I have found their website to be an incredible resource that has made a huge difference to me and my family. So many free resources to help you research treatment options and make plans for how to get through the bad days. The peer support though is what really blew me away. On one particularly bad day where I felt totally desperate and I couldn't get a hold of my husband or my one supportive friend and felt like I was imploding, I contacted the peer support and within half an hour or less I was chatting online with someone who totally got it. Got me, got PMDD, got what I was going through and for the first time in my life said the right things! Said things that actually helped when I didn't know there was anything anyone could say to help. (I made sure to tell my husband exactly what those things were that night at home) That conversation is still with in me head on the bad days. I didn't choose this, this is not my fault, I have gotten through every other bad day I've had.... Phenomenal! And obviously easy to access as I wasn't capable of much that day. You can pick your preferred method of communication too. For an introvert like me who is a little socially awkward and uncomfortable on the phone chatting online was perfect. Thanks IAPMD! I don't feel so alone anymore.
I do not like the term PMDD and prefere severe PMS with or without depression. I share the IAPMD journey to get better research for females with menstrual distress however am concerned some may not take a female seriously if they do not have depression despite other severe symptoms.
Please see my website Aldris Hormone and Atopic at www.aldrishirmonesupport.org.uk and my book A Clock with Bells and Butterflies, Helen Marsh, Amazon Kindle Store.
I am so grateful for the IAMPD community. You don't realize the importance of peer to peer or needing a community until you find yourself in this new diagnosis. It's a blessing to be able to help others and it's given me more than enough courage to keep going. Thank you for those that utilize the services without which we wouldn't be here and for team at IAMPD, thank you for the impact that you are doing.
I am so grateful for the services that IAPMD provides to folks with a premenstrual disorder, like me. The resources they have developed, from treatment options to an FAQ section to how to educate your health care provider about PMDD or PME, are incredibly helpful and practical. I volunteer for IAPMD on their Peer Support team, and I'm thrilled to be able to share these resources with folks who are struggling with their premenstrual disorder. IAPMD serves the community with love, compassion, empathy, and inclusivity, and actively works to spread awareness of premenstrual disorders and advocate for those whose lives have been touched by them.
I do not have enough good words to say about how they've helped me get through my PMDD and validate that I'm not crazy, that there's an explanation to what has been happening to me. They have a peer support who's ready to jump in and be there for you, they have a community where in everyone understands each other, and they provide great articless to help us understand ourselves and equip us in facing our internal monsters braver.
Just knowing that there is a website with information on PMDD help and support was enough to make me feel less alone! Living with a life limiting chronic condition such as this is exhausting and isolating. The breadth of information on the site is amazing! To be able to educate yourself without the information being judgemental is empowering. I now am training to be a peer support volunteer as this has helped me so much! There is a community out there can are able to support you!
I am writing from France and am glad to be part of IAPMD team. As a naturopath I find this association quite pertinent to the persons, patients, families, professionals who seek help, informations and newest research on PMDD. I have translated some of their work to be part of my book. I thank them for being there, and supporting women around the world with a pathology that can transform your life in a real nightmare, saving lives along the way of some severe cases. I was one of them. Thank you thank you
Now 50, I've had problems with depression all of adult life. It wasn't until about five years ago that I finally understood that I have PMDD - and IAPMD were one of the key organisation's whose extremely clear information helped me get the right diagnosis and be my own advocate with medical professionals. I love their approach so much I'm now doing training to be a peer support volunteer with them. It's taken me a long time but they are so supportive I know I will get there and be able to help other people. Their approach is incredibly professional but also completely compassionate.
This organization has been the only reliable source of information, tools and support that I was able to find on this disorder.
It helped me to finally understood what i was going through, to be able to explain it to my partner, my family, and to find a treatment that just totally changed my life.
I couldnt be more grateful!
Thats who i decided to start volunteering with them to help and bring support to other women.
