Marcia Horn was nothing short of a godsend to us when my husband first got diagnosed with an EGFR mutation NSCLC. We had felt utterly hopeless until a desperate late-evening internet search led me to ICAN. I immediately sent an email inquiry through its website, and within minutes I received a "call me asap" reply from Marcia. She was so kind and wonderful to speak with and was an absolute wealth of information, spending almost an hour on the phone with me that very night, downloading me on the treatment info, advances, data, research, etc, specific to my husband's disease. Her information helped validate the treatment protocol that was being prescribed for him, which in turn brought us both confidence in our doctors as well as a sense of relief that we were moving in the right direction. I hung up from our conversation with a feeling of hope that I had not had before. That very phone call made all the difference in how we moved forward with a treatment plan and true hope for recovery.
I have been working as a virtual volunteer with ICAN, and I am also a patient. ICAN is well-organized, and all people I dealt with in this organization are committed to doing excellent work and helping cancer patients. Marcia Horn is always available to help with any questions regarding to find a cancer treatment and/or side effect management. She is a very dedicated, committed person, very quick to respond to questions and concerns.
I always feel her warm attitude and personalized approach, and she is very competent in giving information regarding any of my requests or concerns. I wouldn't hesitate to recommend the services of ICAN to the patients who deal with Cancer, as it can help to save tons of efforts and time to find a proper treatment or resolve an issue.
Very thankful for this wonderful organization. Marcia Horn and her team have been instrumental in educating and guiding me in the options available for treating my EGFR Exon20 insertion mutation. I was diagnosed in December, 2014 with Stage 1A adenosquamous lung cancer. Had a lobectomy initially and things were good for just over a year. About 15 months later the cancer had metastasized and I subsequently had brain surgery, Gamma Knife radiation and a liver resection. Each time the cancer had been 'isolated' so surgery was an option. Six months after the last surgery, there was progression and I underwent 5 cycles of chemotherapy and could not tolerate the treatment. In search of other options, it was ICAN that was influential in my decision to pursue a Phase 2 trial in Houston. I started the trial in September, 2017 and after some tumor "shrinkage", I remain "stable" at this writing and actively continuing the trial. ICAN is a truly dedicated and extremely helpful organization.
EGFR Exon20 Patient
I had spent significant time researching treatment options for my husband's EGFR Exon20 lung cancer. I found ICAN through an established connection with another lung cancer caregiver searching for options for his loved one. I decided to contact ICAN to find out what additional information or guidance may be available. It was the best call I made! I spoke with Marcia Horn whom, I knew after speaking with her for 10 minutes, was the real deal and understood where we were in the disease process and that we were hoping to find any and all options that may be available. I had a little knowledge of the existing trials and after speaking with Marcia, I had a much deeper understanding and someone who could answer my questions and provide guidance on which to pursue and when. It is because of Marcia and ICAN that we ended up with a "3rd" opinion and decided to pursue the most promising trial for Exon20 insertion mutations at MD Anderson. My husband is now in his 10th cycle of the trial and we continue to rely on our partners at ICAN, along with our doctors, to help keep us current on any additional treatment options for the rare EGFR Exon20 insertion mutation. Marcia and her team work tirelessly to advocate for the patient. I am very grateful that I made that phone call and highly recommend her and the ICAN services to others. -Paula Hockster
When a loved one gets a cancer diagnosis, the anxiety, the many questions, and the fear can all be overwhelming. The moment we discovered ICAN, that fear and anxiety quickly became manageable. We are so greatful for this organization, and so greatful to have such a caring team member to help us navigate this difficult journey.
I have NSCLC - Stage 4 Adenocarcinoma with an EGFR mutation - Exon 20. I learned early on that I should be the patient and my wife should be my advocate. My wife found Marcia Horn's name on a blog about Lung Cancer. Someone had raved about Marcia and the ICAN advocacy and my wife decided to email her to ask some questions about possible trials and or treatments. Marcia immediately responded and they set up a time to talk on the phone. I was so impressed with the quick response from Marcia especially in today's world. Marcia is one of the most knowledgeable people on the subject of lung cancer and the available treatments. Marcia invests in people and my wife has tons of information after communicating with her either on the phone or in an email. The World of Cancer can be a difficult one, Marcia has been able to share information at a level that is understood by patients. She will guide you through each step and process and point you in a direction that will best benefit you the patient. Marcia has been a Godsend for my family with her wealth of knowledge. She is a kind and compassionate woman and represents ICAN international very well. This company will make you feel like you are important, and in times of Cancer the struggles are real and the challenges heavy, to have this company and Marcia on your team you are ahead of the game. Thank you ICAN!
When I was diagnosed with EGFR, Exon 20 insertion, NSCLC, I contacted Marcia at ICAN to get advice about what my treatment options were. I knew nothing about the journey that I would be taking. I got her name and email address from an online support group. I gave her a call and expected to hear back from her within a week. She called me back within two hours. We talked about current options for me and a trial that was opening up that I may qualify to participate in. As it turned out, I was able to get into the trial. I have stayed in touch with Marcia and contacted her every time I had a question about my treatment.
Marcia has always been positive about treatment options and given me hope. She has also encouraged me to advocate for Lung Cancer Awareness. She has educated me on the importance of understanding what mutations may be in my cancer. With more knowledge about my individual cancer, the more options that may be open for me in treatment.
In the back of my mind, I always know that I have Marcia to answer questions or give advice to me. It is comforting to know that I have someone to reach out to for answers.
