This foundation has helped our family so much. Bonnie J. Addario Lung Cancer Foundation has been a part of our lives since we had a diagnosis close to home and now with the merged foundation, GO2, we are excited to meet more staff and wonderful people. Such a warm and caring group who also kick butt. Highly recommend to anyone affected by lung cancer even if it's someone you know and not yourself.
I can't say enough about these wonderful people. You can tell they really and truly care about the patient. They stay up to date on the latest advances and educate the patient. As they say, an educated patient lives longer... and it's true!
As a family member of several people who have passed away from lung cancer, I really appreciate this foundation. They are always very informative. They don't blame the cancer victim, but are truly there to help. I love that they have a Lung Cancer Living Room support group and that I can watch via live stream. I love that there are lung cancer events that I can support and attend and know the money is for LUNG cancer and not other cancers. Highly recommended!!!
This Foundation is such a breath of fresh air. The education we received and support was life saving. You can tell they really care about Lung Cancer Patients and Families. They have great relationships with the top lung cancer specialists and keep up to date with all things Lung Cancer. Highly recommend.
I have several members of my family who had been affected by Lung Cancer. I was happy to finally find a foundation that focused on Lung Cancer and not on smoking. I like how they point out that the patients matter and they get rid of the stigma. I feel like I always get personal attention and am not just a random donor. Everyone I have dealt with at this foundation has been very caring and helpful even though I have not donated a lot of money, I still feel like I really matter to them. I also like that they put the patient first.
Lung Cancer Alliance understands what a patient needs. They go above and beyond to help all of us suffering from this exhausting disease.
I was diagnosed in February 2018 with Non small cell lung cancer. It was devastating to me and my family. We went through the typical stages that most go through after learning of the disease that had taken over my whole body without me even knowing. How can this happen? Hiw can something so evil invade your body without you ever knowing?
Lung Cancer Alliance as well as my family and many many friends made a difference. They filled my heart with hope and gave me strength to fight.
The diagnosis of NSLC was real. I'm "one if the lucky ones" they kept saying. I have a mutation that has targeted medicines available to combat this invasion. I have EGFR exon 19. Lol go ahead and google it. That's how I learned about it. I did my research....chose the medicine and course of treatment that I felt was best for me. After all I had 3 months to live if left untreated. What did I have to lose? My Oncologust gave me my treatment options. 4 medicines that may help stop the progression of this ugly invasion. I chose Gilotrif or better known as Afatinib. To me it was the logical solution. It was a very harsh and strong medicine. It works a little different than the other TKIs (google it) that I had the choice of. It has severe side effects like most and is my life saver.
After the diagnosis and then a battle with pneumonia then to top it off several pulombany ambulisms, which landed me in the hospital, it was a obvious decision for me! I must fight! For those who know me.. yes I'm very competitive.. it drives me. Most if that is the need to be a better me. Now I really know this sounds crazy lol but being competitive was the emotion that drove me to will this cancer out of my body.
My little blue pill is a miracle medicine for me but... it was more than the little blue pill. It was family, friends, a community! A TEAM! I always told all of the soccer teams I managed over the last 19 years that it takes a team to run a team. Well.. it's TRUE. The prayers and uplifting moments got me through some pretty rough patches. "Stay positive" I kept saying to myself. Keep eating, keep moving! I have much to live for!
Back to my stats.. diagnosed in February..started Afatinib on April 3rd and on May 24th my pet scan showed NED. Ok I'll give this one to you..you don't need to Google it ;-) No Evidence of Disease. Is that just the craziest news. I made my oncologist repeat it 3 times! 50 days on Afatinib and a life changing regimen, it was going away. How did that happen?
I'ts a daily struggle combatting the side effects and wondering if IT'S back in between the countless blood tests I do weekly and scans every 8 weeks or more often if needed. Every little change in my body scares me. Is it the cancer or is it just me getting old? Is it pain from the cancerthat penetrated my bones? It really takes a toll on your body! Scanxiety is a thing :-(
I'm off of blood thinners ×which was a twice a day I injection to keep the blood clots from coming back. 8m no longer on pain meds like morphine and oxy. They are amazing drugs when you need them but I'm happy to be free of them. I go to the gym several times a week now. I take walks without being tethered to oxygen now. I can out on makeup and go out in public without worrying about everyone looking at that horrific rash that the meds cause. I am adjusting to my new normal but never taking anything for granted. Life is short. Live it!
We all have story's that needs to be heard. Spread the word with hope and change! Technology and advances are our best friends. But we need help and funding to bring awareness. We need to find out why we are getting this terrible invasion.
Spread the word! If you have lungs, you can get lung cancer. Stop the stigma. Don't leave us out! We need just as much help and support as those with other types if cancer!
Thank you LCA!
