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- EIN 31-1763110
- (888) 322-5487
- 340 S Lemon Ave 3620 Walnut CA 91789-2706 USA
- www.fpwr.org
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Nonprofit Overview
Causes: Birth Defects & Genetic Diseases, Birth Defects & Genetic Diseases Research, Health, Specifically Named Diseases
Mission: The mission of foundation for prader-will research (fpwr) is to eliminate the challenges of prader willi syndrome through the advancement of research and therapeutic development.
Programs: Support research designed to advance the understanding and treatment of prader-willi syndrome. Prader-willi syndrome (pws) is a rare genetic disorder affecting approximately 1 in 15,000 births. Pws is a life-threatening medical disorder caused by loss of active genetic material on chromosome 15. Nearly every system in the body is impacted by a pws diagnosis. Among other things, pws affects:- hormones - muscle strength - appetite - behavior - cognition and learning - temperature regulation - pain tolerance - sleep patternsbehavior problems are also common and are worsened by an unrelenting, overriding physiological drive to eat. For someone with pws, the feeling of fullness after eating is absent. Currently, there is no cure for prader-willi syndrome. For many individuals affected by the disorder, the elimination of some of the most difficult aspects of the syndrome, such as the insatiable appetite and obesity, would represent a significant improvement in quality of life and the ability to live independently. In 2017 fpwr invested $1. 6m into pws research grants and directed projects. In addition to grants, we continued investments into our directed research programs such as a pws mindfulness intervention, the development of new animal models, the pws clinical trials consortium and the pre-clinical animal network. More fpwr funded research was published in 2017 than in any year prior: 37 publications were added to the medical literature, further defining pws and increasing our understanding of this complex disorder.