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International Hyperhidrosis Society

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Nonprofit Overview

Causes: Health

Mission: It is our mission to promote hyperhidrosis research, educate physicians in optimal diagnosis and care, raise awareness about the condition's emotional and economic impacts, and advocate for patient access to effective treatments. As part of our mission, we continuously build programs that connect those who suffer from hyperhidrosis with those who provide care, while increasing public understanding of this debilitating medical condition.

Results: Educated hundreds of medical professionals in hyperhidrosis diagnosis and care; Provided bi-monthly e-newsletter to over 50,000 subscribers; Supported research and development of improved treatments; Millions of media impressions; Millions of visitors to our continuously-updated site: www.SweatHelp.org.

Target demographics: kids, adults, families suffering with excessive, uncontrollable sweating

Geographic areas served: Global.

Programs: physician education, research support, advocacy for sufferers, and public awareness.

Community Stories

128 Stories from Volunteers, Donors & Supporters

13 ltguy11

Volunteer

Rating: 5

I've been volunteering at IHHS ever since I was in high school and Lisa and the staff always treated me with care and respect. They go to great lengths to get the word out about hyperhidrosis and raise awareness about this disorder. I've known this organization almost since the beginning and seen them grow and do great things. Thanks to the work that is done, HH treatment and insurance coverage for it has come a long way. They're always in the know about upcoming treatments and work hard to facilitate progress in the field by interacting with scientists and companies that develop treatments for hyperhidrosis. There really is no other organization like this in the world.

2

General Member of the Public

Rating: 5

Hi. My name is Jonathan Headrick. I am 35 years old. I have the condition of hyperhidrosis. In high school, I was very outgoing, energetic, confident, bold- a social butterfly if you will. My earliest memory, or symptom, was two wet spots underneath each armpit after sitting in an air conditioned room. I was 18. Over the next few years , the sweating increased tenfold. Although social situations seem to trigger the excessive sweating, it eventually got to the point of upon awakening in the mornings my palms and underarms would be sweaty. I began to isolate, stopped going out with my friends, and became very self-conscious of my condition. I packed multiple shirts to carry with me everywhere I went. Due to my increased awareness and self-confidence depletion, I developed a nervous disorder. By age 21, I had almost became a loner. The only thing I found that was semi effective, was alcohol. Although the next day, the sweating was back to normal(per say) if not a little more than normal, yet during the times that I drank, it subsidied. I tried different types of deodorant, a hand cream, different types of medication, but all were ineffective. Plus the only effective solution I had found, alcohol, wasn't a reasonable answer. At age 24, I decided to have the ETS surgical procedure. A guy that I work with saw a commercial on TV advertising the condition and the surgery. I jotted the number down , called the 1-800 number, made an appointment, and 3-months later booked a flight to Hollywood Florida and had the procedure done. That was 11 years ago. Since then, I have been unable to enjoy any of outdoor activities. The compensatory sweating, which I was briefly conversed with about, has been extreme if not debilitating. My palms, since that day, have not perspired in the least way. As a matter of fact they stay so dry I have to put a different kind of cream on them now. My stomach and back sweat profusely when I get a little warm, not hot, a little warm. When i get hot the sweating is unlike anything anyone im around has ever witnessed. Within 30 minutes, my shirt, pants, socks and shoes are soaked. I look as if i have just gotten out of a swimming pool. I have been hospitalized over a half-dozen times due to dehydration. I do not recommend the ETS procedure. It has cost me a career in land surveying, due to the inability to work outdoors. I'd rather still be dealing with sweaty palms and bad nerves.

