I was diagnosed with PMDD in March of 2016 after 10 years of misdiagnoses, confusion and feeling nothing but despair. I scoured the internet for resources on how to tackle PMDD head on as soon as I received my proper diagnosis. Time and again the GIa Allemand Foundation for PMDD website was where I built my knowledge base while on my quest. I am grateful to have had such wonderful women and amazing resources at hand. I have seen the camaraderie, support and genuine care and love displayed time and again to PMDD sufferers globally by all women who work in this organization. I am beyond thankful that I can now try and pay my knowledge forward and provide support as a volunteer to these women on their PMDD journey.
Two years ago, I was diagnosed by my family doctor with PMDD. I had never heard of it before. The fact is, I have had this disorder since I was 12 and menstruation started. That is quite plainly, a disorder that was left UNDIAGNOSED for 35 years!! I'm writing this review because only 3-8% of women have PMDD, and little is known about this disorder. In fact, to be frank, my medical community has failed me up until this point. 35 years of confusion about myself, poor self esteem, deep depressions, anxiety, rageful and suicidal tendencies, as well as self harm :( has been what I deal with on a cyclic basis since the age of 12. I had always assumed prior to diagnosis, that my issues were solely my own fault, like a major flaw, or weakness in my personality. UNTRUE!!! In the last few years, I have learned so much about myself, this disorder, my body and how PMDD has affected my life and the lives of others around me. I am still learning. THAT is why it is IMPARATIVE that wonderful groups such as the NAPMDD, are supported!! As women, in this day and age, we need not only AWARENESS about PMDD, but also a great deal of EDUCATION and SUPPORT!! The NAPMDD offers ALL of this!! It is also a great resource for our family and friends who NEED understanding of how to support us in the best possible way when things get too emotional to handle on our own. So PLEASE, continue to support the NAPMDD!! We are only at the tip of the iceberg, but there is so much more to learn, and women with PMDD need a cure! Their lives depend upon it! Keep up the great work NAPMDD!!
NAPMDD serves and support women and their families who struggle with PMDD. Their knowledge and personal experience is among the best. They are not a non-profit that just informs, but they give the tools and resources to women across the globe. The one seminar I attended was packed with information that was useful and I’ve put so much of what I learned to practice. NAPMDD makes life attainable when living with PMDD. ~Andrea Catlett PMDD Survivor
NAPMDD has provided me with many resources to aid in coping with the symptoms of PMDD. I appreciate the resources and help that each board member provided me personally. The national conference by NAPMDD was an amazing experience that I will always treasure. It connected me with people like me and has aided in my healing and coping process. So much that I applied for a board position. It has been an honor to sit on the board and work toward helping and improving the life of other women suffering from PMDD.
I am so thankful for NAPMDD! It's a place where I can find out information about PMDD, so I can better understand my health issues. I can even find ways to help deal with this very difficult health problem that has flipped my world upside down. I can't say enough good about NAPMDD!!!
I spent most of my adult life being controlled by the symptoms of PMDD. Heavy bleeding, migraines, panic attacks, low energy, foggy brain, food cravings, rages, depression, debilitated and forced to go to bed for days. I would get in trouble at jobs. And I would rage at my kids and husband for no reason. It was "Hell" for them and for me. When I was 38 I had a hysterectomy because of benign cysts. Almost the day after I felt different. As if some evil entity had been removed. As time went on I gained more energy, the rages and migraines stopped. I didn't have to go to bed and I could make decisions. I kept my ovaries and went on Estrogen. I was on it for a few years then I went through a natural menopause. Sure I had hot flashes and some moodiness but nothing compared to PMDD. I went on prozac for depression and panic attacks. They have been treated throughout my life. I am now 67 and I feel wonderful. I meditate, walk, and try to eat healthy. I use holistic remedies as well as medical care. I had a stroke four years ago and got T-Pa treatment resulting in no deficits. My life is full and I am content and happy. Amanda LaFleur had an event for NAPMDD and I went to it. When I heard about PMDD I told her that is me! I had that!! I was amazed. I was privileged to tell my story and lead a meditation at the conference in Aug. I met so many wonderful women and I am still friends with them. I hope I can be a North Star and show them that there is hope. And that it does get better. Nothing is more powerful than the support of other women who are going through the same thing. I am so grateful for NAPMDD the work that it is doing to help. And for Amanda Lafleur who gives so much of her talents, time, and support to help and other women to live with this debilitating condition and give them hope for a better life in the future.
I was suffering badly with PMDD for many years, and many years prior to being diagnosed. I had to leave my job because of it, which was a very low point for me. I found out that the NAPMDD conference would be happening a week after my last day at work, and my husband and I immediately registered to attend. I was presented with information that I never before knew about. I met other women who were also suffering, or used to suffer, and understood how PMDD ruined my life. I still have PMDD but I have hope and a support system, and that is priceless.
I feel blessed to be connected with this organization. I have had the opportunity to sell bracelets that represent our awareness ribbon and donate to NAPMDD. I have reached ladies from Australia,Northern Ireland,Great Britain, and the United States who all suffer from PMDD. Together we are raising awareness and helping each other in the struggle with this disorder. This organization is the main hub for information,connections,support,and events all pertaining to PMDD. It would be greatly appreciated to receive any funds to support this organization.
I am a mother of two and have suffered from PMDD for several years now. For a long time I struggled with this disorder alone, not really understanding myself and how my life has changed due to PMDD. I wouldn't be in the healthy place today without the work of the National Association for Premenstrual Dysphoric Disorder. The dedication, talent, hard work of Amanda La Fleur and the Board has literally helped save lives. I no longer feel alone and I also feel empowered to advocate for myself with medical doctors.