GO2 for Lung Cancer

GO2 has been a wonderful support group for patients and caregivers. They also are wonderful advocates for medical research in the cure for lung cancers

As a survivor of lung cancer, I have been supported by GO2 for 13 years! Their support group, The Living Room, is so positive and upbeat! You meet others survivors and share your experiences. You are educated there with their monthly speakers. They keep us very informed on the latest advances in lung cancer. Whatever you need help with, they are there for you! From the beginning, I felt, and continue to feel, so Hopeful for my future!
I also participate in their fund raising events, like the 5K Walk/Runs, and the Simply the Best Gala, to further research and development in the field of lung cancer.

When my husband was diagnosed with stage IV lung cancer our family was in shock. GO2 provided support for all of us and has been an ongoing support system for the last 12 years.; They not only supported the patient but reached out to support me as the care giver and gave suggestions on how best to speak with family and friends. We never would be where we are today without Go2! We continue to participate in multiple events during the month and also feel like there is someone else on this journey with us.

The community level work to support those with lung cancer and their families as well as to successfully push forward more federal funding allocation for research are just two of the reasons that GO2 for Lung Cancer is an important organization to me. The staff are dedicated and passionate in seeking various ways to achieve key milestones to improve survivorship. I find the goals and what the goals will mean to so many individuals a most meaningful reason to be part of and supporting GO2 for Lung Cancer. It is an honor to be a member of the GO2 board.

GO2 for Lung Cancer is at the top of my list of nonprofit organizations. When my husband was diagnosed with lung cancer in 2012, we became very involved with GO2 for Lung Cancer. We attended the organization's advocacy day in Washington, D.C. on numerous occasions. Since becoming involved with GO2, I only have positive things to say about this organization. Their staff goes above and beyond to help answer any questions you may have and are always there to offer support and encouragement. My husband passed away in 2020, but I plan on continuing to stay involved with this outstanding organization.

I have been involved with GO2 for Lung Cancer since 2011, first as a caregiver to my husband who had stage IV lung cancer and died in 2015. Both of us found the help and personal support provided by GO2's staff to be compassionate, professional, and extremely helpful. We took advantage of many of their education programs, publications, events., etc., including the monthly "Bringing HOPE Home" Living Room Speaker Series, Patient Education Handbook, 5K annual walking series, etc.
In 2018, I was diagnosed with stage I lung cancer. Because of my previous first-hand experience with lung cancer with my husband, I already knew a lot about the disease, but I still felt overwhelmed and lost when I received my diagnosis. GO2 helped me every step of the way, including accompanying me to see my doctors, visiting me in the hospital after my lobectomy, etc. They never let me feel alone and I will always remember their kindness and support, both to my husband and me. GO2 is an organization that helps with great heart and great hope, which is so vital to people affected by lung cancer.
I find my GO2 volunteer work to be extremely rewarding and the people -- both others affected by lung cancer and the wonderful staff members -- have been with me (and my husband prior to his passing) in a way that is beyond just being staff members and caring, helpful people, but much more like a friends and family who want to make sure that you are not only educated about the disease, current treatment options, second opinions, etc., but that you know what questions to ask your doctors and how to advocate for yourself so that you get the right treatment at the right time.
GO2's education/support programs and their advocacy and research work have and are changing the world of lung cancer so that people have hope, a better quality of life, and live longer.

GREAT mission, GREAT team! the CLOZTALK team is honored to call this org a partner & promote its good work!

CLOZTALK team
>> Jonny Imerman, co-founder

Bonnie, her family and the entire Foundation staff have been with me ever since lung cancer first came into my life a decade ago. The Living Room series, patient education handbook, research initiatives, 5K event series, Registry, and everything else that the GO2 Foundation does for patients, caregivers and families have gotten me through many challenging times when I needed support in making treatment and care decisions, both for my husband and for me. Beside being an A+ resource for education, advocacy, and innovative research, the Foundation is a source of HOPE. Hope is the ingredient that supercharges traditional medicine and daily life for those of us affected by lung cancer. Many thanks to the GO2 staff for all that they do!

I have known people at this organization for over 10 years, as a volunteer, Board Member, fundraiser, Advisor, and always as a cheerleader.

Bonnie, Laurie, and their teams are deeply committed to improving outcomes for lung cancer patients, and they have inspired me to always want to do more. Thank you for your ongoing commitment!

This foundation has helped our family so much. Bonnie J. Addario Lung Cancer Foundation has been a part of our lives since we had a diagnosis close to home and now with the merged foundation, GO2, we are excited to meet more staff and wonderful people. Such a warm and caring group who also kick butt. Highly recommend to anyone affected by lung cancer even if it's someone you know and not yourself.

I can't say enough about these wonderful people. You can tell they really and truly care about the patient. They stay up to date on the latest advances and educate the patient. As they say, an educated patient lives longer... and it's true!

This Foundation is such a breath of fresh air. The education we received and support was life saving. You can tell they really care about Lung Cancer Patients and Families. They have great relationships with the top lung cancer specialists and keep up to date with all things Lung Cancer. Highly recommend.

I found the Lung Cancer Alliance quite by accident right after my father was diagnosed with stage 4 Lung Cancer back in 2013. Through the LCA, I learned more about the disease that would eventually take my fathers life. In addition to getting educated, I have actively participated with the Lung Cancer Alliance family of events, from the Philly half marathon to the Lung Cancer Run/Walk at the Zoo. And since losing my father, Aunt and best friend to this awful painful cancer, I have expanded my involvement to other lung cancer foundations events, however, there is something very special about the close knit community of the Lung Cancer Alliance, and that is where my heart belongs. It was the very first foundation that remains the most passionate and motivated group I have had the lovely experience of working with.

If I could give 6 stars I would.
Lung Cancer Alliance is staffed by a very dedicated, caring and compassionate staff.

They have introduced me to numerous Lung Cancer Survivors through their annual conference in Washington DC.

They also have a great online catalog of resources for both patients and advocates.

They are tremendous at getting survivors as well as advocates in front of their elected officials on an annual basis to raise awareness as well as funding for Lung Cancer research.

They were great with a family member whose name was called by cancer. Quite a supportive group. Donated several times to them, highly recommend.

Fantastic organization with great resources and support. I love volunteering for Lung Cancer Alliance in memory of my mom.

I have volunteered for this amazing organization. Up on all the issues and does wonderful work to help all lung cancer patients stay updated on legislation and medical research.

Lung Cancer Alliance is the leader in advocating for patients and providers in ensuring best practices from prevention and early detection to treatment and survivorship. They were the first nonprofit exclusively dedicated to lung cancer. The passion, perseverance, inclusiveness, and grit of every LCA team member, past and present, continues to transcend lung cancer from a stigmatized, deadly disease to a curable and treatable disease that affects everyone with lungs regardless of age, gender, socioeconomic status and lifestyle.

Thank you LCA for everything you do for nurses, patients and the community. Never stop fighting!

I have been working with lung cancer alliance for 8 years after my mom passed away from lung cancer. They have been supportive in every way and it’s been a pleasure working with them.

I've been hosting an annual charity fundraiser for the past eight years with three friends. We've always been very passionate about our event, but it didn't really start to thrive until we found a nonprofit that was a perfect fit for what we were trying to accomplish. Just before our fourth year of the fundraiser, my family was hit by Lung Cancer. In my search for ways to help, I came across the Lung Cancer Alliance (LCA), and I immediately felt connected to their mission. We found a great partnership right away with LCA, and we haven't looked back since!

Our average funds raised per year have tripled since joining forces with LCA, capped by us breaking the $10,000 mark for the first time in our most-recent year. I think the goals and messages that LCA provides really seem to resonate with our donors . We've also grown more passionate in our efforts ever since we found a more personal connection with our charity. Working with LCA, we've really felt like we are making a difference and have a voice. Their representatives are always reaching out to us to show appreciation for what we're doing and remind us that we are a valuable part of their organization. This is something that we never felt with any of our previous nonprofits, and it's created a great experience for us all-around. We've been receiving fundraiser materials, wrist-bands, shirts, sunglasses, pins, thank-you letters, and continuous signs of appreciation through the years, and it's made our work feel more rewarding each time we do it! It's been a great boost for us, and I'd certainly recommend LCA to anyone else who is looking to have a voice in the fight against lung cancer!

I love working with Lung Cancer Alliance! All of the staff make me feel like family! They do an excellent job supporting lung cancer survivors and caregivers.

My introduction to LCA came through my mentor, Hilary. She was (is!) guiding me in starting a lung cancer screening program in my hospital. From the beginning, Hilary told me the success of her program wouldn't have happened without the support of LCA.
The more time I put into developing my program the more I have come to appreciate the varied resources of LCA. Every time I go to the website to find one thing, I find two more!
There are free resources for patients, both paper and online. So nice not to have to reinvent the wheel.
The annual conference was an amazing opportunity to learn and to network. I look forward to attending next year with even more questions.

