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2013 Top-Rated Nonprofit

Gavin's Got Heart

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Health, Heart & Circulatory System Diseases & Disorders

Mission: Congenital heart defects (CHDs) are the most common birth defect in the United States, affecting nearly 1 in every 100 babies. Gavin's diagnosis was determined at our 20 week sonogram as Double Outlet Right Ventricle (DORV) with Transposition of the Great Arteries (TGA), coarctation of the aortic arch, and a VSD. He was born at Columbia Presbyterian Hospital and undoubtedly had a challenging road ahead of him. At only six days old, we put Gavin in the hands of Dr. Emile Bacha as he underwent a seven-hour open heart surgery. Complications brought Gavin back to the operating room thirteen days later, to have a permanent pacemaker implanted; complete heart block being a complication of his first surgery. After two open heart surgeries before he was three weeks old and six and a half weeks in the NICU, Gavin has shown us what is truly important in life. Gavin is our heart hero...although small in size, he continues to inspire us in a BIG way!

Results: Since December 2012, we have been able to donate over $35,000 to heart families, Morgan Stanley Children's Hospital at Columbia Presbyterian Hospital in New York (specifically the Single Ventricle Clinic), and Cohen Children's Medical Center to fund heart screenings for students to detect undiagnosed CHDs!

Target demographics: families with children affected by congenital heart defects

Geographic areas served: New York (mainly)

Community Stories

14 Stories from Volunteers, Donors & Supporters

General Member of the Public

Rating: 5

GGH is a non-profit organization run by a very generous and wonderful family. They help out other families/ children deal with the same situation that they are dealing with. It gives hope, love and support to all who need it. It is amazing to see all they do and may God Bless them!!!

General Member of the Public

Rating: 5

Gavin's got Heart is a wonderful organization. They have done so much and come so far in a short time. The board really cares about everyone they help.

General Member of the Public

Rating: 5

Gavin's Got Heart is an incredible foundation near and dear to my heart. Their generousity, selflessness and relentless drive to raise CHD awareness is beyond words. My son also has several severe heart defects and I am so grateful for all that they do to raise awareness and give support. The family behind this organization is simply wonderful, their hearts are bigger than most.
- A fellow heart momma

Chase D.

General Member of the Public

Rating: 5

This nonprofit was organized and is run by the most amazing family. The generosity and compassion of Gavin's Got Heart owners comes through to the organization. The organization host many events each year to raise funds for its cause which satisfies a niche need that is so very important to families with children affected by congenital heart disease. Events such as walks, fishing trips, & summer blasts, are some of the ways the organization spreads awareness and raises funds. The owners of this family organization make this charity really special because of the personal efforts that they put into each and every detail. Any pledged support is so graciously accepted and directed to the cause. This organization is truly a top representative of its cause and should be considered among others as well.

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gavinsgotheart 10/29/2013

Thank you, thank you, THANK YOU so much for taking the time to write this kind review Chase! Your support means more to us than we could ever say!

Amanda111

Donor

Rating: 5

This organization is very near and dear to my heart! It was founded by my sister and brother-in-law who, in the words of Oprah Winfrey, “turned [their] wounds into wisdom.” Instead of crumbling under the circumstances they were given, they have used their personal experience and positive energy to create an organization to help those in similar situations. They are two of the most loving, selfless people out there who put their hearts and souls into everything they do, and “Gavin’s Got Heart” is no exception! I have donated and will continue to donate to this wonderful organization as much and as often as I possibly can. I love the fact that you know exactly where and who your money is going to help; it gives it a personal touch that many other organizations lack, in my opinion. I can’t say enough great things about this cause and am confident of the success this NPO’s future holds! For more information, visit www.gavinsgotheart.org and follow them on their facebook page at www.facebook.com/GavinsGotHeart

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gavinsgotheart 10/28/2013

You are the absolute BEST Amanda! Thank you, thank you, THANK YOU for writing such an amazing review...you are the sweetest! We appreciate your unending support more than we can ever even begin to say!

Volunteer

Rating: 5

Gavins Got Heart is a foundation started by incredible people with huge hearts that want to give back. Each fundraiser gives back to familys who are financially challeneged with high medical bills from children who have had surgeries related to the heart. The organization continues to grow and give back to people in need!

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gavinsgotheart 10/28/2013

You are so sweet Natalia to write such a kind review! Thank you so much for taking the time to do this...we appreciate your support more than we can put into words!

Vinny C.

Donor

Rating: 5

Sometimes donating to the big charities gives us comfort bc we gave to a noble "cause", but Gavin's Got Heart gives us a whole other level of piece of mind and comfort. The recipient of our donation has a face, a pulse and a family who's lives are truly affected for the better because Gavin's Got Heart exists.