I found the Lung Cancer Alliance quite by accident right after my father was diagnosed with stage 4 Lung Cancer back in 2013. Through the LCA, I learned more about the disease that would eventually take my fathers life. In addition to getting educated, I have actively participated with the Lung Cancer Alliance family of events, from the Philly half marathon to the Lung Cancer Run/Walk at the Zoo. And since losing my father, Aunt and best friend to this awful painful cancer, I have expanded my involvement to other lung cancer foundations events, however, there is something very special about the close knit community of the Lung Cancer Alliance, and that is where my heart belongs. It was the very first foundation that remains the most passionate and motivated group I have had the lovely experience of working with.
If I could give 6 stars I would.
Lung Cancer Alliance is staffed by a very dedicated, caring and compassionate staff.
They have introduced me to numerous Lung Cancer Survivors through their annual conference in Washington DC.
They also have a great online catalog of resources for both patients and advocates.
They are tremendous at getting survivors as well as advocates in front of their elected officials on an annual basis to raise awareness as well as funding for Lung Cancer research.
My wife and I have worked with LCA for 3 years now.
I am a Lung Cancer survivor, and I have found their staff and professionalism second to none.
Their annual Lung Cancer Summits are a must. Especially if you or someone you know has been impacted by lung cancer.
They were great with a family member whose name was called by cancer. Quite a supportive group. Donated several times to them, highly recommend.
Fantastic organization with great resources and support. I love volunteering for Lung Cancer Alliance in memory of my mom.
Great organization to volunteer for and donate to! I lost my mom to lung cancer in 2015, just 4 weeks from diagnosis. I wanted to turn my grief into something positive, so I attended the organization's advocacy day on Capitol Hill in 2016. I can't wait to attend again in just a few weeks. Lung cancer patients and their families deserve a fighting chance upon diagnosis, not a death sentence.
Lung Cancer Alliance is at the top of my list of nonprofit organizations. I have benefited from their support and guidance for over 3 years. When my husband was diagnosed with lung cancer, we contacted Lung Cancer Alliance. The support that we have received from their organization has been incredible. We have come to know some of their staff. Everyone that we have met has been very helpful and gone above and beyond to help us with any issues that we have had. My husband and I were lucky to have attended the last 3 Advocacy Summits in Washington, D.C. What a truly remarkable experience that was! I cannot say enough good things about the Lung Cancer Alliance staff and the wonderful work that this organization does!
I have volunteered for this amazing organization. Up on all the issues and does wonderful work to help all lung cancer patients stay updated on legislation and medical research.
As a lung cancer patient and advocate trying to create awareness of the need to increase funding for lung cancer research, Lung Cancer Alliance has been extremely supportive and professional. They helped me prepare to tell my story, scheduled meetings with congressional members and their staff and provided the latest information from top oncologists and scientists. With their support I have met with members of Congress at Capital Hill at two National Summit’s. With Lung Cancer Alliances help I am a 4 year lung cancer survivor.
Lung Cancer Alliance is the leader in advocating for patients and providers in ensuring best practices from prevention and early detection to treatment and survivorship. They were the first nonprofit exclusively dedicated to lung cancer. The passion, perseverance, inclusiveness, and grit of every LCA team member, past and present, continues to transcend lung cancer from a stigmatized, deadly disease to a curable and treatable disease that affects everyone with lungs regardless of age, gender, socioeconomic status and lifestyle.
Thank you LCA for everything you do for nurses, patients and the community. Never stop fighting!
Lung Cancer Alliance was the first voice exclusively dedicated to lung cancer for patients AND providers. They collaboratively provide a voice of unity, compassion, inclusiveness, and encouragement in a disease unfairly stigmatized. They never leave anyone alone in the fight against lung cancer, whether they are a newly diagnosed patient or a provider fighting to improve medical care in the prevention, early detection and treatment of lung cancer.
As a lung cancer screening nurse navigator, Lung Cancer Alliance provided support throughout the difficult journey in the development of responsible screening programs and insurance reimbursement. The successes that I have had in screening would not have been possible without the support that I have received from the entire LCA team. If you are a provider whom wants to start up a program, you will be successful if you connect with LCA.
Thank you, Lung Cancer Alliance, for everything you have done for all of us (patients, non-medical caregivers, nurses, physicians, researchers, community grassroots organizers) in restoring hope in the fight to end lung cancer. No one can fight lung cancer alone. By uniting providers, patients, families, and nurses, LCA provide us with the strength and support to continue to fight through our most difficult challenges.
I have been working with lung cancer alliance for 8 years after my mom passed away from lung cancer. They have been supportive in every way and it’s been a pleasure working with them.
I have worked with Lung Cancer alliance for 8 years. When my mother passed away from lung cancer we didn’t have any local resources to help. We reached out to them for help. They help us get Shine A Light on Lung Cancer vigil each November for Lung cancer awareness month. We have been holding it at the Salem Cancer Institute every year since. When wanting to do more, LCA helped us set up Lung Love Walk/Run Portland. We have held 3 runs so far to raise money and starting to prepare for next year. Without their help we wouldn’t had known where to start and never would have raised money for Lung cancer research for loved ones living with Lung cancer. They helped me through the grieving process of losing my mother. I’m a proud supporting of LCA and encourage anyone who has dealt with Lung cancer get involved.