When my mom died in 2008, part of my brothers and I grieving process were to give back someway in honor of her, who was gone too soon. We were not ready, we felt helpless, and we had no outside help to process what this thing that was taking our mother from us so early in her young seventies. So we founded Cinderella Cares Inc. named after her and we went looking for organizations that were on the cutting edge of changing the terrain, Lung Cancer Alliance is local and making a big impact. Therefore, we joined force with them. The LCA family has a big heart and a big vision and because of their integrity, passion, smarts, advocacy work, support to those at risk and navigating a lung cancer diagnosis, commitment to policy change, and increase funding to research we had to join with them. When we do our annual comedy for cure LCA is one of the recipients of the money we collect.

Thanks LCA - Cinderella Cares love all that you do unselfishly.

LCA has been a pleasure to work with from the beginning. Their motivational skills and true dedication to the cause is an inspiration. Look forward to volunteering in years to come!

Lung Cancer Alliance is an excellent organization that offers the most up to date information on lung cancer, current resources for patients and their families, and one may search for clinical trials. They are a true advocate in the political arena for those who are living the lung cancer diagnosis and for those who help screen and treat patients.

I was a Lung Health Navigator hired to start a lung program early 2017. I reached out to LCA last year for assistance. Angela Criswell, came to our organization and presented to the Oncology Collaborative team and was very instrumental in promoting Lung Cancer Screening and the importance behind their organization. With her help, we were able to start our program and have screened more than 400 patients in one year and identified 3 Stage I lung cancers exceeding the national average 1/320. Not to mention, they offer a lung screening conference for a way to learn and network with other organizations across the country. I attend 2/3 and could not have been as successful as we are today without the organizations support.

In Sept 2012 we were just starting our lung cancer screening program. Without the guidance and support of the Lung Cancer Alliance, we would not be where we are today....one of the largest lung cancer screening programs in the nation. The Lung Cancer Alliance has been a God-send to our program, our team, and our patients. They have helped us network with other facilities as well as local and national entities to bring an awareness of lung cancer to the forefront and best practices for detection and treatment. We are great at what we do, in part, due to the Lung Cancer Alliance. I cannot think of a nonprofit more deserving of recognition as we continue to save lives through early detection. They have my highest admiration and respect.

I have been working with the Lung Cancer Alliance for a few years as a patient advocate. They have given me the opportunity to participate in spreading awareness and supporting research. It is especially satisfying to join other advocates to visit our representatives on Capitol Hill and discuss the need for increased funding for lung cancer issues. The staff at LCA has always been extremely knowledgeable and supportive as we try and navigate the system and provide information to other patients and to our elected officials. The web site is an invaluable resource and has helped me learn more so that I can speak effectively about the most important issues. Throughout this work, I have met the most wonderful people, both within LCA and among the advocate population. I look forward to continuing working with them.

Words could not possibly explain how much I appreciate all the work Lung Cancer Alliance (LCA) has done since day 1 that I got involved with our FIRST Lung Love Walk Houston in 2014. It was great to know that there WAS a non-profit organization with passionate people about bringing lung cancer awareness as I was. I have been very happy being able to work with LCA for the past years.
The people there, such as Lanni & Maggie among many others have been incredible in all aspects. When dealing with them from planning to final event items, it has been a pleasure and it’s shown how much they care about LCA to be sure things run smooth from beginning to end.
THANK YOU LCA for making an idea become a realty to bring a lung cancer walk to Houston, now it has been just that, a reality year after year.

I am a for year lung cancer survivor and I absolutely love working with Lung Cancer Alliance! I especially enjoy partnering with them on the hill to spread awareness and ask for needed funds for lung cancer research. I find their mission is the same as mine when fighting this dreadful disease.

In 2010 when my sister, Mary Anne Rios, a non-smoker was diagnosed with NSCLC lung cancer, I was devastated. At 53, she was in the prime of her life. For the next 3 1/2 years she valiantly fought lung cancer but ultimately lost her battle in January 2014. My sister wanted to help raise lung cancer awareness and discovered Lung Cancer Alliance online. Lung Cancer Alliance provided her with support and resources but more importantly I found people I could talk to about my sister's lung cancer journey and my role as a caregiver. The staff at Lung Cancer Alliance are a wonderful group willing to listen and lend support. As a result of the support I received from Lung Cancer Alliance (LCA), I continue to support LCA programs and host fundraisers each year to help raise funds and spread awareness of this terrible disease that kills more women than the top three gynecological cancers combined. No one deserves lung cancer.

Lung Cancer Alliance is unlike any other cancer advocacy organization. Lung cancer has impacted several members of my family and I am incredibly grateful for LCA's continued advocacy efforts. Thank you from the bottom of my heart, Lung Cancer Alliance. Keep doing the amazing work that you do!!

LCA continues to be a leading non-profit within the lung cancer field. Their mission is embraced by their staff and all the individuals who they touch with their wonderful services. Through their outreach and programs, they bring a new meaning to lung cancer. I continue to be amazed by their progress.

I was introduced to Lung Cancer Alliance (LCA) at the Hope Summit in the spring of 2016. I was extremely impressed with the staff’s dedication, professionalism, and passion they demonstrated for their daunting mission (i.e), improving the lives of lung cancer patients and care givers. There is truly not enough superlatives to accurately capture what LCA does in support of cancer patients and care givers. The Staff’s omniscient approach to every aspect of lung cancer is heartwarming. I can’t count how many times I have heard how appreciative I am for everything LCA is doing to raise the awareness of such a debilitating disease. LCA’s aplomb staff is uniquely qualified, in their respective fields, to deal with so many aspects of lung cancer support and to provide that support in a no frills approach is extraordinary.

My name is Stevie m I was diagnosed 4/15 lung cancer I went into this not knowing what cancer is, I was so scared I only heard about it,I never knew anyone who had it,as months went by and I was loosing faith in medicine and life, my wife took notice, and had to get help asap, she made 1 phone call to LCA, and spoke to Tara and she put my wife at ease, and within 30 min I received a phone call from Tara at lung cancer alliance, and my whole life turned around, I was alive and living again, everything she said came true, and she put me in touch with 2 amazing people who survived cancer, and they walked me the rest of the way, ps doctors said il be around for a long time 'thank god, and thanks lung cancer alliance

I have been incredibly impressed by LCA’s efficiency since becoming a Board Member several years ago—they’re the top rated lung charity (receiving a perfect score from Charity Navigator), and they’re really the group doing it all for lung cancer—from research in early detection, to providing resources to hospitals and patients across the country (over 450 screening centers work with us) to changing the public perception/and thus creating awareness about lung cancer and those who could be at risk. Screening could save thousands of lives with early detection and have the most profound life-saving impact on cancer in history.

By advocating for patients with lung cancer to CMS, LCA was key in pushing forward coverage for low dose CT scan screening for lung cancer. They are a fantastic resource for providers, lung cancer screenign programs and patients a like providing an easy to navigate webpage and printed resources to help explain who is eligible for lung cancer screening, how to manage a newly discovered lung nodules, what options are available for lung cancer treatment and where a patient can find high quality treatment close to them. I an a thoracic surgeon and use Lung Cancer Alliance resources frequently, especially their patient information booklet.

LCA has been of a great help to me and my organization as we continue to navigate the waters of Lung Cancer Screening. The rules and processes for participating in a Lung Cancer Screening program have been a bit of a challenge as they have changed dramatically since we first began our program in 2011. LCA has held meetings in Washington DC which have been of enormous help to me personally. Topical speakers and programs which benefit me and my program directly. I look forward to this annual conference. LCA is easily reachable by phone and or email and always respond quickly to questions. LCA has inside track to experts within the American College of Radiology and the insurance industry as well as others that provide much needed direction to those running programs. It has been a great decision to join forces with LCA

Lung cancer alliance is a great organization that does wonderful things for people with lung cancer!

Lung Cancer Alliance (LCA) is a wonderful organization! I am a Thoracic Nurse Navigator, and feel fortunate to have this nationally recognized resource for my patients, families, and professionals.

I have never encountered such a passionate and dedicate group of advocates as I have experienced in my interactions with the staff and volunteers within the Lung Cancer Alliance. This group engages professionals and community members at so many levels and different angles to generate support for individuals at risk for lung cancer as well as those who have been diagnosed. I highly value my connection with LCA, and I will continue to extend my time and financial resources to support the work they do.