This is a remarkable charity run by even more remarkable and caring people, who are changing lives family by family. Learn more about this organization and how it mends little hearts with great big ones.

Keep up the good work.

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gavinsgotheart 10/28/2013

Thank you SO much Vinny for taking the time to write this review and for all of your kind words! We appreciate it more than we can begin to express!

Andrea79

General Member of the Public

Rating: 5

I have attended both of the annual summer fundraiser's hosted by Nicole and Gregg, my neighbors and friends. The evenings were run smoothly and professionally. They managed to raise an awareness to congenital heart disease while people had fun. To see their beautiful son Gavin run and play with a zest for life melts me! That's when you know its all worth the work.

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gavinsgotheart 10/28/2013

Thank you SO much Andrea for taking the time to write this kind review! We appreciate your support more than we can ever say!

Volunteer

Rating: 5

Gavin's Got Heart is a wonderful organization. They put their heart and soul completely in to all fundraising and educate people as well. Seeing the amount of work that goes in to raising money for a family with a child who has a congenital heart defect is absolutely beautiful, because of the personal attention each family gets. Gavin's Got Heart is an organization that I completely support!

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gavinsgotheart 10/28/2013

Thank you SO much Nicole for taking the time to write this kind review! Your support means the world to us and we appreciate it more than we can ever begin to express!

General Member of the Public

Rating: 5

Gavin's Got Heart provides support and education to families of children with Congenital Heart Defects. They also dedicate endless hours raising funds to help offset the costs of surgeries for these children.

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gavinsgotheart 10/28/2013

Thank you SO much for taking the time to write this kind review! We appreciate your support tremendously!

General Member of the Public

Rating: 5

Gavin's Got Heart is an amazing organization supporting families of children with Congenital Heart Defects. Through their well planned fundraising they are providing direct support to families while raising awareness. Congenital Heart Defects are the #1 birth defect and this is the only non-profit I know of that directly provides financial support to families during very difficult times.

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gavinsgotheart 10/28/2013

Thank you SO much for taking the time to write such a kind review! Your support is appreciated more than we can ever express!

General Member of the Public

Rating: 5

Gavin's Got Heart is an amazing organization! To see the help they've been able to give, to share their story and raise awareness is just incredible! I think Gavin is a gift to everyone he meets and is an adorable face that draws people's attention to a cause that so many people can benefit from.

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gavinsgotheart 10/28/2013

Thank you SO much for taking the time to write this kind review Laura! We appreciate your unending support more than you know!

Donna122

Donor

Rating: 5

I've known Nicole, the founder of Gavin's Got Heart since she was a young girl. She was always a beautiful, warm, friendly, caring and outgoing person and I've watched her grow up into that and so much more as a woman and now, a wife and mother. I've known her husband since they met each other, and they are absolutely the most loving couple and have hearts bigger than life!
When they found out that their baby in utero had CHD, it was shocking and devastating news to them, and all who knew and loved them.
They have been nothing but brave and truly amazing, and now, heroes to so many other CHD families. It was no surprise to me when I first heard that Nicole founded GGH, and it's no surprise to see the amazing support that has followed them through their journey with their incredible heart hero, Gavin.
Since the start of GGH, they have been so successful in spreading the word about CHD and sharing Gavin's story by hosting numerous fundraisers, speaking at schools and Chamber of Commerce meetings, just to name a few. They have already helped several other heart hero families with the funds raised and just by being supportive and sensitive to other CHD families.
I'm super proud to help at any event that GGH hosts when I'm able to!
I had no doubts that Nicole would be successful, just because of who she is, but, GGH, absolutely goes over and above to help meet the needs of these precious heart heroes!

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gavinsgotheart 10/28/2013

Oh my goodness Donna...your words are SO sweet and we truly appreciate you taking the time to write this review! Thank you, thank you, thank you!

General Member of the Public

Rating: 5

Gavin's Got Heart is a non-profit organization dedicated to raising awareness about CHD's (Congenital Heart Defects) and supporting families in their local community who are affected by them.

I have been to a number of GGH functions and fundraisers and met many of the young children and infants affected by CHD's that all the money raised benefits. GGH has given money to families to help pay for hospital bills, they have donated Christmas gifts and toys to the children who are stuck in the hospital fighting for their lives. And they have done all this with nothing but love and a hope to spread awareness and save lives.

They have been instrumental in getting bills passed which now require infants be screened for CHD's before they leave the hospital - as early detection can save lives.

I can not say enough wonderful things about this organization and their founders. They are amazing and strong people who genuinely want to help others and in less than a year they have already had a huge impact on their local community and have helped many children and families affected by CHD's.

I personally have made donations to the organization and will continue to do so as often as i can.

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gavinsgotheart 10/28/2013

Thank you from the bottom of our hearts Stef for writing such an unbelievably kind review...you are amazing! Your unending support means the world to us!