IAPMD has literally turned my life around. I was so lost and completely unaware that there was such a thing as PMDD until I found IAPMD and that it wasn't me going crazy after all. I was so happy to learn that it was a place in which I could get vital information for my GP and just as importantly, peer support for myself at my low points. I'm so grateful to each and every one of the workers and volunteers that give their time to help people in need.
I donated. Thank you for bringing this invisible monster to light.
I suffered with PMDD brain disorder since I was 16. Stopped professional speed skating as first. Thanks to the birth control pill I could finish my university studies. But I lost my "spirit", went dull and dumb. I more than love music, but at the age of 25 I stopped listening to any music, I just couldn't handle diving deep in myself. I would not have survived the mirror music gave me of the shadow I have become. Every first 2 weeks of my period I stood up and tried to "fix" my life. And then ovulation hit me. Again and again and again. I would fall every month. And stay knocked out until my menstruation came.
After my thirtieth birthday I've got severe physical pains as well. And hormon related debilitating migraines. At the age of 34 I have got the diagnosis PMDD and the message that nothing can be done about it. I begged them to take my uterus and ovaries because my brain reacts badly to my own hormones. It was not done in The Netherlands to take a "healthy" organs out of me though these organs were producing a chemical which made my brain shut down. My ovaries were killing me.
The transformation from the high performance skater and highly educated person to the shadow who was hiding in her house was a long and painful one.
The physical symptoms went worse every year and became so debilitating that there were months when I was two weeks bedridden. I stopped standing up and trying to fix my life. Spent the last years upstairs, cuddling my rescue dogs and listening to Eckhart Tolle. Practicing surrender and was waiting for the menopause.
But the transition to post menopause is hell for women with PMDD.
Than in an attempt to get at least a break from menstruating, I reached out for help by a gynecologist at the age of 44 and asked him if there are any drugs that would shut my system down for at least 3 month.
He immediately put me on Zoladex, an injection that inhibits the function of the ovaries.
After more than 30 years of falling sng getting up I started to get involved in activities and actually finish them!!!
The same gynecologist prescribed me the surgery: at the 4th of December 2019 they took out my uterus and ovaries. What a relief, peacefulness and joy! Oh, I listen to music (love you, Freddie Mercury í ½í¸Š), picked up jogging, I live. Though I don't know how I supposed to hahaha, because I have severe trauma from not living sooo long. But I am learning. Picked up jogging. Some day I will run for Pmdd, too.
For my daughter and all the women who are suffering. Or committed suicide.
I survived because of my loving family. For my husband and daughter.
And all the rescues. Who actually rescued me. I am the rescue actually.
Trying to clean the clutter what I gathered in these years of PMDD.
Now officially I am in surgical menopause, which is a chronic disease. So I need hormone replacement therapy (the good ones) and of course I have some symptoms. But it is a walk in the park compared with the 30 years of PMDD.
I will never find out how my life would have been if the medical world acted earlier.
But I take what is left from what is left from my life and live it fully.
At first it was pure relief. My wifeâ€™s mood and behavior was so erratic and so well bizarre. How could such a loving gentle person suddenly turn into such an angry and vicious beast- but now I had the answer PMDD. I stumbled onto it by accident - as i started a journal and when I correlated my journal entries I saw that her volatility was in fact as predictable as the sun rising and setting. More digging with my old friend google and she was no longer Jekyl and Hyde - she was now a patient suffering a terrible terrible ailment. Now that we had a name for our pain we could seek a solution. At the very least - and this is no small mercy - we had ruled out bat sh*t crazy. This was where the relief comes. Ladies you are NOT crazy you are merely having what I consider to be an allergic reaction to hormones your bodies produce as part of your cycles. Thatâ€™s the good news - here is the bad news - it doesnâ€™t get better with age- it gets worse - and knowing that you are not crazy doesnâ€™t make it hurt any less.
I kept asking WHY does PMDD get worse with age? If the body is producing less hormones as we age why is her allergic reaction seemingly getting worse. I asked google and google gave me an idea. Testosterone.
