Hyper IgM Foundation

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Causes: Health

Mission: The Hyper IgM Foundation's mission is to improve the treatment, quality of life, and the long term outlook for children and adults living with Hyper IGM through research, support, education, and advocacy.

Community Stories

1 Story from Volunteers, Donors & Supporters

Akiva Z. General Member of the Public

Rating: 5

09/18/2017

My 4 year old son was born with Hyper IgM Syndrome, a 1 in a million, life threatening, rare Immune Deficiency. Inspired by his resilience during the long hospitals stays, two bone marrow transplants, and a life in isolation from other kids, we raise funds to help find a cure for this terrible disease. The Hyper IgM Foundation, which we support, is helping to fund research into gene editing therapies that may one day serve as a cure for Hyper IgM. While we hope that our son is cured from his 2nd bone marrow transplant, we honor his bravery by helping find a cure for the other families and children. Along the way we created, with the help of Facebook, a vibrant and active community for families - with over 150 families worldwide, we have built and active and supportive, rare-disease community. Many of these families felt isolated before, and now they have a stronger voice, advice from empowered patients, and access to experts.

Review from #MyGivingStory

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