The Lung Cancer Alliance is an amazing organization that helps both lung cancer patients and institutions. As an LCA Screening Center of Excellence, the Maimonides Medical Center Lung Cancer Screening Program has received an enormous amount of guidance, expertise and support from this amazing organization. With their leadership, we were able to get insurance payments for life saving lung cancer screenings.

I love volunteering with them for the Houston Lung Walk. They take the time to answer any questions, love getting our ideas, and are always very personal with us.

As a lung cancer survivor I was fortunate enough to be invited to attend a Survivor meeting last September. When I arrived I was met by a group of extremely dedicated and caring staff members. Each attendee was made to feel as if they had known each other for years thereby allowing for a free exchange of information regarding individual stories. The Alliance is extremely proactive and is constantly pushing for a wider population of individual to be screened earlier for lung cancer. As a result of the positive atmosphere I was immersed in, before I even left the meeting I volunteered to be a Phone Buddy for the Alliance so that I can assist the newly diagnosed overcome any fear that they may have. BEST meeting that I ever attended!

I wish I had done more research and had known about Lung Cancer Alliance (LCA) when my stepdad was diagnosed with stage IV lung cancer in October 2008. In the years since he passed away on April 1, 2009, I have learned just how much critical work this dynamic nonprofit does for (most importantly) the people suffering from this awful disease, their family and loved ones, and their caretakers; advocating for more research and access to treatment; and carrying out public service campaigns to educate us all. LCA's work to dispel the myths associated with lung cancer have been particularly powerful for me. This organization is a shining example of what a health-related nonprofit can do to personally support those affected while lobbying for the resources to combat a devastating disease.

I am a twelve year lung cancer survivor. I have been a phone buddy and helped get petitions signed for Lung Cancer Awareness Month both in Tennessee and in Florida.

The people at the Lung Cancer Alliance are dedicated to helping. They are professional, friendly and knowledgeable. I am grateful for the support they gave me following my lung surgery and recovery.

Harriet Bensman

I have worked with Lung Cancer Alliance since 2013 .
They brought the first Lung Love Walk to Houston, Tx. I lost my Mom in 2013 to Lung cancer, and helping put this walk together has helped me so much. I am so greatful to everyone at Lung Cancer Alliance, they are making a difference and are amazing to work with. I plan to volunteer with this wonderful organization for years to come!

My mother was diagnosed with stage 3B lung cancer in 2004. She underwent surgery and radiation treatment, passing 15 months after diagnosis, in August of 2006. The Alliance not only helped me during this very difficult time by providing me with resources to be a better caregiver to not only my young children, but also to my ailing mother as well as my father, who was rundown from being the primary caregiver himself. The Alliance continues to help provide me with medical developments which I keep abreast of so I can monitor how modern science is helping to find a cure. I also use the site as a staple to harness volunteer opportunities so I may stay involved in the fight that took my mother's and so many others' lives. We must beat this disease and with organizations like the Lung Cancer Alliance, we will!!

Our son is living with stage IV lung cancer. He has the ALK tumor. He is a young husband and father of a three year old son. Believe me the support this group gives us is so important. Its' articles and drive to make new discoveries and funding for lung cancer gives us so much hope. Helping it reach its goals also gives us purpose. Our first experience was through Shine a Light last November. We are now hosting our own event. Thank you so much for your support.

Shortly after my lobectomy for a 1cm adenocarcinoma,I learned of the program the Lung Cancer Alliance was doing eith CT scans. I was so impressed that i wrote them to learn more about it. I gladly sent my CT scan to them for the use of training purposes for physicians. What a wonderful use never to be needed CT scans to help other patients!

Lung Cancer Alliance is a wonderful organization for the needs and resources for lung cancer patients.

I have been involved with the LCA since I attended the 2014 Survivor Summit. It was one of the most rewarding experiences I have had as a survivor. Since I am one of the 17% who did survive, I have felt a need to give back and support other survivors and help educate others about this terrible disease. The LCA gave me useful information to speak about and the experience visiting Capitol Hill and meeting with representatives was invaluable. I also have met a group of wonderful advocates and their dedication and passion have inspired me to do more. I hope to continue working with them and the LCA in the future.

Every interaction I've ever had with the Lung Cancer Alliance has been an exceptional one. The staff is very knowledgeable, friendly, professional, and timely. They live up to their mission and do such important work. I cannot express how great an organization they are!

I have been involved with the Lung Cancer Alliance for over 8 years. I am a 16 year survivor of stage 3 non small cell cancer. I have found help with my own issues involving treatment and survivorship. Over the years. Have volunteered to be a phone buddy, moderator of the lung Cancer Alliance support site and just to carry the torch for this organization.

I have received emotional and social support from the Lung Cancer Alliance since 2004. Also, I have volunteered as a phone counselor, community educator, survivor speaker, and fundraiser for them since 2005. The Lung Cancer Alliance is the voice of lung cancer survivors-fighting stigma, advocating for early testing and changing public policy, etc. I can't say enough about how grateful I am that they exist and how vital they are to ongoing research, treatment, prevention, and advocacy for lung cancer patients and their families.

I am a Stage IV LC survivor. I was diagnosed almost two years ago, just after my 41st birthday. I sent an email into BALCF a few weeks into treatment, and was shocked to get a message back from Bonnie directly - on a Sunday night! She personally spent hours with me, getting me up to speed, pointing me in the right directions. Since then, I've been in contact with various other members of her staff, and all have been just like her - invested, caring, and above all productive. I've been in touch with several other LC organizations, and they've all meant well, but simply none have delivered results like BALCF (& the sister organization dedicated to research ALCMI). BALCF gives me very specific direction and contacts with the experts I need, and invests in research that is keeping me alive. If I need help with anything in the LC world, Bonnie and the BALCF are my first call. A+++++!

Lung Cancer Alliance was offering support and resources for all affected by lung cancer, as well as advocating for change on Capitol Hill long before any other organization was. They offer free support to all who need it, educate the public, and have successfully written legislation to forward progress toward screening and pathway to funding and a cure. Kudos to an organization with both integrity and heart.

Our daughter was diagnosed with "stage 3a non-small-cell" lung cancer at the age of thirty five. A mother of three, she was faced with no hope for survival beyond an unlikely one or two years and that would be even with chemo treatments and close doctor care.
Introduce a brilliant young surgeon who wanted to try to save her life by performing a very difficult, very risky surgery that would involve removing 2/3 of her right lung and whatever else that might already have been touch by the cancer. She considered the quality of life but knew she did not want to leave her kids motherless and wanted to see them grow as any loving, devoted mother would. She opted to risk the surgery and the brilliant young surgeon pulled it off flawlessly.
Get this!!! That particular surgery was seven years ago!!! Although our daughter is still on chemo pills, she has seen two of her kids start college with the third in high school. She continues to be very active, going to sporting events of the kids and other activities such as shopping, pursuing a hobby and living each day to the fullest to the best of her ability.
Early on we became aware of Lung Cancer Alliance and have been to "Shine a Light" events where our daughter spoke and her sisters are advocates and speak also. One sister (and nephew) have been to Washington advocating with LCA. We've had the opportunity to help place flags on our town's Court House Square, which our local LCA chapter arranged. We intend to do this again in November. Shine a light events help to increase awareness about Lung Cancer and the terrible number of people afflicted by it and affected it. These events enable those affected by lung cancer to come together and share their stories, meet others affected and support one another.
I hail Lung Cancer Alliance for their relentless efforts to bring about awareness relevant to lung cancer and for their tremendous work in getting our elected officials involved in getting federal funding for lung cancer research, which is making great strides. Before LCA's push there was very little being done for the advancement in research for this disease (incidentally, lung cancer kills more victims each year than the next four leading killing cancers combined). We have learned so much by reading LCA materials and getting involved and are grateful for their commitment.
Every day we our thankful that our daughter is still with us and also thank LCA for their great work for this cause. We, as the victim's parents, consider ourselves "Clients" rather than "General Members of the Public" because LCA has helped us so much by being there for us.

As an oncology nurse I find the Lung Cancer Alliance priceless. The information they share not only with the healthcare community, but the general population is so comprehensive and evidenced-based, that we can rely on them for our information. Since the USPTF approved lung cancer screening in 2015, the Lung Cancer Alliance has helped healthcare organizations to wade through the ruling and the payer issues, to get lung cancer screening out to the public in an efficient and timely manner. I find the Lung Cancer Alliance a valuable resource. Gean Brown MSN, RN, OCN

After my mom passed away of lung cancer and my friend's mom also passed four months after, she found a Shine the Light vigil put on by the LCA which we attended. After that, we wanted to be more involved and decided to start a Shine the Light vigil in our part of town. Later on we wanted to know of walks that were put on by the LCA in Houston and we found none. It was then that we decided to start one and put the vigil on hold. Since then, we contacted Lanni with LCA and after speaking to her she came to Houston and met with us and a few other volunteers. Our journey started! with the collaboration, we are proud to have the FIRST Lung Love Walk in Houston on November 8, 2014 and we have raised more than half of what our original goal was! We have the volunteers all willing to help and put this walk together but it could not have been possible without the guidance of LCA, for this I am thankful that we have found not just someone to walk us through the process, but an organization that offers support, awareness, and such to volunteers, caregivers and more importantly to survivors. We want to be part of an organization that wants to END THE STIGMA and make people aware that lung cancer is the deadliest cancer and YET the least funded. I speak for many who have worked to put this walk in saying that I am thankful for LCA. Thanks again!

