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Causes: Ear & Throat Diseases, Health, Specifically Named Diseases
Mission: Dedicated to improving the lives of people with hypoparathyroidism, a rare medical disorder. Maintain a world wide network of family support & promote public awareness of this disorder through a website, webinars, quarterly newsletter, conferences, & cure research fundraising.
Programs: Patient conferences:these conferences bring together patients and their families to learn more about hypoparathyroidism and how to deal with this disease from experts in the medical, legal and governmental fields.
website:the organizations website provides the most current information about hypoparathyroidism through an online newsletter, pamphlets articles. Information about current research and any on-going patient studies is also provided.
educational materials:the organization publicizes a quarterly newsletter, welcome packets and pamphlets. These materials deal with the hypoparathyroidism disease and educate patients, their families, and medical professionals about the disease.