining 20 percent. For anyone even considering attending, take the plunge. You won't regret it!

Tom09

Client Served

Rating: 5

I was looking for an organization that would provide some information and support with my problem. IPA provides a clearinghouse for information and resources for help with paruresis.
They also are trying to get legislation passed to give people with paruresis an alternative to urine drug testing.

Previous Stories

Client Served

Rating: 5

The international paruresis association helps people with “shy bladder”. The
Help bring attention to this social phobia which can be crippling. The have given me tools and support to help manage more public places to pee. They provided workshops to help overcome this, at times crippling phobia.

Read more
1

Board Member

Rating: 5

Ten years ago I attended an IPA workshop, and my life changed. I not only started down the path toward overcoming a condition that I had kept hidden most of my life, I learned how to put this condition in perspective and accept (and respect) myself for who I really am. I now proudly serve on the Board of Directors and hope to help guide others toward that same path.

1 Raul O M.

Board Member

Rating: 5

Amazing organization that's helped me a lot with working with my paruresis.

1 rice0292

Client Served

Rating: 5

The IPA was very helpful to me in my recovery. They gave me support, the information I needed and their workshops gave me successes that I needed to start my recovery. Thank you. Brad K.

Previous Stories
1

Board Member

Rating: 5

The IPA has been a great help to me in my recovery and has allowed me to function with lower anxiety around other people.

1 Dan R.1

Board Member

Rating: 5

I first found the IPA online in 2001. I was struggling and felt alone in my struggle with paruresis. The IPA workshop was such an eye opening gift to me. It showed a path out of the darkness, and towards recovery. I have been gratefully involved with the IPA ever since!

1

General Member of the Public

Rating: 5

My son was in prison. He could not urinate in front of the guard for the drug test. Not urinating meant he was guilty of using drugs. He was confined to solitary. Thanks to IPA’s help, the prison used an alternative method for testing drug use. My son was released from solitary confinement after five months. I’ve read stories where some inmates were confined to solitary for years and even decades for not being able to urinate in front of someone. To mean, that is cruel and unusual punishment and should not be tolerated.

David S.15

Donor

Rating: 5

The IPA has given me the direction to recover from paruresis. They also advocate for different ways to drug test for employees.

1 Michael A.2

Donor

Rating: 5

I thought there was something special and wrong about me for 50 years until I found the IPA and the wonderful people who started it and understood how my life has been a private self berating struggle with shame and desperation. They showed me many suffered like I have and empathized with me . I am grateful for the oranization and count myself lucky to have found their support and advocacy for all who have this condition

1

Client Served

Rating: 5

The IPA is great organization. I have experienced and witnessed the good work of the IPA through its website, workshops and counselors. They truly help people get there life back. Paruesis is a silent phobia and most sufferer's never get help. The IPA is spreading the message that help and recovery are available. Through the website and workshops people's lives are being changed for the better every day.

General Member of the Public

Rating: 5

Until I found IPA I thought I was alone and hopeless. With IPA, I feel part of a community of support, and I believe in the possibility of overcoming my phobia. I just finished reading some chats on-line. The insights, friendship, and encouragement that others share mean so much. Dr. Soifer's Ted Talk was inspirational. It took courage. It was honest. It showed the universality of bathroom issues even beyond paruresis. IPA is a great nonprofit.

Client Served

Rating: 5

I had a Paruresis problem for 36 years. I attended my first IPA workshop at age 49 and had immediate success. By attending 3 more workshops and volunteering to lead a support group, I no longer suffer from the psychological effects of this condition. The IPA has changed my life and I am truly thankful for the support they offer.

Board Member

Rating: 5

Thanks again IPA for another successful year in helping others overcome this condition.

Previous Stories

Board Member

Rating: 5

The modern look user friendly website is now online! We just finished a really great 20th anniversary convention/workshop in Las Vegas. Thanks again to the IPA for another great year of helping people with shy bladder.

Read more

Client Served

Rating: 5

They have been instrumental in bringing a social and mental health issue that has been so hidden out into the open and given those of us that suffer from it an outlet to process our experience and to begin to heal and obtain the hope of leading a normal life.

Client Served

Rating: 5

The IPA provided the much needed support I needed in a difficult time in my life. Without them my recovery would not have come so far. Dr. Soifer, who leads the IPA, personally made sure I go the help I needed, and I can't thank him enough. I now regularly participate in a IPA support group which is a very valuable component of my recovery.

