I never had much experience with a nonprofit until I got involved with International Pain Foundation. Once I started getting involved with the daily workings of the foundation I realized how much work there is to run a successful organization. I volunteer my time as everyone does at iPain. As iPain projects have grown and become recognized it has become a part of me. I realized many people living with chronic pain (including myself) have many needs that require help. This is where iPain Foundation fills many of those gaps for people that dont have the answers. I am honored to sit on the board of the International Pain Foundation and look forward to broadening my views on the healthcare sysetem and how it effects all of the pain community.
The end of another year is quickly approaching. Knowing and understanding a lot of the issues the pain community faces on a daily basis, I feel that iPain Foundation is making a difference. iPain projects are high quality and far reaching bringing information, education and awareness to all corners of the world. Offering online, in person and now virtual education classes from highly qualified doctors and educators to inform the chronic pain community as a whole, iPain is a leader worth following. I look forward to investing my time, effort and energy to this organization that puts morals, ethics and transparency into everything they do from the beginning.
Another year brings on more opportunities to help chronic pain communities from all over the world. I never would have imagined the number of people we have reached at this point. Our projects are more defined and gaining traction all the time. Education and awareness have become very important to me. iPain out reach with new connections are helping bring access to care and new treatment options to pain communities all over the world. I enjoy seeing people get help from some small part I played in their life. This kind of gratification would be hard to match with anything else i could be doing. I intend to keep active and grow the foundation to have the biggest reach possible.
As a patient living chronic pain I am a strong supporter of iPain Foundation and the awareness projects they have done over the years. Chronic pain never stops and it seems they never stop advocating for not only 1 but many conditions involving chronic pain. I will continue supporting and spreading awareness of the great work iPain Foundation is doing for all of us. My favorite awareness project from iPain is called NERVEmber as it is all about nerve pain awareness and that is what i suffer with on a daily basis. Keep doing what you do best iPain.
Hello again, Just wanted to share another story about the iPain Foundation. Earlier this year I was able to receive a donation of Aspercreme Lidocaine patches for my lower back pain. Once I explained to Ken at the iPain Foundation my situation and how much they helped me and others i gave them to in my retirement community, he offered to me as many as i wanted not only for me but my retirement community. Over the period of a couple of months i was able to give 1000s of patches to people living in my community. It felt so good to help so many people i live around. It has also helped me gain friends and popularity inside my own community. I still have to this day, people telling me how much the patches have helped in their daily life. It was a blessing and exactly what people hope for with a charity helping without trying to make money off a valued product. I tell everybody about the iPain Foundation and how much they have helped me.
After getting help from iPain foundation last year I joined their email list and it is an easy way to stay in touch when I have questions. I recently went on an Alaskan cruise and asked Ken at the foundation what are some things i can do to make my cruise more enjoyable because i am on oxygen for my lung issues. Right away he suggested I rent a mobility scooter to make my trip more enjoyable. He found the company and phone number and even called them with me to make sure i got what i needed. I really dont think i would have rented a scooter without their help. The mobility scooter made my whole trip more enjoyable and many people on the cruise asked how to get a scooter so i got to tell them about iPain Foundation. I got to do about everything i wanted to do without getting tired at all and without the need of my heavy oxygen tank. I tell everybody about iPain and some of the things they do to help people like me.
I had the opportunity to work on and attend the Comic Pain Relief 2019 show and I loved it. All though i might be a little bias however the comedian Tommy Lama was awesome. I was truly relieved from my chronic pain during this event. It started off announcing the iPain Hero Of Hope and what a great inspiration to so many. I got to meet a few celebrities from one of my favorite shows Big Brother. I hope to be involved with this project every chance i have. Looking forward to the next Comic Pain Relief show and you can bet i will be telling everyone I know about CPR hosted by iPain Foundation.
My name is Cocao and I have worked with the iPain Foundation for several years now. I would like to say that this foundation keeps reminding me that Hope Is True. iPain supplies many resources to those looking for hope and I am blessed to be a part of it. I hope to be a part of it for many years to come and be a part of the hope they bring to the communities from all over.
