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International Hyperhidrosis Society

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Nonprofit Overview

Causes: Health

Mission: It is our mission to promote hyperhidrosis research, educate physicians in optimal diagnosis and care, raise awareness about the condition's emotional and economic impacts, and advocate for patient access to effective treatments. As part of our mission, we continuously build programs that connect those who suffer from hyperhidrosis with those who provide care, while increasing public understanding of this debilitating medical condition.

Results: Educated hundreds of medical professionals in hyperhidrosis diagnosis and care; Provided bi-monthly e-newsletter to over 50,000 subscribers; Supported research and development of improved treatments; Millions of media impressions; Millions of visitors to our continuously-updated site: www.SweatHelp.org.

Target demographics: kids, adults, families suffering with excessive, uncontrollable sweating

Geographic areas served: Global.

Programs: physician education, research support, advocacy for sufferers, and public awareness.

Community Stories

115 Stories from Volunteers, Donors & Supporters

12 ltguy11

Volunteer

Rating: 5

I've been volunteering at IHHS ever since I was in high school and Lisa and the staff always treated me with care and respect. They go to great lengths to get the word out about hyperhidrosis and raise awareness about this disorder. I've known this organization almost since the beginning and seen them grow and do great things. Thanks to the work that is done, HH treatment and insurance coverage for it has come a long way. They're always in the know about upcoming treatments and work hard to facilitate progress in the field by interacting with scientists and companies that develop treatments for hyperhidrosis. There really is no other organization like this in the world.

2

Volunteer

Rating: 5

Hello,
I have been blessed with the opportunity to volunteer with this organization. My severe Hyperhidrosis has led me to seek countless remedies. This organization provided support resources and education on how to cope with this condition. I have worked closely with the team and I cannot wait to the success of this organization.
THANK YOU!

Previous Stories
2

Volunteer

Rating: 5

The International Hyperhidrosis changed my life. I have been suffering from this condition all my life, it wasn't until now that i decided to do something about it. After reading the stories and information on the website i decided to contact them. I was able to receive free treatment as well as the chance to be a part of this community. I have met some great individuals who continue to inspire me. Some of them include Sophia wastler and Lisa Pieretti. I am now an active volunteer for the organization and continue to raise awareness by educating schools about the condition. I am honored to be part of this organization and will continue to do my part as long as i can.

1

Client Served

Rating: 5

I have suffered from hyperhidrosis for most of my life and for years I felt isolated by my condition. I was fortunate to find the International Hyperhidrosis Society, an incredible resource for patients suffering from hyperhidrosis. IHhS is a true advocate, committed to furthering research and educating patients and healthcare providers about the causes, management and treatment of hyperhidrosis. The physicians and staff at IHhS are extremely knowledgeable and take a completely hands-on approach with patients to truly understand their needs and concerns. I have continued my treatment with physicians who contribute to IHhs and am happy to give back where and when I can.
On a personal level, IHhS has afforded me the opportunity to meet other individuals with hyperhidrosis and to finally realize that my condition not unique and I am not suffering alone! I encourage anyone who has suffered, or who knows someone who suffers from hyperhidrosis, to connect with IHhS. Their comprehensive website provides all of the latest information, research and tools available to patients. There is a great community available for support!

Previous Stories
1

Client Served

Rating: 5

I have suffered from hyperhidrosis for most of my life and for many years have felt isolated by my condition. I have been fortunate to find the International Hyperhidrosis Society, an incredible resource for patients suffering from hyperhidrosis. IHHS is a true advocate, committed to furthering research and educating patients and healthcare providers about the causes, management and treatment of hyperhidrosis. The physicians and staff at IHHS are extremely knowledgeable and they take a completely hands-on approach with patients to truly understand their needs and concerns.

On a personal level, IHHS has afforded me the opportunity to meet other individuals with hyperhidrosis and to finally realize that my condition not unique and I am not suffering alone! I encourage anyone who has suffered, or who knows someone who suffers from hyperhidrosis, to connect with IHHS. Their comprehensive website provides all of the latest information, research and tools available to patients. There is a great community available for support!

1

General Member of the Public

Rating: 4

Can someone please help me I've just been to granddaughters christening I had to leave my hair was dripping wet sweat running down my face so embarrassing

1

Client Served

Rating: 5

I have had severe hyperhidrosis most of my entire adult life. It has stopped me from socializing and made me very uncomfortable in social settings. My favorite is when people proclaim stuff like, "Geez, you're sweating a lot!". Thanks,.. I haven't noticed.. Thank good there is a site that is dedicated to help those who have this condition.

3

General Member of the Public

Rating: 5

I been sweating for a good many years now. I am to the point I can not stand it anymore Whenever I move around my whole body gets soaked. I change my clothing 3x a day. When I sit on a chair you can see a wet spot where I sat. It"s bad.My hair gets soaking wet and drjps. I take alot of medicine, Fentanyl patches, Vicodin, Lyrica, blood pressure.Maybe some of this is causing it but why is it only when I move around? Can you help?

1

General Member of the Public

Rating: 4

I had been looking everywhere trying to find an answer for Hyperhidrosis but no luck with anything in Australia. I just kept getting a diagnosis of the sweating but no clue to finding a solution to the problem. Kept searching and came across the International Hyperhidrosis Society's site.
I have to congratulate them on giving more answers than I had been able to find with all my other searching I had done. I found this to be a thorough, friendly and helpful place to look for answers. I was sent the latest information regarding this condition with names of professionals to contact here in Australia.
I hope this Society gets all the support they deserve to continue their excellent work. Thanks from a very grateful Aussie.

