This non-profit was begun by a courageous woman who when informed she had 6 months to live made the choice to work to fund awareness and research into her rare cancer. Thankfully, she has survived beyond her 6 months, but her life has become a mission to help others. She continues to work tirelessly to raise funds and has been joined by many to aid in their work.
This organization has done a fantastic job raising funds for this rare form of cancer. It is a grass roots organization totally devoted to its cause. Beyond raising money beyond all expectations, it has been a support group for patients and their families, and a clearinghouse for those who need help finding the right medical care.