Female production of testosterone falls far more precipitously than their production of other hormones and the decline typically begins in their 20s. My wifeâ€™s symptoms began to really get bad in her late 30s and became truly unbearable in her early 40s. The symptoms of low testosterone - well, almost identical to PMDD - so my wife got tested and her testosterone level was low. Her doctor suggested testosterone pellets and handed her a brochure- my wife didnâ€™t even glance at the brochure - she looked in the docs eyes and said
â€œIâ€™d like the pellets now please-Right now â€œ
The Dr then cautioned
that it requires an incision to which my wife very firmly declared that she didnâ€™t care if it required a hammer.
The results ?? PMDD is pretty much gone- her symptoms are a fraction of what they were- only been a few months but sheâ€™s her old happy self. The fogginess, the confusion, the blurred vision even the squeaky voice - all gone.
I donâ€™t know if our situation is just dumb luck or whether weâ€™ve stumbled onto a cure - but I donâ€™t care - but I did want to share our experience.
Women suffering from PMMD I am so so sorry - your pain is REAL your experience is REAL - for the men that suffer with you - donâ€™t you dare doubt your woman - no matter how hard she is to be around itâ€™s NOT HER FAULT and itâ€™s NOT HER CHOICE that she has this disease.
Where do I even begin to express my gratitude and experience with this wonderful organization? I finally got diagnosed with PMDD in 2017, and it was an emotional experience. I was angry at my Doctors for not listening to me when I brought them a checklist of symptoms that linked suicidal thoughts and crippling anxiety to menstruation, but they said it was all in my head or it doesn't exist. I cried and grieved for the years lost, the relationships I had broken and the opportunities that slipped past my fingers because of PMDD. I had quit schools and jobs because PMDD was affecting my life and I didn't even know it. The day I was diagnosed I devoted my time to join support groups, research websites and came across IAPMD which was the Gia Allemand Foundation at the time. I cried when I saw they had a peer support line because a crisis line had saved my life before and to see they had this for those suffering from PMDD and PME made my heart happy. At first, I wanted to do the social media volunteer, but destiny had other plans for me to become a peer support provider, and I don't regret it at all. As the month's pass I saw these fantastic people running this organization and volunteering their time despite having PMDD, and other health issues amazed me. Their selflessness, hard work, and kindness just blew me away, and I was part of that. This organization and my job as a peer support provider gave me the confidence that PMDD took away from me. I'm currently a Wellness Management student to become a health educator which my specialty will be menstrually related mood disorders. I believe awareness and education will help and prevent women from committing suicide, get the proper treatments and diagnosis, and give them the knowledge they need to be their own health advocates and teach health care professionals about this little-known disorder. I'm excited to grow with this organization and thank you for the resources, and education you provide to the world.
This organisation has put me in touch with women like myself all around the world. I am so grateful for their love at bad times and advise, I have never rescieved such support for my disorder in my whole 45yrs and I am hugely glad of it now to help me through the days and month
This organization is an amazing place where very committed and dedicated people work for a cause that is so important to fight for. It is a place where all the information you need regarding this illness is stored and checked by real experts and professionals.
I have used their information a lot to share knowledge about PMDD in my own country too (Italy), where the lack of visibility of this disorder is huge.
They are helping people worldwide not just in the States,by promoting knowledge and extending support to women in difficulty and their families.
Thank you so much for all your passionate work.