I personally would give 10 stars if that were an option. ICAN International Cancer Advocacy Network far exceeds any expectations I may have had. I came across Marcia Horn's name on a blog and reached out to her. She immediately contacted me and we spoke for quite some time on the phone. I felt that she genuinely cared about my husband who was diagnosed with a Stage 4 lung cancer with a rare EGFR mutation. We were at UCLA with my husband on an immunotherapy and had had severe issues and side effects and were looking for information on other options. Not only did Marcia share some options, she made phone calls on our behalf, educated us on the various trials that might be available for my husband and always stayed in touch. She also was able to answer many questions that I had and in a way that I was able to understand. Not only did we feel like we had an amazing advocate we felt that we had made a lifetime friend. I have reached out to Marcia at all hours and was surprised when many times she would respond at what most people would call after hours! Marcia and this organization are top notch and the many people who's lives she/they have touched are beyond blessed.
ICAN has given my family and I strength and hope during a state IV diagnosis. With ICAN in our corner, we know we have the best resources to help us with our journey. We are hopeful and proactive because of ICAN and we are forever indebted to Marcia.
ICAN allows for working alongside renowned experts at the frontier of today's medicine. It is my strong conviction that ICAN's detailed letter of recommendation about me, written by ICAN's CEO Marcia Horn and ICAN's Director of Research Services Regina Marie Klopfer, enabled my offer of admission into my first-choice graduate program. I am also of the strong conviction that their recommendations, with the support of Human Resources Director Andy Young, enabled my job offer as a Medical Coding Analyst at the Indiana Office of Medicaid Policy and Planning. I look forward to contributing what I learned under ICAN as a Health Disparities Research Intern.
For patients and families seeking in-depth and detailed information on advanced (Stage 4) cancer, in all its forms, Marcia Horn, President of ICAN (International Cancer Advocacy Network) is truly an indispensable resource. Marcia and her colleagues at ICAN work on a 24/7 basis to acquire and deliver the most pertinent, intelligent and useful information, guiding patients toward the most promising treatment protocols, whether they are FDA-approved or accessible only through clinical trials.
All questions, from scientifically basic to medically sophisticated, are welcomed and thoroughly answered at a level of complexity that precisely matches the patient or family member. Having collaborated closely with Marcia, I can attest to the fact that the quality of ICAN’s services and information is up-to-the-minute fresh, relevant and actionable. In short, for information and advocacy on advanced cancer, Marcia Horn is at the top of my list.
I am enjoying being involved in the EXON 20 GROUP, co-founded by Kevin Hanlon and Robert Hanlon.
Carey Gold, The Health Advisory.com
I felt so alone and confused with assisting my father in his battle with cancer. After a few months of navigating the complicated world of our medical system, I was put in touch through a family friend with ICAN. A month ago my family was faced with the difficult challenge of choosing the best option given to us by our oncologist, including different clinical trials and standard of care. With all options there were pros and cons. The anxiety I felt making such a difficult decision was eased by the support of ICAN. The team at ICAN was more than responsive. They provided us with resources, guidance, were able to shed light on certain treatments that were effective or ineffective based on my father's genetic makeup. This is something that our oncologist should be able to guide us through, but the issue is oncologists are limited to the resources of their institution. Therefore, we were limited to the information we received. We sought a 2nd opinion and they also had different options. When we asked them which option they felt were better including the other institutions', we were met with opposition. Not surprisingly, they were unable to provide any opinions on the other institutions' progress or therapies. Cancer is a complex disease and there is no one method or approach. The ICAN team made me feel like I had an extended family for support and guidance. All cancer patients and their families should seek support from an organization like ICAN. Marcia Horn is an incredible person. She is not only knowledgeable and dedicated, she also has the kindest heart. I am so thankful to have ICAN help me during this time. The network of professionals and volunteers is deep and ever growing. I thank all those participating as a volunteer through ICAN. My family is grateful for your selfless acts of service to cancer patients and community.
Working with the ICAN and the Golf Tournament Board was very rewarding. The Liberty Mutual Invitational, benefiting ICAN was a wonderful event raising awareness and much needed funds for ICAN.
I have volunteered at several organizations but ICAN is the best organization I have volunteered at. They are so very helpful and supportive. Marcia Horn is the best supportive person I have ever met -online-. I do recommend ICAN for the cancer patients and also Med students.
I had the privilege to work at ICAN as a research volunteer to search for the cutting edge research related to all types of cancer. I had a great opportunity to get to know Marcia Horn as I wanted to do more volunteering work at ICAN. She and Regina was so supportive to help me out and to choose what I can do. I very much believe in ICAN and its amazing leadership. I am not enough thanking ICAN for all the great help to the cancer patients. I am giving them the best possible review, because simply they deserve it.
ICAN is a wonderful organization in helping so many cancer patients with referral to the best oncologist across the US. ICAN has a lot of volunteers who searches the databases to find the most recent updates on the drugs or the clinical trials. Marcia Horn, the CEO and President is the best person I have ever known who help and support me as a volunteer in this amazing organization. I strongly support ICAN and Marcia Horn and give them the best of the best 5-stars review.
Participation in Liberty Mutual Invitational is the best!!!! Great organization that serves the under and unserved as well as all in need. Needs more funding to support more patients!!!
ICAN mounts first class events specifically the Liberty Mutual Invitational and working on golf events is productive, fun, and collegial.
This is such a great organization - so helpful and passionate to help those in need of Cancer treatments!!