I found this organization after my sister was diagnosed with stage IV lung cancer. Sadly she passed away 2 years ago. I was able to find support, ask questions & get educated from their site. I am also a runner so I signed up with Team Lung Love. You can run any race anytime & collect donations for LCA. These people have never hounded me for anything. They have wonderful support & give all they have to those in need. They are pushing hard in Washington for better screening so people can get diagnosed sooner & have a chance to live. So glad I found them & thank you so much for all you do.

I became acquainted with LCA in 2010, several months after my husband passed away quickly from stage 4 lung cancer. I sincerely wish that the hospital staff would have known of LCA and shared their resources with me. In the past 4 years I have been part of one amazing experience after another as part of the LCA family, advocating for public awareness and supporting others going through this horrific journey.

Last year a friend of ours invited us to a candle vigil for lung cancer and we had nothing else that night so we joined her. Well we listened to personal life experiences, a medical professional and got some education. My husband was a heavy smoker at that time and had been having some breathing issues. So we got him into the doctors office armed with a request for specific testing (not normally done) and yes a few small spots were discovered. After months of follow up the spots were found to not be cancer-however my husband is well on his way to being a nonsmoker and other health issues were discovered in the process. We read the emails we signed up to receive, act on events-requests as best we can, pass on information and are forever grateful that the vigil, speakers and information were available for us at a cost of only our time. You are helping so many people as I know there are a lot more stories out there that are happening right now but are not being told. THANK YOU FOR ALL YOU DO!!! Debbie and John

The LCA is the single organization I know that is always rolling up its sleeves, as it were, to pitch against lung cancer. The staff is tireless and focused, and anyone who has been involved with the LCA, as I have since my wife died four years ago, can already see the progress in awareness, screening, and reduced stigmatization of lung cancer victims. Needless to say, there is a long way to go until lung cancer is given the national attention it deserves, and the task seems like the labor of Sisyphus, but when the day arrives that it is, it will be the LCA that will finally push that rock to the top of the hill--and it won't roll back down.

My mom survived lung cancer. She is now healthy and happy. She still has a picture of all of us walking for her, with her, a few years ago at a Lung Cancer Alliance walk in San Diego. The walk brought hope to our family and we are forever grateful.

I lost my sister to lung cancer on Jan 4, 2013, four days after she was diagnosed. My world was turned upside down and I had friends and family asking who they should make donations to. I found Lung Cancer Alliance listed as one of the top ten cancer organizations. I had no idea how close to my heart they would become. They are champions of their cause and I am honored to be a part of it. Their team is made up of caring, compassionate, determined people who are trying to make changes that will help those with lung cancer and those at risk for lung cancer. I recently attended the LCA Summit in Washington, DC with my daughter and it was one of the best experiences of my life. Thank you all; the team at LCA, the surivors and those who have lost loved ones. I believe we made a difference and isn't that what we are here for?

I am a 6 year lung cancer survivor - and LCA has helped me through every part of my journey. From first diagnosis, through many times of 'scanxiety', through feelings of guilt for surviving (trust me - it happens), through on-going pain, etc. The people of LCA are my support. I have cried on their shoulders more times than I can count and there ALWAYS was someone there to help wipe my tears with their caring, understanding and love. This is an amazing and powerful organization and I will forever be a member and try to help others as I have been helped.

I'm a survivor of Lung Cancer (almost 6 years) and the Foundation has been an enourmous resource for information and personal support. The dedication and passion proven by Bonnie Addario and everyone involved is unlike any other I've experienced. I'm proud to be a part of their fundraising walks in Texas and have been the top individual fundraiser for the past 3 years.

Unlike some other non-profit Orgs, I see actual results from my efforts. I truly feel, in a world where Lung Cancer is stigmatized and neglected by adequate research funds, that BJALCF is the change we so urgently need.

I am a Stage 4 Lung Cancer survivor who has just celebrated the 6 year milestone. Although treatment is ongoing and there are always surprises and new progression, I have a good quality of life. It is important for me to utilize this time and add purpose and leave a legacy. Through LCA I volunteer as a Phone Buddy to help others.
I post in chat rooms to share experiences with those who may be just starting a clinical trial that I have been on for two years. I use my coaching skills to help others locally and online. LCA is supportive and involved. Their efforts to help us with our first Shine a LIght on Lung Cancer in November is valuable.
Their recognition of outstanding Support Groups raises the awareness of patient needs and their work on Capital Hill is critical to research funding that contribute to our survivorship.

Being a survivor myself, I know how important it is to talk to people who have already traveled the road that many are traveling now. I love being a "Phone Buddy" and hope that I give some encouragement to those I talk too. I don't fool myself that everyone will have the same outcome I did (8 years survivor and cancer free) but if they can feel good about themselves and have a glimmer of hope that will make their lives better while fighting the fight of their life, that is what I want to do. Everyone fights battles of all kinds in their lives but if you can share yours with like minded people you actually get more reward out of doing it than the person you are talking too. I hope to continue with The Lung Cancer Alliance as long as I can.

In 2000 and 2003, though a NON SMOKER my entire life, I was stricken with lung cancer. My surgeon Dr. Christina Williamson had heard about Lung Cancer Alliance when they were in one room in Seattle, Washington trying to increase awareness about the number one cancer killer. They helped me immediately and made me feel I was not alone. Since then, LCA has moved to Washington, DC and done remarkable things for victims of lung cancer as well as families. I am so proud of what they are doing coast to coast and outside of the USA. They handle the disease by contributing to research, reaching out, advocating and leading the way. They are the best. Gail Matthews

I also found out about my lung cancer by accident and had a large wedge removed from my right lower lobe on June 27, 2013. The doctors told me the frozen section showed no malignancy, but the final pathology disagreed; I had Stage I adenocarcinoma. I just had my first f/u CAT scan and there has been no change, but I worry a lot about recurrence. I would love to have a support group close to where I live through LCA, but there is not one in the area. I support LCA by being a donor and trying to support others through their journey on the website.

Late December 2010, I went to the Urgent Care thinking I had a sever bronchial infection. Had pneumonia and a "shadow" in the lung xray. Be the beginning of February 2011, it was decide to remove a large wedge of the upper right lobe of my lung and several small wedges. January 2012 saw return of several tumors. Started chemo at end of June 2012 until end of October 2012, Avastin only for 2 1/2 months and then pneumonia in January 2013 showed tumors back. Went back on chemo until April 2013 and have been on Tarceva since. I also have COPD and Crohn's. Chemo and Crohn's do not want to work well together. Due to sever dehydration, I have been hospitalized twice since on the Tarceva. Have finally gotten things under semi control and living well right now.

I, too found out about my stage I lung cancer by accident. A routine x-ray revealed "a mass". My journey began that day and now, almost two years later, I am alive thanks to my amazing and wonderful doctor at Memorial Sloan Kettering Cancer Center. I joined the Lung Cancer Alliance to get support, information and most of all to share my continuing medical journey.
The stories we share are sometimes sad, hopeful, full of joy and love. Here's mine, I live life today and in the now. Thanks, LCA, for being my partner along this road.

When my daughter died from lung cancer, then I got it I was so devastated I didn't know where to turn Someone recommended Lung Cancer Alliance, and they have been wonderful! I have been to Capitol to fight for additional funding for research, and will continue to do so. The information, and support they give is nothing short of excellent!

I was found to have stage 1 lung cancer. It was found out by accident, I had gone to the Dr, for my gall bladder and they saw something on the x-ray. So immediately they sent me to a lung specialist. He watched it carefully for 6 months. then it started changing and they did a biopsy and came back as cancer. I had the best doctors in the world. They took out part of my right lung, then I went through chemo but now I am fine. I do go to a lung cancer support group but there was none around till this very nice gentleman started one. You don't ever see anything about lung cancer. Breast cancer things are all over .They need to have things for us too.

As a newly diagnosed lung cancer patient, I was overwhelmed with information. And since I was diagnosed with stage IV NSCLC, what I was reading was dismal and discouraging. Connecting with others that are surviving and joining in the fight to end the stigmas that lung cancer is only a smokers disease have helped me become hopeful about my future and survival.

