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Causes: Human Service Organizations, Human Services
Mission: -
Results: • National Institutes of Health Protocols (Drug Trials and Natural History Study) • Gained interest and support from media outlets around the country. • Gained interest from several medical schools around the country.
Programs: Compiles patient data to assist in research, runs conferences to collect & provide disease information and provides info and support to affected families
As a volunteer, concerned citizen, but most importantly a proud member, I am very enthusiastic and passionate of the needed work the HPS Network is doing. Finding dedicated researchers and advocates for a rare genetic disorder affecting thousands of albinos around the world. Gathering and educating anyone willing to learn and spread the word, our mission is to find a cure!