Hope Is True
I love bringing awareness to rare conditions. Thats how i came a cross the iPain Foundation. They have an awareness project called NERVEmber and they bring awareness to 60 different conditions in the month of November. Many of them are rare conditions that people havent heard of before. I hope they keep up the great work and the great project NERVEmber.
Barby with the iPain Foundation help me find a ketamine infusion clinic in my area that accepted medicare. After my infusion i can say my fire burning pain is gone. I never thought this would happen for me after all these years and different treatments i have tried. I have a new beginning and i owe it to Barby at the iPain Foundation.
This is a fantastic organization that cares about patients and caregivers. Just recently i was given lidocaine pain patches from the iPain Foundation because they were given a donation from Aspercreme. They didnt try and make money for them and they were free to me and my family.
Hope Is True
We have moved the International Pain Summit to online for 2020. With covid19 going on we have had to rework many of our events and programs, but we still have many options and resources for so many pain patients. That is why I love International Pain Foundation & iPain Living Magazine. Check out www.internationalpain.org for info on all of our programs including our newest 5k fundraiser iWalk, iRun, iRoll for iPain because #IGiveACare!
Going into this year we now have our partner program up and running with patients, caregivers, providers and industry leaders. We are also selling our magazine in stores around the USA and Canada - iPain Living Magazine. But most exciting is that we are bringing back our pain conference - International Pain Summit and this year it will be in Los Angeles, CA Nov. 14-16, 2019. Check out www.internationalpain.org for info on all of our programs.
I still love the music video Hope is True by iPain. I watch it often and use the words as my mantra when I am having a bad day. This organization does so much to help me and others around the world living with chronic pain from being a phone mentor to me to running public awareness campaigns, to their ipain living magazine. I love reading iPain Living Magazine articles and stories and have learned a lot about my conditions (fibro being the worst for me). Thank you once again for another great year of successful advocacy and awareness.
I have followed iPain Foundation since i found Hope is True on youtube. The foundation seems tireless because of all the things they do to support chronic pain. I love reading iPain Living Magazine articles and stories to keep on top of whats happening. Its also fun to see who will appear next on the cover. I am a subscriber to the digital version of the magazine because i love the active links and videos that are embedded in the pages. Keep up the great work Barby, Ken and volunteers.
I would like to let everyone know just how thankful I am for the International Pain Foundation. They have provided me with support, hope and friendship. It has been exciting to watch them grow and reach patients from all over the world. They provide us with so many different programs we can participate in. This year they have a 3 day iPain Summit for patients and their caregivers. They have doctors and experts speaking on multiple topics, and it is a wonderful way to meet other chronic pain patients. You can also attend the Comic Pain Relief event and enjoy a evening filled with laughter and fun. My favorite new magazine is iPain Living Magazine. iPain is a wonderful organization because they genuinely care about patients.
I love everything JAZZY and iPain is the most Jazzy. I love participating in iPain awareness projects because they are educational in a unique way. This #NERVEmber is nerve pain awareness month and I signed up to be a #LoudMouthCrusader to spread as much awareness about nerve pain as i can.
Although I am no longer serving on the board of directors I have stayed involved as a volunteer and always look forward to supporting International Pain Foundation projects. I strongly believe that people in pain deserve the best care in getting diagnosed, and long-term. If you are looking for a charity to get involved with that is helping the chronic pain community this is a great one. I have written articles that were published in their magazine, spoken at in-person events sharing my personal journey with diabetes and hosted CPR and First Aid Training Classes through my company on behalf of iPain Foundation.
I am a proud member of the International Pain Foundation Board of Directors. It has been my pleasure to be involved in so much of the goal setting and mission accomplishments of the foundation. There are so many people who have helped the foundation grow and flourish over the years that it has been amazing to see how far and how many we have helped and how we are dedicated to continue our service to the chronic pain community. Thank you to all of our delegates, event volunteers, peer mentors, project directors, and board of directors for the time, effort and energy you put into making iPain the amazing NPO that it is with all volunteer staff and creative projects.