Thank god there out there fighting for more funding for Lung Cancer. I have no problem donating to there organization.

I couldn't get this organization to agree to call for a BAN on the tobacco drug, which CAUSES almost ALL lung and other cancers, so I told them they should disband, since they are NOT serious about ending lung and/or other cancers!

BAN THE ILLEGAL TOBACCO DRUG, NOW AND PROSECUTE THE CRIMINAL TOBACCO PUSHERS, TOO!

I am a Lung Cancer Survivor and have volunteered with LCA for about 7 or 8 yrs. I am a Phone Buddy and am very pleased with the role. I spend an hour or more with a patient, sometime more. It is a give and take conversation. I enjoy talking with patients and am so glad that I am able to help others. I want to personally thank LCA for making this program possible.

I volunteered to be a phone buddy and spent over an hour in a telephone interview. As a three-time lung cancer survivor including surgery, chemo and CyberKnife radiation, I was assured I would be in demand
because there was only one other phone buddy who had had CyberKnife treatmentat that time.
Months went by without contact. I was called a second time for another interview and again never heard a word.
I am now a fourth-time survivor (survovor to me meaning at least one clean PET scan between treatments.
Why the assurance and time investment if I'm not going to be used ?
Phil
wuzzfuzz11743@verizon.net

I attended a conference last year with Lung Cancer Alliance and found it to be one of the best organized, most cost effective organization I have seen. The conference stayed on topic, accomplished its mission and created a wonderful and productive experience for all who attended. The organization raises funds for what it needs and has a great deal of transparency. I have known quite a few non-profits and this one ranks very, very high on my list. The leadership, both lay and professional, is excellent!

I am a 10 year lung cancer survivor. Only 15% of us survive 5 years or more. When my best friend fell off her patio and was x-rayed at the emergency room, she was diagnosed with Stage 4 lung cancer. Six months later I had an occasional cough after having had a bad cold. After much nagging from my husband to go to the doctor (I accused him of overreacting because of my friend), I want to the doctor. I was diagnosed with Stage 3A lung cancer. We were both never smokers.


I was lucky. I was able to have surgery (the gold standard of care), my friend was not. She died 2 years after her diagnosis after the cancer had spread to her brain and lumbar.

When people learn I am a lung cancer survivor, they ask if I smoked. That question implies that a person who smokes deserves to die. No one deserves to die. The Lung Cancer Alliance actively works to erase the stigma of lung cancer, provide patient support services, and advocate for public health dollars for research.

The Lung Cancer Alliance is a major force in advocating for the Recalcitrant Cancer Act which charges NCI to develop a coordinated, comprehensive plan to provide research for cancers which have a low survival rate and specifically targets lung cancer.

I am a volunteer with the Lung Cancer Alliance to advocate for its goals.

I am a stage IV lung cancer survivor, diagnosed incidentally in 2006, without a sign or symptom; it sent our entire family into a tailspin. My daughter researched BJALCF and realized it was a perfect fit for us. Starting at the very top with Bonnie herself, I have come to know these wonderfully caring, intelligent, and fiercely dedicated people. I love them all. It is inspiring to watch them support and sponsor the best and the brightest in the field of lung cancer research, making a difference in the treatment and survival rate of Lung Cancer NOW. At the same time, they provide information, hope, and inspiration on a very individual and personal basis to those of us battling this disease. I was inspired to begin a 5K walk/run in Gainesville, FL to support the Foundation. We will be celebrating our 4th annual Run Amuck With the Duck on March 9, 2013. It's incredibly fulfilling to be a BJALCF soldier in this war!

My wife was diagnosed with lung cancer over a year ago. As we progressed from one piece of bad news to the next, we also were fortunate enough to learn about the Bonnie J Addario Lung Cancer Foundation. The support, education and renewed faith they have given us has been precious beyond words. And the research work they are championing gives us faith that there may someday be a cure for this nasty disease. Bonnie and her staff have been beyond belief in the guidance, support and friendship they have given us. We don't know where we'd be without them and are giving them all of the support we can in return!

As a healthy, non-smoking 28 year old diagnosed with lung cancer, I was in shock. We were referred to the Bonnie J. Addario Lung Cancer Foundation, and they have been a beacon of hope in this entire process. They are hands-on, accessible, and above all extremely knowledgeable in the world of lung cancer. As I like to say, no one should have to go through lung cancer, but if we have to, thank goodness organizations like BJALCF exist to guide us through. Thank you BJALCF!

BJALCF is a remarkable organization that has embraced scientific research and patient care, equally. The organization is visible and its work is making an important difference in the lives of lung cancer patients and their families. I became involved when my sister developed lung cancer and subsequently joined the advisory board of BJALCF and committed support to the Foundation and its top researchers. I'm impressed with the scope, reach, and impact.

The Bonnie J. Addario Lung Cancer Foundation is the rare non-profit that has the perfect combination of a) warm, caring, and truly concerned people, b) cutting-edge research programs and patient services, along with c) business-like fiscal responsibility. A powerful combination in the fight against lung cancer. My organization, The Joan Gaeta Lung Cancer Fund, became a BJALCF affiliate in 2010 for this very reason; but, have been supporters and friends in the fight for over five years now. They are one of the best lung cancer advocacy and research groups out there.

There's some special "alchemy" going on at the Bonnie J. Addario Lung Cancer Foundation that starts with Bonnie and pervades her entire staff: 100+% positive, helpful, proactive, ALIVE! I have spent my personal and professional life in the non-profit sector. Of the organizations that I have encountered, BJALCF ranks at the top in terms of how it embraces people in need, provides life-saving information and personal help, and provides great hope in the face of having a life-threatening disease. As a volunteer and as the wife of someone with lung cancer, I know that the Foundation's research and advocacy work saves lives AND has provided me and my husband with a life-saving place to be. It is rich resource of information and of people with great heart. I often tell my friends that, "The Addario Foundation is doing for lung cancer what the Komen Foundation has done for breast cancer."

My daughter's best friend, Jill Costello, died of lung cancer in 2010. A few months before she died, Jill agreed to be a spokesperson for the BJALCF. It was a smart and brave move on her part. Everyone at BJALCF was so loving and supportive of Jill and her family! For myself, I am very glad I had somewhere to turn after Jill died. Through my efforts on behalf of the foundation, I feel I can make a positive difference to beat lung cancer -- big time! BJALCF also helped Jill's young friends set up Jill's Legacy, which is an young persons' advisory board to BJALCF. I know that, by becoming involved with Jill's Legacy, it has made a big difference in my daughter's life, after losing her best friend. I have seen everyone affiliated with both BJALCF and Jill's Legacy work tirelessly to raise awareness and funds for research. I am quite certain that their inspired efforts will bring about a much increased lung cancer survival rate over the next several years.

I am proud to be a part of this organization that started just seven years ago as a grass-roots idea and has burgeoned into a highly respected and admired foundation to fight against lung cancer. What Bonnie, her family and those alongside her have accomplished is rare in the non-profit world. BJALCF funds research towards finding the most effective treatment options working collaboratively with worldwide scientists and doctors, while at the same time assisting patients and caregivers with The Lung Cancer Living Room, a support group located right in their office (and offered on-line). BJALCF is about hope, its about education and its about what a family can do together when their hearts are aligned. Bonnie's optimism and love is contagious. Its no wonder this Foundation has made the progress it has in such a short amount of time.

I feel like I fit into many categories under the "role" section for the Bonnie J. Addario Lung Cancer Foundation. I first joined the foundation as a volunteer when a dear friend was diagnosed. BJA welcomed me and gave more support back to than I could ever give to it. The foundation empowers patients and families and I knew I wanted to be a part of it. This foundation treats every side of lung cancer and I am forever grateful for the 360 degree action they take to fight. I now sit on a young professional board of the foundation and it is the thing I am most proud of in my life. I may not be a researcher and I am not a big donor, but BJA has shown me the impact each person can to tackle something much bigger. Thank you BJA!