Paola Vallarino - Italy
I only recently discovered this association existed and itâ€™s already shone a huge ray of hope into my life. One of the only things worse than suffering a disorder is suffering a disorder that is very little studied and often not acknowledged. Knowing that this support is here and that Iâ€™m not alone - never mind being able to turn here for questions I have- has changed a lot for me. Thanks so much, keep doing all that you do. Much love and god bless
My daughter's journey with PMDD led us to IAPMD. We had an idea for a symptom and treatment tracking app (Me v PMDD)...the organization had the trust and support of the PMDD community. They welcomed us in with open arms! Today, both my daughter and I are a part of the IAPMD family - as a peer supporter and on the board of directors, respectively. The exciting thing about IAPMD is that it is poised at a unique moment in time where #MeToo and Timeâ€™s Up meets mental health awareness meets suicide prevention. Empowered by this increasing awareness around gender disparity and critical health issues, IAPMD has started a new movement - a global movement of millions of people who have Premenstrual Dysphoric Disorder (PMDD) and premenstrual exacerbation (PME) - to accelerate the progress being made around the world on premenstrual disorders and PMDD in particular. IAPMD has spearheaded a groundswell of people, raising their voices and growing the conversation to make an impact on how the general population, medical professionals and sufferers see this life-threatening condition! I'm thrilled to be a part of this vibrant and growing organization!
As a clinician and scientist with expertise in premenstrual mood disorders, I can confidently state that this is the most important global resource available for individuals with premenstrual disorders. Unfortunately, most doctors and other health professionals remain ignorant about the diagnosis and treatment of premenstrual disorders. Where these institutions fail, IAPMD picks up the slack, helping women get connected with the support and education they need to seek effective care. The foundation has been a pleasure to work with; they are always interested in the latest research and they do a fantastic job of engaging patients, clinicians, and scientists.
Personally, I do not suffer from PMDD. However, I am a nurse practitioner who was interesting in learning more about this topic. My Colleagues and I attended the 2018 PMDD Annual Conference held this past May 2018 in Boca Raton, Florida. The presenters were quite knowledgeable about the symptoms and treatment of PMDD. As a health care provider, I felt that the information presented was insightful and valuable to my practice. I would definitely encourage other healthcare providers especially those practicing women's health to attend future PMDD conferences.
When I first started finding out about PMDD - the website was (and still is!) the most useful resource. As a sufferer, to have clear, PMDD specific information, written by people who understand how it to feels to be on the patient side of the desk was just amazing!
I have since become involved with IAPMD - first by volunteering and then as a Board Member. We keep patients at the centre of everything we do - because we were (and often still are!) those PMDD patients. We know how it feels to be desperate, we know how it feels to be unheard, we know how it feels to be at rock bottom every month.
It's an exciting time to be involved in the Association as we go through a period of growth and change!
While experiencing symptoms of PMDD I searched online for PMDD information and discovered this organization. Miraculously they were having a conference in my state a few months later. I signed up immediately and discovered women who had gone through what I had and offered so many resources. This organization is such a blessing to those of us out here struggling alone and isolated. It's a community making sure others in our situation have the "light bulb moment" sooner rather than later and getting us the most up-to-date research. I don't know how much longer I could have gone on prior to my diagnosis and I was so lucky to find a doctor that knew what PMDD was and diagnosis me. With diagnosis leads to hope. This organization leads to community, connection, and solutions. I am forever grateful.
I was diagnosed with PMDD in 2014 and in 2016 found the Gia Allemand Foundation, now IAPMD, as the best resource available for accurate and up-to-date information about PMDD. IAPMD has connected me with services that fill the gaps in the current health-care system and provided me with a network of individuals who have been informed, supportive, and helpful along each step of my struggle with mental illness. IAPMD also provided me with an avenue as a volunteer mental health advocate after PMDD prevented me from working in the mental health field full-time, turning me into a productive volunteer at a time when there weren't avenues to be a productive individual in the traditional employment sense. I am very grateful to have found IAPMD.
The Gia Allemand Foundation is an amazing organization that has already helped 1000s of people with PMDD (Premenstrual Dysphoric Disorder) find information and support. They have so much potential to grow even more and further advocate for PMDD awareness, research, and treatment. They're saving lives and leading a movement.
Gia Allemand Foundation has helped me so much, as there is much support when it is needed. The Foundation also helps woman by mentoring them to become stronger empowered individuals. I don't know what I would do without it, it has personally saved my life! Thank you for all that you do!
