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International Pain Foundation

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Nonprofit Overview

Causes: Health, Health Care, Health Support, Medical Research, Patient & Family Support

Mission: International Pain Foundation (iPain) is your Power of Pain headquarters. Our mission is to educate and support the chronic pain community around the world. iPain provides community based services that address needs of chronic pain patients with conditions such as RSD/CRPS, post cancer pain, fibromyalgia, diabetic neuropathy, lyme, lupus, and more.

Results: The foundations objectives are reached through important educational events, support, resources, and enhancement projects that are funded through private donations and grants. The Power of Pain Foundation (dba: International Pain Foundation) demonstrates its commitment to the chronic pain community by promoting new knowledge in the cause and treatment of chronic pain conditions involving nerve pain. The ultimate goal is to provide tools and life skills to chronic pain patients giving them the ability to perform their regular activities in the community and to bolster society’s ability to provide full opportunities and appropriate supports. Through supporting education for pain patients, family members, caretakers and medical professionals, we make an important contribution to the overall knowledge and treatment of chronic pain. This allows our foundation to affect the lives of the millions of people with Neuropathy pain nationwide as well as chronic pain patient’s, caretakers, family members and healthcare professionals. Whether you have Neuropathy pain or are a caregiver, family member or friend of someone diagnosed, we’ll help you face the challenges and life changes of chronic nerve pain, head on.

Target demographics: the chronic pain community

Direct beneficiaries per year: millions of pain patients around the world.

Geographic areas served: worldwide

Programs: ~ Promoting public and professional awareness of Neuropathy chronic pain conditions ~ Educating those afflicted with the painful neuro diseases, their families, friends and healthcare providers on the disabling pain it causes. ~ Provide action-oriented public education and pain policy improvement through activities and efforts to eliminate the under treatment of chronic pain and increase proper access to care.

Community Stories

43 Stories from Volunteers, Donors & Supporters

1 Jodi O.5

Volunteer

Rating: 5

I would like to let everyone know just how thankful I am for the International Pain Foundation. They have provided me with support, hope and friendship. It has been exciting to watch them grow and reach patients from all over the world. They provide us with so many different programs we can participate in. This year they have a 3 day iPain Summit for patients and their caregivers. They have doctors and experts speaking on multiple topics, and it is a wonderful way to meet other chronic pain patients. You can also attend the Comic Pain Relief event and enjoy a evening filled with laughter and fun. My favorite new magazine is iPain Living Magazine. iPain is a wonderful organization because they genuinely care about patients.

1 HopeIsJazzy

Client Served

Rating: 5

I love everything JAZZY and iPain is the most Jazzy. I love participating in iPain awareness projects because they are educational in a unique way. This #NERVEmber is nerve pain awareness month and I signed up to be a #LoudMouthCrusader to spread as much awareness about nerve pain as i can.

1 Brian L

Client Served

Rating: 5


Although I am no longer serving on the board of directors I have stayed involved as a volunteer and always look forward to supporting International Pain Foundation projects. I strongly believe that people in pain deserve the best care in getting diagnosed, and long-term. If you are looking for a charity to get involved with that is helping the chronic pain community this is a great one. I have written articles that were published in their magazine, spoken at in-person events sharing my personal journey with diabetes and hosted CPR and First Aid Training Classes through my company on behalf of iPain Foundation.

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13

Board Member

Rating: 5

I am a proud member of the International Pain Foundation Board of Directors. It has been my pleasure to be involved in so much of the goal setting and mission accomplishments of the foundation. There are so many people who have helped the foundation grow and flourish over the years that it has been amazing to see how far and how many we have helped and how we are dedicated to continue our service to the chronic pain community. Thank you to all of our delegates, event volunteers, peer mentors, project directors, and board of directors for the time, effort and energy you put into making iPain the amazing NPO that it is with all volunteer staff and creative projects.

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1 Brian Schafer

Volunteer

Rating: 5

I have been volunteering with iPain for years now and I love working with all of the other volunteers I have met through the years. Because I live with disabilities I am not always as active as I want to be, but I did join the partner program and participate as I can online and in-person. Thanks for never making me feel like what I do provide is not enough. If I could do more, I would!