General Member of the Public

Rating: 4

Learned about this organization about 10 years ago on an internet search. Found members to be extremely helpful and caring. Glad I found them.

Board Member

Rating: 5

The IPA champions people like me who live with pee-shyness or paruresis. My particular symptoms show up in airplane bathrooms where I just cannot relieve myself. Through the IPA I have been able to learn to manage this social phobia and pee in almost any public bathroom or airplane bathroom. Steven Weinraub, Santa Monica, CA

Client Served

Rating: 5

The IPA has truly changed my life. Being a paruretic is quite the ordeal and I'm glad that the IPA is there with their support groups, workshops, and numerous materials that have been helpful in my recovery of shy bladder. Their website https://paruresis.org/ is full of many other resources to help other paruretics.

Volunteer

Rating: 5

No other non-profit organization supports this condition. It remains the best support for anyone anywhere to get help regardless of ability to pay. The organization makes very good use of its resources to help as many people as need it.

Client Served

Rating: 5

When I found IPA over 15 years ago, I finally realized I was not the only person with a shy bladder and whose life was affected by it to a great extent. I did not realize recovery was possible. I attended a workshop and from that point on have been treating this condition as a social anxiety and working on my recovery. The IPA, with its message board and workshops that offer support and help, have been my lifeline.

Previous Stories
3

Volunteer

Rating: 5

If it were not for the IPA, I would not be where I am today. The help and support that I have received from the workshops they offer and the wonderful support of the people on the message board, have helped me to partially recover from paruresis. When I found this website for IPA, I thought it was too good to be true. Other people have shy bladder too? I thought it was just me! When I finally got up the nerve to sign up for a workshop, that is when things started to change. When I left that workshop, on the long drive home, I stopped at a large rest area for the first time in my 44 years. Why the first time? Because before I knew I couldn't "succeed" in one, so why stop? This time I had a little bit of hope. Low and behold I was able to "leg go" for the first time ever in a public rest room with others present. This opened up new hopes for me. Travelling had always been very difficult. Now I have less fear and more freedom to do the things I want to do. IPA is a wonderful organization, one of a kind. I'm so glad I found it.

Client Served

Rating: 5

The IPA is one of the best in serving people with shy bladder. From workshops to support groups the IPA has been incredibly helpful for me.

Client Served

Rating: 5

The International Paruresis Association has literally changed my life. I spent decades trying to understand this social phobia, knowing that it was irrational and still being unable to overcome it, until I found the IPA and was able to start the process of overcoming it. The IPA has a network of caring volunteers who provide information and guidance in how to overcome and recover from Paruresis, and their statement that "you are not alone" is from the heart.

Board Member

Rating: 5

This organization has changed my life and the life of so many who have been lucky enough to find its website, thus beginning the recovery process from avoidant paruresis.

I have been increasingly involved with the IPA since I first attended a workshop in 2001. In fact, I ran their most recent workshop. Those of us who have been profoundly helped by the IPA tend to stick around and help in any way we can, as we know how difficult it can be to thrive with paruresis. As an organization, we strive to be a user-friendly resource for all affected by paruresis.

Previous Stories
1

Board Member

Rating: 5

I have been affiliated with the IPA for 15 years and they have been great years for me--years in which I have been in a constant state of improvement and recovery from avoidant paruresis. My association with the IPA has quite literally given me areas of my life back--I can travel more comfortably, and my day-to-day stress levels are markedly less than they were before I discovered the IPA. I happily support the IPA as they have supported me all these years!

Read more

Board Member

Rating: 5

I have been involved with the IPA as a member and board member. The organization changed my life many years ago. I want others to get the help and support that I received from this great organization. That is why I continue to serve with this excellent non-profit.

Previous Stories
1

Board Member

Rating: 5

I found this organization about 15 years ago. It changed my life and allowed me to conquer paruresis. I am so grateful for the help this organization has given me that I am now a board member. I want to help other people get help for paruresis and have the life changing experience that I have had.

Volunteer

Rating: 5

This is a great group to be a member of if you suffer from shy bladder! They hold workshops all over the world to help people deal with and reduce the anxiety associated with Paruresis!

Client Served

Rating: 5

The IPA does an excellent job at raising awareness of paruresis and without them I wouldn't even know that it existed, that other people went through the same problem and that there's a pathway for getting better. I've attended one of their workshops and I would recommend it to anyone that might be suffering from the shy bladder syndrome

Client Served

Rating: 5

Provides great workshops and connection to others for support. Along with organizing support groups crucial for recovery. The IPA made all the difference for me and I don’t how I could have made it without it.