I have been presenting the PMDD at the ICNM International congress of Naturopathy mÃ©dicine in London last weekend. I have been a PMDD women for about 30 years, I am a Naturopathe in France and during my presentation, I gave many solutions to better the life of these women and informations relating to this pathology. Lots of attendees, doctors haven't heard about it. It is time to spread the word ! I have sent articles to dozen of french magasines, only one published me, in return a few women called me crying by finding out what was wrong with them and knowing there were solutions ! I am very glad I have found this foundation and added it to my power point. Hopefully, it will create a ripple effect! cheer!
A fantastic charity offering information and support to sufferers like me with PMDD and our families. Gia Allemand are also working hard to raise awareness of a condition that is not well understood and around which there are misconceptions and taboos. So many women and their lives are affected dramatically by this condition.
Reading others stories helped me to understand this is not something only I deal with monthly. Having a support system of understanding first hand experienced people really makes a difference.?
So thankful for this foundation. There are so many people who are unaware of this disorder and it's been very comforting to me to know I'm not alone in my suffering!
As a donor, a past and present volunteer of the organization, and now a staff member I can only say great things about this organization. The group of incredible women who service the organization, who volunteer countless hours of peer support, and who work every day to bring awareness to PMDD hold a very special place in my heart. The important work produced by Gia Allemand Foundation has saved numerous lives in the process and has provided countless women a platform to be heard, to be understood, and to be helped by people who have their best interest at heart. This non-profit is incredible and has truly changed the lives so many women, men, and children. I am proud to be aligned with such a passionate group of women!
I was diagnosed with PMDD in March of 2016 after 10 years of misdiagnoses, confusion and feeling nothing but despair. I scoured the internet for resources on how to tackle PMDD head on as soon as I received my proper diagnosis. Time and again the GIa Allemand Foundation for PMDD website was where I built my knowledge base while on my quest. I am grateful to have had such wonderful women and amazing resources at hand. I have seen the camaraderie, support and genuine care and love displayed time and again to PMDD sufferers globally by all women who work in this organization. I am beyond thankful that I can now try and pay my knowledge forward and provide support as a volunteer to these women on their PMDD journey.
Two years ago, I was diagnosed by my family doctor with PMDD. I had never heard of it before. The fact is, I have had this disorder since I was 12 and menstruation started. That is quite plainly, a disorder that was left UNDIAGNOSED for 35 years!! I'm writing this review because only 3-8% of women have PMDD, and little is known about this disorder. In fact, to be frank, my medical community has failed me up until this point. 35 years of confusion about myself, poor self esteem, deep depressions, anxiety, rageful and suicidal tendencies, as well as self harm :( has been what I deal with on a cyclic basis since the age of 12. I had always assumed prior to diagnosis, that my issues were solely my own fault, like a major flaw, or weakness in my personality. UNTRUE!!! In the last few years, I have learned so much about myself, this disorder, my body and how PMDD has affected my life and the lives of others around me. I am still learning. THAT is why it is IMPARATIVE that wonderful groups such as the NAPMDD, are supported!! As women, in this day and age, we need not only AWARENESS about PMDD, but also a great deal of EDUCATION and SUPPORT!! The NAPMDD offers ALL of this!! It is also a great resource for our family and friends who NEED understanding of how to support us in the best possible way when things get too emotional to handle on our own. So PLEASE, continue to support the NAPMDD!! We are only at the tip of the iceberg, but there is so much more to learn, and women with PMDD need a cure! Their lives depend upon it! Keep up the great work NAPMDD!!
NAPMDD serves and support women and their families who struggle with PMDD. Their knowledge and personal experience is among the best. They are not a non-profit that just informs, but they give the tools and resources to women across the globe. The one seminar I attended was packed with information that was useful and Iâ€™ve put so much of what I learned to practice. NAPMDD makes life attainable when living with PMDD. ~Andrea Catlett PMDD Survivor
NAPMDD has provided me with many resources to aid in coping with the symptoms of PMDD. I appreciate the resources and help that each board member provided me personally. The national conference by NAPMDD was an amazing experience that I will always treasure. It connected me with people like me and has aided in my healing and coping process. So much that I applied for a board position. It has been an honor to sit on the board and work toward helping and improving the life of other women suffering from PMDD.
