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International Hyperhidrosis Society

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Nonprofit Overview

Causes: Health

Mission: It is our mission to promote hyperhidrosis research, educate physicians in optimal diagnosis and care, raise awareness about the condition's emotional and economic impacts, and advocate for patient access to effective treatments. As part of our mission, we continuously build programs that connect those who suffer from hyperhidrosis with those who provide care, while increasing public understanding of this debilitating medical condition.

Results: Educated hundreds of medical professionals in hyperhidrosis diagnosis and care; Provided bi-monthly e-newsletter to over 50,000 subscribers; Supported research and development of improved treatments; Millions of media impressions; Millions of visitors to our continuously-updated site: www.SweatHelp.org.

Target demographics: kids, adults, families suffering with excessive, uncontrollable sweating

Geographic areas served: Global.

Programs: physician education, research support, advocacy for sufferers, and public awareness.

Community Stories

151 Stories from Volunteers, Donors & Supporters

15 ltguy11

Volunteer

Rating: 5

I've been volunteering at IHHS ever since I was in high school and Lisa and the staff always treated me with care and respect. They go to great lengths to get the word out about hyperhidrosis and raise awareness about this disorder. I've known this organization almost since the beginning and seen them grow and do great things. Thanks to the work that is done, HH treatment and insurance coverage for it has come a long way. They're always in the know about upcoming treatments and work hard to facilitate progress in the field by interacting with scientists and companies that develop treatments for hyperhidrosis. There really is no other organization like this in the world.

Francisco Romero Amondarain

Volunteer

Rating: 1

Hello,

My name is Francisco, I'm from Madrid, Spain. I am 36 years old and I want to tell my story and the gratifying discovery of seeing that a great association such as the International Hyperhidrosis Society, represents and defends a community of those affected by hyperhidrosis.

Since I was little, I had hyperhidrosis in my feet, hands and armpits, people always accused me of being nervous, but I didn't understand why I kept sweating so much when I wasn't nervous.

The primary and secondary educational stage were very hard, shaking hands with a girl, playing with classmates, writing and taking notes, going out to play, etc. All school assignments caused me a significant drop in self-esteem, nobody understood me and many people looked at you and made very unpleasant comments with sweat.

My adolescent stage was hard, it was very difficult for me to shake hands with my partner, to be in any social event, to constantly smash my footwear because of excessive sweat. I started working very young and I had many limitations in practically all the jobs by sweating through the armpits and wetting any work uniform, shaking hands with clients and looking at you with a very unpleasant face, standing and sitting, feeling like Your feet were flooded.

Despite these limitations, I consider myself a warrior and worked, studied and played sports every day since I was a child, my life was very limited but I tried to normalize the situation as much as possible starting from a very unfair basis to compete with other normal people.

My last stage of life has been totally marked by the bilateral thoracic sympathectomy operation that, it is supposed, was going to end my limitations that I had been dragging since I was little with my main enemy, my own sweat.

Unfortunately, the results of the operation were not the desired ones and my complex sweating problem became a daily nightmare, a condemnation, a curse to suffer sweat all over my body, my problem with sweat far from improving, the situation worsened at 300%

I currently sweat through the following areas of my body and suffer the following damages:

- Half right face, half right head, half right neck.
- I do not sweat on the left half face, I do not sweat on the left half head, I do not sweat on the left half neck.
- When I sweat on the right half face, I don't sweat on the left side The entire left area of my head gradually heats up like a running engine.
- Severe headaches, especially in the area where my head overheats and does not sweat.
- I can not cry, I can not tear, my left eye does not produce tears, my right eye barely produces tears.
- I suffer from continuous fungal infections due to the constant moisture of my skin.
- I suffer damage to my skin due to dyshidrosis and seborrheic dermatitis.
- My mouth, tongue and throat dry, that produces a strong pain, I feel those areas burn. I worked as a telemarketer, in fact, it was the job I did best and for which it was worth. Today I can no longer work as a telemarketer, if I do, the consequences can be dire for me.
- I have electric shocks on lips and tongue.
- I have a huge thirst for the massive loss of water throughout the body.
- I sweat for the entire thorax.
- I sweat down my entire back.
- I sweat for the buttocks.
- I sweat for the genitals.
- I sweat for my whole legs.
- I sweat my feet.
- My left hand doesn't sweat.
- My right hand partially sweats.
- My armpits sweat partially.
- I suffer constant colds from temperature changes.
- I suffer strong fatigue when my whole body sweats at the same time.
- I suffer continuous voltage drops.
- I fall asleep during the day fleetingly under morbid sleep that I am not able to control.
- I suffer electric shocks in the Achilles tendons when walking and sitting.