I have been volunteering with iPain for years now and I love working with all of the other volunteers I have met through the years. Because I live with disabilities I am not always as active as I want to be, but I did join the partner program and participate as I can online and in-person. Thanks for never making me feel like what I do provide is not enough. If I could do more, I would!
Being the director of the NERVEmber project this year and last has really helped me be more involved in this amazing organization. I hope everyone likes what we came up with for 2019's project as much as I do. The LoudMouth Crusader's will be in full effect this November and we have our 60 NERVEmber conditions chosen. We are ready for you to join us!
I started out as an event volunteer for International pain Foundation when they were dba as Power of Pain Foundation back in 2012. I have loved working with all of the staff on events in AZ, CA, and KS. I am now on the board of directors where I use my computer skills to help grow the foundations electronic platforms. I love being able to help and make a difference in the lives of those with chronic pain. I have many family members and now friends who live with the challenges of chronic pain. I love knowing that I have helped others live better lives and will continue to do so. I know my input is valued and my voice is heard.
International Pain Foundation is 1 in a handful of web sites that transpire to make a difference from beneath. My point of view iPain is undoubtedly nicely worth checking out.
Thank-you all at Ipain for always being so supportive.
Things are crazy with so many changes in the medical world. We need voices like yours and these advocates for standing up for those who can't.
Discrimination is brutal and unnoticed in the medical world. More need to know they are protected by civil rights.
Together we are making a difference.
I am so excited to see iPain bring back Comic Pain Relief and i plan to attend so i can finally meet Ken and Barby. Its great to watch all the different ways iPain promotes awareness and recognizes great advocates. I am most impressed with iPain Living digital magazine and how it links to so many people. It also plays videos right in the pages, how convenient. I share it with as many people as i can. Keep up the great work iPain.
iPain is an amazing organization. A friend referred me to the website for information on symptoms I was experiencing. Not only did I find answers I was looking for, I found out how i should be talking to my doctor. The organization is about getting information to the patients who need it most. I found webinars, books, videos, support groups, social media feeds and these are all available and so easy to share on their app. This organization has tons of information on different conditions, diseases, symptoms and treatments I never heard of before. Their information is fun to share and I look forward to getting involved with them soon. I called my friend and thanked her for leading me to this foundation and I have already shared with some of my friends.
iPain Foundation has helped me realize i'm not alone. I visit the website and follow there social media as a way to feel like a part of an organization that really cares. I am encouraged to see the Hero of Hope awards for patients like me and love how iPain empowers me to be part of something i can participate with, even in my condition. I also follow iPain because I feel like they are always actively spotlighting the patient.
I love how "iPAIN" brings awareness to a disease or condition. They taught me how to apply for a state proclamation that i used to share with my support group. This allowed me to empower others in my pain community to do the same. Arachnoiditis is a painful and debilitating condition that needs to be understood. You can visit iPain website to find out more about it and other conditions. Thank you iPain for empowering me to do more for myself and others that suffer with Arachnoiditis.
Such an awesome charity. I love participating in their educational webinars, reading iPain Living Magazine, and interacting in their new Patient Partner Programs. I am so glad I found them and love everything they are doing!
While waiting at my Dr.s office an iPain Living magazine had Jerry Mathers "The Beaver" on the cover and caught my attention. With time to kill I started flipping through the pages and found an article titled "My Spinal Cord Stimulator Journey". This article is exactly what i needed to hear before speaking with my Dr. When i met with my Dr he said it sounds like you have been doing a lot of research on spinal cord stimulators. I even felt like i was asking the right questions and when i left his office i was clear and confident with my decision. Feeling inspired by the article I took the magazine home to find out more about iPain Living as i had never heard of it before. I read every article in this issue and even made a visit to the iPain Foundation website. It turns out there is a digital flip version of the magazine and its free. I shared the article from this issue with a friend of mine right from my computer and read through the other issues as well. Just to let you know, I will be returning the magazine to my Dr.s office in hopes that it will help the next person as much as it helped me. I am sold on the magazine and what iPain Foundation is all about. Keep up the great work and know that you have made a difference in someones life you never met before.
