My beautiful 16 year old daughter, Faith, was diagnosed in September 2012 with Idiopathic Gastroparesis. We had never heard of this disease before, and to put it bluntly, while I was relieved that the doctors had finally could explain why my daughter had been so ill for several long months, I was also petrified as to what this diagnosis meant for my daughter. I came across the G-PACT website when I was doing research on my daughter's condition while waiting the two weeks it took between getting the diagnosis and actually getting an appointment to see her pediatric GI specialist. Many of the sites I found provided generic information about Gastroparesis, but the G-PACT site is different. As I looked at the information on this site, I knew I had found an organization that cared about my daughter and other people suffering from severe chronic digestive illnesses. Not only is G-PACT actively working to raise funds for research into diseases like Gastroparesis, it also provides support groups for and pertinent information about these disease to people who suffer from them. My daughter has been able to connect with other young people who also have Gastroparesis which has been a blessing because it has helped her realize that she is not alone. It is wonderful for her to be able to share her experiences with others who understand what she is going through. I have learned more about how to meet the needs of my daughter through the information provided by G-PACT than I have through any other source, including her doctor. We live in a state where we have no medical professionals who are specialized in treating Gastroparesis, so this information has been a life saver. I have just signed up to be a volunteer for G-PACT because I truly believe in and appreciate the work they do.
I am Jodi, from Delaware. I was diagnosed with Gastroporesis this April (2017) after one year of pain and suffering. Prior to this diagnosis, early last year, I was diagnosed with Gastritis. I also suffer from IBS-C (for about 2 years), but most of my life had IBS-D. I also have GERD, Barrett's Esophagus, Hiatal Hernia, phew. So my GI tract has been acting up for some time now. IBS-C causes serious along with the Gastroporesis.
I suffer daily from Gastroporesis, can barely eat 2 meals/day, and drink Glucerna as a supplement. I spend most of the day on the sofa, with a heating pad to cover my abdominal area. If you haven't tried one, the heating pad helps ease the pain. Unfortunately, I have Tardive Dyskinesia, which is the most serious side effect of the Gastroporesis medication, so unable to take it.
I have read about Gastroporesis, but am interested in learning how other folks manage their disease. I would like to speak to others about the ins and outs of daily life.
Last week, I had Botox injected in the Pylori area (where stomach ends, before dumping into intestines. So if you have questons, please ask.
God bless you all.
I'm 31 April Leone diagnosed this year with extreme case of Gasteroperises I go through 2 weeks of nausea a month nothing works on reglan don know how to live the rest of my life like this have no experience and need help group or support please 7276003804
This organization has been a great help to my wife. It has given her a lot of resources to refer to and provided a lot of support.
It wasn't until I dug below the surface that I learned what G-PACT really does. They are not only a thousands-strong patient support community. They are more than helpers who print cards for patients. They are also investigators who find the people in media and government who are fighting the same fight, and they collaborate with them.
Maintaining a social media presence is one thing, but having physical meetings with legislators to make the needs of the digestive tract paralysis community known, that is something rare and potentially game-changing.
Staffed by volunteers, almost all of whom suffer from the diseases the Org supports, there is copious compassion, empowerment, and educational opportunities.
G-PACT is pushing a very big boulder up a very big hill tirelessly. Help them however you can. I chose to dedicate my time and experience to the volunteer board of directors. There is room to help, and a strong sense of what that help actualizes into.
This organization has given me so much information and hope. I have a 5 year old that has suffered for a few years, and I have learned more here than with any doctor.
Gpact has given this momma and her teen daughter a better understanding of what was to be expected so much more then her drs prepared us for ..we are still new to the gastroparesis world ..but with Gpact in my pocket of resources I'm not as worried or over whelmed with dealing with this disorder .. now if only we can get the world to understand we would be golden .. anyone who ever hasld questions that I couldn't answer I send them to this group.. school nurse and teachers as well as family members are all one the same page ..I couldn't ask for better support we love Gpact ♡♡
Great group of volunteers and they really care about us patients! They have done so much for the gastroparesis community over the years.
G-PACT is always available to help patients understand their illness. Plus, the do a great job of increasing awareness. They advocate for us all daily and many of us would be lost without them.
g-pact is an amazing organization and an indispensable resource for info about treatment options and the latest research.
So much useful information. This site has been a God send through this entire nightmare. I love the pamphlets I received as well. Big thank you to everyone involved!
Awesome organization. This is an organization which is fully staffed by volunteers so every single penny goes directly back to patients in some way. They are leading the fight against Gastroparesis, chronic intestinal pseudo-obstruction, and colonic inertia. They are doing the first and only international IRB approved research study into GP. The volunteers are available 7 days a week and genuinely care and understand my needs because they all have it themselves. They know exactly what patients need and work to gear all programs to meet those needs. The volunteers are very personable and take time with ME, even though they have their own serious health issues. They have so many totally free resources, provide a wealth of the latest info, founded DTP awareness month, and have a huge international presence. They just get me. They understand from a first-hand perspective, not just head knowledge and facts. They know with heart and they show it. They are very responsive to me and do as much as they can to ensure I get as much support and info as possible. Their integrity is so high and they are open and honest about everything. They work as hard, or harder, than people who get paid. It's a passion for them...not a job. I've been a fan since almost the beginning, and they have grown so much! I fully trust them with my privacy and their expertise in this area!
I have volunteered for this organization and was disappointed of the misappropriation of money being used. Good for information, but I would never ever donate my hard earned money to them.
This comment was made by a disgruntled volunteer who was let go in 2013 after only three months. She never had access to any financial or operational information. G–PACT is a GuideStar Gold participant, which means we are committed to transparency and annually update our financial records through GuideStar. You can view our records on GuideStar or email us at email@example.com with any specific questions.
This organization has helped so many, including myself. They have taught me so much about Gastroparesis. I thank God for them.
This fabulous group has unselfishly helped so many; from information and support for those with the condition (s) to raising awareness so even more can be helped.
G-PACT provided more information about my disease than any of my doctors have. I learned about medical options, joined their support forums, and learned tips for caring for my feeding tubes, traveling with medical equipment, and navigating life with a serious and chronic illness.
I have been helped by these people for seven years and have helped as a volunteer for a couple years.
Incredible foundation that raises awareness for those who cannot seek the attention they deserve. These are terrible disease which need cures today! No child or adult should starve to find a cure! Thank you G-Pact for raising awareness!
G-Pact is a great organization for patients. I have full Digestive Tract Paralysis. As I have gone through varying stages of this disease (diagnosed in 2004...sick since 2000), G-Pact has been there with dietary recommendations, research, resources to become familiar with medical terminology, information about clinical trials and medications, and much more. They are also there when you just need someone to listen or a little pep talk. Thanks G-Pact!!!
This is an awesome organization. I was diagosed in 2002 and everyone has been so incredibly helpful; from support and adivice to petitioning my insurance company to cover a surgery for me. Everyone is wonderful!!
Great organization that has helped my wife so much. She can get answers to her questions almost anytime during the day and night. They really work hard to help others.