I am so thankful for NAPMDD! It's a place where I can find out information about PMDD, so I can better understand my health issues. I can even find ways to help deal with this very difficult health problem that has flipped my world upside down. I can't say enough good about NAPMDD!!!
This organization has brought a spot light to women health issues and started an open dialog on a taboo subject. I have found support and validation for my health issues and realized I am not alone. Thankful there is a voice for all women who suffer with PMDD.
I spent most of my adult life being controlled by the symptoms of PMDD. Heavy bleeding, migraines, panic attacks, low energy, foggy brain, food cravings, rages, depression, debilitated and forced to go to bed for days. I would get in trouble at jobs. And I would rage at my kids and husband for no reason. It was "Hell" for them and for me. When I was 38 I had a hysterectomy because of benign cysts. Almost the day after I felt different. As if some evil entity had been removed. As time went on I gained more energy, the rages and migraines stopped. I didn't have to go to bed and I could make decisions. I kept my ovaries and went on Estrogen. I was on it for a few years then I went through a natural menopause. Sure I had hot flashes and some moodiness but nothing compared to PMDD. I went on prozac for depression and panic attacks. They have been treated throughout my life. I am now 67 and I feel wonderful. I meditate, walk, and try to eat healthy. I use holistic remedies as well as medical care. I had a stroke four years ago and got T-Pa treatment resulting in no deficits. My life is full and I am content and happy. Amanda LaFleur had an event for NAPMDD and I went to it. When I heard about PMDD I told her that is me! I had that!! I was amazed. I was privileged to tell my story and lead a meditation at the conference in Aug. I met so many wonderful women and I am still friends with them. I hope I can be a North Star and show them that there is hope. And that it does get better. Nothing is more powerful than the support of other women who are going through the same thing. I am so grateful for NAPMDD the work that it is doing to help. And for Amanda Lafleur who gives so much of her talents, time, and support to help and other women to live with this debilitating condition and give them hope for a better life in the future.
I was suffering badly with PMDD for many years, and many years prior to being diagnosed. I had to leave my job because of it, which was a very low point for me. I found out that the NAPMDD conference would be happening a week after my last day at work, and my husband and I immediately registered to attend. I was presented with information that I never before knew about. I met other women who were also suffering, or used to suffer, and understood how PMDD ruined my life. I still have PMDD but I have hope and a support system, and that is priceless.
I feel blessed to be connected with this organization. I have had the opportunity to sell bracelets that represent our awareness ribbon and donate to NAPMDD. I have reached ladies from Australia,Northern Ireland,Great Britain, and the United States who all suffer from PMDD. Together we are raising awareness and helping each other in the struggle with this disorder. This organization is the main hub for information,connections,support,and events all pertaining to PMDD. It would be greatly appreciated to receive any funds to support this organization.
I am a mother of two and have suffered from PMDD for several years now. For a long time I struggled with this disorder alone, not really understanding myself and how my life has changed due to PMDD. I wouldn't be in the healthy place today without the work of the National Association for Premenstrual Dysphoric Disorder. The dedication, talent, hard work of Amanda La Fleur and the Board has literally helped save lives. I no longer feel alone and I also feel empowered to advocate for myself with medical doctors.
This nonprofit changed my life! It helped me cope so much easier and I will never forget the convention of 2015!
I have lived, secretly, with pmdd for decades. Decades of monthly physical and emotional pain the week before my menses. I thought I was unique in my suffering. Any time I tried to explain I was cut off. No one wanted to listen to anything associated with the menstrual cycle. I couldn't find a doctor who understood. Through the internet I have found women all over the world who suffer from the same, sometimes strange, symptoms as I do. Yet there is not much in the way of treatment or understanding of this rather common, life altering affliction. Finally voices are coming together to bring pmdd out of the closet and into the light.