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FARE does more harm than good to those of us who have a medical history of life threatening reactions to any of the many foods FARE hasn't chosen to prioritize. One in ten Americans with a history of life threatening food allergies to unregulated food allergens, yet the only one of more than 160 unregulated food allergens that FARE currently advocates for is sesame.
The rest of us write to manufacturers urging them to list every ingredient by name in the fine print, only to get a boilerplate primer and a referral to FARE for introductory information--as if those of us who already know that US federal law allows manufacturers to change "natural flavors" formulations at any time without notifying the public were in need of a primer about what the top 8 food allergens are.
"A little knowledge is a dangerous thing," Samuel Johnson once wrote, and FARE specializes in providing just enough knowledge to stonewall the many people who slip through the cracks of existing regulation.
FARE has never published specific guidance for hospitals to accommodate unregulated food allergies in admitted patients, yet FARE finds the resources to turn the Empire State Building teal each year.
FARE has never urged food manufacturers to avoid vague phrases in ingredient labels such as "natural flavors" or "natural colors" or "spices," yet FARE finds the resources to promote teal pumpkins at Halloween.
FARE provides no guidance for food allergic mothers who are told to introduce their babies to potential allergens--even though adult onset allergies frequently occur in conjunction with pregnancy so those mothers may be newly diagnosed themselves.
FARE provides no specific guidance for geriatric care, even though adult onset allergies are frequently associated with menopause.
FARE currently endorses proposed legislation in Congress that allocates no funds for tracking the incidence of anaphylactic reactions to unregulated allergens.
FARE has refused accommodation requests from patients with a history of anaphylaxis to unregulated food allergens at FARE's own conferences.
This review gives a second star because FARE does do good for a certain type of food allergy patient. Yet this organization is more interested in controlling the conversation than in living up to its claim to represent all people with food allergies.
In reality FARE treats significant segments of that community like acceptable casualties.
Living with three children with severe allergies to peanuts and tree nuts can make life difficult and very stressful at times. FARE has given me tremendous guidance and support as we deal with the questions and issues that arise. Thank you FARE, we couldn't do it with out you!
I have a daughter that has a severe peanut allergy...She is now 19 years old and was diagnosed at the age of 2. When she was first diagnosed 17 years ago it was VERY uncommon. I felt like I was alone. Thanks to great advise, columns, newsletters and materials from FARE (then FANN) I was able to handle this diagnosis and feel like I wasn't alone. This organization was helpful in so many ways!
When my son was one year old he was diagnosed with multiple life threatening anaphylactic food allergies. After viewing a 5 minute video on the use of an Epi-pen in the allergist's office, my husband and I were sent on our way with no instructions on how to safely feed a child with food allergies. We were familiar with the problem because our nephew had similar allergies but we didn't know how to manage it ourselves. We soon became very familiar with FARE and used the website to find information on safe foods and where to find them, education regarding how to deal with food allergies from other parents and used the food allergy action plan for our son's daycare and school. We soon realized that we had far more support than the parents who went before us, such as my sister, due to the amazing efforts of this organization to educate the general public about food allergies so that our dealings with teachers and other parents have most often been met with compassion and understanding. This was not so 10 years earlier for my sister who fought tooth and nail with her son's school for his right to be kept safe. We are so thankful for FARE an amazing organization.
As a school nurse I use materials from FARE as I educate children , parents and classmates, teachers and administrators. I love this website. When you live with life-threatening food allergy you never can let your guard down. This organization delivers 100%.
I have had contact with FARE since 2008 & have gotten so much valuable information about food allergies.
I use their Food Allergy & Anaphylaxis Emergency Care Plan every year, along with many other on-line resources. It's nice to know that I can call them with allergy related questions and get knowledgeable answers.
I learned of FARE when my child 7 months old at the time, was diagnosed with an Egg allergy after experiencing anaphylaxis. My daughters pediatrician was very laid back about the experience, and did not give much information. That's when I got on line and found FARE. It really helped educate me on the dangers of food allergies, and also helped answer some of my many questions. I then found out that most children see an allergist, and I found her a top pediatric allergist at the U of M. Where my questions were further answered. I love FARE for their legislation involvement in trying to make the world a little bit safer for my food allergic child.