Previous Stories
3

Professional with expertise in this field

Rating: 5

The only organization out there that is of real help for the social phobia paruresis. Great workshops and support. They made all the difference for me.

1

Board Member

Rating: 5

Currently, I serve on the board of the International Paruresis Association (IPA). The IPA is a wonderful organization that has helped me tremendously with my shy bladder. As a member of the board, I hope to give back by helping others with paruresis to live their lives to the fullest. In addition, the IPA as an organization provides resources such as workshops and educational materials, and most of all a caring and compassionate community to assist you on your road to recovery. I love the IPA!

1

Board Member

Rating: 5

The best organization of its type. IPA is committed to helping people who have shy bladder with emotional support, recovery techniques, advice for dealing with medical personnel, and advocacy for legal and legislative issue related to this condition. The best decision I made was to attend a workshop 15 years ago. Travel is so much easier, events are not anxiety-inducing, and I no longer judge myself for a condition that is surprisingly common.

Previous Stories
1

Board Member

Rating: 5

I've been involved with IPA for about ten years now, and it is truly a life-changing organization. I joined mainly because I wanted to travel but my fear kept me from doing so. I now have a passport and am a frequent traveler.

I've attended two IPA workshops for shy bladder treatment. They are unlike anything any doctor, therapist, or psychiatrist has ever done for me. It is really amazing to be in a room full of people who know the same shame you experience. The knowledge provided at these workshops and on IPA's website is diverse- people explore the many psychological and medical methods for how they are able to move beyond this painful condition, but the actual practice that occurs at the workshops really is powerful and would be difficult to recreate at any doctor's office.

IPAs objectives are equally diverse- not only helping people recover from shy bladder, but working to change drug-testing laws to accommodate paruretics; and working to influence public restroom access and design to accommodate paruretics. There is just so much to be accomplished by this organization, and it's the only one like it out there!

1

Client Served

Rating: 5

The workshops that Steve and his team have been immensely helpful for me in dealing with my phobia. Thank you all soooooooooo much!!!!

2

Client Served

Rating: 5

Exceptional workshops, volunteerism and support to those suffering from a relatively common condition, paruresis, often referred to as shy bladder syndrome. This non-profit works to change regulations to support the building of bathroom that provide more privacy for individuals and for drug testing methodologies, i.e., oral fluid analysis, to substitute for urinalysis where people are watched as they provide a sample. As someone who has paruresis the organization has helped me to reduce the severity of issue (it may always be there to some extent but I live more comfortably now) and meet and work alongside others in support sessions who also identify as paruretics. This condition can have an enormous negative impact on people's lives if one can imagine not wanting to go anywhere where there might not be a "safe" bathroom or not taking a long plane flight due to discomfort with using the restroom on the plane. IPA is the only organization addressing this issue.

2

Donor

Rating: 4

I found out about the organization after I read a book by the Exec. Director. Once I found out that there were other people with the same type of problem, that knowledge alone helped me get started to reduce the phobia I have had for over 50 years. This is a wonderful organization and is helping a lot of people who have paruresis.

2

Client Served

Rating: 5

Living with Paruresis is really difficult... especially in silence! The IPA's existence and continued efforts has helped greatly in this internet age because before you even tell the 1st person in your life about your problem you have already been met w/ the fact that you are not alone. The IPA plays an indispensable role in recovery from Paruresis as it is a keystone to build around and look to for guidance through this difficult journey.
Thx

2

Client Served

Rating: 4

I have had paruresis during my entire adult life. Using public restrooms was always a challenge, and it made my life so much more difficult than it seemed to be for my friends who were able to function easily and without stress. Thanks to the coaching of IPA and its local chapter I was able to overcome my paruresis and now no longer have that great interference in my life -- which is important since in my work life as well as in my personal life I am in public places almost every day and this always caused anxiety for me. I can never thank IPA enough for their care in publicizing this rarely-talked-about subject and for providing nonjudgmental support and coaching for us ordinary citizens.

2

Client Served

Rating: 5

I just wanted to say thank you to the international Peruresis association for helping me with my shy bladder syndrome. I attended a workshop in Detroit Michigan in 2018 and it helped with my understanding of the condition and also improved my fear of urinating in public