I've been hosting an annual charity fundraiser for the past eight years with three friends. We've always been very passionate about our event, but it didn't really start to thrive until we found a nonprofit that was a perfect fit for what we were trying to accomplish. Just before our fourth year of the fundraiser, my family was hit by Lung Cancer. In my search for ways to help, I came across the Lung Cancer Alliance (LCA), and I immediately felt connected to their mission. We found a great partnership right away with LCA, and we haven't looked back since!
Our average funds raised per year have tripled since joining forces with LCA, capped by us breaking the $10,000 mark for the first time in our most-recent year. I think the goals and messages that LCA provides really seem to resonate with our donors . We've also grown more passionate in our efforts ever since we found a more personal connection with our charity. Working with LCA, we've really felt like we are making a difference and have a voice. Their representatives are always reaching out to us to show appreciation for what we're doing and remind us that we are a valuable part of their organization. This is something that we never felt with any of our previous nonprofits, and it's created a great experience for us all-around. We've been receiving fundraiser materials, wrist-bands, shirts, sunglasses, pins, thank-you letters, and continuous signs of appreciation through the years, and it's made our work feel more rewarding each time we do it! It's been a great boost for us, and I'd certainly recommend LCA to anyone else who is looking to have a voice in the fight against lung cancer!
I love working with Lung Cancer Alliance! All of the staff make me feel like family! They do an excellent job supporting lung cancer survivors and caregivers.
I've had the opportunity to work with the staff at the Lung Cancer Alliance since 2013 after losing my wife to this horrific disease in 2012. They are amazing in what they do everyday. Always working with patients in mind first and foremost, pushing to further awareness, helping to push for better research funding, taking the cause right to the lawmakers and helping me to help them advocate when necessary. Their events, like the walk in Philadelphia at the zoo are first class all the way and have brought many people in the community into the fold by hosting events like these. If you have lung cancer or know someone who does, this is the place you need to go. I wish we knew about them when my wife was diagnosed, it would have made a world of difference. Your contributions to this organization go right towards making a difference in the lung cancer community. They take their mission seriously and I know they will help increase the survival rate over time and work to find better treatments and cures. Trust me on this. After all we went through with doctors, hospitals and insurance companies fighting us in this battle, I wouldn't volunteer with an organization that was like the others. They fight WITH us. They fight FOR us. Kudos LCA and keep up the great work -- Scott
I learned of Lung Cancer Alliance in 2010 after my husband quickly died of lung cancer. The organization has never disappointed me. I have become involved in the Lung Love Run Walk Philadelphia for the past 5 years in addition to many other events. The organization is represented by a group of phenomenol individuals who continuously demonstrate their strong commitment. Lung Cancer Alliance has changed my life for the better at a time when I very much needed the support they provide. And over the past 7 years I have seen LCA positively impact the lives of those with a lung cancer diagnosis. LCA is undoubtedly a great nonprofit.
My introduction to LCA came through my mentor, Hilary. She was (is!) guiding me in starting a lung cancer screening program in my hospital. From the beginning, Hilary told me the success of her program wouldn't have happened without the support of LCA.
The more time I put into developing my program the more I have come to appreciate the varied resources of LCA. Every time I go to the website to find one thing, I find two more!
There are free resources for patients, both paper and online. So nice not to have to reinvent the wheel.
The annual conference was an amazing opportunity to learn and to network. I look forward to attending next year with even more questions.
When my mom died in 2008, part of my brothers and I grieving process were to give back someway in honor of her, who was gone too soon. We were not ready, we felt helpless, and we had no outside help to process what this thing that was taking our mother from us so early in her young seventies. So we founded Cinderella Cares Inc. named after her and we went looking for organizations that were on the cutting edge of changing the terrain, Lung Cancer Alliance is local and making a big impact. Therefore, we joined force with them. The LCA family has a big heart and a big vision and because of their integrity, passion, smarts, advocacy work, support to those at risk and navigating a lung cancer diagnosis, commitment to policy change, and increase funding to research we had to join with them. When we do our annual comedy for cure LCA is one of the recipients of the money we collect.
Thanks LCA - Cinderella Cares love all that you do unselfishly.
Over 6 years ago I lost my wife, a never ever smoker, to adenocarcinoma at the much too young age of 63. Lung cancer took from her all but her first year of retirement after 30 years in the federal government. Each year I normally donate to organizations that I feel are worthy, need what I can offer, are committed to the cause they serve, and for whom I think my contribution makes a difference. The Lung Cancer Alliance is truly one of those. According to Charity Navigator, their administrative and fundraising expenses are quite low, leaving more dollars for the programs and services that are its mission. They are making a difference in the fight against lung cancer, and I intend to support them to the extent of my ability. Pink may be the color of cancer ribbons in October, but in November it is time to think clear, the ribbon color that signifies the invisible nature of lung cancer!