1 Ken Taylor

Board Member

Rating: 5

Another year brings on more opportunities to help chronic pain communities from all over the world. I never would have imagined the number of people we have reached at this point. Our projects are more defined and gaining traction all the time. Education and awareness have become very important to me. iPain out reach with new connections are helping bring access to care and new treatment options to pain communities all over the world. I enjoy seeing people get help from some small part I played in their life. This kind of gratification would be hard to match with anything else i could be doing. I intend to keep active and grow the foundation to have the biggest reach possible.

Ken Taylor
Vice President

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3

Board Member

Rating: 5

Working with the International Pain Foundation has been extremely rewarding. To talk to patients and caregivers daily has been a pleasure. Knowing that I am doing my part to help reach the chronic pain community through my work with iPain has changed my life.

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2 RATaylor

Client Served

Rating: 5

After getting help from iPain foundation last year I joined their email list and it is an easy way to stay in touch when I have questions. I recently went on an Alaskan cruise and asked Ken at the foundation what are some things i can do to make my cruise more enjoyable because i am on oxygen for my lung issues. Right away he suggested I rent a mobility scooter to make my trip more enjoyable. He found the company and phone number and even called them with me to make sure i got what i needed. I really dont think i would have rented a scooter without their help. The mobility scooter made my whole trip more enjoyable and many people on the cruise asked how to get a scooter so i got to tell them about iPain Foundation. I got to do about everything i wanted to do without getting tired at all and without the need of my heavy oxygen tank. I tell everybody about iPain and some of the things they do to help people like me.

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4

General Member of the Public

Rating: 5

I am a Vietnam Veteran and 73 years old. For health reasons i moved to Az and in the spring of 2018 I was experiencing some frightening health issues I didnt know how to deal with. I had no doctor relationships at this point and not really knowing where to start I reached out to iPain Foundation through my neighbor and explained my health issues the best i could. I was told it could be something simple and to not allow myself to get so stressed out as it will not help with the symptoms im facing. Over the phone i was given a doctor in my area and even help to make the appointment for a new patient. From the Dr visit my we discovered that my medication was causing kidney pain and passing blood through my urine. At my age, health is a major concern and i am grateful to the folks at iPain Foundation for helping me through my difficult times.

1 GlenS

Board Member

Rating: 5

Being the director of the NERVEmber project this year and last has really helped me be more involved in this amazing organization. I hope everyone likes what we came up with for 2019's project as much as I do. The LoudMouth Crusader's will be in full effect this November and we have our 60 NERVEmber conditions chosen. We are ready for you to join us!

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3

Board Member

Rating: 5

I started out as an event volunteer for International pain Foundation when they were dba as Power of Pain Foundation back in 2012. I have loved working with all of the staff on events in AZ, CA, and KS. I am now on the board of directors where I use my computer skills to help grow the foundations electronic platforms. I love being able to help and make a difference in the lives of those with chronic pain. I have many family members and now friends who live with the challenges of chronic pain. I love knowing that I have helped others live better lives and will continue to do so. I know my input is valued and my voice is heard.

1 Barby Ingle

Board Member

Rating: 5

Going into this year we now have our partner program up and running with patients, caregivers, providers and industry leaders. We are also selling our magazine in stores around the USA and Canada - iPain Living Magazine. But most exciting is that we are bringing back our pain conference - International Pain Summit and this year it will be in Los Angeles, CA Nov. 14-16, 2019. Check out www.internationalpain.org for info on all of our programs.

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4

Board Member

Rating: 5

I love working with the International Pain Foundation (iPain) as it is changing lives of pain patients and their families and giving hope to chronic pain patients worldwide. We provide hope, educational resources, support, mentoring and so much more. I have enjoyed being an iPain volunteer since 2006. I love the educational webinars they offer each month to help educate us about different chronic pain conditions.

2

Volunteer

Rating: 5

International Pain Foundation is 1 in a handful of web sites that transpire to make a difference from beneath. My point of view iPain is undoubtedly nicely worth checking out.

4

General Member of the Public

Rating: 5

Thank-you all at Ipain for always being so supportive.

Things are crazy with so many changes in the medical world. We need voices like yours and these advocates for standing up for those who can't.

Discrimination is brutal and unnoticed in the medical world. More need to know they are protected by civil rights.