I became aware of iPain Foundation through watching videos on YouTube. I have found their videos very helpful to my life. Their webinar series has helped me and my family through difficult times. I suggest many of their videos to my friends as well. I live with constant burning pain and its nice to hear from others who understand and provide me with so many options.
The International Pain Foundation (iPain) is changing lives and giving hope to chronic pain patients worldwide. They provide hope, educational resources, support, mentoring and so much more. I have enjoyed being an iPain delegate and volunteer. I love the educational webinars they offer each month to help educate us about different chronic pain conditions. They also created a wonderful musical video called "Hope Is True". This song and video inspire and fill us with hope! I would like to thank iPain for offering us a way to help others and pay it forward.
I started volunteering in 2007 when the International Pain Foundation (iPain) was originally known as the Power of Pain Foundation (POPF). It has been exciting to see how they have grown and how they are reaching people all over the world. I found hope, and a way to help other people living with chronic pain. iPain offers Education, Awareness, Social events, and Access to care. Barby and Ken not only have changed my life, buy they are positively changing the lives of thousands of people on a daily basis. They offer conferences, monthly webinars, educational and fun videos, weekly newsletters, articles, and so much more. They have a website, and they are on Facebook, YouTube, and Twitter. I have been living with chronic pain for over 26 years, and after finding iPain, I have found a way to give back to other people living with chronic pain. They not only help those of us living with pain, but they offer hope, education and support to our caregivers, family, friends, and doctors. Barby has also written 7+books, and she and her husband Ken have also been on TV and radio, they have written newspaper, and magazine articles. The International Pain Foundation truly cares about people and it shows. Everyone including Barby and Ken volunteer their time. No one is paid. They not only raise awareness but they are raising funds so they can continue to offer help to pain patients all over the world for free. I am so thankful to be a volunteer for the International Pain Foundation and having the chance to work with Barby and Ken and other great iPain volunteers!
I have followed their website and work and donated to International Pain Foundation for many years now. I love their projects and their personal assistance that they have given me and others I know in chronic pain. I will continue to support them and look forward to seeing whats next.
I have been involved with the International Pain Foundation since its inception back in 2006 (originally Power of Pain). I know that I have a team of people who are willing and able to assist me when I reach out to find resources for a pain patient in need. It has been my pleasure to be involved in so much of the goal setting and mission accomplishments of the foundation.
The reason I love International Pain Foundation (iPain) so much is because it works outside the box of the traditional projects to raise awareness and education for pain patients, caregivers, providers, and the public. All of the staff is volunteer from the board of directors to the event volunteers. Those who become delegates get to add their creative thoughts and actions to make a difference in the lives of those who live in pain. Most of the volunteers are pain patients themselves so that is very beneficial. I am so glad to have the amazing song Hope is True and the music video to raise hope, attention and awareness for those in pain. I look forward to the next adventure with International Pain Foundation! I also am very proud of the addition of iPain Living Magazine in 2016 as well as the Music Moves Awareness project, iPain Featurettes, and webinar series.
The International Pain Foundation (iPain) is your Power of Pain headquarters. We have grown off of the Power of Pain Foundation which was created in 2006. Our former tax ID is 65-1298571. As President of iPain I am excited to continue the mission of the foundation to help chronic pain patients with education, awareness, social events and access to care issues. We have so many projects that have made a difference under our belt and so many great ideas and new and continuing projects to come. We look forward to your involvement as we take iPain around the world to make a difference in the lives of the over 700 million living with chronic pain diseases.
I have a relative with RSD and wanted to help, so I donated to iPain, but in hindsight, I wish I could take back my funds. Those in charge seem more interested in their reality tv careers and fame than a cure. They also have a bizarre music video which really does nothing at all to advance the cause. I just would hate to think a single penny is being wasted when kids deserve a cure.