LCA has been a pleasure to work with from the beginning. Their motivational skills and true dedication to the cause is an inspiration. Look forward to volunteering in years to come!
Lung Cancer Alliance is an excellent organization that offers the most up to date information on lung cancer, current resources for patients and their families, and one may search for clinical trials. They are a true advocate in the political arena for those who are living the lung cancer diagnosis and for those who help screen and treat patients.
I was a Lung Health Navigator hired to start a lung program early 2017. I reached out to LCA last year for assistance. Angela Criswell, came to our organization and presented to the Oncology Collaborative team and was very instrumental in promoting Lung Cancer Screening and the importance behind their organization. With her help, we were able to start our program and have screened more than 400 patients in one year and identified 3 Stage I lung cancers exceeding the national average 1/320. Not to mention, they offer a lung screening conference for a way to learn and network with other organizations across the country. I attend 2/3 and could not have been as successful as we are today without the organizations support.
In Sept 2012 we were just starting our lung cancer screening program. Without the guidance and support of the Lung Cancer Alliance, we would not be where we are today....one of the largest lung cancer screening programs in the nation. The Lung Cancer Alliance has been a God-send to our program, our team, and our patients. They have helped us network with other facilities as well as local and national entities to bring an awareness of lung cancer to the forefront and best practices for detection and treatment. We are great at what we do, in part, due to the Lung Cancer Alliance. I cannot think of a nonprofit more deserving of recognition as we continue to save lives through early detection. They have my highest admiration and respect.
Located in the heart of Kentucky, KYOne Health is one of the largest lung cancer screening programs in the nation. While much is due to our attention to detail and compassion for the patient, we’ve also had to keep up with the many twists and turns of that government body responsible for the many complexities associated with CT lung screening.
Without the continuous and intense support of the Lung Cancer Alliance, not only would we not be scheduling as many as effectively and efficiently (over 1500 so far this year), I would venture to say we may not be screening at all. The Lung Cancer Alliance is, in my opinion, one of the greatest NFP’s with whom I have ever worked!
I have been working with the Lung Cancer Alliance for a few years as a patient advocate. They have given me the opportunity to participate in spreading awareness and supporting research. It is especially satisfying to join other advocates to visit our representatives on Capitol Hill and discuss the need for increased funding for lung cancer issues. The staff at LCA has always been extremely knowledgeable and supportive as we try and navigate the system and provide information to other patients and to our elected officials. The web site is an invaluable resource and has helped me learn more so that I can speak effectively about the most important issues. Throughout this work, I have met the most wonderful people, both within LCA and among the advocate population. I look forward to continuing working with them.
I lost my Mom in 2013 to small cell lung cancer. I wanted to do something honor her memory but I couldn't find any fundraisers to support in the Houston area. After attending a Shine a Light with my dear friend Janie who had also lost her Mom to lung cancer, I contacted Lung cancer Alliance and inquired about starting a walk in Houston. I was thrilled to learn that something was in the works but they needed volunteers to make it happen! We soon met other local advocates who were passionate about the cause and together with Lung cancer Alliance in Nov. 2014 our dream became a reality! We are having our FOURTH Lung Love Walk this Saturday and look forward to many more! LCA is a wonderful organization who truly cares about their mission and I am happy to be a part of their volunteer committee! We love working with Lanni and Maggie :)
Words could not possibly explain how much I appreciate all the work Lung Cancer Alliance (LCA) has done since day 1 that I got involved with our FIRST Lung Love Walk Houston in 2014. It was great to know that there WAS a non-profit organization with passionate people about bringing lung cancer awareness as I was. I have been very happy being able to work with LCA for the past years.
The people there, such as Lanni & Maggie among many others have been incredible in all aspects. When dealing with them from planning to final event items, it has been a pleasure and it’s shown how much they care about LCA to be sure things run smooth from beginning to end.
THANK YOU LCA for making an idea become a realty to bring a lung cancer walk to Houston, now it has been just that, a reality year after year.
In 2014 I attended my first National Lung Cancer Summit sponsored by Lung Cancer Alliance. My life changed! The compassionate, dedicated LCA staff provided me with the support, the knowledge and the confidence to stand up and advocate for lung cancer patients. I have never looked back. I do my research. I know with confidence Lung Cancer Alliance responsively uses their resources to IMPROVE outcomes for the leading cause of cancer death; an underfunded, stigmatized and insidious disease. Lung Cancer Alliance's unwavering commitment to everyone impacted by lung cancer IS making a difference, and I am grateful and extremely proud to be a small part of this critical effort. I am a very lucky 2X lung cancer patient who is EXTREMELY lucky to have Lung Cancer Alliance working for ME!