Together we are making a difference.

4

Volunteer

Rating: 5

I am so excited to see iPain bring back Comic Pain Relief and i plan to attend so i can finally meet Ken and Barby. Its great to watch all the different ways iPain promotes awareness and recognizes great advocates. I am most impressed with iPain Living digital magazine and how it links to so many people. It also plays videos right in the pages, how convenient. I share it with as many people as i can. Keep up the great work iPain.

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8

Professional with expertise in this field

Rating: 5

iPain is an amazing organization. A friend referred me to the website for information on symptoms I was experiencing. Not only did I find answers I was looking for, I found out how i should be talking to my doctor. The organization is about getting information to the patients who need it most. I found webinars, books, videos, support groups, social media feeds and these are all available and so easy to share on their app. This organization has tons of information on different conditions, diseases, symptoms and treatments I never heard of before. Their information is fun to share and I look forward to getting involved with them soon. I called my friend and thanked her for leading me to this foundation and I have already shared with some of my friends.

3

General Member of the Public

Rating: 5

iPain Foundation has helped me realize i'm not alone. I visit the website and follow there social media as a way to feel like a part of an organization that really cares. I am encouraged to see the Hero of Hope awards for patients like me and love how iPain empowers me to be part of something i can participate with, even in my condition. I also follow iPain because I feel like they are always actively spotlighting the patient.

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8

General Member of the Public

Rating: 5

I love how "iPAIN" brings awareness to a disease or condition. They taught me how to apply for a state proclamation that i used to share with my support group. This allowed me to empower others in my pain community to do the same. Arachnoiditis is a painful and debilitating condition that needs to be understood. You can visit iPain website to find out more about it and other conditions. Thank you iPain for empowering me to do more for myself and others that suffer with Arachnoiditis.

2 RyansHope

General Member of the Public

Rating: 5

I have followed iPain Foundation since i found Hope is True on youtube. The foundation seems tireless because of all the things they do to support chronic pain. I love reading iPain Living Magazine articles and stories to keep on top of whats happening. Its also fun to see who will appear next on the cover. I am a subscriber to the digital version of the magazine because i love the active links and videos that are embedded in the pages. Keep up the great work Barby, Ken and volunteers.

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7

Advisor

Rating: 5

I found IPain foundation when i was on youtube searching for a message of hope to advise people with my motivational speaches. Hope is True music video came up and quickly became a favorite in my playlist. The foundation is great at providing patients like myself with information to empower people with the message of hope. The song is unique, uplifting and energizing. The video is very creative and empowers me to never give up on hope. I love telling people Hope Is True. Thank you IPain.

3 Nicole812

Client Served

Rating: 5

Such an awesome charity. I love participating in their educational webinars, reading iPain Living Magazine, and interacting in their new Patient Partner Programs. I am so glad I found them and love everything they are doing!

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6

Client Served

Rating: 5

While waiting at my Dr.s office an iPain Living magazine had Jerry Mathers "The Beaver" on the cover and caught my attention. With time to kill I started flipping through the pages and found an article titled "My Spinal Cord Stimulator Journey". This article is exactly what i needed to hear before speaking with my Dr. When i met with my Dr he said it sounds like you have been doing a lot of research on spinal cord stimulators. I even felt like i was asking the right questions and when i left his office i was clear and confident with my decision. Feeling inspired by the article I took the magazine home to find out more about iPain Living as i had never heard of it before. I read every article in this issue and even made a visit to the iPain Foundation website. It turns out there is a digital flip version of the magazine and its free. I shared the article from this issue with a friend of mine right from my computer and read through the other issues as well. Just to let you know, I will be returning the magazine to my Dr.s office in hopes that it will help the next person as much as it helped me. I am sold on the magazine and what iPain Foundation is all about. Keep up the great work and know that you have made a difference in someones life you never met before.

3 TaraBurningPain

Client Served

Rating: 5

I became aware of iPain Foundation through watching videos on YouTube. I have found their videos very helpful to my life. Their webinar series has helped me and my family through difficult times. I suggest many of their videos to my friends as well. I live with constant burning pain and its nice to hear from others who understand and provide me with so many options.