1

General Member of the Public

Rating: 5

Im now 12 years old and i cannot take palmar Hyperhydrosis anymore. Its too much. I have it very severe and i keep getting into trouble for not doing my work because my hands are sweaty. Most of my teachers dont believe it and make me do my work. I am a very religious person and i go to mass every sunday. But every time the priest tells us to give the sign of peace everyone looks at me and laughs. The other day at dance i was doing a piece and i slipped and fell because Hyperhydrosis triggers my feet too. Everyone started laughing at me. My parents are doing everything they can to help me. But antiperspirants do not work. I know i am only 12 but i will not stop helping until we find a cure. Palmar Hyperhydrosis is truly the most confidence wrecking disorder. And i wish it upon no one.
Lourdes x

2

Client Served

Rating: 5

IHhS is such a great organization. Most people would not think that sweating more than average is a big problem, but if you are one of the affected people, you know how troublesome it is. It is extremely helpful to know that other people understand the issues that people with Hh face. Knowing that doctors and other caregivers are trying to find a solution is very encouraging. Without IHhS, those of us suffering from Hh would not have a voice. Because of IHhS, I have found out about treatment options I did not know existed and I have been able to discuss strategies for dealing with this condition with other people who have it. I am so grateful to IHhS for helping to bring hyperhidrosis in to focus for the medical community, the FDA, and sufferers.

1 Gary O.

Donor

Rating: 5

IHhs is a phenomenal non-profit that brings attention, services, and treatment for people that need it. I have been extremely impressed with how the organization is run, and feel confident that my donations go straight to the cause.

1

Client Served

Rating: 5

Lisa and her staff and this excellent and helpful entity have been great with informative emails, invites (and later attendance for me) to free clinical trials, and as well keeping all of us HH sufferers informed on new treatments and such. Making others aware of the miserable HH condition has been a positive as well, and I really appreciate all that they do! Keep up the good work and compassion! I thank you.

1

Professional with expertise in this field

Rating: 5

I am a Dermatology Technician and also a Practice Outreach Representative for a large dermatology practice. I have had the opportunity, over the years, to volunteer with the IHHS and the testimonies from individuals who are experiencing hyperhidrosis will really hit you in the heart. Their quality of life is drastically improved with the knowledge the IHHS shares with them and then a treatment plan. I am out in the community and lecture to over 10K people a year and it never fails that I meet someone who has hyperhidrosis and they are not aware that this is a real condition that is treatable. It is with a great deal of pride that I tell them about IHHS. We all must work together to keep spreading the word!

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3

Professional with expertise in this field

Rating: 5

I work in a busy dermatology practice and I have had the opportunity to also be involved directly with the IHHS on some of their training sessions throughout the country. The most rewarding part of my day is hearing the testimony of the patients. I sometimes feel I leave with a more rewarding experience than the patient. When I took my own, then teenage daughter, to the pediatrician with hyperhydrosis of the hands he said it was part of adolecence. We need every speciality to be educated that there is help for these patients. When you assist in treatment for a patient who has to alter their daily activities due to sweating and they call you back to say they are dry and how much their lives have changed with the help they have been given, that busy day all becomes worth it! There has been the police officer who could not pull his gun from the holster due to wet hands, the public speaker who had forehead sweating so bad it dripped in his eyes, the teacher who could not use chalk, the student who could not do projects with markers because the ink would smudge, the hair dresser who could not hold the curling iron with wet hands, the stories are endless but I am sure space here is limited and others need to post. IHHS is wonderful and treatments are available!

2 Yasmin K.

Volunteer

Rating: 5

I feel so honored to know about International Hyperhidrosis Society. The society and people working for this organization has given me a reason to live and to believe in miracles.
I have suffered with hyperhidrosis (Non-stop sweating) for 45 years until I came to know about this wonderful organization that gave me a hope and second a chance of living with dignity and positivity.
It changed my life and my prospective completely.
Today I feel positive, confident and I feel I can help others guiding them towards this society so they can start believing; yes there is a help and help through wonderful Non-profit organization such as International Hyperhidrosis Society. Committed to helping people like me. Say no to suffering and say yes to treatment is what I learned through this society.
Thank you International Hyperhidrosis Society. Thank you Executive Director, Lisa J. Pieretti for all your efforts towards changing lives of those suffering from Hyperhidrosis. Thank you Dr. Dee Anna Glaser, IHhS President. Thank you Dr. David M. Pariser, Secretary and Founding Member, International Hyperhidrosis Society, Professor, Department of Dermatology for all your on-going dedication towards IHHS.

