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GCS Project - The Gynecologic Carcinosarcoma Project

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Nonprofit Overview

Causes: Cancer, Health, Medical Research

Target demographics: Women with ovarian and uterine carcinosarcoma (GCS), also called Malignant Mixed Müllerian tumor (MMMT), a rare type of ovarian cancer or uterine cancer. To provide support and to help fund a cure for this aggressive gynecological cancer.

Direct beneficiaries per year: Established a groundbreaking research program to focus on finding a cure for carcinosarcoma. We raised over $200,000 to begin this new research. The early research included sophisticated analyses of tumor specimens from women with GCS (MMMT), analyzing tumor cancer cells for mutations in order to develop targeted therapies to destroy the cancer cells.

Geographic areas served: Global education and advocacy resource for women with GCS and their supporters. The research team includes Massachusetts General Hospital (MGH) and the Broad Institute in Boston.

Programs: Focused cutting-edge research into finding a cure for carcinosarcoma; educational videos and interviews with leading experts; support for self-advocacy.

Community Stories

10 Stories from Volunteers, Donors & Supporters

Donor

Rating: 5

This organization represents a rare chance to contribute to something unique because it truly targets a gap in the research landscape, the money goes entirely to the science, and it supports a female cohort essential to the fabric of our society but sometime undervalued. I give because of I love these women and how they have and continue to shape my life. Donations reverberate on a personal level, not absorbed in a vast pool of anonymous donations. Each donation has a name and that name gets a hand written card of genuine thanks. And no where else has such a small determined team harnessed the power of such mighty institutions as Mass. General, Harvard, and the Broad Institute. It is a nascent and novel movement we must fuel toward treatments and a cure. It is highly likely the findings from this research will benefit other cancers as well. It will be life changing to so many. A terrific and unique way to make an impact to our world.

1

Donor

Rating: 5

I feel this is one of the best cancer funds out there. 100 percent of my money goes to cancer research at one of the top research centers in the world. It is the only center in the world doing research on carcinosarcoma a very rare ovarian/uterine cancer. Their research is cutting edge with implications for treatment in other types of cancer too. This research is extremely important to me as I have a family member currently being treated at Massachusetts General Hospital and is receiving life saving care which she could not of gotten anywhere else. Their work is extremely important for those women with rare female cancers.

1

Donor

Rating: 5

I was very happy to have become a donor to the GCS Project and make a small effort to assist the Project to achieve its important goals. The Project focuses upon ovarian and uterine carcinosarcoma or (GCS) which is a very rare form of cancer. About two years or so ago, my friend (and former student) Diane Redington learned that she had contracted GCS. She didn’t take this news as one might expect by just resigning herself to her situation, but instead put her heart and soul into fighting GCS for herself and other women who have or will have this disease. Her strong will is an excellent example of what one can do even in the face of such adversity and the GCS Project serves as evidence of her fighting spirit. The Project has found allies all over the country, designed and developed an informative website and done fundraising that will support research and clinical studies that have not been undertaken in the past for those with GCS. Also, a major fundraising event in Nashville in April has been coordinated and Diane has teamed with researchers and clinicians at Mass General Hospital, Dr. Michael Bierer in particular, creating a united front against GCS. As a donor I am proud to be associated with Diane. As I told her, she has become an excellent teacher by being a life example for all of us who know her.

1

Volunteer

Rating: 5

When my wife first learned that she was stricken with this rare cancer two years ago - she had a day of morning - but true to form promptly went to work to find the very best treatment that was available. She learned everything she could about the disease and options eventually landing at Mass General under the care of world renowned Dr Bierer. Diane was most interested in any cutting edge research and perhaps clinical trials that could help her and other women. Finding there was scant general information for laypersons she started a web site GCSproject.org to create a platform for women and their families to share information and their personal stories. When Dr B informed her that there was no real research into this particular cancer because it was so rare - she set up a special tax free research fund at Mass General to fund such research. Any and all donations to the GCSproject research fund go 100% to fund research - no dollars are used for administration as that administration is handled by Diane, our family and friends. A phenomenal act of love and support and generosity and dedication from all involved has now led to the beginning of tumor specimen research at Mass General with the hope that specific new and fruitful treatment options will be discovered helping thousands of current and future women.
As above - rare cancers and diseases receive very little government or pharmaceutical research support so Diane, family and friends took the proverbial bull by the horns to make that research possible. A very unique charity.