I became a lung cancer activist because I cannot comprehend the lack of research funding for the leading cause of cancer death. We HAVE to change this! In 2014 I attended my first Lung Cancer Alliance Summit to do just that by meeting with our Congressional representatives to lobby for equitable research funding. The LCA Summit changed my life and I know this exceptional organization is endlessly working to change the lives of thousands of lung cancer patients just like me. All LCA staff members, starting at the very top, are 100% committed to their critical mission to improve outcomes for lung cancer patients. They are successful because LCA is comprised of compassionate and extremely motivated employees, and volunteers, who share a relentless, passionate drive to empower lung cancer patients and save lives!
I am a for year lung cancer survivor and I absolutely love working with Lung Cancer Alliance! I especially enjoy partnering with them on the hill to spread awareness and ask for needed funds for lung cancer research. I find their mission is the same as mine when fighting this dreadful disease.
In 2010 when my sister, Mary Anne Rios, a non-smoker was diagnosed with NSCLC lung cancer, I was devastated. At 53, she was in the prime of her life. For the next 3 1/2 years she valiantly fought lung cancer but ultimately lost her battle in January 2014. My sister wanted to help raise lung cancer awareness and discovered Lung Cancer Alliance online. Lung Cancer Alliance provided her with support and resources but more importantly I found people I could talk to about my sister's lung cancer journey and my role as a caregiver. The staff at Lung Cancer Alliance are a wonderful group willing to listen and lend support. As a result of the support I received from Lung Cancer Alliance (LCA), I continue to support LCA programs and host fundraisers each year to help raise funds and spread awareness of this terrible disease that kills more women than the top three gynecological cancers combined. No one deserves lung cancer.
Lung Cancer Alliance is unlike any other cancer advocacy organization. Lung cancer has impacted several members of my family and I am incredibly grateful for LCA's continued advocacy efforts. Thank you from the bottom of my heart, Lung Cancer Alliance. Keep doing the amazing work that you do!!
I am a 14 year lung cancer survivor and proud board member of Lung Cancer Alliance. When I was first diagnosed in 2004, Lung Cancer Alliance was my first phone call after a "google" search. From that first connection, till now, Lung Cancer Alliance has provided service, support and encouragement to me and thousands of other people touched by this terrible disease.
I have been involved with Lung Cancer Alliance for five years since I was diagnosed with lung cancer at the age of 44. I can not imagine my health journey without this nonprofit organization. The resources, employees and links have been instrumental in my care, support, awareness and advocacy. Lung Cancer Alliance is single handedly leading the fight for lung cancer patients and families to the media, government, research and medical community.
LCA continues to be a leading non-profit within the lung cancer field. Their mission is embraced by their staff and all the individuals who they touch with their wonderful services. Through their outreach and programs, they bring a new meaning to lung cancer. I continue to be amazed by their progress.
LCA is a wonderful organization with a wonderful staff. They are passionate about what they do and incredibly forward thinking. LCA fulfills it's mission with a positive energy. With a nonprofit budget, they sure do great things for the community and individuals affected by lung cancer!
I was introduced to Lung Cancer Alliance (LCA) at the Hope Summit in the spring of 2016. I was extremely impressed with the staff’s dedication, professionalism, and passion they demonstrated for their daunting mission (i.e), improving the lives of lung cancer patients and care givers. There is truly not enough superlatives to accurately capture what LCA does in support of cancer patients and care givers. The Staff’s omniscient approach to every aspect of lung cancer is heartwarming. I can’t count how many times I have heard how appreciative I am for everything LCA is doing to raise the awareness of such a debilitating disease. LCA’s aplomb staff is uniquely qualified, in their respective fields, to deal with so many aspects of lung cancer support and to provide that support in a no frills approach is extraordinary.
My name is Stevie m I was diagnosed 4/15 lung cancer I went into this not knowing what cancer is, I was so scared I only heard about it,I never knew anyone who had it,as months went by and I was loosing faith in medicine and life, my wife took notice, and had to get help asap, she made 1 phone call to LCA, and spoke to Tara and she put my wife at ease, and within 30 min I received a phone call from Tara at lung cancer alliance, and my whole life turned around, I was alive and living again, everything she said came true, and she put me in touch with 2 amazing people who survived cancer, and they walked me the rest of the way, ps doctors said il be around for a long time 'thank god, and thanks lung cancer alliance
I have been incredibly impressed by LCA’s efficiency since becoming a Board Member several years ago—they’re the top rated lung charity (receiving a perfect score from Charity Navigator), and they’re really the group doing it all for lung cancer—from research in early detection, to providing resources to hospitals and patients across the country (over 450 screening centers work with us) to changing the public perception/and thus creating awareness about lung cancer and those who could be at risk. Screening could save thousands of lives with early detection and have the most profound life-saving impact on cancer in history.
By advocating for patients with lung cancer to CMS, LCA was key in pushing forward coverage for low dose CT scan screening for lung cancer. They are a fantastic resource for providers, lung cancer screenign programs and patients a like providing an easy to navigate webpage and printed resources to help explain who is eligible for lung cancer screening, how to manage a newly discovered lung nodules, what options are available for lung cancer treatment and where a patient can find high quality treatment close to them. I an a thoracic surgeon and use Lung Cancer Alliance resources frequently, especially their patient information booklet.