My son has life threatening food allergies to tree nut. FARE has been my go to from the beginning! They have been there to not only guide me through advocacy issues, and educate myself and my family, but they have held my hand when I needed some emotional support! FARE is TRULY amazing and the people who work there are heroes to me. They are fighting a huge battle, and it would be impossible for me to do this alone. They are a HUGE part of my village in raising my children!
THANK YOU FARE for not just being there but doing what you do! You inspire me to know my son can be a normal child and you are my rock and support in a world where so many just don't understand!
I have two sons with peanut, tree nut, & egg allergy. FARE is my go-to support line. We have done the FARE Walk in Hopkinton 5 times. It is amazing how my sons react when they see so many other kids that have to deal with food allergies. It is a wonderful event & has helped my boys cope and become a valuable family activity/tradition.
My son has a life threatening allergy to peanuts. I know everyone, when their child is small, and they introduce their child to questionable foods for the first time, they are nervous. You always hope "gosh I hope he doesn't react to this peanut butter". I remember that feeling and when I saw the reaction, I was so scared. I thought, "how am I going to navigate this scary, scary life and teach this child to navigate it too?" He's 4 now. I'm learning and he's learning and there is absolutely no way we could have done it without the resources from FARE. Advocacy & Awareness are key. I have to keep him alive every day and I have to teach everyone who comes in contact with him how to keep him, and others like him, alive every day. Its FARE that provides the best resources for us, so we CAN help others understand what to do and also the resources for us so WE know what's best for us and what helps make this life easier.
Peanuts are not his only food allergy. He has multiple food allergies. Peanuts are the scariest for me though. FARE has been great for us and so we do as much as we can to get out and support our FARE Walk.
FARE is amazing. My son has 32 food allergies, many being life threatening. This is the one source that I rely on, trust, and count on them for sending updates about accidental allergens in foods.
They have great articles, discussions and give my son and I a network of people who understand and get our daily life with food allergies.
THANK YOU FARE!!!! We are so grateful for you!!
I am not only a registered dietitian who see patients with food allergies, but I am also a mom with a 2yr old daughter who has a peanut, tree nut and egg allergy. She was diagnosed a year ago and everyone told me if anyone was prepared to deal with this it would be me knowing my background in nutrition. Unfortunately, it isn't as easy as everyone thinks. There is a feeling of loneliness and helplessness that goes along with this at times. Funny enough one of my patients told me about FARE and the first time I went to the site I felt a sense of relief. I now knew of a community that was dealing with the same thing my family was dealing with. The updates I receive about possible undeclared allergens are a lifesaver and learning about all the research being done to find a cure is amazing. I now have a place to go to help my daughter and my patients. I feel so fortunate to have found FARE.
I remember the moment clearly. The moment my son was officially diagnosed with food allergies when he was 4 months old. My family and I had no previous experience with food allergies, and we had no idea where to start. The information and support provided through FARE was a phenomenal help to me and my family as we figured out how to manage my son's food allergies and keep him safe. My son is now 3, and we're still learning. We especially appreciate tools like their chef cards to use at restaurants and their new and improved food allergy action plan. We depend on FARE to stay informed and educated and help keep my son safe.
My daughter has food allergies and FARE helps so much by posting information, providing a place where allergy parents can share information and stories, and advocating for our children with food allergies. Thank you FARE!
Both of my grandsons are living with severe food allergies. I am so grateful that my daughter and son-in-law have found FARE. Parents tends to feel overwhelmed, guilty, under-informed, alone... but FARE offers a support system for the day-to-day struggles and also hope for a better future. The numbers of children who are effected is staggering. Thank you, FARE.
My daughter was diagnosed with asthma and multiple severe food allergies at 1 year of age. Now age 11, she is a confident preteen, managing her condition well daily. Outside of her doctor, FARE has provided our family with every form of support a family with food allergies needs. And through find raising efforts, we are delighted that we can help them to do the same for others dealing with this condition.
Laura
I live far from the US, still FARE is my go to place to keep updated on allergies. Wonderful at providing info and the latest updates. They also do things like informative webinars, all of this is most helpful to parents of children with food allergies like me. Their supporting different investigation projects in this field is also very positive for a future cure.
There are so many helpful resources coming from FARE. Finding yourself new to the world of food allergies as a parent you are looking for answers and help. FARE provides that & I greatly appreciate all that the do. The forms that they provide are extremely useful. The updates given in cooperation w/food manufacturers regarding potential allergens in products can be LIFE SAVING! We appreciate the impact that FARE has had on our lives and throughout the food allergy community.