1

Volunteer

Rating: 5

I've known Diane Redington for 40 years and she is the most hard working, generous and selfless person that I know. And she's a fixer of problems! So it's no surprise to any of her friends and family that when she was diagnosed with GYN carcinosarcoma almost 2 years ago, instead of shutting down, she hit the ground running, partnered with the great team of doctors and researchers at Mass General Hospital, and set out to raise awareness and find a cure. The GCS Project was born! This nonprofit is so unique in that EVERY PENNY RAISED goes to support research. Unfortunately, this isn't true for most of the more well known cancer research centers. The GCS Project has also established a website dedicated to provide information and to give hope to the many women and their families who receive this diagnosis and don't know where to turn. It's a privilege to volunteer with such a passionate and committed team!

1

Volunteer

Rating: 5

I currently work as a volunteer for the GCS Project to honor my sister-in-law Diane Redington who founded the project. One of my responsibilities was to film educational videos for the website. Several physicians volunteered to be filmed to share their knowledge of the disease and their responsibilities as part of the newly developed research team. They discussed their frustrations with the lack of research previously being done due to funding issues and their absolute resolve to discover a cure for carcinosarcoma and all ovarian cancers. It was an awe-inspiring experience to hear of the work being done and to witness the dedication of the physicians and researchers that now make up the GCS Project. This is one of the most insidious forms of cancer that prior to this project was simply a death sentence for the unfortunate women who fell victim to this predator. The GCS project has given hope and valuable information to these women and in many instances longevity of life. Finding a cure for cancer is one of the most prominent issues of our times. This is the most valuable volunteer efforts I’ve ever been associated with, not just because it's close to my heart because of my love for my sister-in-law, but because I truly feel that this team has the passion, intelligence, and determination to find an answer and a cure. This is history in the making.

1

Volunteer

Rating: 5

Although I have been an active volunteer for several nonprofit organizations over the years, I have never had the honor of participating in a grass-roots effort for a family member who has decided to fight her rare, terminal cancer prognosis with all her resources. Diane is an untiring inspiration to women and their families who are facing gynecologic carcinosarcoma. As a writer/editor, my goal is to support Diane's personal quest to fund state-of-the-art research at Massachusetts General with a world-class team of physicians who are relentless in their passion to solve the mystery of GCS and related gynecologic cancers. Thank you for helping us raise the funds required to sustain research for a cure.

2

Volunteer

Rating: 5

This project is near and dear to my heart. Almost two years ago my sister Diane was diagnosed with this devastating disease. With the diagnosis she discovered no treatments or research specific to her disease. Since that revelation Diane has dedicated her all to the GCS Project. The project is a place for women and their families to find support and information. Diane and her amazing group of volunteers network and fundraise for donations to make this project successful. ALL DONATIONS GO TO RESEARCH. This project is her vision to find a cure for this dreadful disease. I am so honored to be apart of this very important project.

3

Volunteer

Rating: 5

The GCS Project is very near and dear to my heart. My sister is a problem solver, and being diagnosed with gyn-carcinosarcoma almost two years ago is a problem that needs to be solved. Through the GCS Project, she has been able to share the latest research and provide hope for other women who suffer with this very rare cancer. My sister is speaking to women all over the country offering help and hope. Dr. Micheal Birrer and his brilliant team at Mass General Hospital are making tremendous strides in their groundbreaking research. We have been able to raise over $200,000.00 towards this research. The Project is run by volunteers and 100% of every donation goes directly to research.





3

Volunteer

Rating: 5

GCS/MMMT is a very rare form of ovarian /uterine cancer. There is very little information on the web and no research being done. The GCS Project was started about 16 months ago with the purpose of being a resource for women and families dealing with this monster.My sister was diagnosed with GCS/MMMT about 20 months ago. She started this project. One of the amazing thing about this project is the research it is funding. Research is being funded 100% by donations. All donations go to the GCS Project at Mass General. EVERY DIME GOES TO RESEARCH. All the fundraising is done by volunteers. The research team at Mass General is made up of a group of unbelievably gifted individuals dedicated to find a cure. The research team is headed by Dr. Michael Birrer. The research is under way, and they are identifying thing that will be used in treatments of other GYN cancers. This is absolutely unbelievable. We have raised over $200,000 so far. Our goal for this year is $300,000. Please help us reach our goal!