LCA has been of a great help to me and my organization as we continue to navigate the waters of Lung Cancer Screening. The rules and processes for participating in a Lung Cancer Screening program have been a bit of a challenge as they have changed dramatically since we first began our program in 2011. LCA has held meetings in Washington DC which have been of enormous help to me personally. Topical speakers and programs which benefit me and my program directly. I look forward to this annual conference. LCA is easily reachable by phone and or email and always respond quickly to questions. LCA has inside track to experts within the American College of Radiology and the insurance industry as well as others that provide much needed direction to those running programs. It has been a great decision to join forces with LCA
Lung cancer alliance is a great organization that does wonderful things for people with lung cancer!
Lung Cancer Alliance (LCA) is a wonderful organization! I am a Thoracic Nurse Navigator, and feel fortunate to have this nationally recognized resource for my patients, families, and professionals.
I have never encountered such a passionate and dedicate group of advocates as I have experienced in my interactions with the staff and volunteers within the Lung Cancer Alliance. This group engages professionals and community members at so many levels and different angles to generate support for individuals at risk for lung cancer as well as those who have been diagnosed. I highly value my connection with LCA, and I will continue to extend my time and financial resources to support the work they do.
The Lung Cancer Alliance is an amazing organization that helps both lung cancer patients and institutions. As an LCA Screening Center of Excellence, the Maimonides Medical Center Lung Cancer Screening Program has received an enormous amount of guidance, expertise and support from this amazing organization. With their leadership, we were able to get insurance payments for life saving lung cancer screenings.
I love volunteering with them for the Houston Lung Walk. They take the time to answer any questions, love getting our ideas, and are always very personal with us.
As a lung cancer survivor I was fortunate enough to be invited to attend a Survivor meeting last September. When I arrived I was met by a group of extremely dedicated and caring staff members. Each attendee was made to feel as if they had known each other for years thereby allowing for a free exchange of information regarding individual stories. The Alliance is extremely proactive and is constantly pushing for a wider population of individual to be screened earlier for lung cancer. As a result of the positive atmosphere I was immersed in, before I even left the meeting I volunteered to be a Phone Buddy for the Alliance so that I can assist the newly diagnosed overcome any fear that they may have. BEST meeting that I ever attended!
I wish I had done more research and had known about Lung Cancer Alliance (LCA) when my stepdad was diagnosed with stage IV lung cancer in October 2008. In the years since he passed away on April 1, 2009, I have learned just how much critical work this dynamic nonprofit does for (most importantly) the people suffering from this awful disease, their family and loved ones, and their caretakers; advocating for more research and access to treatment; and carrying out public service campaigns to educate us all. LCA's work to dispel the myths associated with lung cancer have been particularly powerful for me. This organization is a shining example of what a health-related nonprofit can do to personally support those affected while lobbying for the resources to combat a devastating disease.
I am a twelve year lung cancer survivor. I have been a phone buddy and helped get petitions signed for Lung Cancer Awareness Month both in Tennessee and in Florida.
The people at the Lung Cancer Alliance are dedicated to helping. They are professional, friendly and knowledgeable. I am grateful for the support they gave me following my lung surgery and recovery.
I have worked with Lung Cancer Alliance since 2013 .
They brought the first Lung Love Walk to Houston, Tx. I lost my Mom in 2013 to Lung cancer, and helping put this walk together has helped me so much. I am so greatful to everyone at Lung Cancer Alliance, they are making a difference and are amazing to work with. I plan to volunteer with this wonderful organization for years to come!
My mother was diagnosed with stage 3B lung cancer in 2004. She underwent surgery and radiation treatment, passing 15 months after diagnosis, in August of 2006. The Alliance not only helped me during this very difficult time by providing me with resources to be a better caregiver to not only my young children, but also to my ailing mother as well as my father, who was rundown from being the primary caregiver himself. The Alliance continues to help provide me with medical developments which I keep abreast of so I can monitor how modern science is helping to find a cure. I also use the site as a staple to harness volunteer opportunities so I may stay involved in the fight that took my mother's and so many others' lives. We must beat this disease and with organizations like the Lung Cancer Alliance, we will!!
Our son is living with stage IV lung cancer. He has the ALK tumor. He is a young husband and father of a three year old son. Believe me the support this group gives us is so important. Its' articles and drive to make new discoveries and funding for lung cancer gives us so much hope. Helping it reach its goals also gives us purpose. Our first experience was through Shine a Light last November. We are now hosting our own event. Thank you so much for your support.
Shortly after my lobectomy for a 1cm adenocarcinoma,I learned of the program the Lung Cancer Alliance was doing eith CT scans. I was so impressed that i wrote them to learn more about it. I gladly sent my CT scan to them for the use of training purposes for physicians. What a wonderful use never to be needed CT scans to help other patients!
Lung Cancer Alliance is a wonderful organization for the needs and resources for lung cancer patients.
