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Nonprofit Overview

Causes: Health, Voluntary Health Associations & Medical Disciplines

Mission: To raise funds for Essential Thrombocythemia, (ET), a rare bone marrow disease. Because this is an orphan disease, there has been little attention paid to ET within the scientific community. Our goal is to raise as much money as we can to support vital research. We provide funds to various medical research institutions who study this disorder. We hope to one day find a cure.

Programs: We conduct an annual or semi-annual mail campaign(s) to raise much needed funds for scientific research. Essential Thrombocythemia (ET) is a rare blood cancer and very little is truly understood about the disease.

Community Stories

5 Stories from Volunteers, Donors & Supporters

Joy and Happiness

General Member of the Public

Rating: 5

I have learned a lot about MPNs. Most notably Essential Thrombocythemia by following this organization on social media. More specifically on Face Book. I have improved my knowledge which has been invaluable. As an orphan disease ET and other MPNs need advocates that raise awareness as well as money. These friends do a lot and I am happy to recommend them.

Previous Stories

General Member of the Public

Rating: 5

This Non Profit does great things for this orphan disease of Essential Thrombocythemia. As well as for the MPN community in general. Orphan diseases are mostly neglected by the scientific community. Thus, non profits like this that raise money to fund research are imperative.



Rating: 5

Because of the dedication of very devoted people whose families have been impacted by this disease, the public is becoming more informed about it. This particular not for profit organization has raised the awareness of how limited the resources are to help find a cure.

Board Member

Rating: 5

I founded this non-profit in 1999 to raise funds for research initiatives after our daughter, then 16, was diagnosed with Essential Thrombocythemia (ET.) Through 2018, we have raised $750,000, all of which has gone to research. Through these donations from our generous donors, the science has increased dramatically, but we still have so much more to learn about these rare bone marrow cancers. Please continue to support our efforts!

Christopher S.5

General Member of the Public

Rating: 5

Wonderful Charity, they have done fantastic work in helping my family gain some understanding about this disease. I hope more research can be done in the future so we can know more and save more lives!