The operation of bilateral thoracic sympathectomy has been the worst decision of my life, my whole life has collapsed and limited both socially, work and health. Personally I do not recommend this operation to anyone because of the many negative risks it has.

I wish I had known about the existence of the International Hyperhidrosis Society before the operation, from the moment it was founded. This association helps and supports all those affected by hyperhidrosis in the world and must enhance their performance and we, those affected by this terrible disease, must support it to continue growing and continue to represent us.

I will help, within my means, to make this association prosper and I will help all the people I discover with hyperhidrosis along the path of life that I have left.

Thank you,

Regards

1

General Member of the Public

Rating: 4

Greetings, my name is Regina and I live in Dallas, TX. For years I have had the heavy burden of profuse sweating from my head and face. It started in high school and has gotten progressively worse through the years. I can be doing something light or absolutely nothing and the pouring begins...and won't stop until it feels like it. As you can imagine, this is very frustrating in working situations, as well as the airport etc...I have read up on ETS and the thought of sweating in other places after the surgery scares me to death. Does anyone know of anything less invasive that could help me! I just ran across this non profit as I was doing research but I will certainly stay engaged from this point forward. Is there a study out there that I might be able to participate in that is less invasive than ETS??? Any guidance would be greatly appreciated. Thank you.

Signed,
Desperately seeking a cure

1

Volunteer

Rating: 5

I can not write English properly but i will simply put my case in few letters
So i am craniofacial hh patient
Yes i am a patient
When i make a small effort .. my face gets like swimming pool and i feel itchy
I think humidity is the second reason or the most trigger .
I feel not good when i get sweat all my face,head,neck and chest .
I feel not good
I will try oxybutynin and i will see

1

General Member of the Public

Rating: 5

Hi my name is Mary Ann and I have been suffering with hyperhidrosis from the age of 6. My parents were not even aware of it at the time. I got f's in penmanship all through school because my papers were a mess. We used fountain pens so you can just imagine what that does to a wet paper. High school was horrible. I didn't want to date or go to any dances. Square dancing was a requirement one year so I told my mother I was going to skip school if she did not write me an excuse. I married the first person that would have me because my self esteem was so bad I didn't feel worthy of any better. As you can imagine it did not last. I now have a wonderful man that is understanding of everything I am going through. I had a sympothecomy done 37 years ago and it worked great but now I sweat everywhere else below my shoulders and every year it gets worse. The doctor says they can't do anything about it because of the sympathectomy being done. For that reason I would not recommend having it done but at the time there was nothing else. I feel I won't make it through another summer sweating so badly that I am not really living life. I have to drink Gatorade all the time and change 4 times a day. I really want to help other people get through this even if it's to late for me. Thank you most sincerely (dressed in black)

General Member of the Public

Rating: 5

The international hyperhidrosis is terrific! I attended several of their events including their my hyperhidrosis podcast session, several of their poster presentations at the AAD, as well as their CME event in Washington DC. The organization provides education to the general public AND clinicians! In my opinion, this is what makes them so special. The staff is extremely caring and accommodating and have treated me as their own since day one. They do a lot of great work for the community and I am so thankful that I met Lisa and the rest of the team! They have changed my life for the better :)

2

Volunteer

Rating: 5

I couldn’t thank IHHS enough for what they did and do for me as well as the thousands of other sufferers. IHHS is the voice of countless people that are too embarrassed to seek treatment. Lisa and all of her staff are extremely welcoming, understanding, and knowledgeable. Without them, I wouldn’t have received today’s Botox injections.

1

Client Served

Rating: 5

As someone who suffers from palmar Hyperhidrosis, I have struggled for a long time to find a treatment that works for me. Luckily, IHS came to my city and opened my eyes to all the possibilities, and, more importantly, showed me that I was not alone.

1

General Member of the Public

Rating: 5

Wonderful demonstration......definitely learned a lot today......special thanks to Marilyn and Lisa!!! Way to go guys!!!

3

Client Served

Rating: 5

I have spent years explaining why I have water dripping down by face and in my eyes! People think something is wrong like a stroke, heart attack etc. very embarrassing so I lay low when I am in a group of people!

2 Sophia6

Client Served

Rating: 5

This organization has impacted the quality of my life dramatically! I’m forever indebted to their good works and service!! Sophia W. #sweatbegone!

Previous Stories

Professional with expertise in this field

Rating: 5

In short, the International Hyperhidrosis Society changes lives. I can say this because my life began the day I learned of IHHS and started receiving treatment. Suddenly I was managing my condition rather than it managing me.

After treatment a whole new me emerged. A confident, stronger, me. I quickly recognized that others were suffering in silence just as I once was. They deserved to live life without the symptoms this condition afflicts. They needed to be told help was available.