I have been involved with the LCA since I attended the 2014 Survivor Summit. It was one of the most rewarding experiences I have had as a survivor. Since I am one of the 17% who did survive, I have felt a need to give back and support other survivors and help educate others about this terrible disease. The LCA gave me useful information to speak about and the experience visiting Capitol Hill and meeting with representatives was invaluable. I also have met a group of wonderful advocates and their dedication and passion have inspired me to do more. I hope to continue working with them and the LCA in the future.
Every interaction I've ever had with the Lung Cancer Alliance has been an exceptional one. The staff is very knowledgeable, friendly, professional, and timely. They live up to their mission and do such important work. I cannot express how great an organization they are!
I have been involved with the Lung Cancer Alliance for over 8 years. I am a 16 year survivor of stage 3 non small cell cancer. I have found help with my own issues involving treatment and survivorship. Over the years. Have volunteered to be a phone buddy, moderator of the lung Cancer Alliance support site and just to carry the torch for this organization.
I am a 13 year lung cancer survivor who has been involved with the LCA for over 7 years. First I was given support by the many caring individuals that make up this organization. I have since giving back to other lung cancer survivors through this organization. I also have seen them push for legislative measures to support the research funding for this much maligned disease.
I have received emotional and social support from the Lung Cancer Alliance since 2004. Also, I have volunteered as a phone counselor, community educator, survivor speaker, and fundraiser for them since 2005. The Lung Cancer Alliance is the voice of lung cancer survivors-fighting stigma, advocating for early testing and changing public policy, etc. I can't say enough about how grateful I am that they exist and how vital they are to ongoing research, treatment, prevention, and advocacy for lung cancer patients and their families.
When I was diagnosed with Stage 2 non small cell lung cancer in 2004, I discovered the Lung Cancer Alliance. I was happy to find an advocacy organization that supported lung cancer survivors and their families, especially since the American Cancer Society was still stigmatizing those diagnosed with lung cancer and doing nothing to assist them. As each year passed, I realized that I had a life to live and have volunteered with the Lung Cancer Alliance to be a Phone Buddy, speaker at Shine A Light in Northern California, and Advocacy Chair in the first Lung Love Run/Walk In Berkeley CA. The Lung Cancer Alliance gets my vote every time because of their tireless efforts on a national level on behalf of survivors, their friends and families, and those at high risk. I'm an example of long-term survival due to early detection and applaud the Lung Cancer Alliance for its valiant work to save lives and increase the survival rate of this deadly disease.
Lung Cancer Alliance 10/01/2014
Thank you for all that you do! With your ongoing efforts and hard work, together we will fight lung cancer! Keep up the fight.
I am a Stage IV LC survivor. I was diagnosed almost two years ago, just after my 41st birthday. I sent an email into BALCF a few weeks into treatment, and was shocked to get a message back from Bonnie directly - on a Sunday night! She personally spent hours with me, getting me up to speed, pointing me in the right directions. Since then, I've been in contact with various other members of her staff, and all have been just like her - invested, caring, and above all productive. I've been in touch with several other LC organizations, and they've all meant well, but simply none have delivered results like BALCF (& the sister organization dedicated to research ALCMI). BALCF gives me very specific direction and contacts with the experts I need, and invests in research that is keeping me alive. If I need help with anything in the LC world, Bonnie and the BALCF are my first call. A+++++!
Lung Cancer Alliance was offering support and resources for all affected by lung cancer, as well as advocating for change on Capitol Hill long before any other organization was. They offer free support to all who need it, educate the public, and have successfully written legislation to forward progress toward screening and pathway to funding and a cure. Kudos to an organization with both integrity and heart.
Our daughter was diagnosed with "stage 3a non-small-cell" lung cancer at the age of thirty five. A mother of three, she was faced with no hope for survival beyond an unlikely one or two years and that would be even with chemo treatments and close doctor care.
Introduce a brilliant young surgeon who wanted to try to save her life by performing a very difficult, very risky surgery that would involve removing 2/3 of her right lung and whatever else that might already have been touch by the cancer. She considered the quality of life but knew she did not want to leave her kids motherless and wanted to see them grow as any loving, devoted mother would. She opted to risk the surgery and the brilliant young surgeon pulled it off flawlessly.
Get this!!! That particular surgery was seven years ago!!! Although our daughter is still on chemo pills, she has seen two of her kids start college with the third in high school. She continues to be very active, going to sporting events of the kids and other activities such as shopping, pursuing a hobby and living each day to the fullest to the best of her ability.
Early on we became aware of Lung Cancer Alliance and have been to "Shine a Light" events where our daughter spoke and her sisters are advocates and speak also. One sister (and nephew) have been to Washington advocating with LCA. We've had the opportunity to help place flags on our town's Court House Square, which our local LCA chapter arranged. We intend to do this again in November. Shine a light events help to increase awareness about Lung Cancer and the terrible number of people afflicted by it and affected it. These events enable those affected by lung cancer to come together and share their stories, meet others affected and support one another.
