I have learned a lot about MPNs. Most notably Essential Thrombocythemia by following this organization on social media. More specifically on Face Book. I have improved my knowledge which has been invaluable. As an orphan disease ET and other MPNs need advocates that raise awareness as well as money. These friends do a lot and I am happy to recommend them.
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I founded this non-profit in 1999 to raise funds for research initiatives after our daughter, then 16, was diagnosed with Essential Thrombocythemia (ET.) Through 2018, we have raised $750,000, all of which has gone to research. Through these donations from our generous donors, the science has increased dramatically, but we still have so much more to learn about these rare bone marrow cancers. Please continue to support our efforts!