AS A LUNG CANCER SURVIVOR I AM VERY DEDICATED TO THIS AWESOME ORGANIZATION. I TOOK ADVANTAGE OF THE PHONE BUDDY PROGRAM AND I AM A VOLUNTEER IN THIS WORTHY PROGRAM. THE BREATH OF HOPE WALK IN SAN DIEGO, CA IS AN AWESOME EVENT SPONSORED BY LUNG CANCER ALLIANCE TO RAISE ADVOCACY FOR THIS POORLY REPRESENTED DISEASE. THIS ORGANIZATION IS BABLY NEEDED AND DOING SO MUCH TO HELP THE LUNG CANCER CAUSE. SINCERELY, DONNA ENGELBERT

As a 2 year Lung Cancer survior Lung Cancer Alliance has given me hope and motivated me to fight for awareness from the stigma that goes with having lung cancer. Lung Cancer Alliance is the only national non-profit organization dedicated solely to providing support and advocacy for people living with or at risk for the disease. They have a great mission: ending injustice and saving lives through an alliance of advocacy, education and support. There vision is to reduce lung cancer mortality by at least 50% by 2020. I come from a family history of Lung Cancer and those words were music in my ears. I want my children and grandchildern to have a better chance and clear understanding of Lung Cancer and real change needs to come. With Lung Cancer Alliance I know in my heart they are at a tipping point and making a difference everyday.

I became a phone buddy for the Lung Cancer Alliance to help others discover the gift of early detection. Having just crossed the threshold of 5 years survivorship, I am testament that detection at Stage 1 is life affirming. The staff at LCA works tirelessly to have our voices heard and bring needed attention to the devastation of lung cancer on the lives of millions annually. It is an awesome organization.

When I lost my husband and his brother to lung cancer,I was devastated. I needed to process my feelings and learn more about this horrible disease. Both of these men stopped smoking 20 or more years before they were diagnosed;however,it was the lung cancer alliance that provided me with the facts that you never hear in the media.People look down on lung cancer patients because they smoked, regardless of the circumstances,but LCA through their diligence gets the facts out and takes the shame away. I mourn these precious souls everyday;but I am grateful to the LCA for being there for me and allowing me to hold my head up high and know that they are doing more than any other organization has ever done to see that research is done and everyone has a chance to know the truth about this dreaded disease.

I discovered Lung Cancer Alliance after lung cancer ended my mom's life on this earth too soon. I am encouraged by the articles they share and the activities they host to shed light on the LARGEST cancer killer that exists. November is National LUNG Cancer Awareness Month...White is the color of ribbon that represents the largest cancer killer...but this form of cancer STILL NEEDS more publicity. Shine A Light on Lung Cancer Vigils will take place in November, and the LCA is working hard to shine a light on this awful disease that needs SO much more attention among our communities.

As a lung cancer survivor and a volunteer, I am very grateful for the advocacy that Lung Cancer Alliance provides to so many. The integrity and credibility of the organization is second to none. I am most appreciative of LCA’s effective work in the area of public policy and care for and assistance for the patients and families with lung cancer.

This non-profit was unknown to me until my father was diagnosed with lung cancer 2 years ago. In my mind it seemed as if my dad was diagnosed and gone before I even had a chance to comprehend what was happening. My father was diagnosed in the summer of 2010 and left us on October 2, 2010. Through the shine-a-light vigil held in Syracuse NY that November, my siblings and I were embraced and held while we mourned. Through donation and fund raising I feel that I am helping to push forward the importance of government funding and increasing the publics knowledge about this horrific disease. I will continue to fight on behalf of patients, survivors, loved ones and those that champion the lung cancer cause.

This is the most informative non-profit I've seen through their emails. Love their message "No one deserves to die!" They are the only ones who are making progress in getting the word out about Lung Cancer and getting the funds to find a cure and early detection. I admire them immensely.

Lung Cancer Alliance works deligently to bring people together to promote real change. They are not about just throwing money at a problem, they are about changing policy to make a difference immediately.

When I lost my mother to lung cancer, I was angry; angry that there was nothing I could do to help her or save her. A couple of years after she passed, a friend of one of my sisters saw a sign or posting about LCA's event "Shine a Light on Lung Cancer." Well, since my sisters and I never really heard anybody speak of lung cancer, we thought we should go to check it out. Well, am I glad we did! We were approached by Diane Daniels Legg, a co-chair of the New England Chapter of LCA, also fighting her own battle with lung cancer. She was so heartwarming and kind, and she really took an interest in us because we were so young when we lost our mom. We continued to attend the "Shine A Light on Lung Cancer" vigils, and in January of 2011, my sister Kristina and I joined LCA in advocating on Capitol Hill. That was one of the most rewarding and enlightening experiences I've had, and I have LCA to thank for that. Ever since that first Vigil, my sisters and I were hooked on this organization. Everybody who attends is so passionate and there for the same thing, to END LUNG CANCER! I am so lucky to be able to be apart of LCA, and I only wish that we knew of them while my mom was sick. For some odd/crazy reason, I feel like she might still be alive had we known about them then.

The Lung Cancer Alliance helped me turn a negative (contracting lung cancer) into a positive (helping those on the same trail). Lung Cancer changed my life. The LCA gave me an opportunity to use that change to help others while at the same time helping myself.

The LCA is one of the precious few sources of support for those afflicted or impacted by the deadliest of all cancers where, shamefully, almost no progress has been made in survival rates for forty years. My late wife (incidentally a non-smoker and athlete, like many who lose their lives to lung cancer annually) bravely fought the disease for nearly six years. In her final years, she was a passionate volunteer for the LCA - their staff and fellow volunteers made such a difference to her - she cherished the companionship, empathy, and shared purpose until the end.

The Lung Cancer Alliance stands alone as THE ADVOCATE for all patients and family members who have been touched by lung cancer. Before I found the Lung Cancer Alliance I was here in Springfield, Missouri casting about on my own...there were no support groups, no ribbons to wear, no survivors to cheer me on....that's because the survival rate for lung cancer is so low (15 to 17%) and very few make it to the 5 year mark. When I connected with the LCA, I instantly found a group who understood what I was going through...they reached out to me in many ways and continue to do so. Through the LCA I have been able to tell my story aa a two-time survivor of lung cancer so perhaps others won't feel so isolated. I know also that the Lung Cancer Alliance, through their national outreach, will speak for us and continue to fight for a cure to this devastating disease.!

An amazing organization working through grassroots campaigns to make legislative changes that will impact this field for generations to come.

As a senior physician and surgeon who has spent most of his adult life treating patients with lung cancer, I greatly appreciate the wonderful work done by Lung Cancer Alliance (LCA). Many advocacy groups are run by kind, caring individuals who are well-meaning but ineffective in fostering positive change in treatment of disease. This is most definitely NOT true of LCA. The organization is kind and compassionate, but also has a very clear understaning of lung cancer, why current management is insufficient and what needs to be done to safe lives and alleviate suffering. Armed with this knowledge, they effectively, forcefully and fearlessly plan, inform and advocate social, plitical and public health policy change to prevent the disease and foster early detection at a stage where curative treatment is available.

My mom passed away due to lung cancer in 2002. It will be 10 years this September. At the time of her diagnosis she had been a 21 year non smoker. My biggest frustration was the futility of my Mom's passing at such a young age when she was so vibrant and had so much more to give to the world. She was also completely healthy otherwise. In 2009 due to a recruiting e-mail at work I found out about Lung Cancer Alliance. I was immediately impressed with the passion and commitment of the organization and in time I became even more impressed with what this organization has accomplished. I am proud to be a part of it.

My father and three friends, all of whom were never smokers died of lung cancer. I also lost three former smoker friends to the disease. I am a never smoker and was lucky to be diagnosed with Stage 3A lung cancer. I am an eight year survivor!I I want to help make a difference and save lives. That is why I am volunteering with the Lung Cancer Alliance.

I am a 42 year old woman living with Stage IV lung cancer. The Lung Cancer Alliance is a strong and vital organization in the fight against this historically neglected disease. They keep their eye on the ball and fight for the dollar...they look to level the playing field for federal funding as compared to many other diseases and medical conditions that have benefitted from far greater funding even though dramatically less fatal. They provide very personalized, high quality patient support programs. And the staff of the organization are bright, committed, passionate individuals.

