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- EIN 42-1533098
- Po Box 321 Grand Haven MI 49417-0321 USA
- www.imdsa.org
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Nonprofit Overview
Causes: Birth Defects & Genetic Diseases, Developmentally Disabled Centers, Disabilities, Down Syndrome, Health, Human Services
Mission: International Mosaic Down Syndrome Association is designed to provide support, information and research to those touched by mosaic Down syndrome. IMDSA also strives to increase awareness in the medical, educational, and public communities throughout the world.
Programs: Because mosaic Down syndrome is a rare disorder, families seldom have the opportunity to meet with other families touched by this disorder. IMDSA provides a variety of programs to assist families and professionals in their search for information and support.3 international online support groups for families, individuals with mosaic Down syndrome, and professionals. Biennial Research & Awareness conference for all forms of Down syndrome. Informational brochures and fact sheets. Currently in English, Spanish and PortugueseQuarterly newsletter MOSAIC WORLD with information, stories, news, & research informationInformative websiteToll free hot-lineFamily Connect Program connects families according to age, medical condition and geographic locationResearch Connect Program connects researchers with interested participantsResearch Scholarship Program