I hail Lung Cancer Alliance for their relentless efforts to bring about awareness relevant to lung cancer and for their tremendous work in getting our elected officials involved in getting federal funding for lung cancer research, which is making great strides. Before LCA's push there was very little being done for the advancement in research for this disease (incidentally, lung cancer kills more victims each year than the next four leading killing cancers combined). We have learned so much by reading LCA materials and getting involved and are grateful for their commitment.
Every day we our thankful that our daughter is still with us and also thank LCA for their great work for this cause. We, as the victim's parents, consider ourselves "Clients" rather than "General Members of the Public" because LCA has helped us so much by being there for us.
As an oncology nurse I find the Lung Cancer Alliance priceless. The information they share not only with the healthcare community, but the general population is so comprehensive and evidenced-based, that we can rely on them for our information. Since the USPTF approved lung cancer screening in 2015, the Lung Cancer Alliance has helped healthcare organizations to wade through the ruling and the payer issues, to get lung cancer screening out to the public in an efficient and timely manner. I find the Lung Cancer Alliance a valuable resource. Gean Brown MSN, RN, OCN
After my mom passed away of lung cancer and my friend's mom also passed four months after, she found a Shine the Light vigil put on by the LCA which we attended. After that, we wanted to be more involved and decided to start a Shine the Light vigil in our part of town. Later on we wanted to know of walks that were put on by the LCA in Houston and we found none. It was then that we decided to start one and put the vigil on hold. Since then, we contacted Lanni with LCA and after speaking to her she came to Houston and met with us and a few other volunteers. Our journey started! with the collaboration, we are proud to have the FIRST Lung Love Walk in Houston on November 8, 2014 and we have raised more than half of what our original goal was! We have the volunteers all willing to help and put this walk together but it could not have been possible without the guidance of LCA, for this I am thankful that we have found not just someone to walk us through the process, but an organization that offers support, awareness, and such to volunteers, caregivers and more importantly to survivors. We want to be part of an organization that wants to END THE STIGMA and make people aware that lung cancer is the deadliest cancer and YET the least funded. I speak for many who have worked to put this walk in saying that I am thankful for LCA. Thanks again!
I found this organization after my sister was diagnosed with stage IV lung cancer. Sadly she passed away 2 years ago. I was able to find support, ask questions & get educated from their site. I am also a runner so I signed up with Team Lung Love. You can run any race anytime & collect donations for LCA. These people have never hounded me for anything. They have wonderful support & give all they have to those in need. They are pushing hard in Washington for better screening so people can get diagnosed sooner & have a chance to live. So glad I found them & thank you so much for all you do.
I became acquainted with LCA in 2010, several months after my husband passed away quickly from stage 4 lung cancer. I sincerely wish that the hospital staff would have known of LCA and shared their resources with me. In the past 4 years I have been part of one amazing experience after another as part of the LCA family, advocating for public awareness and supporting others going through this horrific journey.
Last year a friend of ours invited us to a candle vigil for lung cancer and we had nothing else that night so we joined her. Well we listened to personal life experiences, a medical professional and got some education. My husband was a heavy smoker at that time and had been having some breathing issues. So we got him into the doctors office armed with a request for specific testing (not normally done) and yes a few small spots were discovered. After months of follow up the spots were found to not be cancer-however my husband is well on his way to being a nonsmoker and other health issues were discovered in the process. We read the emails we signed up to receive, act on events-requests as best we can, pass on information and are forever grateful that the vigil, speakers and information were available for us at a cost of only our time. You are helping so many people as I know there are a lot more stories out there that are happening right now but are not being told. THANK YOU FOR ALL YOU DO!!! Debbie and John
Lung Cancer Alliance 10/01/2014
Thank you for your kind words. We are glad to hear that you both are doing well. We hope to see you at a Shine a Light this November!
The LCA is the single organization I know that is always rolling up its sleeves, as it were, to pitch against lung cancer. The staff is tireless and focused, and anyone who has been involved with the LCA, as I have since my wife died four years ago, can already see the progress in awareness, screening, and reduced stigmatization of lung cancer victims. Needless to say, there is a long way to go until lung cancer is given the national attention it deserves, and the task seems like the labor of Sisyphus, but when the day arrives that it is, it will be the LCA that will finally push that rock to the top of the hill--and it won't roll back down.
Lung Cancer Alliance 09/29/2014
Thank you for the kind words! We are doing everything in our power to fight lung cancer for all those touched by the disease. We appreciate your support.
My mom survived lung cancer. She is now healthy and happy. She still has a picture of all of us walking for her, with her, a few years ago at a Lung Cancer Alliance walk in San Diego. The walk brought hope to our family and we are forever grateful.
Lung Cancer Alliance 09/29/2014
We are so glad to hear your mother is doing well! Please know that we are always here for you and your family. Hope to see you at a Shine a Light in November (http://www.lungcanceralliance.org/shine-a-light-on-lung-cancer.html)!