1 Deb_65

Volunteer

Rating: 5

I volunteer for this organization and they are well-organized and really care about their patients. They go out of their way to make sure that sufferers are made aware of the disease and any upcoming treatments and studies. I have volunteered for many organization and they are a top-notch non-profit!

2 Evan11

General Member of the Public

Rating: 5

Christine was very helpful with all my questions. I appreciated her thorough e-mail.

1

General Member of the Public

Rating: 5

Wow! What an amazing organization that truly cares about people! What a great source of support and information. Everyone that I have come in contact with at the organization is professional and has such compassion! Thank you IHHS for the work you do to help those who have hyperhidrosis!

1

Professional with expertise in this field

Rating: 5

I first learned about hyperhidrosis through a client I worked with at a behavioral clinic. I saw the debilitating effects of hyperhidrosis on a child worked with first hand. Daily, the child would struggle to hold utensils, writing tools and even simple toys that required assembly were difficult tasks. More heartbreaking not only as a therapist, but as a parent, was the constant teasing from classmates when they were required to sit near or hold the child's hands for a group activities. Comments were frequently made about how "wet" and"gross" the child was.
The parents sought treatment options, and were given the "first line of defense", Botox to reduce the symptoms of her excessive sweating. Unfortunately it was not effective and they declined further treatment due to side effects. If only they had they had known of the many options that are available, perhaps the outcome would have been different.
Being introduced to the International Hyperhidrosis Society has given me that opportunity and the tools to provide options for those seeking treatments. Not a size fits all options for those suffering hyperhidrosis! Not only has the organization further informed me about hyperhidrosis, the available treatments, awareness for patients and doctors, and provided invaluable information regarding studies that can help provided treatments for those suffering with the many forms of hyperhidrosis.
Thanks to the work and dedication of Lisa Pieretti, and her medical friends, countless volunteers, advocates those suffering with hyperhidrosis, they now have hope and options with the International Hyperhidrosis Society.

General Member of the Public

Rating: 5

I just recently learned about hyperhidrosis and I'm surprised at the number of people suffering from this condition . I have been totally impressed by the dedication and endless hours that has been but into IHHS by Lisa and her staff. They have a true passion for helping everyone effected , in such a loving and caring way I feel privileged to have been able to learn from them this past week.

1

Professional with expertise in this field

Rating: 5

What a valuable non-profit organization which is committed to making a difference in so many lives! I did not realize the numbers of people who suffer from this embarrassing and limiting condition until I became educated on hyperhidrosis by chatting with individuals who suffer. The IHHS website SweatHelp.org offers the most up to date education, informational programs and opportunities to participate in clinical trials with investigational drugs which will hopefully make a difference. Lisa Pieretti is one of the highly dedicated and professional individuals who make this organization tick! I totally recommend the expertise and assistance of this nonprofit group.

1

General Member of the Public

Rating: 5

The International Hyperhidrosis Society was created to help people who suffer with this condition in the most loving and compassionate way possible. Everyone involved deeply cares about those with Hyperhidrosis. A combination of research, education and outreach is helping people who may otherwise have nowhere to turn. I am very impressed with both the mission and the people of the International Hyperhidrosis Society.

1

General Member of the Public

Rating: 5

I have just recently learned about this wonderful organization. They are kind, caring and have such a passion for helping people with Hyperhidrosis. It truly is an honor to work with them.

1

General Member of the Public

Rating: 5

I was surprised as a registered nurse that I had never heard of the disease HH. I was saddened to learn about the many people who are suffering in silence. The IHHS is truly an amazing organization! They are bringing awareness to the general public about this condition (and the medical community as well). They are connecting patients with physicians who are knowledgeable about HH and it’s treatment options. IHHS is also promoting cutting edge research for new treatments. All of this is being done with so much compassion for the people who are suffering from this disease. What a wonderful organization!

1

General Member of the Public

Rating: 5

I recently became involved with IHHS, and am amazed by the dedication the organization has to improving the lives of those suffering from Hyperhidrosis. The organization has tackled a large array of issues in a relatively short amount of time-- from research to support to education to treatment--all in an extremely compassionate manner. The organization, its work, and especially its well-organized and updated website serve as a place where someone suffering from this condition can truly "one-stop shop" for all the information they need to learn about living with excessive sweat, understanding that they are NOT alone, and options for potentially improving their struggle with this condition. Many thanks to everyone at IHHS who works tirelessly to improve the lives of those living with Hyperhidrosis!

4

General Member of the Public

Rating: 5

This is the ONLY organization that understands WE are out here and need their help. They continue researching and always share any help they can to hyperhydrosis sufferers. I've had this condition since I was a teenager... now 38 and I've tried everything over the counter and many prescriptions. Over the counter products do not work and most prescription solutions have nasty side effects. There are medical solutions out there but many are temporary and not covered by insurance. Without the International Hyperhydrosis Society - we wouldn't be getting anywhere and the information wouldn't be out there in the world letting everyone know - THIS IS A REAL CONDITION and those who are suffering ... you are NOT ALONE.

3

General Member of the Public

Rating: 5

Really the only place I have found ( and I rigorously have been searching)that is aggressively trying to help and address relief from this ignored and debilitating condition.
http://www.Sweathelp.org
www.Sweathelp.org

3 Irene13

General Member of the Public

Rating: 5

being in a stressful situation waking up perspiring before my brain was awake I went to the doctor and luckily a rep had just left and the doctor caught up with him and took one of his samples and gave it to me it was driclor it was wonderful it helped my stress levels and was effective from the start irene

5

Client Served

Rating: 5

Really the only place I have found ( and I rigorously have been searching)that is aggressively trying to help and address relief from this ignored and debilitating condition.