The IHHS is an invaluable resource for sufferers. Armed with the latest research and the brightest physicians, I knew I wanted to get involved to help spread the word.

As an advocate for the society I have seen first hand the good works this nonprofit does. Coast to coast they promote awareness, treat the condition, and educate. The IHHS improves the quality of lives for sufferers. Lives are changed. I have seen it.

Thank you IHHS and keep up the great work!

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2

Client Served

Rating: 5

Beyond grateful for this fantastic organization. So thankful for all of the work IHHS does on behalf of sweaty patients. IHHS gives patients a voice and a community and have positively impacted my life in many ways.

2

Client Served

Rating: 5

The IHHS is a great society that truly works to help better the lives of people suffering with hyperhidrosis. They are great at providing resources and information to suffers. They work closely with physicians to help spread knowledge and research. They really care about the people they work with.

3

Client Served

Rating: 5

What an amazing group of people leading this cause! I’ve never felt so comfortable and understood with a group of people through this condition. I can’t say enough good things about this society!!

1

Volunteer

Rating: 5

21 yr old female with severe hyperhidrosis The staff is very friendly and resourceful

1

Volunteer

Rating: 5

THE best group of people and support for an unknown condition that can totally take control of your life. They have been a blessing to me

2

Volunteer

Rating: 5

Hi I'm joy 21 yrs old suffering from hyperhydrosis . I hope someone could help me with the treatment. I really want to have a normal life like everybody and be totally me without having second thoughts of hanging out with others or wearing jackets every time I go out. I really pity myself for having this condition since childhood. I hope some would support me overcome this condition and be finally free from it.

4 MyLifeAsAPuddle

Client Served

Rating: 5

Thanks to the International Hyperhidrosis Society I can finally stop apologizing for who I am. They changed my life 8 years ago at their Hyperhidrosis Master Class. Understanding, compassionate and unbiased, they saw me and my hyperhidrosis not as a profit-making venture but as something they could help me treat, manage and feel better about while at the same time educating dermatologists on the front lines to recognize the condition by name.

Previous Stories
6

Client Served

Rating: 5

The IHHS gave me the strength, courage, and gusto to stop hiding my sweating secret. I received treatment at one of their CME symposiums. When I arrived and saw the signage proclaiming excessive sweating and read all the stories about people just like me, it was incredibly validating. I could finally sit in a room and sweat without any worries, while at the same time listen to experts who are pioneers in the field and who offer treatments of hope. When I left the symposium that day, I felt like a million bucks. A palpable shift occurred within me that was rather unexpected. As a result of my interactions with Executive Director Lisa Pieretti, I was inspired to launch a blog called My Life as a Puddle to create hope and awareness one drop at a time. The care, attention, and understanding of those at the IHHS is astounding. They GET IT. That day was more than just a CME symposium and an opportunity for treatment. It was about validation, courage, strength, and being seen and physically touched by all of the IHHS staff without having to worry about what they thought of my sweating. I can be changed by my circumstances, but not reduced by them. Maya Angelou once said, “Beauty and strength can be found in adversity.” I thank the IHHS deeply for helping me on my way to find mine.

2 Elle Marie D.

Client Served

Rating: 5

The International Hyperhidrosis Society is such a great resource for people looking for support for hyperhidrosis or for anyone wanting to know more about hyperhidrosis! I am beyond thankful for the International Hyperhidrosis Society! Before finding the International Hyperhidrosis Society, I thought I was alone with Hyperhidrosis, but thanks to them, I’ve actually built up the courage to share my story with the world!

I was one of four #MyHhStory Audio Project winners in March of 2019. From the moment my husband and I arrived in Washington DC, Marilyn and Lisa were so kind, caring, and helpful to us. I was so honored to be a part of a project that was so powerful and moving. I truly believe that the International Hyperhidrosis Society really cares about making a difference for people with Hyperhidrosis; I can’t wait to see what they accomplish in the future!

2

Client Served

Rating: 5

As the mother of a daughter who has excessive sweating of the hands and feet, I can attest to the negative impact it has had on her life since childhood. We are grateful for the support of the IHhS and for the increasing public awareness they provide. Let’s work together so the patients do not have to suffer in silence!

3

Client Served

Rating: 4

My name is Rita and I suffer from Hyperhidrosis of the head and face. This is really upsetting as I m a dance teacher who is expected to dance with different students, but the least exertion starts my head and face pouring with sweat. This has been happening now for the past 6 years. The doctor gave me some tablets that are called Oxybutynin , but they have increased my weight considerably. I would love dearly if someone could please please help me.