I feel so fortunate to have found Lung Cancer Alliance. My Dad passed away after an 18-month battle with stage 4 non small cell lung cancer on May 29, 2009 at the age of 66. After witnessing my Dad's brave battle with this horrible disease and his devastating physical deterioration, I felt compelled to do something to continue his fight and make sure others didn't have to suffer as he did. In googling lung cancer organizations 5 months after my Dad passed away, I found that there weren't many organizations related to lung cancer. Around November 2009, I found Lung Cancer Alliance, the only national non-profit providing information, support, and advocacy for people living with lung cancer or at risk for the disease. I wish that I had known about Lung Cancer Alliance when my Dad was undergoing treatment. What an invaluable resource this would have been! When I found them in November 2009, I was told they were forming Team Lung Love for their inaugural run in Providence in May 2010. I'd never run a half-marathon before and like the Nike slogan, "Just do it"--I did. At that moment, I started a partnership with Lung Cancer Alliance that I know will continue throughout my life. Team Lung Love was one of the best experiences of my life in which I raised money and awareness for lung cancer. Team Lung Love has made me feel that anything is possible with hard work and a great team behind you. But that run was just the beginning. I could never have guessed all of the places that decision to run as part of Team Lung Love would bring me. I I continued to run as part of Team Lung Love. I was asked to be NYC Team Captain for Team Lung Philly and happily accepted, helping recruit members for the team. I also decided to organize a Shine A Light On Lung Cancer Vigil here in NYC as part of their annual Shine A Light program during Lung Cancer Awareness Month.
I also started speaking at local political and civic groups about lung cancer to educate people on the staggering facts about this underfunded disease that is the # 1 cancer killer in this country. Lung Cancer Alliance gave me the opportunity to make a difference. Through Lung Cancer Alliance, I found my voice as an advocate. Recently at the invitation of Lung Cancer Alliance, I had the opportunity to tell my Dad's story and advocate alongside fellow advocates on behalf of the Lung Cancer Mortality Reduction Act on Capitol Hill as part of their Capitol Forum. My work with their continued support continues at home to gain the support of my Congressman on this legislation.
Lung Cancer Alliance is an amazing organization that helps bring together people of varying backgrounds who share their connection to lung cancer whether through the loss of a friend or loved one or the fact that they are a survivor themselves. I have met an amazing group of people through this organization--people I am proud to call friends. I know everyone at Lung Cancer Alliance personally. They are friends on a mission working tirelessly to end the stigma associated with lung cancer. And so my journey with Lung Cancer Alliance continues. Next stop--running my next half-marathon as part of Team Lung Love Providence.

I discovered LCA when someone who was like a Mother to me was diagnosed with Stage 4 lung cancer. Lung Cancer Alliance was there to provide information and support. Though Merrillyn Stevens lost her battle with the disease only 10 months after her diagnosis, Lung Cancer Alliance carries on the fight for all. I have personally met and spoken with several members of their staff, and many of their advocates. This is a top-notch organization completely dedicated to reversing decades of stigma and supporting those currently struggling with lung cancer. I respect members of the staff so much for what they've accomplished in such a short amount of time with the limited resources they have. They are so knowledgeable and professional, and sooooo caring. With LCA on our side, I know that someday we will win the fight against this deadly disease.

My wife, Sheila, passed away in September 2009 and the Lung Cancer Alliance was instrumental in providing an outlet for me to channel my need to "do something." So I turned my attention to raising money to assist in their mission - awareness building, and legislative advocacy. The level of care for lung cancer patients needs to be on parity with the other cancers (breast, prostate, colon) that get far more funding, even though their death rates are far less than lung cancer patients.

Our lung cancer support group found LCA on the web. We wanted to be part of something, to put our site on the map, so we did the "Shine the Light Vigil". Soon after, we were invited to Washington DC for their 4th Annual Conference. Little did we know that we would be part of a movement to promote "The Lung Cancer Mortality Reduction Act". LCA has given us hope that something will be done to increase awareness and decrease mortality rates for lung cancer. We are thankful for all of the people that work for LCA, for giving us the inspiration and knowledge we need to keep fighting for better treatment plans and funding for research, for early detection. Lung cancer should not be the leading cause of cancer deaths.

Words cannot describe how i feel about the LCA! I felt impowered the minute i met all who work for the LCA! Being an advocate, here in California, has not only been rewarding but has been making a difference.
My girlfriend Sheila died from lung cancer. We were friends for over 45 yrs! Watching her go through this devastating cancer was ,need i say, most difficult. I was blessed to go to CAPITOL HILL and help with the legislation process to get lung cancer noticed, to give information and tell our stories. I am mad as hell that we are he most underfunded,ignored and stigmatized cancer! Along with the LCA and here in SAN DIEGO with
BREATH OF HOPE, we all, the volunteers AND the survivors will fight to be on the same playing field. For us to have the goal of conquering this cancer, to rid this cancer from our human experience! LCA is amazing! They are strong and I am proud to belong to this loving,caring, group of people! Watch out!
MONICA WAY

When my husband received the shocking diagnosis of lung cancer (he didn't have any easily identifiable risk factors at the time), we turned to the well-know cancer/lung organizations to volunteer for Lung Cancer Awareness Month. Their response? Nothing, really. They only focus on smoking (my husband was a lifelong adamant non-smoker). The one organization which did respond immediately - Lung Cancer Alliance. LCA not only helped us organize a rally in a matter of days, but they continued to provide direction, training and support to further our advocacy withiin the state. Eventually I became volunteer C-Chair for LCA-CA. In all my experiences with LCA, I have seen their determined persistence and unrelenting efforts in the face of overwhelming stigma and apathy toward the disease. They produce an immense amount of work with an unprecedented low number of paid staff. This was made abundently clear to me when I would note the times on their return calls/emails during the late night or very early mornings. I have seen an immense change in the level of public discussion and a new interest in the disease (rather than simply the issue of smoking) on the part of established organizations over the six years since my husband's diagnosis. This is due directly to the efforts of Lung Cancer Alliance. I whole heartedly recommend this organization. With a significant increase in resources and support, we CAN achieve the LCA goal of NO MORE LUNG CANCER!

I have been a lung cancer survivor for over 11 years. I became active with LCA shortly after my recovery and have remained an active advocate for this organization. During my journey with lung cancer I could find little information on lung cancer, treatment options, and support groups. I joined LCA because it was the only organization that was dedicated to supporting, education, and advocating for lung cancer patients and those at risk for the disease. This organization gave me the skills to advocate and lobby for lung cance patients here in Maine. Through their support I have been successful in getting a bill that I wrote passed to help raise awareness. I have also been very successful in meeting with our Govenor in declaring Lung Cancer Awareness Month. I have been successufl in holding public forums with the Governor and the legislative body. This is the only organization that has been active on a National level to change health care policy through legislative action. They see the challenges that need to be overcome and meet them head on. it is through their support and education that has helped me effect change in the State of maine

There are some fantastic lung cancer advocacy groups out there but this is the only one devoted to changing national policy and re-directing our tax dollars towards lung cancer research. Lung cancer kills more people than any other cancer (and twice as many women as breast cancer) but is the least funded of all of the major cancers. The Lung Cancer Alliance doesn't discriminate based on type of lung cancer, smoking history or anything else. They help people with lung cancer, period. They also have an excellent patient support program which includes a peer matching system and a fantastic online support group at www.inspire.com. I can't think of enough good things to say about this amazing organization.

Lung Cancer Alliance offers top notch and comprehensive patient support programs as well as works tirelessly for all of us affected by the disease by fighting to secure the funding from the federal government necessary to make an impact on its devastation. This is particuarly critical since so many other types of cancer are more highly prioritized by the public even though lung cancer is more deadly than any other.

I LOVE LOVE LOVE this organization. Thank God for the voice they provide for lung cancer patients and their families...and for those for whom we have lost. After losing my wonderful, beautiful Mom to lung cancer after a courageous 7-year battle, I found LCA and am so grateful for what they do. Thank you to all those who work tirelessly at LCA and who are making it possible to increase the survival odds of this terrible disease.

I have been involved with Lung Cancer Alliance for the past five years. They are the voice for those who have lost their battle to lung cancer and those still fighting. I found the LCA after I was diagnosed with lung cancer in 2004. LCA is strong when you are weak and caring when you need an ear to listen. They fight everyday to change the numbers of our family and friends who have or may have to face lung cancer during their lifetime.

My Mom has been fighting Lung Cancer for almost 3 years now and because she is my mom, sister and best friend rolled into one it has been very difficult for me. LCA always keeps me informed as a member what is going on in the US concerning the fight against lung cancer and I also feel encouraged by reading stories from other members and stories posted by the LCA myself. I have gotten quite a few people to join as well because I feel so strongly about this organization. They are helping so many people fighting this awful, awful disease and also helping the families as well.

I was diagnosed with Lung Cancer in Oct, 2006. As devastating as that news was, our family began researching all we could immediately. We became connected with the Relay For Life project through the American Cancer Society. This year, I was challenged to "Fight Back" at the Relay. I chose to learn as much as I could about the myths and stigma of lung cancer. Since I have never smoked, it was shocking that I experienced much of this prejudice during my diagnosis and treatment. Nurses, doctors and other health care professionals assumed I smoked. In doing all the research, I came across the Lung Cancer Alliance. They welcomed me and embraced me. They sent me an incredible amount of material, including a t shirt which read, "I never smoked and I have lung cancer", which I wore proudly at the Relay event in May. The information and educational material that they share is phenomenal. My experience with the organization has been rewarding and enlightening. I am so pleased that I found them and only hope I can give back.