11 Jodi O.

Volunteer

Rating: 5

The International Pain Foundation (iPain) is changing lives and giving hope to chronic pain patients worldwide. They provide hope, educational resources, support, mentoring and so much more. I have enjoyed being an iPain delegate and volunteer. I love the educational webinars they offer each month to help educate us about different chronic pain conditions. They also created a wonderful musical video called "Hope Is True". This song and video inspire and fill us with hope! I would like to thank iPain for offering us a way to help others and pay it forward.

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14

Volunteer

Rating: 5

I started volunteering in 2007 when the International Pain Foundation (iPain) was originally known as the Power of Pain Foundation (POPF). It has been exciting to see how they have grown and how they are reaching people all over the world. I found hope, and a way to help other people living with chronic pain. iPain offers Education, Awareness, Social events, and Access to care. Barby and Ken not only have changed my life, buy they are positively changing the lives of thousands of people on a daily basis. They offer conferences, monthly webinars, educational and fun videos, weekly newsletters, articles, and so much more. They have a website, and they are on Facebook, YouTube, and Twitter. I have been living with chronic pain for over 26 years, and after finding iPain, I have found a way to give back to other people living with chronic pain. They not only help those of us living with pain, but they offer hope, education and support to our caregivers, family, friends, and doctors. Barby has also written 7+books, and she and her husband Ken have also been on TV and radio, they have written newspaper, and magazine articles. The International Pain Foundation truly cares about people and it shows. Everyone including Barby and Ken volunteer their time. No one is paid. They not only raise awareness but they are raising funds so they can continue to offer help to pain patients all over the world for free. I am so thankful to be a volunteer for the International Pain Foundation and having the chance to work with Barby and Ken and other great iPain volunteers!

12 Chriss L

Donor

Rating: 5

I have followed their website and work and donated to International Pain Foundation for many years now. I love their projects and their personal assistance that they have given me and others I know in chronic pain. I will continue to support them and look forward to seeing whats next.

10

Professional with expertise in this field

Rating: 5

I have been involved with the International Pain Foundation since its inception back in 2006 (originally Power of Pain). I know that I have a team of people who are willing and able to assist me when I reach out to find resources for a pain patient in need. It has been my pleasure to be involved in so much of the goal setting and mission accomplishments of the foundation.

10 Barby I.

Board Member

Rating: 5

The reason I love International Pain Foundation (iPain) so much is because it works outside the box of the traditional projects to raise awareness and education for pain patients, caregivers, providers, and the public. All of the staff is volunteer from the board of directors to the event volunteers. Those who become delegates get to add their creative thoughts and actions to make a difference in the lives of those who live in pain. Most of the volunteers are pain patients themselves so that is very beneficial. I am so glad to have the amazing song Hope is True and the music video to raise hope, attention and awareness for those in pain. I look forward to the next adventure with International Pain Foundation! I also am very proud of the addition of iPain Living Magazine in 2016 as well as the Music Moves Awareness project, iPain Featurettes, and webinar series.

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15

Board Member

Rating: 5

The International Pain Foundation (iPain) is your Power of Pain headquarters. We have grown off of the Power of Pain Foundation which was created in 2006. Our former tax ID is 65-1298571. As President of iPain I am excited to continue the mission of the foundation to help chronic pain patients with education, awareness, social events and access to care issues. We have so many projects that have made a difference under our belt and so many great ideas and new and continuing projects to come. We look forward to your involvement as we take iPain around the world to make a difference in the lives of the over 700 million living with chronic pain diseases.

3

Donor

Rating: 1

I have a relative with RSD and wanted to help, so I donated to iPain, but in hindsight, I wish I could take back my funds. Those in charge seem more interested in their reality tv careers and fame than a cure. They also have a bizarre music video which really does nothing at all to advance the cause. I just would hate to think a single penny is being wasted when kids deserve a cure.

Comments ( 1 )

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iPain 04/27/2017

Please contact me and I can get your funds sent back. There are more than 1500 volunteers involved with iPain. As far as I know only my husband and myself do reality tv as a career. We choose to also volunteer our time to iPain. None of us are paid by iPain for our time, but all of us involved are very proud of the out of the box projects that we use for education and awareness. Please send me your name and information to barby@powerofpain.org and I will get you refunded. Blessings, Barby, iPain President.