Because of the dedication of very devoted people whose families have been impacted by this disease, the public is becoming more informed about it. This particular not for profit organization has raised the awareness of how limited the resources are to help find a cure.
I founded this non-profit in 1999 to raise funds for research initiatives after our daughter, then 16, was diagnosed with Essential Thrombocythemia (ET.) Through 2018, we have raised $750,000, all of which has gone to research. Through these donations from our generous donors, the science has increased dramatically, but we still have so much more to learn about these rare bone marrow cancers. Please continue to support our efforts!
Wonderful Charity, they have done fantastic work in helping my family gain some understanding about this disease. I hope more research can be done in the future so we can know more and save more lives!
This Non Profit does great things for this orphan disease of Essential Thrombocythemia. As well as for the MPN community in general. Orphan diseases are mostly neglected by the scientific community. Thus, non profits like this that raise money to fund research are imperative.