Please contact me and I can get your funds sent back. There are more than 1500 volunteers involved with iPain. As far as I know only my husband and myself do reality tv as a career. We choose to also volunteer our time to iPain. None of us are paid by iPain for our time, but all of us involved are very proud of the out of the box projects that we use for education and awareness. Please send me your name and information to email@example.com and I will get you refunded. Blessings, Barby, iPain President.
I am a chronic Pain Delegate for the International Pain Foundation.I am from Australia and I live with Fibromyalgia,Rheumatoid Arthritis,Migraines, Tempormandibulor Joint Disorder,Polymyalgia and Anxiety it's been fabulous working together with other fabulous delegates from around the globe raising much needed awareness for many chronic Diseases. The Ipain foundation are amazing check them out if u havn't already.
Barby Ingle, the founder of the International Pain Foundation, is an incredible inspiration for others who live with chronic pain, neuropathy, RSD, and other conditions. The internationalpainfoundation.org website has a wealth of information for patients, caregivers, friends, family or anyone touched by chronic pain. Barby, and other Foundation supporters are unique with a small-group atmosphere and a focus on individuals, yet they help people the world-over who are dealing with pain. Delegates are all friendly, positive, and encouraging. Though pain patients are often isolated and have difficulties volunteering their time and energy, this is a great place to be involved without pressure. I'm very thankful for this foundation.
I am a Ipain delegate from Ky. Ipain is such a wonderful organization we help people through education, resources, and advocacy to have a voice they often feel they have none!
I volunteer for ipain to help those in pain and maybe need just someone who understands, help parents with schools that often feel thier children are being in trouble for not being able to get out of bed because of the pains so bad the can't have clothes touching their skin, I also volunteer for me as a Pain PT with RSD that I hope that my work as a volunteer may save someone for years to come.
Ipain is a wonderful organization I have been very blessed to work with because this is a wonderful true organization whose President helps us and gives her all while she too has to deal with her pain. Barby is a visionary and can't wait to see what the future holds for us all.
I am a chronic Pain Patient that has suffered for many years due to Migraines, several Autoimmune illnesses, spinal issues, multiple joint surgery/replacements, & the gamut of medical issues goes on. Like so many, I had no "real" person or place in my local community to turn to. I "met" Barby online through Facebook,Twitter, & then discovered the IPF. I feel as if I have "support" mentally, physically & emotionally through the Foundation. I find a great deal of information here, & know that ALL of us are not only members, but patients also. Having a Chronic Pain issue & trying to "get through" to someone who does not have it, is almost impossible. That is why through the Foundation having all "patients", as well as Foundation members & advocates helps to give us a "louder" voice to physicians,the medical field, to the governmental bodies & helps to provide information to family members, friends & those who don't understand the horrible aspects of living in chronic daily pain, yet trying to have some kind of "normal life" as well. I am proud to be a part of the International Pain Foundation & admire each and every one of the members, the advocates, & the outstanding work they do to help ALL of us.
I am a chronic pain patient and I am a delegate in this fundation that helps people in pain like me. With this foundation I noticed that I am not the worse and I am not alone and its even better when we get to feel veterr because we were helped emotionaly bu other patients and we do great things for everyone
I am a volunteer and a pain patient. I volunteer because I want others to know we can live with and take control of our pain. I want others to know there is help and relief. I have been involved since 2013 and have learned so much about myself and chronic pain and what to give back to others what I did not have when things started in 2009 and the Foundation gives me that chance.
I have limited medical resources for RSD/CRPS in my state. International Pain Foundation has numerous resources for pain patients. It is a positive, caring organization. I have accessed many of their resources and referred people to the website for help. Barby and Ken have promptly responded to my questions and inquiries. I have never met them but I feel as though they are friends helping friends. Their hard work is state of the art and very much appreciated.
IPain is a great Foundation. It's ran by a lot of amazing people and I love being a part of it! Being able to advocate for people dealing with pain is what makes it amazing to me.
iPain has been a life-changer for me. I have found not only a group of peers, with whom I can support and information with, I have also found a place where I can utilize my talents to make a real difference. I feel empowered again, thanks to my part as a Delegate to International Pain Foundation.