Previous Stories
7

Volunteer

Rating: 5

I would like to thank International Hyperhidrosis Society and all the organizers and donors who made it possible to give us an opportunity to try out a free treatment and attend a workshop as volunteer patients. Receiving a botox treatment was amazing experience. I never thought something like botox would stop my sweating for few months. Having been suffering all my years with type 4 excessive sweating on my palms and feet and learning about the research scientist and the organization are doing was an amazing experience. I look forward to attend again given an opportunity once again. It was a dream come true being free from suffering. I hope there is more and more research on this. People like us suffer silently. No one can know our suffering unless you are in that situation. I truly hope and pray that there will be cure that is available for all the people suffering. Thank you once again for changing our lives even though it's for short time of period.

1

Client Served

Rating: 5

I was researching my condition a few years back and I came across the website for International Hyperhidrosis Society and since then it truly has been life changing for me. I have suffered from hyperhidrosis all my life and now that I’m older it has gotten worse. Since I found this organization I have been able to be helped in different ways. I have a wealth of information of products and methods that I have been able to use to be able to help me with this condition. The support that I have had is remarkable. Just when I thought I was the only one with this condition, I have since found others who share this horrible disease. Knowing that I am not alone, is empowering. Lisa is truly a remarkable person. She has made me feel the love and support that has helped me a great deal. I thank you International Hyperhidrosis Society many times over. You are truly a wonderful place that I as a sufferer can find whjat I need to have a better quality of life. Thank you!!!!!

1

Client Served

Rating: 5

My name is Balla-Rena Jones and I live in Florida. Three summers ago I was a wits end due to my excessive sweating. I had called every where down here and then one of the doctors told me to call the Inernationally Hyperhidrosis Society. That day I spoke to Lisa and she told me that I had something called hyperhidrosis and that there were other people who had this disorder. I had never heard of Hyperhidrosis let alone thought anyone else had this sweating problem. All I know I had been crying my eyes out and I told my husband if this is the way I am going to live out my life I didn’t want to live.
Lisa was so kind and compassionate with me and shared many stories with me. Being 67 I found comfort in her stories then she informed me with regards to the symposium that was going to be held in Washington DC. She saved my life that day!
I went to the symposium and I got to meet other people Who had the same problem I had what a relief that was. I have made some very good friends because of Lisa. Her kindness and love was so appreciated.

1

General Member of the Public

Rating: 5

I learned about the International Hyperhidrosis Society when the daughter of my best friend was diagnosed with this condition. I was impressed by the detailed information IHS provided regarding the personal challenges everyone affected by the condition face on a daily basis, along with treatment options. I applaud the patients and professionals who continue to bring greater awareness to hyperhidrosis.

1 cavkosh

Client Served

Rating: 5

IHHS has been a wonderful organization that has helped me tremendously. They are all so kind & I am so grateful to have been able to meet other hyperhydrosis sufferers through this organization.
My experience with them has truly been life changing - they have given me much hope ❤️

1

Client Served

Rating: 5

IHhS has always been very supportive and promotes a positive community in the Hh world. I am grateful for the opportunities this organization has provided me.

1 Jake T.

Client Served

Rating: 5

I'll forever be grateful for this organization. Ever since I joined their email list, I was able to get valuable information about the different types of hyperhidrosis and was able to include myself in a clinical trial thanks to their recommendation.

Although we are only 5% of the population, they strive to find ways to help us find the CURE. Thank you!

Previous Stories
7

General Member of the Public

Rating: 5

I have nothing else but good things to say about this organization. They are very supportive with people suffering from HH and they continue to strive day in and day out to find THE CURE! Thank you so much for everything!

1

Volunteer

Rating: 5

I was blessed with the opportunity to meet the leaders of this organization. They are so full of love & compassion for the people that are dealing with this issue! They paid for my travel expenses to speak to the FDA in D.C. about looking into more solutions for ppl suffering with hyperhidrosis. I was completely overwhelmed by the experience and forever grateful!