My niece who has a severe peanut and tree nut allergy has made our whole family get more educated in food allergy issues, fund raising and general awareness and education. As her aunt, I head up her food allergy walk web page and have made it my goal to go with her every year to the Teen Food Allergy Summit - a place where she feels just like everyone else because they all have food allergies too.
Being proactive and helping find a cure for food allergies is better than being a victim and I support FARE for their research and other activities.
FARE has made me feel like I have the ability to FIGHT against food allergies. When I found out my son was severely allergic to peanuts and tree nuts, I felt helpless. I had no control over this...I couldn't fix it or make it go away. WE had to make changes because the allergy would not change for us. Maybe I'm sort of a control freak but it devastated me that I could not fight back. FARE gives me the hope that we will someday find cures for these life threatening food allergies. It gives me the hope that this increase in food allergies will decrease once we find out why this is happening. It gives me the hope that one day I could go into a restaurant and feel that everyone understands the seriousness of food allergies.
By fundraising for FARE, whether it is my personal donation or asking friends to contribute, it is for a great cause...researching and educating. Fundraising for FARE has helped me educated my friends and family just by explaining what food allergies. Awareness is KEY! It's our way of fighting back and FARE gives us that chance.
FARE is incredibly resourceful, comprehensive and clear in providing very helpful, even life-saving, information to people with food allergies. Given the rising prevalence of food allergies and the amount of education that must be done regarding public entities like restaurants, schools and airlines, FARE is providing an essential public service. FARE's information and outreach is consistently clear and targeted to those who need it.
FARE has helped me in so many ways it is difficult to document them all here. I am a single mother of a 7 year old with peanut and tree nut allergies. It is a struggle to say the least but with the help of FARE's excellent site information, links to relevant products/services, updates on research, advocacy...and most recently two webinars, I feel so much better prepared to deal with the situation and educate others.
FARE should have hired people with personal experience of food allergies. Instead they hired fundraisers - dozens of them - who can't answer any question about living with food allergies. FARE has lost their focus on education and advocacy. Everything is focused on how to get the food allergy parent to give money to them.
Picture me, the mother of a 3-yr-old with severe nut allergies among others, standing at the ticket counter of a major airline two hours before departure, tears streaming down my face because they were refusing to tell me whether or not the flight would serve nuts. I had made a nut-free flight request weeks ahead, called a couple of times to confirm, and now - having been mislead in the past by an airline - I was simply asking the agent to let me know what snack was planned so I could decide to board with my child or to stay on the ground. As the agent absolutely refused to answer my question, it occurred to me to call FARE (FAAN in those days). They 'talked me down.' Advising me calmly but with great sympathy, they helped me pull myself together and try one more time, with specific information and dry-eyed eye contact. That worked (the snack turned out to be pretzels). How many times have I turned to FARE over the past seven years for basic and experimental medical information; educational materials for my family, for our school, and for my son; birthday cake and holiday recipes; and advice on how to navigate school, family holidays, playdates, and more. In our family, FARE is the Greatest Nonprofit!
I recently participated in the 2014 FARE walk and it was such a great experience! My son has several food allergies and I was amazed with all the vendors who attended it gave me a chance to try new food that was allergy free. I also get emails from FARE about food recalls which is a great help. I absolutely love everything about this organization!!
I have a child with food allergies and the resources they make available and the research they support.
The educational webinars are all terrific sources of information
Without this organization, we could not have survived our son's food allergy diagnosis with our sanity. They provided and continue to provide a lifeline of true support, education, resource materials, and advocacy. They have helped us educate family members, teachers, friends, and ourselves, and provided materials helping us successfully navigate the scary prospect of sending our son to public school. They continue to advocate for the food allergy community and have been pivotal in introducing and passing legislation protecting our children in schools. They are the first place we go when we have a question, concern or issue, and the place we refer others to when needed. We cannot say enough good about this invaluable organization.
I have a child with life threatening food allergies. FAAN provides resources that have been extremely valuable to our family, friends, and schools. FAAN educates and advocates for people with food allergies. They are active in my community by providing schools with education regarding food allergies. This organization has positively impacted our lives.
I have a child with food allergies and find the resources, information and support from FAAN invaluable! They provide so many resources on the website, so many opportunities for friends and family to get involved and also encourage political lobbying when necessary to keep our kids safe. I could not recommend this charity enough!
Review from CharityNavigator