I am a lucky 6 year lung cancer survivor. I was diagnosed at stage 3A. I had surgery followed by chemotherapy and radiation treatment. As a result of the radiation, two of my coronary arteries became weakened and would not allow the plaque to come through. I had dual by-pass surgery 9 months ago as a consequence. I lost my father, uncle and two friends to lung cancer. We were all never smokers. I also lost two friends who had given up smoking decades ago. When I saw a newsletter in my surgeon's office published by the Lung Cancer Alliance, I knew I had to become its advocate to help erase the stigma, elevate awareness, and change public health policy. I am now working with the Lung Cancer Alliance as a "full time" volunteer to accomplish our goals. I feel very committed and am thankful to the Lung Cancer Alliance for the support, guidance and energy that has been provided to help realize our efforts.

I was diagnosed with stage 4 lung cancer in Dec 07.Still here!!Not just here, I am enjoying my new life.Due to the new targeted therapy drug Tarceva I have a great quality of life while i continue to fight.I will beat this for my sons.I really am the luckiest cancer patient i know!I wish everyone could live their life like i am without the diagnosis.The worse thing about cancer to me is making sure insurance knows i will question all mistakes.Fighting insurance along with ca is my new full time job!I would love to be someone that could help when you are down.We all have those days.I live for results every three months.Every three months is a gift....

In 1971 my father died from lung cancer. In 2007 my husband was diagnosed with small cell lung cancer and passed away in December 2007. I was shocked to realize that in 36 years nothing had changed in the course of treatment and, more importantly, the diagnosis. After losing the 2 most important men in my life to this horrible cancer, I found out about the Lung Cancer Alliance and became an advocate because people need to be educated about lung cancer and the fact that money is needed for research. This cancer KILLS MORE AMERICANS THAN ALL OTHER CANCERS COMBINED every year and A CURE MUST BE FOUND. The support and encouragement of this group is phenomenal and the word is getting out there as a result of LCA. Doctors who refuse to do CT scans or MRI's when asked by a patient's family must be censored and removed from practice. LCA is a professional organization and working extremely hard to get the word out. They are doing an awesome job.

When my mom was diagnosed with non-small cell lung cancer, I searched the web to find any information about it that I could. My resources were limited. After approaching Lunc Cancer Allinace for information, they sent me packets and booklets and books to read. To me it was comforting to know there were daughters, sons, husbands, wifes, sisters and brothers like me...facing what I was facing. The informatio they sent me was not good news. The average life span of a patient fighting non-small cell lung cancer is 13 months. My mom lived 13 months after diagnosis. Lung cancer must be put in the forfront of the mind. My mom never smoked and because of the stigmatism associated with lung cancer, her as well as countless other lives are lost. And just because someone smoked doesn't mean they deserve a death sentance. The funds to aid in survival need to increase and patients need to be given a fair fight! Heather Delaney

In the past two years I lost both my Mother and one of my best friends to lung cancer. Lung Cancer Alliance has been there for me throughout these two painful journeys. Their wealth of information kept me up to date on new treatments available, many of which helped both my Mom and my good friend through their battles. In addition they helped me become an advocate for this under funded, ignored cancer. I learned how to write to officials and when my voice needed to be heard. At the end of both my Mother's and my friend's lives when I was most helpless, I was able to write letters and feel I was doing something that will potentially help someone else even though my Mom and friend lost their battles. Without lung cancer alliance we wouldn't have the funding we now do for the number one cancer killer. THey have also given me the information that I need to educate the public about this disease. Whenever someone gives me sympathy about my losses I can recited the facts and figures of the disease and hopefully educate another ignorant member of the public. I couldn't do this without lung cancer alliance.

The people are AMAZING at this organization. They put their heart and soul into everything they do! In memory of my fater, every year we run a fundraiser and donate all earnings to Lung Cancer Alliance. They help those living with the disease and support those who have lost a loved one to the battle. We gained a lot of information on the disease through LCA!!!

Amazing people in this organization doing outstanding things. While much of their focus is advocacy, patient support is their mainstay, and I'm so lucky. Every time I get a diagnosis, or have a question, I run to their office. I'm so fortunate to be blocks away. They have educated me, hugged me and cared for me and thousands of people just like me. I sincerely don't know what I would have done without Lung Cancer Alliance.

I learned about the LCA after my mother's death from lung cancer. Their support and encouragement immediately after my mother's death and now, two years later, has been unwavering. The LCA has placed a face next to the words: "lung cancer." Through its advocacy work and education, the LCA continues to fight for research funding and is a strong voice against the stigma associated with this disease. I have volunteered for the LCA by doing some translation work and by helping declare November as "Lung Cancer Awareness Month" in two states. The LCA also stays abreast of new legislation and makes this information available to the public. I know that many people benefit from the work done by the LCA. I am sure my mother would be proud.

My experience with Lung Cancer Alliance has been so positive. I lost my sister to Lung Cancer five years ago. I contacted them and they were so informative, encouraging and warm. The staff is dedicated to do whatever possible to prevent our family and friends and future generations from deadly outcomes from this horrible disease. The staff and volunteers leave no stone unturned.

AMAZING. What else can be said about a group that in a few short years has put a face on lung cancer all across the country. Opened the ndoors to the U.S. Congress and Senate to have the 1st ever bill passed for lung cancer research in the amount of $20 million. They have taken to task groups, and government agencies to insure they do the right thing for lung cancer. A major driving force for early detection. It does saves lives. LCA has been very responsible in making people understand that lung cancer is not a smokers disease and it is not anybodies fault why they have lung cancer. Just ask the very large group who never smoked in their life nor did anybody in their families. I have stage 4 lung cancer. LCA has so many programs that I was able to take advantage of and are available at no charge to everybody. LCA plays a very big part in helping me stay alive. I was told there is NO chance, go home and die, one of the 1st places that I turned to was LCA.Even though it is so hard to find people to get involved and help fight this terrible disease some do step up to the plate. I know. I decided I needed to get involved to help other as LCA has helped me. I was allowed to establish Lung Cancer Alliance Georgia. There is no other group in the country that does what they do. I hope you appreciate and realize it.

Besides lobbying for increased research and attention to lung cancer, LCA makes a point of confronting the terrible stigma attached to lung cancer (given its association with smoking in the mind of most people. Of course, not even smokers "deserve" lung cancer, but plenty of non-smokers, such as my sister who died of lung cancer in August 2008 and who never smoked, suffer not just the illness itself but also the attached stigma. This reminds me very much of the early days of AIDS when this terrible sense of guilt and debate over "innocent" victims as opposed to those who were thought somehow to be "deserving" of their illness. LCA is a powerful voice against this kind of ignorance.

Thank goodness for the LCA. Not only is this organization dedicated to those who are suffering from the horrible disease...and their family, they advocate on their behalf. Keep up the hard work!

I'm really glad the LC is on Facebook of all things. It really brings us all together..people whose loved ones had cancer..and possibly people who have this awful disease.

When my father died of lung cancer in 2007, I was desperate to help fight this disease. The Lung Cancer Alliance not only welcomed me with open arms but also pointed me in the right direction, listened to my story, and provided some amazing support during a really tough time.

The Lung Cancer Alliance keeps me informed and connected to the problems, issues, and solutions related to lung cancer. It is an invaluable resource to me, a lung cancer survivor (since 1999.) The proactive measures taken by the LCA provide me with an advocate, an advocate that speaks for me to the medical community, the legislative community, the media community. I could not do all this by myself. The LCA is a voice for the isolated cancer victim and gives that victim a little hope knowing that someone out there cares and is fighting for a cure! Thanks to the LCA!!

My father passed away in 2005 and LCA was one of the first people we went to for help with doing something for the cause. They not only pointed us in the right direction but I can truly call their staff a family friend. They have touched my family and I forever and I will be forever grateful for their help, research ,tools and knowledge of this disease. Thank you LCA and keep up the good work.

I only wish my family had found the Lung Cancer Alliance when my father was diagnosed and before he passed. We struggled to find support services and the latest information about lung cancer therapies. At a time when we needed to be entirely focused on my father and his treatment, we were doing a lot of unnecessary legwork trying to get answers, searching for help. The avenues we tried didn't have much advice and didn't offer any hope. This young organization is largely unknown amidst other national nonprofits that have been around for a long time, but who hold a broader focus. It is going to take a laser like focus to bring lung cancer into the pubic debate, secure funding, and make dramatic inroads in survival rates. The LCA is top notch, cost efficient and entirely focused on LUNG CANCER. They are leading the movement to reverse decades of stigma and neglect by empowering patients, elevating awareness and changing health policy. If you or a loved one are impacted by lung cancer, you need to get connected to this organization. You or your loved one will benefit - and LCA can't change health policy without YOU. Become a face in the fight.