3

Volunteer

Rating: 5

Hello,
I have been blessed with the opportunity to volunteer with this organization. My severe Hyperhidrosis has led me to seek countless remedies. This organization provided support resources and education on how to cope with this condition. I have worked closely with the team and I cannot wait to the success of this organization.
THANK YOU!

Previous Stories
3

Volunteer

Rating: 5

The International Hyperhidrosis changed my life. I have been suffering from this condition all my life, it wasn't until now that i decided to do something about it. After reading the stories and information on the website i decided to contact them. I was able to receive free treatment as well as the chance to be a part of this community. I have met some great individuals who continue to inspire me. Some of them include Sophia wastler and Lisa Pieretti. I am now an active volunteer for the organization and continue to raise awareness by educating schools about the condition. I am honored to be part of this organization and will continue to do my part as long as i can.

2

Client Served

Rating: 5

I have suffered from hyperhidrosis for most of my life and for years I felt isolated by my condition. I was fortunate to find the International Hyperhidrosis Society, an incredible resource for patients suffering from hyperhidrosis. IHhS is a true advocate, committed to furthering research and educating patients and healthcare providers about the causes, management and treatment of hyperhidrosis. The physicians and staff at IHhS are extremely knowledgeable and take a completely hands-on approach with patients to truly understand their needs and concerns. I have continued my treatment with physicians who contribute to IHhs and am happy to give back where and when I can.
On a personal level, IHhS has afforded me the opportunity to meet other individuals with hyperhidrosis and to finally realize that my condition not unique and I am not suffering alone! I encourage anyone who has suffered, or who knows someone who suffers from hyperhidrosis, to connect with IHhS. Their comprehensive website provides all of the latest information, research and tools available to patients. There is a great community available for support!

Previous Stories
2

Client Served

Rating: 5

I have suffered from hyperhidrosis for most of my life and for many years have felt isolated by my condition. I have been fortunate to find the International Hyperhidrosis Society, an incredible resource for patients suffering from hyperhidrosis. IHHS is a true advocate, committed to furthering research and educating patients and healthcare providers about the causes, management and treatment of hyperhidrosis. The physicians and staff at IHHS are extremely knowledgeable and they take a completely hands-on approach with patients to truly understand their needs and concerns.

On a personal level, IHHS has afforded me the opportunity to meet other individuals with hyperhidrosis and to finally realize that my condition not unique and I am not suffering alone! I encourage anyone who has suffered, or who knows someone who suffers from hyperhidrosis, to connect with IHHS. Their comprehensive website provides all of the latest information, research and tools available to patients. There is a great community available for support!

2

General Member of the Public

Rating: 4

Can someone please help me I've just been to granddaughters christening I had to leave my hair was dripping wet sweat running down my face so embarrassing

2

Client Served

Rating: 5

I have had severe hyperhidrosis most of my entire adult life. It has stopped me from socializing and made me very uncomfortable in social settings. My favorite is when people proclaim stuff like, "Geez, you're sweating a lot!". Thanks,.. I haven't noticed.. Thank good there is a site that is dedicated to help those who have this condition.

4

General Member of the Public

Rating: 5

I been sweating for a good many years now. I am to the point I can not stand it anymore Whenever I move around my whole body gets soaked. I change my clothing 3x a day. When I sit on a chair you can see a wet spot where I sat. It"s bad.My hair gets soaking wet and drjps. I take alot of medicine, Fentanyl patches, Vicodin, Lyrica, blood pressure.Maybe some of this is causing it but why is it only when I move around? Can you help?

2

General Member of the Public

Rating: 4

I had been looking everywhere trying to find an answer for Hyperhidrosis but no luck with anything in Australia. I just kept getting a diagnosis of the sweating but no clue to finding a solution to the problem. Kept searching and came across the International Hyperhidrosis Society's site.
I have to congratulate them on giving more answers than I had been able to find with all my other searching I had done. I found this to be a thorough, friendly and helpful place to look for answers. I was sent the latest information regarding this condition with names of professionals to contact here in Australia.
I hope this Society gets all the support they deserve to continue their excellent work. Thanks from a very grateful Aussie.